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Topic: The radiologist told me it was cancer

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Joined: May 2008
Posts: 36
  • Posted on: May 10, 2008 09:25 pm
kira wrote:

I had a normal mammogram in September, but my breasts felt more lumpy-they're always dense--and I saw my gyn who was not concerned, but ordered a diagnostic mammogram. At the mammogram, the radiologist told me it was suspicious and needed a biopsy. After that was arranged, I asked what she thought, and she said "This is cancer." This was Thursday, and I had the ultrasound guided biopsy on the next morning and see the surgeon on Monday.
I have to assume that it's a high probability. I've just never heard of a radiologist making the diagnosis before the biopsy.
Now, I'm hoping the surgeon will have the pathology and tell me what the next step is.
I'm sort of feeling guilty because I noticed that they the breast was more dense, but followed it through a menstrual cycle before calling, so now that she said "it's cancer" I feel like I delayed the diagnosis.
Kira

Posts 1 - 9 (9 total)
towens88
Joined: May 2008
Posts: 13
May 10, 2008 10:06 pm towens88 wrote:

Actually, I just had the same thing happen to me.  On a Monday, I was given a mammogram and an ultrasound and the radiologist told me it was cancer, but I knew that he couldn't diagnose me until the biopsy.  I had the biopsy on that Friday, and was told that it was cancer on the following Monday.  I asked to have a copy of my pathology report to see how progressive it was.

robink
Joined: Apr 2008
Posts: 150
May 10, 2008 10:07 pm robink wrote:

Kira,

I am sorry for you for the way the radiologist handled your question.  In my opinion, until confirmed by a pathology report you shouldn't be told you have cancer.  The day of my biopsy I asked the radiologist the same question to which she strongly replied "I don't like it, I'm concerned".

Thank God you have had your biopsy and will see the breast surgeon Monday.  I hope the pathology report will be available so you will know one way or the other.

Please ease up on yourself.  You had your mammo in the fall.  You were watchful through a cycle and then you acted on what you knew was a change in your breast.  You will have your diagnosis soon and then you will be given options specific to your situation.  So no, you did not delay a diagnosis.

I won't tell you not to worry.  That is something we all did when we were in your place. I want you to be reassured that IF you do have breast cancer it is very treatable and there will most likely be several options for you.  So you will have some control in your treatment, if treatment becomes necessary.

Breathe.

Robin

Robin K.
Dx 2/7/2008, IDC, 1cm, Stage I, Grade 3, 0/2 nodes, ER+/PR-, HER2-
wishiwere
Joined: Dec 2007
Posts: 1467
May 10, 2008 10:10 pm wishiwere wrote:

Kira, relax till you talk with the surgeon. Until that pathology report comes through, it isn't dx.  The radiologist was wrong to say that.  She might think it, but could not prove it till the path came in.  I've never heard of a doctor BS or Onco that would say that without path report either.  The good ones anyway.

Secondly.....it takes years, sometimes 10 years for a lump to be large enough to palpate.  You didn't delay, you did what ever woman does and that's to see if it's cyclic with your menses and then get it look into. 

Hoping you get B9 report, but if not, we're here to guide you though.  Thinking about you and hope you are finding things to keep your mind and soul busy till you meet with the doctor.

wishiwere
Dx 9/21/2007, ILC, 1cm, Stage I, Grade 2, 0/4 nodes, ER+/PR+, HER2-
wallycat
Joined: Apr 2007
Posts: 683
May 10, 2008 10:36 pm wallycat wrote:

I am sorry you are dealing with this whole mess.

I agree that pathologists should be the ONLY ones to tell you the results.

My radiologist told me mine was unlikely to be cancer.  It turned out she was wrong... 

Dx 4/07; ILC 1.8cm, ER+/PR+, HER2 neg., Stage 1, Grade II, 0/5 nodes. Bilateral Mast., tamoxifen
FitChik
Joined: Sep 2005
Posts: 4227
May 10, 2008 11:03 pm FitChik wrote:

I had a similar situation, although the radiologist didn't say that it IS cancer but, rather, that it was highly likely to be since a spiculated pattern almost always occurs only with malignancy. He was correct, of course, but I was actually glad to have received the news in increments, if you know what I mean. It was less of a shock when I got the path report from the biopsy.

I totally agree with wishiwere about your having acted perfectly reasonably....AND about the fact that a cancer usually grows for quite awhile before becoming detectable, so your little "delay" makes no difference if, indeed, it is cancer. But finally, I also agree that you should try to keep yourself busy/distracted until you know your diagnosis....it is possible that the area is benign, but if its not, you should be completely assured that current treatments are effective and highly doable.

Hang in there, girl.....

~Marin

I can't change the wind, but I can adjust my sails!
MelanieW
Joined: Jan 2007
Posts: 264
May 10, 2008 11:07 pm, edited May 10, 2008 11:12 PM by MelanieW MelanieW wrote:

First...I too am very sorry that you are faced with this and hopefully your results will be benign.  It is just hard to have to wait for answers.

During my US, the radiologist said "it's a tumor"...with tears in his eyes.  My daughter's sil works at that breast center as did a very dear friend, so many of the techs knew me or knew of me.  He was reprimanded for telling me that as it seems the attending nurse reported him.  I hated that.  It was a shock, but I am the type of person that needs my docs to be upfront with me.

Now...after a long year of chemo, bilat mast, and recon...I had another suspicious lump 2 months ago.  A different radiologist this time.  He would not give me any info and that scared me more.  Especially since we had to repeat the ct guided needle biop as he said he did not get a good sample the first time.  We really misread him.  DH and I both thought he felt that it was back.  Thankfully, it was just scar tissue.

We will be thinking of you and hoping for only good news.  I agree that without a path report, a radiologist can obviously make a mistake. 

kira
Joined: May 2008
Posts: 36
May 11, 2008 08:50 am kira wrote:

Thank you all for your kind words. This site is so helpful. I work in medicine, and take care of women who have breast cancer (as a general practitioner), but never even knew the highly specific details of the pathology or therapies until I read them here.
I came home and started crying to my husband, that I didn't want chemo....
My gyn called me later that day--she had felt nothing, but ordered the mammogram to be complete, and was kind of muttering about how there was no delay here--like I was thinking of lawsuits. She told me not to jump to worse case thoughts until I had some facts to deal with.
I do think the radiologist said that to me, because we work in the same field.
Melanie, I agree with you that the first radiologist was trying to be straight and kind, and didn't deserve a reprimand.
My older daughter is getting married in 4 weeks, and my younger one just finished her sophomore year in college, and I find that I'm just trying to minimize the impact on them and my husband.
When I went in the next day for the biopsy, the ultrasound tech gave me a lecture about how doctors receive special treatment, and we shouldn't.
Sometimes a little knowledge is a horrible thing. And limbo is the hardest state.
I'm not asking for any special treatment, just the kindness and consideration that everyone deserves.
I'm trying to keep busy, and learn enough to be able to have a productive meeting on Monday, but not too much until I need to know it.
Thank you for your kindness and support.
Kira

FitChik
Joined: Sep 2005
Posts: 4227
May 11, 2008 12:59 pm FitChik wrote:

Kira....I like what you said about gathering enough info to speak intelligently and make informed decisions, if they are called for, when you get your results. That's actually how I handled my entire dx and tx. I'm not a physician, but I have worked in health care all of my life (medical social work and now clinical trials) and am pretty up on alot of terms and concepts, esp. in oncology. I saw so many women at my breast center who kept looseleaf binders with all of their test results, op & path reports, treatment data, etc. and carried them around, consulting them at every turn. I took a somewhat "less informed" tact and ingested only info necessary to make good decisions. More was simply too much and I needed my energy for my spirit and my emotional fortutude. It's not everyone's way of walking this journey, but it worked well for me.

Hang in there, Kira, and let us know how it goes....

~Marin

I can't change the wind, but I can adjust my sails!
gracejon
Joined: Aug 2004
Posts: 2275
May 11, 2008 01:52 pm gracejon wrote:

Personally, I would rather prefer the pathologist definitively find the proof this indeed cancer.  However I do understand the pathway  some doctors have in devulging their best guess right away. I also have experienced 2 diagnosises of different types of cancer in my lifetime and I have not experienced in my opinion, a good way for this news to be delivered.  I received the news once by a meesage on my phone and the second time a phone call by me to the doctor that did the core needle biopsy.  I hated both ways and would have preferred that my PCP deliver the news face to face since we have a patient doctor relationship that stems over a few years and he knows what I may want to know immediately and where to send me for more information and education.  He also knows that my trust in medicine and recommendations is at best pretty darn cynical.  Perhaps delivering bad news should be a seperate class in medical school and part of the curriculum each year.  I am happy that breast cancer treatment continues to evolve.  You are in the crummiest part of this whole journey waiting for path, diagnosis and treatment  I did feel better after I headed for information when receiving diagnosis because at that point I could prepare myself.  The business of knowing you have it without specific information makes me feel rather helpless.  Support from those have gone before you is readily available on this site.  Good Luck

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