Topic: Key links to Lymphedema pages on bc.o site
Log in to post a replyPosts: 670
- Posted on: Jan 29, 2007 08:56 am
http://www.breastcancer.org/lymphedema_avoid.html
We hope that this is helpful!
| Posts 1 - 14 (14 total) | |
|---|---|
|
footprintsa… Joined: Feb 2008 Posts: 168 |
Feb 19, 2008 11:41 pm, edited Jun 14, 2008 11:01 PM
by footprintsangel
footprintsangel wrote:
This Post was deleted by footprintsangel.
|
|
rose1604 Joined: Apr 2008 Posts: 3 |
Apr 24, 2008 01:12 am, edited May 10, 2008 08:01 AM
by Moderators_Tami-Melissa
rose1604 wrote:
This Post was deleted by Moderators_Tami-Melissa.
|
|
slws Joined: May 2008 Posts: 2 |
May 20, 2008 11:18 pm
slws wrote:
Hi, my name is Susan and I was diagnosed with Her2 breast cancer in my left breast in 2/05. I had 2 lumpectomies, chemo and 33 rounds of radiation. I then developed lymphedema in my left arm in 1/07. In March of 07 I began using the Sequential Circulator - an arm sleeve and pump made by a company called OJMedtech out of NY. This product, used daily has kept my lymphedema from progressing, and has actually reduced the size of my arm. I am much more comfortable since beginning use. I hope this helps those of you who are still searching for something to help. Susan |
|
slws Joined: May 2008 Posts: 2 |
May 20, 2008 11:18 pm
slws wrote:
Hi, my name is Susan and I was diagnosed with Her2 breast cancer in my left breast in 2/05. I had 2 lumpectomies, chemo and 33 rounds of radiation. I then developed lymphedema in my left arm in 1/07. In March of 07 I began using the Sequential Circulator - an arm sleeve and pump made by a company called OJMedtech out of NY. This product, used daily has kept my lymphedema from progressing, and has actually reduced the size of my arm. I am much more comfortable since beginning use. I hope this helps those of you who are still searching for something to help. Susan |
|
Binney4 Joined: Aug 2004 Posts: 3260 |
May 24, 2008 01:10 am
Binney4 wrote:
Welcome, Susan! Sorry it's taken so long for anyone to answer your post, but this thread at the top of the board has been here so long I think nobody looks at it anymore. Glad you've joined us, but sorry it's lymphedema that brings us together! Sequential-type pumps can be a helpful adjunct to Complete Decongestive Therapy (though I've never heard of yours in particular), and many of the gals here use them. Glad it's helping keep you comfortable and in control. Congrats on being three years out from bc treatment. Be well! Binney |
|
Binney4 Joined: Aug 2004 Posts: 3260 |
May 24, 2008 01:17 am, edited May 24, 2008 01:18 AM
by Binney4
Binney4 wrote:
Hmmm, the curse of the duplicate posts again! |
|
bsnevada Joined: Apr 2006 Posts: 34 |
Jun 10, 2008 07:17 pm
bsnevada wrote:
I just had bilateral on June 3 my left arm, cancer side I had 7 nodes removed and a few in 06 when I was first dxed. My arm is huge and numb, I hope some of it will go away. Please any advise please..I like the idea of pump and sleeve, or will some of it go away. |
|
Binney4 Joined: Aug 2004 Posts: 3260 |
Jun 10, 2008 08:06 pm
Binney4 wrote:
Aw,bsnevada, I'm so sorry, and I'm sure hoping what you're dealing with is nothing more than normal post-surgical swelling. But the best way to know for sure is to ask for a referral to a well-qualified lymphedema (LE) therapist. You can find one near you (well, at least in Carson City A LE therapist will measure both arms, do a gentle physical exam, and evaluate your swelling. If it's LE, then she'll set you up for some therapy, which involves a couple of weeks of gentle massage (called Manual Lymph Drainage, or MLD), wrapping in special compression bandages, exercises and skin care. She'll teach you to do the MLD and wrapping yourself, too. Then when the swelling is down, she'll fit you for a compression sleeve and glove that you can wear to keep it that way. Here's a web site with lots of information about LE, the National Lymphedema Network at www.lymphnet.org. Their Position Papers are especially helpful. The pump is sometimes used along with the MLD, bandaging, garments, exercises, and skin care, but it is not a substitute for them, so you'll want to see a well-trained therapist and work out with him/her the best treatment for your needs. Please stay in touch here and let us know how we can help. Gentle (((hugs))) and prayers, Binney |
|
footprintsa… Joined: Feb 2008 Posts: 168 |
Jun 10, 2008 11:52 pm, edited Jun 10, 2008 11:53 PM
by footprintsangel
footprintsangel wrote:
Hi Binney and Friends I got my ALERT:LYMPHEDEMA No Blood Tests,Blood pressure,IV or Injections into this Leg!10 green anklets with snaps. You can order them(free) on www.lymphedema.com or 1-800-29-EDEMA I also got a book of other things for lymphedema. I need to get going I see the cancer Dr tomorrow. If he does nothing I am changing. Very swollen and sore. Gentle hugs, Debbie |
|
Binney4 Joined: Aug 2004 Posts: 3260 |
Jun 11, 2008 01:39 pm
Binney4 wrote:
Hey, Debbie! Good for you! They also have bright pink arm bands with the same message. It's a nice service they provide for us. Thinking of you today as you see the doc and get things straightened out. 'Bout time! Let us know how it goes. Hugs, Binney |
|
footprintsa… Joined: Feb 2008 Posts: 168 |
Jun 12, 2008 12:07 am, edited Jun 14, 2008 11:00 PM
by footprintsangel
footprintsangel wrote:
This Post was deleted by footprintsangel.
|
|
footprintsa… Joined: Feb 2008 Posts: 168 |
21 hours ago
footprintsangel wrote:
Hi Binney and Friends, I have been busy trying to get my new lymphedema garments. They where ordered awhile ago. I will be getting cut off of the states help soon cause I have to much that I am getting from my disability payment. I know it was order before, Should I fight them if I lose my one insurance. I have an appt on the phone this Thurs to find out. I hope I get them, My old ones are not working good and getting holes. Take care, Debbie |
|
Alyjens Joined: Jul 2008 Posts: 5 |
20 hours ago
Alyjens wrote:
Hi Debbie, Isn't it amazing how much this LE can cost?! I have a $40 copay for each MLD session and insurance only covers 1/2 of medical supplies. You should definately call them. Your garment should be covered if ordered when insurance was effective. I was concerned with my out of pocket costs and the American Cancer Society sent me a letter of organizations that help with LE supplies and copays. I don't know how much they would help but it's worth a try. Maybe the ACS could give you some assistence with the insurance issue, too? If you send me a private message, I'll email the list to you. Also, most people don't know that if they receive services at a non-profit hospital, they may qualify for reduced out of pocket expense. My hospital in PA, has a sliding scale depending on income and I was surprised how high the threshold was to qualify for the first discount level. I only found out about it a couple months ago and I used to work there until the bc! It's worth looking into. It really helped me handle the therapy costs. Good luck to you Thurs and prayers that you get your garments soon. Alyjens Dx 12/14/2007, IDC, 5cm, Stage IIIa, Grade 3, 1/25 nodes, ER+/PR+, HER2- |
|
Binney4 Joined: Aug 2004 Posts: 3260 |
4 minutes ago
Binney4 wrote:
Hi, Alyjens, Is the list of organizations just in your local area? If not, would you consider posting it here? There are lots of us who could use help with the LE expenses. I tease my husband that after all these years he's now suddenly married to an "expensive woman." Sigh! Yes, Debbie, I agree with Alyjens -- Go! Fight! Win! Binney |
Do come join in on the other more active threads below this one on the Lymphedema board, and I'm sure lots of other women will be there to welcome you. (This top one was started by the moderators over a year ago, so it's sort of off our radar.)
) by using the Therapist Locator at 