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Topic: Downing Street Petition

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Joined: Mar 2008
Posts: 31
  • Posted on: Mar 5, 2008 03:54 pm
Bahons2 wrote:

Hi All

I'm new here.  I have secondary lymphoedema in both arms following breast cancer.  Binney4 has asked me to post this message here.  It's mainly for British visitors to this site.....

I have just had a petition accepted onto the Downing Street Petitions website.  The petition calls for more recognition of the suffering of people with both primary and secondary lymphoedema and for more money for treatment, education of healthcare professionals and research.  The link to sign (where you can also read the full text of the petition) is:

http://petitions.pm.gov.uk/lymphoedema/

Hopefully the petition will, at the very least, help to raise the abysmally low profile that lymphoedema has and the more signatures it gets, the better!

Please remember that you MUST be a British citizen (expat is fine - there is a drop down box to check instead of entering of a UK postcode) or UK resident to sign.  No other details apart from your name will appear on the petition.

Thanks for your support!

Posts 1 - 11 (11 total)
sam52
Joined: Oct 2003
Posts: 1163
Mar 5, 2008 05:11 pm sam52 wrote:

Good on you, Bahon.

Successive governments have ignored many health issues for far too long. Not this one now!
Binney4
Joined: Aug 2004
Posts: 3433
Mar 9, 2008 11:13 am, edited Mar 9, 2008 11:14 AM by Binney4 Binney4 wrote:

Back to the top. Don't want to lose this.Smile
Binney4
Joined: Aug 2004
Posts: 3433
Mar 26, 2008 10:21 pm Binney4 wrote:

To the top again -- please sign if you qualify! Thanks,

Binney 
Bahons2
Joined: Mar 2008
Posts: 31
Mar 27, 2008 04:05 am Bahons2 wrote:

Hi Binney - thanks for moving the petition to the top again!

I'd like to thank everyone who has taken the trouble to sign, and to pass the word on, so far.

If you haven't signed, please consider doing so.  If you have, can you think of any others (British citizens/UK residents only) who might want to?  Friends, family, colleagues, carers, therapists?

Thanks again!
WendyInCali…
Joined: Mar 2007
Posts: 133
Mar 27, 2008 01:58 pm WendyInCalif wrote:

I will add this as it seems appropriate to the topic -

In California - there has been a cap put on malpractice lawsuits.  Because of this, unless the negligence or harm has caused the patient to die prematurely, attorneys will not pick up the case stating that the cost of trying malpractice exceeds the award.

This has caused what I believe an apathy among physicians.  Their malpractice insurance premiums are "cheap" according to one doctor I spoke with about this.

I feel that other people in other states should know that a cap on malpractice (medical) is a dangerous thing - as it can cause physicians who do make errors that cause a patient harm to not be financially reprimanded (sending a signal to other medical professionals).

So, before this Calif. trend continues, be sure to take an active involvement in your state in stopping the "cap" on medical malpractice (25,000 for punitive plus loss of job and medical expenses).  It is easier to stop than reverse laws such as this.

DX 3/07, G1, S1, IDC, Mammosite RT.
Bahons2
Joined: Mar 2008
Posts: 31
Apr 9, 2008 03:21 pm Bahons2 wrote:

Hi all

I just wanted to let everyone know that the petition now has no less than 200 signatures on it!  This is significant, as the Government is obliged to formulate a reply (everyone who has signed will be e-mailed a link to where they can go to read it) to any petition containing 200 or more signatures - I believe this normally happens when the petition closes, which is January next year.

So, once again a big 'thank you' to everyone who has taken the trouble to sign, and is getting others to do the same, and also to the LSN who very kindly publicised the petition in the latest edition of 'Lymphline'.

You MUST be either a British Citizen (expat is fine) or UK resident to sign.

For anyone new to the board, here is the link again:


http://petitions.pm.gov.uk/lymphoedema/
Bahons2
Joined: Mar 2008
Posts: 31
May 10, 2008 05:47 am Bahons2 wrote:

Just a quick update on the petition!

(   http://petitions.pm.gov.uk/lymphoedema/    )

It now has over 300 signatures.

Thanks to all the Brits/UK residents (patients, friends, family, carers, colleagues) who have given their support by signing.
OneBadBoob
Joined: Oct 2007
Posts: 414
Jul 7, 2008 11:36 am OneBadBoob wrote:

Bumping this back to the top for the Brits!

Jane - I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa
Dx 7/7/2007, IDC, <1cm, Stage I, Grade 3, 0/2 nodes, ER+/PR+, HER2-
mrsb
Joined: Sep 2007
Posts: 92
Jul 7, 2008 04:00 pm mrsb wrote:

signed one expat
Bahons2
Joined: Mar 2008
Posts: 31
Jul 8, 2008 01:49 am Bahons2 wrote:

Thanks mrsb - and thanks for the 'bump up', OneBadBoob!
mrsb
Joined: Sep 2007
Posts: 92
Jul 8, 2008 09:47 am mrsb wrote:

i sent to my sister in UK and asked her to forward to all her freinds, collegues etc

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