Hi I went to the dr today and the onc wont switch me off tomox.He said that currant datta is one year after historectomy and then switch.He also said that blood test for tomox to see if you matabilize the drug is not FDA approved and My inshurance wont pay for it.He said because I'm having night sweets thats the same thing has a hot flash.I get them all the time.Every night I get them and I dont sleep well.So I hope and prey its enough to get me through a year.I'm so tired of dr app.I try to eat right most of the time I falter some times on my food.There are small amounts of soy in food that i eat but onc says theres not eanough in food that will harm.I guess I'm just getting tired of people being negative about my chances.I plan for my future everyday....godbless roxy
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Jenniferz Joined: Oct 2006 Posts: 242 |
Apr 17, 2008 08:25 pm
Jenniferz wrote:
I don't know about the insurance not paying for the metabilizing test, but I wonder about who is not supportive of you!!! Wow, roxy. You just a good of a chance at recovery as the next one of us. Don't think otherwise! Jennifer Dx 4/28/2006, IDC, <1cm, Stage Ia, Grade 3, 0/13 nodes, ER+/PR+, HER2+ |
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TenderIsOur… Joined: May 2007 Posts: 2919 |
Apr 17, 2008 10:15 pm, edited Apr 29, 2008 05:22 PM
by TenderIsOurMight
TenderIsOurMight wrote:
I'm sorry you were told negative things about your prognosis: these thoughts rumble around in our heads tremendously, especially if said by a pessimistic oncologist. But he does not know what the future holds for you Roxy. So, one year on Tamoxifen it will be, although I don't believe his statements about it needing to be. As I said in one post, the difference between Tamoxifen and an AI in terms of effect, or success, is small, a few percentage points at best. If your having lots of night sweats, it sounds like Tamoxifen is present in it's metabolized form. A hot flash during the day ='s a night sweat during the night as I see it. So this is good. I am concerned about your eating. You've lost so much weight. You're still in the active treatment phase, just recovering from your hysterectomy and those first months/years are often years where great discipline is exerted to avoid sugars, soys, excessive fats etc, particularly when ER+. But you do have to eat, so perhaps while still avoiding most Soy, you could re-introduce slightly more fats and proteins so you reverse the weight loss. A general well-balanced diet of all three food groups following the pyramid guide is a good reference. With warmer coming, maybe you might even indulge in some ice cream with your kids. Don't get discouraged, Roxy. Your on a great drug, you've undergone great treatment, and the future holds additional great treatment after this year. You should be proud of yourself for standing so strong, and grrrr if your doctor is pessimistic anymore. Best to you and your family, Tender It cannot be emphasized too strongly that treatment of each patient is a highly individualized matter. (FDA-approved labeling for warfarin (Coumadin) NDA 9-218/5-105)
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Hattie Joined: Oct 2005 Posts: 2254 |
Apr 18, 2008 02:04 am
Hattie wrote:
Hi Roxy. I'm not sure what all is going on with you but I'm on tamox after other treatment for stage III. It's almost 3 years since this saga began. I'm sticking with tamox for now (rather do the known drug than than switch in my case).
life is good
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LizM Joined: Sep 2005 Posts: 1632 |
Apr 19, 2008 11:49 am LizM wrote: Roxy, Tamoxifen is a good drug so don't fret. Although I don't understand the one year on Tamoxifen after an ooph (unless it is to lower your circulating estrogen before the switch). I made the switch right away but I was 49 and chemo had put me in chemopause so I had not had a period for over 6 months and my estrogen levels were postmenopausal. I agree with Tender that you need to eat. Shortly after treatment I consulted with a natural health nutritionist because I knew that I needed to build back up my immune system. One thing pointed out to me was the importance of protein. I was very close to a vegan and was not getting enough protein. I now drink an organic why protein shake every morning (made from cows not treated with growth hormones) and organic eggs. I was surprised that she told me it was okay to eat eggs everyday and didn't realize how healthy they are. I was going wild right after my diagnosis with eating veggies but I don't think I was getting enough good fats and proteins. I use a lot of estra virgin organic olive oil now to help put on some pounds. I am 5'6" and weighed 113 lbs (definately underweight). Now two years after treatment I weight 120 lbs and am not considered underweight. I am not as anal about my food. I still eat very healthy and eat as much organic as I can. I don't eat much dairy except I continue to eat organic yogurt because I truly believe it is very healthy. I eat free range chicken (when I can) and bison or organic beef. I try to eat bison at least once a week. I eat some fish but try to eat only wild salmon, talapia or other cold water healthy fish. I drink lots of green tea and try to stay away from soy. My advice is to eat healthy, exercise daily, try to get 8 hours of sleep at night and sleep with a mask to keep out the light and find something that relaxes you. |
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prettyinpin… Joined: Apr 2008 Posts: 504 |
May 6, 2008 11:50 am
prettyinpink100 wrote:
I am having a hysterectomy this summer and my oncologist plans to put me on femera right after. That is one of the reasons I am doing the surgery.
PIP
Dx 2/1/2007, IDC, , Stage IIIb, Grade 2, 9/16 nodes, ER+/PR+, HER2- |
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carol1949 Joined: May 2008 Posts: 26 |
May 9, 2008 05:22 pm, edited May 9, 2008 05:24 PM
by carol1949
carol1949 wrote:
Roxy, I don't know you, of course, and don't know all about your "dis" ease. I do know however, that insurance companies sometimes routinely deny claims and you can challenge those decisions. Just 2 weeks ago, before my first chemo treatment the Dr. office called to say... you owe $x. tomorrow before treatment. My husband called the office and double checked with the insurance co. & challenged them and I now pay the normal $30. co pay that it says on my insurance card. My husband works in the insurance industry... so trust me, if you challenge it, sometimes you find the right person to reverse the first decision. Also, my oncologist is planning to put me on femora instead of tamoxifan. You may have a few other options. I am in a large oncology group in North FL. and feel like if I was in a small town... I would not have the care I am getting here. Fight the good fight. We'll pray and support you in any way. Also, look for a protein drink that you can mix perhaps with rice milk to build your strength. You can also buy hormone free lactose free milk at most grocers. |
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