Topic: NEW MEMBER COMING ON BOARD!
Log in to post a replyPosts: 13
- Posted on: Apr 27, 2008 01:18 pm
Enough lurking already - I'm signing up to show my "face" to this wonderful world of sisters! There are so few Stage IIIs in the little town where I live - it's hard not to feel isolated and hopeless. Your community gives me such a sense of connection & hope, even though I've only been here a few times (when I could wrestle the computer away from my dear husband!). Thanks to all of you for being here!!
Dx 4/28/2006, IDC, Stage IIIc, Grade 3, 10/20 nodes, ER+/PR+, HER2-
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JoyRebecca Joined: Aug 2007 Posts: 549 |
Apr 27, 2008 01:36 pm
JoyRebecca wrote:
Sugarplum, Welcome to our world....there are no words to tell you how fantastic the girls are here!! XX Joy |
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SpunkyGirl Joined: Sep 2006 Posts: 329 |
Apr 27, 2008 01:48 pm
SpunkyGirl wrote:
Sugarplum, Welcome! It's not a club we like to see people join, but we welcome you with open arms all the same. I see you lurked a while before joining. I wish I could be more like that. I'm too much of a talker, I guess! I hope we all have great things to share with one another. Bobbie Every day is a blessing...
Dx 7/23/2006, IDC, <1cm, Stage IIIa, Grade 2, 8/20 nodes, ER+/PR-, HER2+ |
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sue_m Joined: Mar 2008 Posts: 12 |
Apr 27, 2008 03:02 pm
sue_m wrote:
Hi Sugarplum, from one lurker to another, welcome. There's a fantastic amount of wisdom and hope here. Best,
Sue
Dx 6/3/2004, IDC, 3cm, Stage IIIa, Grade 3, 7/16 nodes, ER+/PR+, HER2+ |
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shiny Joined: Apr 2008 Posts: 97 |
Apr 27, 2008 03:33 pm
shiny wrote:
Hiya Sugarplum, Like we all say, not a club you wish anyone to join, but hey, now that you have too, am sure this place will definitely make you feel heard, understood and supported. Hang in there and well done for "showing your face"! from a canadian "stage 3 sista", in England. Dx 5/2007, IDC, 2cm, Stage IIIb, Grade 3, 1/16 nodes, ER-/PR-, HER2- |
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snowyday Joined: Jun 2007 Posts: 1229 |
Apr 27, 2008 03:39 pm
snowyday wrote:
Sorry to say welcome but glad to see your not lurking anymore and have actually decided to chat with us. Welcome and can't wait to hear more from you. You've been diagnosed for awhile how are you doing and what was your treatment it's almost your one year anniversary so congrats. I'm also Canadian I love the " I'm bitchy, I moan and groan anyway thread" by the time I get through it I'm usually in a good mood even though the thread sounds negative it really isn't. Enjoy the site. PN
Dx 5/18/2007, IDC, 3cm, Stage IV, Grade 3, / nodes, mets, ER-/PR-, HER2- |
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jdash Joined: Sep 2006 Posts: 897 |
Apr 27, 2008 03:40 pm
jdash wrote:
welcome what an amazing group of women we all are we are all here for each other and its an incredible feeling of comfort and friendship xoxox julia life is not measured by the breaths we take but the moments that take our breath away....
Dx 4/22/2006, IDC, , Stage IIIb, Grade 3, ER-/PR-, HER2- |
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twink Joined: Feb 2007 Posts: 1570 |
Apr 27, 2008 03:50 pm, edited Apr 27, 2008 05:11 PM
by twink
twink wrote:
Hugs Julie ... welcome. Hugs Julia (jdash) and congratulations on the two-year mark! If you can't be kind, have the decency to be vague.
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snowyday Joined: Jun 2007 Posts: 1229 |
Apr 27, 2008 04:08 pm
snowyday wrote:
Sorry it's your two year, crap I feel like an idiot missed a year there completely. Congratulations on your two year anniversary. pearl PN
Dx 5/18/2007, IDC, 3cm, Stage IV, Grade 3, / nodes, mets, ER-/PR-, HER2- |
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sugarplum Joined: Apr 2008 Posts: 13 |
Apr 27, 2008 05:02 pm
sugarplum wrote:
Wow! I feel so connected-what a rush! Yes, tomorrow is my 2-yr anniversary. I was only able to endure the rest of that evening with the help of Ativan (a familiar tool due to lifelong panic disorder). The (non-digital) mammograms I got every year hadn't found anything - it was a gut feeling that made me finally request a biopsy (I'm still wrestling with some resentment about that). I took my docs up on everything they offered: bilateral mastectomy, 6 chemos (TAC), ovary removal/silicone reconstruction (gravity is no longer an issue!), 33 rads & Arimidex. My most significant aftereffect: a constant feeling of impending doom. I do appreciate you all SO much... Julie K
Dx 4/28/2006, IDC, Stage IIIc, Grade 3, 10/20 nodes, ER+/PR+, HER2- |
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Bugs Joined: Jan 2006 Posts: 963 |
Apr 27, 2008 05:18 pm
Bugs wrote:
Welcome, Julie! Congrats on your 2 year, whoohoo! You are not alone with the feeling of impending doom. I have it...but I am learning to deal with it and not let it take over my life. Most days :) Take care, Bugs The life I touch for good or ill will touch another life, and that in turn another, until who knows where the trembling stops or in what far place my touch will be felt. Frederick Buechnerr
Dx 2/1/2006, IDC, 6cm+, Stage IIIa, Grade 3, 3/16 nodes, ER+/PR-, HER2- |
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MissShapen Joined: Feb 2007 Posts: 3981 |
Apr 27, 2008 05:39 pm
MissShapen wrote:
Welcome to the Stage III group! We do have some wonderful women here, who are very educated and helpful. Of course, I'm sure you've also got lots of pearls of wisdom to share at this stage of the game. You should definitely read around the boards a little. We have lots of info on lots of topics and even just some good ole belly laughs, too! We hope to hear more from you soon! Miss S Dx 11/9/2006, IDC, <1cm, Stage IIIa, Grade 3, 7/31 nodes, ER-/PR-, HER2+ |
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Fitztwins Joined: Dec 2004 Posts: 5473 |
Apr 27, 2008 08:52 pm
Fitztwins wrote:
I love it!! come on in sista! when were you dx? I used to care but I take a pill for that now.
Dx 12/12/2004, IDC, 3cm, Stage IIIc, Grade 2, 17/24 nodes, ER+/PR+, HER2+ |
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footprintsa… Joined: Feb 2008 Posts: 173 |
Apr 27, 2008 10:13 pm
footprintsangel wrote:
Welcome to a very caring group, Walking the same walk. But we love to make the walk alittle easier for each other. Welcome again to a place that cares! Luv, Debbie |
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prettyinpin… Joined: Apr 2008 Posts: 667 |
Apr 29, 2008 11:20 am
prettyinpink100 wrote:
Okay Sugarplum. You inspired me to join in. I too have been a lurker. I was diagnosed just over a year ago and have been coming to this site for almost as long. I have had a lumpectomy that lead to a mastectomy due to multifoci tumours. I chose to have a mastectomy of the other breast as this cancer had been growing silently for so long, I did not want to chance the same thing happening again. I have not had reconstruction and feel quite liberated being boobless. I had chemo last summer (FEC 100 and Taxatere) and 35 rounds of rads in the fall. I have been back to work for short shifts but I still tire easily.
Dx 2/1/2007, IDC, , Stage IIIb, Grade 2, 9/16 nodes, ER+/PR+, HER2- |
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starsong60 Joined: Apr 2008 Posts: 1 |
Apr 29, 2008 01:01 pm
starsong60 wrote:
Hi everyone ! I've been thinking about doing this for some time, I was diagnosed a little over a year and a half ago with stage 4 breast cancer that has mets to the bone. Didn't see one exactly in my catagory so hope you don't mind if I talk with ALL OF YOU !  IM SO EXCITED THAT WE HAVE AN ONLINE FORUM !
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Gitane Joined: Feb 2008 Posts: 243 |
Apr 29, 2008 09:25 pm
Gitane wrote:
Sugarplum, prettyinpink100, starsong60, why lurk when you can talk? Although I lurk more than I talk, too. This is a wonderful place with such caring people. It's good to know you are jumping in to this, too, we can help one another so much.
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Naomi Joined: Aug 2005 Posts: 246 |
Apr 30, 2008 07:53 am
Naomi wrote:
Julie, welcome, welcome. I know exactly how you feel. I'm from a small town also, and I too felt sooo isolated and alone 3 years ago. After I started to come here though, all that changed. Anytime you have a concern about something, someone always has either been there done that, or has words of great wisdom to share. These women are wonderful. The doom and gloom will subside with time, I promise!!! Welcome to you other ladies....never, never worry about talking here, you will only find kindness and compassion. |
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goodrhue Joined: Jan 2008 Posts: 15 |
Apr 30, 2008 10:24 am
goodrhue wrote:
I am another new member! I was diagnosed in Nov 07, had chemo (A/C followed by T) and am recovering from RB mastectomy on Apr 8. I'll likely start radiation the week of May 19. Frankly, I've been trying to figure out how to get the most from all the online resources without spending ALL my time on the computer, and trying to figure out the best place to post my questions (regarding necrotic tissue around incision and drain removal), and just stumbled on this thread. What a great community! Dx 11/1/2007, ILC, 6cm+, Stage IIIa, Grade 1, 1/13 nodes, ER+/PR+, HER2- |
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Bugs Joined: Jan 2006 Posts: 963 |
Apr 30, 2008 10:41 am
Bugs wrote:
Well, look at all you newbies coming out of the woodwork! Howdy, all!! Take care, Bugs The life I touch for good or ill will touch another life, and that in turn another, until who knows where the trembling stops or in what far place my touch will be felt. Frederick Buechnerr
Dx 2/1/2006, IDC, 6cm+, Stage IIIa, Grade 3, 3/16 nodes, ER+/PR-, HER2- |
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sugarplum Joined: Apr 2008 Posts: 13 |
Apr 30, 2008 01:14 pm, edited Apr 30, 2008 11:03 PM
by sugarplum
sugarplum wrote:
It's so great to "see" you all when I visit here, and I'm so glad I helped inspire more lurkers to share their stories-amazing to feel I have so much in common with everyone. Today my husband & I are going to a Komen luncheon in Portland-always a strange combination of feeling totally jazzed and yet sobered at the same time. He's completed the final design of a tattoo for my right breast, so later today we might seek out an artist to consult with (it's a blue/purple hummingbird inserting its beak into the top of a pink heart). When I get up the nerve to go ahead with it, I'll see if I can insert the icon for you to see. At least the skin is already NUMB!!! Love to all til next time... Julie K
Dx 4/28/2006, IDC, Stage IIIc, Grade 3, 10/20 nodes, ER+/PR+, HER2- |
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lkc Joined: Aug 2005 Posts: 1008 |
Apr 30, 2008 08:24 pm
lkc wrote:
Welcome. I used to come on to this thread daily, many times a day. It was a lifeline for me. Anyhow, I am back to my life and am celebrating 3 yrs this mo, God bless. Linda K
Dx 5/30/2005, Paget's, 1cm, Stage IIIb, Grade 2, 12/14 nodes, ER-/PR-, HER2+ |
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wallan Joined: May 2004 Posts: 2845 |
May 1, 2008 08:46 pm
wallan wrote:
Welcome newbies.... I am so glad you are here. You are in for much support, love, laughter, tears and knowledge. HUGS Wendy A Dx 3/29/2004, IDC, 6cm+, Stage IIIa, Grade 3, 2/18 nodes, ER+/PR+, HER2- |
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kalyla Joined: Mar 2008 Posts: 52 |
May 11, 2008 08:57 am
kalyla wrote:
Hi, I'm a newbie to this thread, I've been occasionally posting on the April Chemo thread, since I'm in the middle of that stage. I've got a few questions: Stage III, 22/27 nodes means that the cancer is much more likely to reoccur, but reoccur how? as Mets??? Can anyone tell me the SE's of Taxol? I'll be starting that 4x soon. Happy Mother's Day! Kalyla
Dx 2/12/2008, IDC, 6cm+, Stage IIIa, Grade 3, 22/27 nodes, ER+/PR+, HER2- |
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sugarplum Joined: Apr 2008 Posts: 13 |
May 11, 2008 01:14 pm
sugarplum wrote:
Welcome Kalyla and hello again to all...my OBSESSION with recurrence is the most significant side effect I've had since completing my 9 months of treatment in 2/07 (well, there are also the hot flashes which have robbed me of my SLEEP since chemo in 7/06!) . Last spring I was convinced I had brain mets (was having dizzy spells for some unknown reason, which finally went away). Now I'm afraid it's in my bones (my lower back/tailbone has been sore for about a week). My onc visit is coming up next month, but all he's been doing is blood tests - not bone scans or MRIs - so I just keep worrying about what else could be going on inside me. People say the fear should get better with time, but it's been 2 years since diagnosis & I still am afraid every single day. I just need to keep visiting this site to gain inspiration from all of YOU! As for Taxol, I had Taxotere which I believe is similar, but I got it at the same time as the A/C (6 cycles total), so all my side effects ran together in one big ugly BLUR!!! Best of luck... Julie K
Dx 4/28/2006, IDC, Stage IIIc, Grade 3, 10/20 nodes, ER+/PR+, HER2- |
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Snewl Joined: Dec 2005 Posts: 226 |
May 11, 2008 08:54 pm
Snewl wrote:
Welcome, sugarplum, sorry you wound up here, but welcome and congrats on your 2 years. I hear ya about the 'impending doom' and know the feeling well. Got my onc. check up tomorrow morning and am dreading it. Oh well, I'm 2.5 years and still tickin. To all the Moms - Happy Mother's Day! Shirley Courage is just fear that has said its prayers.
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oldcat46 Joined: Jan 2008 Posts: 47 |
May 11, 2008 10:09 pm
oldcat46 wrote:
Kalyla... I had 4 rounds of Taxol and was told that it could cause peripheral neuropathy. I did get it but it wasn't too bad. My fingertips were numb and sore at times and I had aching here and there. Sometimes when I take a hot shower, my fingers tingle and ache. I finished chemo in Feb. and I don't notice these se's as much anymore. I don't know anything about how cancer recurs in any particular case, but there's a good chance with treatment that it won't. Take it a day at a time and try to focus on the good your treatment will do for you. In your mind picture those little CANCER CRITTERS being totally anililated by Taxol. Keep them off guard and on the run !!! Sugarplum... Where is Kelso? I have an aunt and cousins in Kirkland and my husband was born in Bellingham. HAPPY MOTHER'S DAY to all you moms. (My mom would have been 90 today May 11 -- I miss her every day.) Mary
Dx 8/27/2007, IDC, 2cm, Stage IIa, Grade 2, 1/10 nodes, ER+/PR+, HER2+ |
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jdash Joined: Sep 2006 Posts: 897 |
May 11, 2008 10:30 pm
jdash wrote:
sugar i know the feeling i am 2 yrs ned and every ache is cause for concern - i started to have neck and jaw pain and then had a few back spasms- i ran to the oncol and he ordered MRIs and bone scans all came back fine- now i still have the jaw pain and they think its TMJ related off to dentist..... woke up with smile crooked last week - doc sending me to neurologist - ugh hoping its TMJ related i was just trying to explain to my friend how i feel so supported here- we can talk, we can complain, and we all understand each other! welcome to all the newbies this is the best place to come life is not measured by the breaths we take but the moments that take our breath away....
Dx 4/22/2006, IDC, , Stage IIIb, Grade 3, ER-/PR-, HER2- |
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sugarplum Joined: Apr 2008 Posts: 13 |
May 18, 2008 01:48 pm
sugarplum wrote:
Whew - another swoop on the roller-coaster of life - had bone scan Friday as the tailbone ache was not improving - a kind technician gave us the heads-up that the scan showed no significant change from 2 yrs ago (but she wasn't supposed to tell us that!). Now I just wait for my onc to get back on Tues & see how we need to address things from here. We leave for a week in Illinois on Saturday - I may be shifting from cheek to cheek during the 5-hour flight, but at least I won't be in such a dark place as I've been the past 2 weeks! all the best to all of you... Julie K
Dx 4/28/2006, IDC, Stage IIIc, Grade 3, 10/20 nodes, ER+/PR+, HER2- |
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carolupa Joined: May 2008 Posts: 20 |
May 30, 2008 05:21 am
carolupa wrote:
Hi all, Just a question -- what do you mean by date of diagnosis? is it when you first found the lump, or had a test that showed something suspicious, or when the biopsy finally confirmed it? Silly question I know, but since everyone is counting anniverseries, I thought I should do it too. I had my biopsy and operation in Nov 2005 but don't remember the exact date, it was all a blur! But I can check my records.
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maryannecb Joined: Nov 2005 Posts: 2314 |
May 30, 2008 06:40 pm
maryannecb wrote:
Hi to the newcomers. I am here off and on now, used to be every day but life really does get normal again if the beast stays away. I just did the second phase of my recon and ...I love my new look. Makes me feel whole and like a teen... Fists up! Fists up!
Dx 9/20/2005, IDC, 6cm+, Stage IIIa, Grade 2, 2/14 nodes, ER-/PR-, HER2+ |
if i must say so myself! i dont think i could have come this far without all the support i have received here! its been 2 yrs exactly since my dx and i am enjoying my NED status every single day I have continued to be active on this site and in many organizations for breast cancer because not only do I offer support to many other women just starting down this path but it makes me feel like i am having some control over this damn disease instead of it controling me