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Topic: WHAT NEXT?

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Joined: Apr 2008
Posts: 200
  • Posted on: May 5, 2008 07:26 pm, edited May 5, 2008 07:27 PM by lag
lag wrote:

Yesterday I was told by my foot doctor that I need an MRI to see what is going on with my foot (possibly torn ligament or tendon) , I had to sign a release to my ps so that he can tell the foot doc exactly what my expander is made of because of possibility of any metal and then I can not have an MRI-UGH. On top of that the foot doc has put me in a cam walker (walking boot) that I mut wear for the next 6 months. And to even top that off the other day received a letter from my boss that said to let him know when I can return to work without any restrictions--is this guy for real because my ps said that there is always going to be and has been (which was never followed by my boss since the dx of bc back in 04)-so anyway my ps took me off for the next three months and the boss is not liking it but I was only following his orders-someone help because I am so confused on what to do. I have done nothing wrong and just feel like I am being shit on for having to deal with bc and all that goes along with it. If my job was an office job it would be no problem going back but at the job I have (had) I am on my feet all day and doing lots of bending, lifting reaching above my head. Someone please tell me what I should do!!!!

lag


Dx 4/7/2004, IDC, 5cm, ER+
Posts 1 - 7 (7 total)
lag
Joined: Apr 2008
Posts: 200
May 6, 2008 01:29 am lag wrote:

Okay Im feeling a little calmer now that I took my meds. i am just so scared and confused these days and it seems like it all hit me like a huge ton of bricks. When I was dx four years ago it had hit me like a ton of bricks and out of no where so I did what I thought that I was supposed to do, I was a single mom raising four kids so I went throught treatment and kept on going, I even stayed at my job when they ignored all restrictions because I didn't think I had a choice-I needed the money. So now here I am almost four years later and finally decide to go in because my implant is hard, painful and down right making me very self concious-and what I thought would be a quick fix (take implant out and put in a new one) has trned into starting back at square one with reconstruction becasue I have waited so long and to top that off even more I have developed severe plantar fasctis from being on my feet for hours upon hours at work. I hae finally reached my boiling point and feel like the last four years have finally caught up to me and I am terrified and think I am losing my mind-is this possible could it take this long for it all to finally hit me? Im tired of doing the things that cause me pain, peple around me seem to be so uncaring which makes this all so much more harder to deal with. Has anyone experienced anything like this ever before and if you did how the heck did you get yourself out of this rut?


Dx 4/7/2004, IDC, 5cm, ER+
lag
Joined: Apr 2008
Posts: 200
May 6, 2008 09:25 am lag wrote:

okay i guess im done pouring my heart out, i thought maybe i would get some replies or suggestions as to what to do and i realize that there are others with more important problems so i will stop writing for a while.

lag


Dx 4/7/2004, IDC, 5cm, ER+
Bugs
Joined: Jan 2006
Posts: 963
May 6, 2008 10:53 am Bugs wrote:

Easy, easy....we ebb and flow around here and sometimes it takes awhile to get a reply when other times you get a response within seconds. 

It sounds to me like you have post traumatic stress disorder. Sometimes it hits right after treatment and sometimes it takes years for it to come on. Have you seen a councelor about your bc?  You might want to check into a few sessions to see if they can help you get through it.

I don't have any ideas regarding the job situation.  Maybe a career councelor?  I know it's hard to make a career switch...but you may have to do it in order to get off your feet.

Take care,

Bugs

The life I touch for good or ill will touch another life, and that in turn another, until who knows where the trembling stops or in what far place my touch will be felt. Frederick Buechnerr
Dx 2/1/2006, IDC, 6cm+, Stage IIIa, Grade 3, 3/16 nodes, ER+/PR-, HER2-
prettyinpin…
Joined: Apr 2008
Posts: 634
May 6, 2008 11:41 am prettyinpink100 wrote:

You sound completely overwhelmed which is understandable. It must be awful to feel so alone. I think it is probably common for us to have expectations of being 'normal' right away but it sure doesn't help when others place that pressure on us too.

Here is the other end of this problem. How many out there are experiencing the people around them treating them as if they are invalids? I know my coworkers and friends are concerned about me, but sometimes that is just annoying.

As hard as it is sometimes, I think we just have to travel through this experience at our own speed no matter what the rest of the world thinks or wants.

PIP
Dx 2/1/2007, IDC, , Stage IIIb, Grade 2, 9/16 nodes, ER+/PR+, HER2-
ToniVer
Joined: May 2008
Posts: 1
May 6, 2008 02:28 pm ToniVer wrote:

Sometimes I do feel really alone.  I had chemo first, surgery (double mastectomy) then radiation and finished up in September 07.  But it doesn't stop there.  Everyone seems to think it does, and I hardly confide in anyone anymore because of their reactions--even my family.

I just started tamoxifen after trying three other drugs that I could not tollerate, and the hot flashes are bad.  Headaches too.

I feel like I am constantly battling something--just got over a bacterial infection.  I would just like a  normal routine again.  Since this started in November 2006, I have been to a doctor every month but two.

And I know I do feel sory for myself sometimes.  I just want a break.  I went to one support group meeting but their times just don't fit with mine.

caitb
Joined: Jan 2008
Posts: 23
May 6, 2008 03:23 pm caitb wrote:

lag

I am so sorry to hear about all the crap going on.  I do have some bright spots and I hope you are still reading the posts here:

On the employment issues:  iIt is against the law to discriminate against the handicapped. The ADA (Americans with Disabilities Act) extended this to the private sector. Cancer and other diseases fall under this law. If you have issues at your job due to the effects of your cancer treatment, your employer must make accommodations for you. If you feel that your employer is not making those accomodations and is forcing you to work in such a way that it goes against your doctor's written orders then you need to contact an employment attorney.  There are employment protections specifically designed for woman with cancer - take a look at your State's website and also the federal website relating to the Americans with Disabilities Act.  It will give you a ton of information and, hopefully, some peace of mind.

And I agree with Pretty in Pink - sometimes we do have to travel through this thing at our own speed - it can be annoying with people always looking at you "that way".  I had a coughing fit a few weeks ago and my husband thought I had lung cancer! 

I would like to tell you that it gets easier.  The reality is - it only gets easier when you take it easier on yourself.

Once you can accept the universe as being something expanding into an infinite nothing which is something, wearing stripes with plaid is easy. Albert Einstein
Dx 10/19/2006, ILC, 5cm, Stage IIIb, Grade 3, ER+/PR+, HER2+
lag
Joined: Apr 2008
Posts: 200
May 6, 2008 07:16 pm lag wrote:

Thank you so much for responding ladies, I guess I had what we call a horrible morning. I did at first try to ignore the fact that there was anything wrong in the beginning when I was first dx and I did all the things that I thought I should do because I was raising my four kids alone. I am calling a number that my onc gave me-he said that if my work were to give me problems call that number and he will have social workers on their butts quicker than they think-I guess the reason i waited to do this is because I thought it would get better but it hasn't and now i know it will only get worse. Also ran into a lady (from town) tonight who believe it or not seems to care about how I am doing and she is furious as to what is happening at my job -she has all the state guidelines for situations like mine so that makes me feel a little better.

Now my foot, since last November I have had foot probs and in December the doctor told me that I have severe plantar fasitis, and tibial tendonitis and she had me on restrictions at work-which they NEVER follwed ( I got smart back then and took a pic of the work calendar so it shows the days that they made me work when I wasn't supposed to) I'm hoping somehow and someway that all this will be to my benefit as the past four years are finally catching up to me and Im just tired of bending over backwards for others (work) You ladies are all right I need to think of myself now and the rest of them can just deal with it.

Once again I am sorry for blowing up this morning-just lots going on and I know if anyone would understand it would be you ladies!!!

Thanks for all the advice, gonna take my calm down meds, kick back and watch American Idol'

Love ya all

lag


Dx 4/7/2004, IDC, 5cm, ER+

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