Topic: DCIS...a "non-event"?!

I'm so sorry you were subjected to her insensitivity.

If you see her again maybe you could explain more about DCIS to her.

Hey TAY ~

Gosh, so much for 'Yoga' I am sure THAT was quite the 'stress relief'...Marian IS right...since you can relate on the Feb-ulouse RAD girls such as yourself...Yes, I had DCIS..7 WEEKS of RADS, mastectomy and HOPEFULLY this 'expander' of mine won't add additional PAIN and actually WORK!  Not to mention the RISKS we have with those rads followed by an arm I can barely even function with anymore as it feels like a stretched rubber band thats about to snap!!!  Burnt to a crisp...emotional physically DRAINED and a SCARE of life's twist and turns for myself/family and friends...NON-event!!??  a bad movie is a non-event!!!  They must have removed her common sense!!

Okay, I've vented....now breathe! LOL...

TAKE CARE TAY...

much LUV

Twirlgirl:  Well, then I would like to know how this "non event" has caused me to miss so much sleep over the last month, and how this "non event" has us going to radiation for weeks on end, and how this "non event" has taken all or parts of our breasts?  Blow this woman off, she is not worth worrying about.  Good thing you were relaxed at a yoga class or she could have ended up hurt!  :)

God Bless!

Ellie

Twirlgirl -- she actually said "non-event" and she just finished chemo?!?!?!?    She must've lost some (a lot) of either brain or "sensitivity" cells ....  Shame on her for being so dismissive of someone else's trauma!  While I've had a much easier time of it that many women, I just consider myself to be extremely fortunate.  I would never DREAM of saying "it was a non-event" or "a piece of cake."  I'm 9 months from dx, 5 months from the end of rads, struggling with elevated LFTs from tamoxifen and I still obsessively look at the obits for women my age!  I keep waiting to wig out at the grocery store when the enormity of what happened to me finally hits! 

I wonder if it would count as yoga if you bent her into a pretzel?

Kudos on not killing her ... I'm afraid I would not have been so kind!

Layne

Thanks Ladies! I really appreciate your support. I wasn't mad at her, just sad. And I know that she is on battle #2 with BC and lost her breast to DCIS...it doesn't seem like a little thing! I do cut her some slack and wish her the best. I just also wish that judgement was not there.

I think that losing part or all of your breast, no matter what mind of dx led to that, is huge. no, i am not worrying about dying and that is a BIG blessing, I am very aware of how lucky I am, but that doesn't change how much it sucks! Everything is relative. Everyone's pain and suffering is theirs. 

i spent the yoga class trying to not let that bother me, but I was directly across from her...what a test of "letting things go"! I'll be on the other side of the room next week.

peace and light to you all...thanks for being here! 

Sorry ladies for my language, but non-event??????!!!!!!

BITE ME!  I had to have a mast for my DCIS and 35 sessions of rads (they found 8mm invasive after surgery).  But the original dx was dcis so that was the orginal tx plan was mast.  I'm now on tamoxifen and all it's joys (not too bad, but constantly worrying).  Again sorry for my rant, but geeeeeeeeeeeeesh!

Trish

Twirlgirl,  if you get another chance.. maybe invite her to explain how she was treated 10 years ago and then we can turn this into a lesson.  Did they do the same standard of care 10 years ago?  Would she have had a better chance to not have a re-occurrance if they did?  Did she just hit a statistic or is there something done or not done 10 years ago to put her where she is today.

Invite her here and I would love to know why she is dealing with invasive cancer 10 years later.  Is it a new primary cancer or did it actually spread and if so it could allow some of us here to talor our treatment to avoid her situation. 

She could have information that could help some of us here.

But honestly I do like the fart comment Snowyday..  That would be her negativity leaving her body..  I know she too has been through a great deal but I shutter to think of how many support groups sessions I went to only to find the same sentiment..  arrghhh

Cutting the lady some slack is doable but at the same time her respect for what Twilgirl and others with DCIS have/are going throught is insensitive and down right rude.

DSIC can cause major havoc in one's life - I underwent 3 surgeries, radiaiton, raloxifene, the fatigue, the rash the s/e and then got DCIS in the other breast and had to do the same damn thing all over again - I wish people would stop minimizing what we have to go through with DCIS.

So I didn't have to do chemo that doesn't meean that what I had to endure was any less difficult.

Yes some women with DCIS don't have multiple surgeries, rads or meds and I respect them all we ask is that others respect those that have endured their own experiences.

Okay I'm done ranting but this is a touchy subject with me...

I think Beesie is right. Ten years is a long time and her current treatment, now that she has been diagnosed with invasive, trumps that remote memory, whether it was traumatic at the time or not.

Maybe she was saying that to encourage you, to make you feel that what you're facing isn't that big of a deal. Clearly, that was the wrong way to respond to your situation. It seems that no matter what we face in life, there is going to be someone who has it worse. In their shoes, your situation might seem like a "walk in the park." That's insensitive, of course. But perhaps it's forgivable.  Maybe the best thing to do in this kind of situation is to have compassion for the other one and wish them the best.

Oh, Ladies...you have really lightened my spirits on this, thank-you so much! It's interesting, you know I struggle already at this stage, after 2 surgeries, 8 weeks of rads with people in my life being ready for it all to be over...for me to snap out of the Cancer Mode. Like I am choosing it. I am just trying to heal, it's only been 3 weeks since rads ended. I am not back to any kind of "normal"! But then I wonder, am I being dramatic, should I downplay this? That seems like it makes others more comfortable, but doesn't help me process this BIG EVENT in my life. This yoga class is the first support group of any kind I have gone to...and boom! The kind of comment I feared. So, thanks for validating my feelings here. I've come to depend on this board so much.

~bless you all~ 

Hi there, I'm in London, England.  I was diagnosed with LCIS in January 2006 and had a WLE.  However in February of this year I was diagnosed with DCIS, Sclerosing Adenosis, Radial Scar and atypical columnar changes!!  My Surgeon is recommending Mastectomy and sent me for a 2nd opinion where they recommended an MRI to make sure it is only DCIS and not Invasive Disease and also to see whether there is any DCIS in the other breast too. If there is it will mean bilateral mastectomies, if not just the one. But then I suppose if there's any evidence of invasive disease that will shed a different light on things too. Interestingly, he also said that DCIS IS Breast Cancer when my Consultant at the Royal Marsden refers to it as pre-cancerous cells.   I't certainly not a non-event to me or my husband!!!!

If you check on xxxx's past comments, you will see them all deleted. I, personally, come here for support and not to tick people off.

I, too, have recently been diagnosed with DCIS, after a diagnosis with IDC, last year. I had my second Mastectomy this past Tuesday. This "non-event" and "pre-Cancer" is scary stuff. I am trying with all my might to survive and live a long, healthy life.

We're all entitled to our opinions, and this is not the place to stomp on another's feelings. It all sucks and we each need to feel validated for our own thoughts...

Linda

Marian and Linda

I do so agree. We are here for support and I believe we can all find that from eachother. Each persons experience is their own and different from anothers and we need to support that. Of course having invasive or a 2nd or 3rd cancer is much more serious and life threatning, we all know that and wish for an end in sight and cure for our sisters here who struggle daily with this dam disease. Without the knowledge and openess of our sisters who've experienced so much many of us would be left vulnerable to not knowing what the early effects can have in our lives.

As for xxx , her name is Michelle, and I've noticed she deletes everything. Why????

I had read her post...she had mentioned along the lines of..., to give her a break... that the "yoga" instructor could actually die and we were all playing the victim card and this woman could die because of her diagnosis and we were toxic and she doesn't want any part of this "support group" 

I think everyone is entitled to their opinions...hers and ours !  She could have voiced her opinions and we would respect them.  I know, that a lot of woman here have gone through too much...we do support one another.  We have been there.  Like crazydazy said, more some than others...and we hold them close to our hearts and prayers ----each and every one!!!  Cancer sucks bottom line!  So we are ENTITLED to our emotions/feeling and words. 

All my LUV for all ~