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Topic: DCIS Studies and Info

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Port Perry, On
Joined: Jan 2008
Posts: 1256
  • Posted on: Apr 18, 2008 11:21 pm, edited Apr 20, 2008 12:23 PM by crazydaisy
crazydaisy wrote:

http://breast-cancer-research.com/content/pdf/bcr1397.pdf

Thought I'd start a thread here on DCIS research, does any one else have stuff to share?? Finding more info is time consuming so one stop shopping info is a bonus for wanting more information.

Viv " The way I see it, if you want the rainbow, you gotta put up with the rain"
Dx 1/7/2008, DCIS, 4cm, Stage 0, Grade 3, / nodes, ER-/PR-
Posts 1 - 20 (20 total)
crazydaisy
Port Perry, On
Joined: Jan 2008
Posts: 1256
Apr 18, 2008 11:38 pm crazydaisy wrote:

http://www.consultantlive.com/display/article/10165/63028?pageNumber=1

More DCIS studies

Viv " The way I see it, if you want the rainbow, you gotta put up with the rain"
Dx 1/7/2008, DCIS, 4cm, Stage 0, Grade 3, / nodes, ER-/PR-
crazydaisy
Port Perry, On
Joined: Jan 2008
Posts: 1256
Apr 18, 2008 11:59 pm crazydaisy wrote:

http://www.ncbi.nlm.nih.gov/pubmed/17984188?ordinalpos=2&itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_RVDocSum

From Rakovitch.....researcher for DCIS at Sunnybrook currently spearheading largest study on DCIS

Viv " The way I see it, if you want the rainbow, you gotta put up with the rain"
Dx 1/7/2008, DCIS, 4cm, Stage 0, Grade 3, / nodes, ER-/PR-
crazydaisy
Port Perry, On
Joined: Jan 2008
Posts: 1256
Apr 19, 2008 12:03 am crazydaisy wrote:

http://www.ncbi.nlm.nih.gov/books/bv.fcgi?rid=cmed.section.7013

All About Mammograms and Abnormal Findings

Viv " The way I see it, if you want the rainbow, you gotta put up with the rain"
Dx 1/7/2008, DCIS, 4cm, Stage 0, Grade 3, / nodes, ER-/PR-
crazydaisy
Port Perry, On
Joined: Jan 2008
Posts: 1256
Apr 19, 2008 12:06 am crazydaisy wrote:

http://www.cancer.org/docroot/CRI/content/CRI_2_4_4X_Surgery_5.asp?sitearea=

Detailed Guide on Surgery for Breast Cancer

Viv " The way I see it, if you want the rainbow, you gotta put up with the rain"
Dx 1/7/2008, DCIS, 4cm, Stage 0, Grade 3, / nodes, ER-/PR-
crazydaisy
Port Perry, On
Joined: Jan 2008
Posts: 1256
Apr 19, 2008 12:21 am crazydaisy wrote:

http://www.cmaj.ca/cgi/content/full/165/7/912/DC1/

DCIS Diagnosis and Treatment clinical guidelines (CANADA)

Viv " The way I see it, if you want the rainbow, you gotta put up with the rain"
Dx 1/7/2008, DCIS, 4cm, Stage 0, Grade 3, / nodes, ER-/PR-
crazydaisy
Port Perry, On
Joined: Jan 2008
Posts: 1256
Apr 19, 2008 12:28 am crazydaisy wrote:

http://www.dciscancer.com/databases/dcis_researchlist.php?RecPerPage=ALL

DCIS Database

Viv " The way I see it, if you want the rainbow, you gotta put up with the rain"
Dx 1/7/2008, DCIS, 4cm, Stage 0, Grade 3, / nodes, ER-/PR-
crazydaisy
Port Perry, On
Joined: Jan 2008
Posts: 1256
Apr 19, 2008 12:31 am crazydaisy wrote:

http://www.radiologyinfo.org

Want to know about Radiology, MRI, CT etc.

Viv " The way I see it, if you want the rainbow, you gotta put up with the rain"
Dx 1/7/2008, DCIS, 4cm, Stage 0, Grade 3, / nodes, ER-/PR-
crazydaisy
Port Perry, On
Joined: Jan 2008
Posts: 1256
Apr 19, 2008 01:08 am crazydaisy wrote:

http://en.wikibooks.org/wiki/Radiation_Oncology/Breast/DCIS

More on DCIS and Treatments also Van Nuys Prognostic Index

Viv " The way I see it, if you want the rainbow, you gotta put up with the rain"
Dx 1/7/2008, DCIS, 4cm, Stage 0, Grade 3, / nodes, ER-/PR-
crazydaisy
Port Perry, On
Joined: Jan 2008
Posts: 1256
Apr 19, 2008 01:12 am crazydaisy wrote:

http://theoncologist.alphamedpress.org/cgi/reprint/12/11/1276

You can download and print

Viv " The way I see it, if you want the rainbow, you gotta put up with the rain"
Dx 1/7/2008, DCIS, 4cm, Stage 0, Grade 3, / nodes, ER-/PR-
crazydaisy
Port Perry, On
Joined: Jan 2008
Posts: 1256
Apr 19, 2008 03:47 pm crazydaisy wrote:

http://www.tumorionline.it/allegati/00210_2004_01/fulltext/05_01_04.pdf

Conservative Treatment for DCIS.....when and when not appropriate

Viv " The way I see it, if you want the rainbow, you gotta put up with the rain"
Dx 1/7/2008, DCIS, 4cm, Stage 0, Grade 3, 0/1 nodes, ER-/PR-
larousse
Joined: Jan 2008
Posts: 295
Apr 20, 2008 12:05 pm larousse wrote:

Good one Viv, thanks!


Dx 12/31/2007, DCIS, <1cm, Stage 0, Grade 3, / nodes, ER+/PR+
crazydaisy
Port Perry, On
Joined: Jan 2008
Posts: 1256
Apr 20, 2008 12:20 pm crazydaisy wrote:

Larousse.....how you making out?? I know how time consuming finding more in depth info is......I spent hours looking up stuff. My surgeon and family doctors said most women they see don't ask much and don't do any research on their own. Once my surgeon even remarked when he saw the stuff I had with me that they don't usually give out that kind of info to their patients! I guess the way they see it is to only divulge the necessary.

Viv " The way I see it, if you want the rainbow, you gotta put up with the rain"
Dx 1/7/2008, DCIS, 4cm, Stage 0, Grade 3, 0/1 nodes, ER-/PR-
larousse
Joined: Jan 2008
Posts: 295
Apr 20, 2008 07:21 pm larousse wrote:

Viv, thanks for checking, I am almost half way done with rads and doing fine so far, maybe starting to feel slightly tired, not my usual pumped-up self, but nothing bad. I was glad to hear that after your mast you didn't need to have more tx. I considered a mast to avoid rads, now I just have to deal with my rads decision, 3 more weeks...

You are er/pr-. Does it mean no hormone meds for you?

I agree with you about the docs divulging the minimum. It kills me. I am also an info nuts and read about anything I found on dcis, and rads. When it came to rads, they don't give you any upfront info on how to deal with it, nutrition, fluids, creams, stretching, etc. Only when I asked, and mostly I already knew because of all the info I got from these boards, did they finally gave me the stuff. Oh well, I guess there isn't enough time in their day to go into these details.


Dx 12/31/2007, DCIS, <1cm, Stage 0, Grade 3, / nodes, ER+/PR+
crazydaisy
Port Perry, On
Joined: Jan 2008
Posts: 1256
Apr 22, 2008 11:44 pm crazydaisy wrote:

Larousse.....take good care of that pink boobie, hope your se's don't get much worse.

Your right about tamox.......none for me because of er- pr- status. This is an area that not enough is known about yet in the cancer field itself. It happens less often so it isn't researched as much. I am going on friday for one more follow up with an Onc since I did not see a specialist beforehand. Keep on trucking girl.....your almost halfway!

Viv " The way I see it, if you want the rainbow, you gotta put up with the rain"
Dx 1/7/2008, DCIS, 4cm, Stage 0, Grade 3, 0/1 nodes, ER-/PR-
larousse
Joined: Jan 2008
Posts: 295
Apr 23, 2008 05:19 pm larousse wrote:

Hey Viv, just thought that I would tell you about this one person I know. A woman I know had IDC er/pr-, 5 years ago. Had mast and chemo, no tamoxifen. The poor lady just had a recurrence, in her chest wall, this one is er/pr+. Because it is in her chest wall, it is considered stage IV, but chest wall is not life threathening. We were discussing her case and she told me that now, she had wished she would have taken the tamox. Of course Viv, it may have come back anyway, who knows, but she felt that she didn't use all the weapons that she had access to.

I didn't expect to have to make all these decisions myself with this dx... It is all very nerve wracking, how do we know it is the best decision? If I had been braver I would have done everything for no recurrence, double mast. Now I getting zapped, who knows what that will bring in the future? a different cancer? a lung inflammation? grrr... just a little anxious as you can see.... I think that I will go on the rant thread, ;)

Thanks for the support, I am over the hump today, 16 more to go...


Dx 12/31/2007, DCIS, <1cm, Stage 0, Grade 3, / nodes, ER+/PR+
crazydaisy
Port Perry, On
Joined: Jan 2008
Posts: 1256
May 8, 2008 08:24 am crazydaisy wrote:

for newbies

Viv " The way I see it, if you want the rainbow, you gotta put up with the rain"
Dx 1/7/2008, DCIS, 4cm, Stage 0, Grade 3, 0/1 nodes, ER-/PR-
murphmort
Boston
Joined: Apr 2008
Posts: 67
May 17, 2008 10:30 am murphmort wrote:

Hi ladies - I was diagnosed on 2/1/08 with DCIS.  I had a lumpectomy on 2/29/08 and I have been undergoing radiation treatments at Boston Medical Center.  I was offered a clinical trial by my radiation oncologist due to my age (46) and the DCIS dx.  The clinical trial was for partial-radiation of the breast, not full.  The medical community is now looking for 3000 women (they currently have 2400) in the US for this trial.  The partial breast radiation treament was intensive; the radiation was twice/day, six hours a part, and would only be done for 5 days.  I declined the clinical trial for two reasons:  1) it would have been a logistical nightmare for me to commute into Boston 2x/day for the radiation, and 2) I wanted to go with the proven treatment.  My radiation therapist is a friend of mine and I spoke with her that night after being offered the clinical.  As a friend and as a medical professional, she said to not go with the clinical - go with the known and established treatment. 


Dx 2/1/2008, DCIS, <1cm, Stage 0, Grade 3, 0/0 nodes, ER+/PR+
crazydaisy
Port Perry, On
Joined: Jan 2008
Posts: 1256
Jun 21, 2008 08:50 pm crazydaisy wrote:

for newbies

Viv " The way I see it, if you want the rainbow, you gotta put up with the rain"
Dx 1/7/2008, DCIS, 4cm, Stage 0, Grade 3, 0/1 nodes, ER-/PR-
easyquilts
Joined: May 2008
Posts: 639
Jun 21, 2008 11:04 pm easyquilts wrote:

Thanks, Viv...This study affirmed my decsion to have a lumpectomy, followed by rads....

Sandy

Sandy from Cincinanti....AKA Kermit
Dx 5/21/2008, DCIS, Stage 0, Grade 1, 0/0 nodes, ER+/PR+, HER2-
crazydaisy
Port Perry, On
Joined: Jan 2008
Posts: 1256
Aug 25, 2008 11:44 pm crazydaisy wrote:

bumping for newbies, websites posted at beginning of thread

Viv " The way I see it, if you want the rainbow, you gotta put up with the rain"
Dx 1/7/2008, DCIS, 4cm, Stage 0, Grade 3, 0/1 nodes, ER-/PR-

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