Hi there, Has anyone else had Breast MRIs since being diagnosed with DCIS? I had my 2nd opinion yesterday-FINALLY- at St Bartholomeow's hospital in London, England, and Mr Carpenter recommended an MRI to make sure it is only DCIS and not Invasive Disease and also to see whether there is any DCIS in the other breast too. If there is it will mean bilateral mastectomies, if not just the one. But then I suppose if there's any evidence of invasive disease that will shed a different light on things too. Interestingly, he also said that DCIS IS Breast Cancer when my Consultant at the Royal Marsden refers to it as pre-cancerous cells.
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determinedm
Joined: Jun 2007 Posts: 242 |
Apr 26, 2008 09:19 am
determinedmom wrote:
Hey trumum - I elected to have MRI after being diagnosed w/ DCIS x 2 rt breast. I had had previous biopsies and recall mammos. The MRI was suspicious for invasive CA, one each breast. Rather than having the areas biopsied, I elected to have bilat mast w/ reconstruct. All the tissue came back negative, no invasive cancer, but a lot of precancerous tissue both breast. I'm very comfortable w/ my decision as who knows what stage the CA may have been before it was found. It's a personal decision, one you need to be comfortable w/.
Dx 5/26/2007, DCIS, , Stage 0, 0/4 nodes, ER-/PR- |
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louishenry Joined: Aug 2007 Posts: 232 |
Apr 26, 2008 09:45 am
louishenry wrote:
Hi. Yes, I had a mri after biopsy which was normal. I had another one 8 months later, which was also normal. I will be having an mri once a year for good. They are not too bad. Good luck, Nada. Also many docs, including Susan Love and the Susan G. Komen people call DCIS a pre-cancer. The reason is that cancer is invasive and life threatening and pure dcis is not. At this point, they feel that only 30- 50% of dcis turns to invasive. However, it needs to be treated to prevent invasive. I think it's really just semantics. I don't call it anything but DCIS. If people ask, I say it's pre-invasive, or a pre-cursor to invasive. Nada Dcis May 2007, 4mm, low to intermediate grade, no rads er / pr +. Tamoxifen September 2007
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PhyllisCC Joined: Nov 2007 Posts: 159 |
Apr 26, 2008 10:06 am
PhyllisCC wrote:
Trumum, I was dx DCIS multifocal, grade 3 in Oct 07, after biopsy. Was sent for MRI on both breasts in anticipation of mast in November. Nothing "showed" in my left breast, but due to symptoms (nipple discharge) the breast surgeon did a biopsy on the left at the same time she did the mast on the right, along with a SNB. Turned out the left was a blocked milk duct...benign. Am currently going thru reconstruction with my implant exchange scheduled for next month. I am also scheduled for mammo on "good" breast plus gyn breast exam in May....just to make sure. Wishing you well. Sounds like you have found this early. Phyllis
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LUVmy2girlZ
Joined: Nov 2007 Posts: 1868 |
Apr 26, 2008 10:09 am
LUVmy2girlZ wrote:
Trudie ~ Yes, after my needle biopsy I had a MRI to "rule out other breast" as well as to see how much DCIS was involved. I ended up having a mastectomy due to multi-centric which meant I had it widespread w/in my breast. So a lumpectomy wasn't an option. MRI's pick up what mamo's can't anymore. It seems to be protocol now. I was told DCIS is cancer. Its contained with in the milk ducts so it hasn't 'spread' and usually no chemo nor rads ( Although I fell into a 'grey zone' and had to have 7 weeks of radiation on a mastectomy no less Best of Luck...you will soon be on the path of healing! Much LUV Laughter, is the shock absorber that eases the blows of life....
Dx 11/19/2007, DCIS, 5cm, Stage 0, Grade 3, 0/3 nodes, ER-/PR- |
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Marian Joined: Jan 2008 Posts: 216 |
Apr 26, 2008 12:29 pm, edited Apr 26, 2008 12:30 PM
by Marian
Marian wrote:
I too opted for a follow-up MRi (after biopsy) - it was clear! However, since this was a grade 3 and because of the family history I opted for the bi-lateral and true DCIS was confirmed at the final surgery. That is really the only way that DCIS can be confirmed (that is what two breast surgeons explained to me). The final pathology was DCIS so (thank G) I didn't need any after care (no rad, no tamoxifin etc). My goal was to avoid radiation as well because I have a problematic lung and don't want to disturb it any more than I have to. I will be following up bi-annually with MRI's. (I also opted for immediate reconstruction with silicone implants - that occurred in Oct 2007 and I am still adjusting to them) Good luck! And to address for a moment the pre-cancer vs cancer.. everything starts somewhere and my understanding is that the medical community made the changes to include DCIS Stage 0 so that cancer could be caught at it's earliest stage. It is cancer until and unless we are told otherwise since it is classified as a carcinoma (ductal carcinoma in situ) (cancer cells that have not invaded outside the ductal system of the breast). Best Marian |
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Beesie Joined: Jan 2006 Posts: 3354 |
Apr 26, 2008 06:09 pm, edited Apr 26, 2008 06:10 PM
by Beesie
Beesie wrote:
I had an MRI prior to surgery too and for me it was really helpful in my decision making. Before the MRI, I'd had three biopsies for calcifications. A stereotactic biopsy on my right breast came back as ADH; after this, I had an excisional biopsy that showed lots of high grade DCIS and a microinvasion of IDC. Right after that, I had stereotactic biopsy on my left breast that came back as being nothing more than harmless calcifications. At that point, my surgeon sent me an MRI. The MRI showed all sorts of 'stuff' in my right breast - the surgeon said that he couldn't know for sure if it was cancer or not (a diagnosis cannot be made from an MRI), but it clearly wasn't normal breast tissue. My left breast came back showing no abnormalities. That made my decision on surgery an easy one - I had a right breast single mastectomy. My preference was to have a lumpectomy, but the excisional biopsy had already removed a lot of breast tissue and the MRI results were obviously concerning so I was convinced that a mastectomy was my only real choice. On the left side, with the clear MRI plus the benign biopsy results, I was comfortable that there were no problems. As it turned out, there was a lot more DCIS in my right breast. And 2+ years out, my left breast so far is fine. BTW, my docs all called DCIS cancer. Since DCIS requires the same treatment as any other breast cancer (except for chemo, which isn't required for some invasive cancers either), I prefer to think of DCIS as being pre-invasive breast cancer. While I know it's controversial with some doctors, personally I think it's misleading and inaccurate to suggest that DCIS is pre-cancer. DCIS cells are breast cancer cells, exactly the same as other breast cancer cells; the DCIS cells simply happen to be contained within the milk ducts (for now anyway). I know that I would have had a big problem (particularly psychologically) if I'd been told that DCIS is a pre-cancer but I still needed to have a mastectomy. Dx 9/15/2005, DCIS 6cm+ Grade 3 w/ IDC microinvasion, Stage I, 0/3 nodes, ER+/PR-
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crazydaisy Joined: Jan 2008 Posts: 1171 |
Apr 26, 2008 10:37 pm
crazydaisy wrote:
Trueman My DX was made through excisional biopsy. After having many multiple digital mammos and US, I was referred straight to surgery for excisional. MRI was not even brought up. After the excisional to remove the area, 3 margins came back as involved so for me mastectomy was the recommended route to take. DCIS grade 3 comedo form with necrosis, larger area and small AA breast with unclean margins meant bye bye boobie for me. The Onc I saw this week for follow up also calls it cancer......pre-invasive. My surgeon refers to it as a pre-cursor to invasive. Viv " The way I see it, if you want the rainbow, you gotta put up with the rain"
Dx 1/7/2008, DCIS, 4cm, Stage 0, Grade 3, 0/1 nodes, ER-/PR- |
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PSK07 Joined: Aug 2007 Posts: 363 |
Apr 26, 2008 11:09 pm
PSK07 wrote:
Trudie, I, too, had an MRI prior to surgery. First mammo(s), then sterotactic biopsy which gave me the dx. The surgeon has all his patients have an MRI to be more sure of the dx and to see if there is anything going on in the other breast. As it happened, the MRI spotted something on the other side, which prompted an ultrasound and u/s-guided biopsy. That came out clear, so it was on to the partial mastectomy for the DCIS in the right breast. This took up about 3 weeks from when I first met with him til the actual surgery. He had the MRI timed to 7 days after the start of my period to ensure the best pictures and reduce false positives. The wait was agonizing, but in the long run it eased not only my mind but that of the doc. As to the pre-cancer vs cancer, obviously the doctor at Royal Bart. is better :) take care. Pam
Dx 8/3/2007, DCIS, <1cm, Stage 0, Grade 2, 0/0 nodes, ER+/PR+ |
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rockwell_gi
Joined: Mar 2008 Posts: 230 |
Apr 26, 2008 11:47 pm
rockwell_girl wrote:
Luvmy2girlz - with a mastectomy I thought radiation usually wasn't needed may I ask what the gray zone was that caused you to need radiation? I also had a mri after 2 of my 7 clusters tested positive for DCIS. Good breast on MRI only showed 2 spots to small to claify which my doctor told me not to worry about and they would check it again in 6 months. 2 weeks after my biopsy I started to feel a lump on DCIS side. During my mastectomy they did find 1.1cm IDC which we now think was the lump I felt. But oncotype score was 16 so just taking tomoxifin. Sandy/Sunshine : )
Dx 3/4/2008, IDC, 1cm, Stage I, Grade 1, 0/2 nodes, ER+/PR+, HER2- |
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Blinx Joined: Jan 2008 Posts: 141 |
Apr 28, 2008 10:58 am
Blinx wrote:
Trudie -- After my first biopsy confirmed DCIS in one breast, the surgeon sent me for a bilat MRI to rule out anything more, in both breasts. It opened up a can of worms -- lead to 2 more biopsies (1 benign and 1 ADH). And it scared me silly. We had talked about a lumpectomy, then after the MRI the possibility of a bilat mastecomy was raised. But I elected to have 2 MRI-guided biopsies. So, I ended up with a lumpectomy after all. Not looking forward to my yearly MRIs, since they might show too much, but at the moment, I'll still follow through with biopsies. Dx July 2007 DCIS Grade 3; Lumpectomy Sept 2007. ER+/PR-; Finished 33 rad tx Jan 2008. Started Tamoxifen Feb 2008.
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LUVmy2girlZ
Joined: Nov 2007 Posts: 1868 |
Apr 28, 2008 11:22 am
LUVmy2girlZ wrote:
rockwell~ Yes, mastectomy and radiation. I had ONE positive margin and since I had a grade 3, I had a 50/50 % chance of recurrence and that recurrence could be invasive. So, I had 35 rounds of rads on my mastectomy ( I currently have an expander too...now its a wait and see 6 months after rads to start fills ) I wanted to "avoid" rads too but it was a case of "Damned if you do damned if you don't." This doens't happen very much with a mastectomy... I used a surgeon of 37 years of experience. I did everything I thought was going to be an "easier path" One never knows. Much LUV Mastectomy 7 weeks radiation (35 rounds) Laughter, is the shock absorber that eases the blows of life....
Dx 11/19/2007, DCIS, 5cm, Stage 0, Grade 3, 0/3 nodes, ER-/PR- |
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maggiemae Joined: Apr 2008 Posts: 27 |
Apr 29, 2008 09:37 pm
maggiemae wrote:
Hi everyone, I was just diagnosed with DCIS last week, it was contained inside a 4mm papilloma, I had an excisional biopsy with clear margins, grade 2 DCIS, I am going for am MRI on Thurs prior to starting radiation. My breast surgeon told me that the chance of MRI not being able to detect DCIS could be up to 50%. Does anyone know about this? Anyone have any trouble with DCIS being missed afrter all the tests? Dx 4/23/2008, DCIS, <1cm, Stage 0, Grade 2, 0/0 nodes |
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JustTurnedF
Joined: Mar 2007 Posts: 195 |
May 1, 2008 10:14 am
JustTurnedForty wrote:
My MRI did not pick up the DCIS. First I had a stereotactic biopsy, which showed a lot of ADH & LDH, and borderline DCIS. Then had an MRI, which showed nothing. The pathology of my bilateral mastectomy confirmed DCIS. Janine, who is now 41
Dx 1/15/2007, DCIS, Stage 0, 0/3 nodes |
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Smalls Joined: Mar 2007 Posts: 82 |
May 7, 2008 06:05 pm
Smalls wrote:
Can someone answer questions about a breast MRI for me? What is it like? Is it like a normal MRI? I had an MRI several years ago for problems with my neck, shoulder, and arm. Will this be similar? Will I just lay still in the machine while they click the buttons for pictures? The nurse who scheduled it gave me a choice of mid day or 9 in the evening. I have missed so much work that I opted for the 9 in the evening so I wouldn't have to miss more work. She then explained that it would be a male tech. to do the MRI and wanted to know if that would be okay. I wasn't sure why it would matter if I am just laying in that machine getting pictures made. Is there something I don't know? Can someone fill me in? Thanks Jan |
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rockwell_gi
Joined: Mar 2008 Posts: 230 |
May 7, 2008 06:51 pm
rockwell_girl wrote:
you'll be asked to remove your clothing above your waist (this might be why she asked if it's ok if a male is there)and make sure no metal in your pants. If not you can keep those on. You'll lay on a table that has 2 holes for your breast to go in. Than the table slides inside this tunnel as you lay there for about 40 minutes. The machine makes a lot of load clicking sounds. I had a IV in my arm and after about 20 minutes of pictures they put that in me. I've heard it's best to schedule around a certain time of your period to be more accurate. I hope some of this is helpful. Sandy/Sunshine : )
Dx 3/4/2008, IDC, 1cm, Stage I, Grade 1, 0/2 nodes, ER+/PR+, HER2- |
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Smalls Joined: Mar 2007 Posts: 82 |
May 7, 2008 07:04 pm
Smalls wrote:
Thank you so much for the helpful information. Does this mean I will be laying on my stomach? I have already had a mastectomy on my right side with reconstruction(implant). I have not had a period since last fall so that shouldn't be a problem. Many thanks for taking time to answer my questions. Jan |
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rockwell_gi
Joined: Mar 2008 Posts: 230 |
May 7, 2008 07:28 pm
rockwell_girl wrote:
Yes you lay on your stomach for this test. I had one done before my mastectomy on my right breast and will have another one in August after my tissue expander comes out to make sure everything is fine with my left breast before we do a lift and small implant on that side. During my 1st MRI it shared 2 spots too small to clarify so they wanted to recheck that in 6 months which will be August. Is this a 6 or 12 month check up for you? Sandy/Sunshine : )
Dx 3/4/2008, IDC, 1cm, Stage I, Grade 1, 0/2 nodes, ER+/PR+, HER2- |
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Smalls Joined: Mar 2007 Posts: 82 |
May 7, 2008 07:46 pm
Smalls wrote:
This is a result of a fibroidnoma that has shown change over the past year. I have had this about 6 or 7 years and the original biopsy at that time was benign. I was diagnosed with DCIS Feb. of 07 and had a mastectomy. I had an expander put in and got my implant in June. I had a 6 month check up in Sept. and then another check in April. The radiologist who did my mammogram found this and felt that it needed to be removed. My dr. had already talked about doing an MRI in Aug. so we decided to go ahead and do it now. My MRI is Mon. and I will see the dr. on the 20th. Thanks again for answering my questions. This has helped to ease my mind. Jan |
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MAMHOP Joined: Aug 2007 Posts: 634 |
May 7, 2008 11:12 pm
MAMHOP wrote:
Trudie, I don't mean to alarm you, but I was diagnosed with DCIS via a stereotactic biopsy. Prior to my lumpectomy, I had an MRI and was told the MRI did not show any invasion. After the lumpectomy, a small .3cm tubular invasive breast cancer was found by pathology. It did not show up on MRI or mammogram. I ended up having a mastectomy due to amount of DCIS -- no additional malignancy was found. M. |
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murphmort Joined: Apr 2008 Posts: 52 |
May 17, 2008 10:37 am
murphmort wrote:
I was diagnosed on 2/1/08 with DCIS. I am currently receiving radiation (51.5% done). My radiation oncologist has said that since I am a small busted woman, MRIs aren't going to detect anything in the chest wall. I have not yet had an MRI on my right breast, I am at this point, just planning on having the digital mammos until I hear differently. Am curious if anyone else has heard this about small breasted women? Dx 2/1/2008, DCIS, <1cm, Stage 0, Grade 3, 0/0 nodes, ER+/PR+ |
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