My best friend was just dx with atypical cells in her duct just turning to DCIS i am not familiar with this dx- they are going to remove the area and i guess after the biopsy they will know more - she is obviously hoping thats all it is - She was told to remove it and then if they find nothing else to just go on tamoxifen (she is 51) still not in menopause- Has anyone else heard of cells being atypical and not quite DCIS yet and what was the tx given
thanks I am a BC survivor 2x of triple negative but I am not familiar with DCIS and my friend asked me to look into it
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awb Joined: Aug 2005 Posts: 1862 |
Apr 26, 2008 11:05 am
awb wrote:
sounds like you are describing ADH (atypical ductal hyperplasia) which is the step before DCIS. They generally do advise excision of the area to make sure there is nothing more serious in there along with it. If so, then the recommendation is generally to continue with regular mammos and breast exams and some recommend going on tamoxifen as a preventative measure. Praying they find nothing more than the ADH. Anne Dx 9/5/2003, LCIS, Stage 0, 0/0 nodes |
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3girls4me Joined: Jul 2007 Posts: 141 |
Apr 27, 2008 11:06 am
3girls4me wrote:
Hello! Congrats on being a 2x survivor! Atypical cells (or Atypical Ductal Hyperplasia), is thought to be the step before DCIS. Left untreated, it could develop into DCIS, which could develop into invasive cancer. ADH is known as a marker for increased risk of DCIS, that's why they want to remove it. When ADH is present, there is a 30% chance that its' DCIS. In my case, they found ADH on a needle biopsy, then did an excisional biopsy and found the DCIS. Ultimately, I decided on a bilateral mastectomy because I had multi-focal areas of DCIS. In my "good breast", there was an area that was described as "ADH cells approaching DCIS" that wasn't shown on any imaging. I have heard of taking Tamoxifen for ADH to reduce the risk of invasive cancer. Here's hoping ADH is all that's found! DX 6/12/07 Stage 0, Grade 1 & 2, 0/0 nodes, Bilat Mast w/recon 9/12/07
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jdash Joined: Sep 2006 Posts: 922 |
Apr 27, 2008 03:27 pm
jdash wrote:
thanks for the info 3 girls- thats exactly how they found my friends it was by pure chance and she was very lucky they were doing a needle biopsy on some calcifications(which turned out to be nothing) and the needle just happen to hit this area near her duct where they found those cells - it was sheer accident it was found i wish i had been as smart as you 11 years ago- i had what they dx as DCIS when I had my original biopsy then when they went in to do the lumpectomy i had a micro invasion- though it was sooo small they got all clear margins and i had radiation i was told if i ever had another problem with that breast they would recommend a mast well wouldnt you know my luck on my 10 th anniversary of NED - thats with going for mammo and sono every year they found tumor over 6cm in the same breast (it DID NOT show on the mammo - figure that one out! ) i was stage 3 had i opted for the mast 10 yrs before this wouldnt have happened t hank god i am now NED for 2 yrs and very lucky to be! cant look back but I am happy you chose the tx you did xoxo julia life is not measured by the breaths we take but the moments that take our breath away....
Dx 4/22/2006, IDC, , Stage IIIb, Grade 3, ER-/PR-, HER2- |
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DebzNY Joined: May 2007 Posts: 104 |
Apr 27, 2008 05:15 pm
DebzNY wrote:
Hi Julia: My dx was DCIS. A sono picked up a benign tumor very small that led to a core bx. They ran my mammo through a CAD program that magnified the area. There they picked up a broad area of microcalcification. That led to a stereotacctic that picked up Atypical ductal hyperplasia(ADH) in many areas of my right breast. The area was quite large so an Excisional bx was done. That bx confirmed DCIS, however they were unable to clear my margin. So..we did another excisional..again..couldn't clear the margin. I was scheduled for radiation and when the margins were not cleared they suggested I consult an oncologist. After months of tests and a lot of research..my mom had stage 4 BC and my sister Stage 1- I decided to do a bilateral mastectomy with diep reconstruction. God works in mysterious ways...When my left breast was biopsied it showed DCIS was just beginning. In my personal opinion I made the best choice for me. I met so many nurses in the hospital with similar experiences. At least with all the new dx testing they can pick this up for so many women. It is of course a personal decision with DCIS. When I saw my mammo with my sister(she is a nurse) my entire right breast was "peppered" with calcifications. The image never left my thoughts. I kept questioning if you can't clear margins how can we be sure the rads will get it all? I am also 51 and not in menopause yet. I had a great team of doctors and nurses that help guide me through the process to find my answers. Good luck to your friend. I know many women who did rads with tamox and are more than 5yrs out. I also have met women most recently that chose the path I took. Both treatment plans are acceptable but a personal decision as you know. Gentle Hugs Debbie Time to Live!
Dx 2/28/2007, DCIS, , Stage 0, 0/2 nodes |
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jdash Joined: Sep 2006 Posts: 922 |
Apr 27, 2008 05:23 pm
jdash wrote:
hi debbie your story sounds all too familiar i have a another really close friend who had LCIS and did not do anything after removing it and she was dx stage 3 same time as me she regrets her decision too of not doing anything more radical guess we cant look back... glad you are fine xoxox julia life is not measured by the breaths we take but the moments that take our breath away....
Dx 4/22/2006, IDC, , Stage IIIb, Grade 3, ER-/PR-, HER2- |
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awb Joined: Aug 2005 Posts: 1862 |
Apr 27, 2008 10:05 pm
awb wrote:
julia--a friend of mine told me she was so glad I was "doing something" about my LCIS (taking tamoxifen and being very closely monitored)--she wasn't even offered tamox and within 4 years developed ILC and IDC in both breasts. Dx 9/5/2003, LCIS, Stage 0, 0/0 nodes |
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