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« Forum: Chemotherapy: Before, During and After: Regimens, side effects, and support from others going through chemo.

Topic: Eyebrows and Eyelashes

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Joined: Oct 2007
Posts: 541
  • Posted on: Apr 27, 2008 11:53 am
jdg1 wrote:

I am 4 months post chemo and am now noticing the eyelashes are starting to fall out again.  Just when I think I am getting back to normal here we go again.  I don't know if they are going to completely come out again just wanted to get some insight from others who have had the same thing happen.

Also, how long does it take before your eyebrows grow in full.  I am not sure but they may be thinning again as well.

Oh, what we have to go through.  I guess I am just really upset because wearing the wig is bad enough, but not having eyelashes and eyebrows it just is hard.  I feel like I am not going to ever have the normal appearance again. 

Infiltrating Ductal In-Situ Stage IIB Grade 1 No node involvment, ER/PR + HER 2 -, Oncotype DX 17
Dx 5/30/2007, IDC, 0/2 nodes

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henny
Joined: Mar 2008
Posts: 53
Apr 27, 2008 12:24 pm henny wrote:

My eyelashes came back after chemo and then only the right eye lost them again. That was too weird but the lashes did come back completely in a couple weeks. It was like they all recycled at the same time. I can wear mascara again and now that I can, I realize how nice it was not to use that stuff. My eyebrows and hair are a little thinner than they used to be but heck at least I have hair

One of the things I dislike about this whole treatment thing is that the docs and nurses no matter how much I like them, don't tell you all the things that can happen. I suppose if they tell us all the side effects we would go crazy. It is so great to have this forum to ask about these things and find that we're not crazy and not alone.

Henny


Dx 3/2007, IDC, 1cm, Stage IIa, Grade 3, 1/15 nodes, ER-/PR-, HER2+
henny
Joined: Mar 2008
Posts: 53
Apr 27, 2008 12:24 pm, edited May 1, 2008 12:04 AM by henny henny wrote:
This Post was deleted by henny.
bluesky
Joined: Mar 2008
Posts: 333
Apr 27, 2008 12:33 pm bluesky wrote:

jdg-i used to have thick dark eyebrows and long thick eyelashes, i lost them all during chemo, it's been one year and they still have not come back fully, but i do see more, it's been very very slow, i am also using a product from talika which helps with growth, you can find it on www.talika.com.


Dx 10/25/2006, IDC, 2cm, Stage IIIa, Grade 3, 4/18 nodes, ER+/PR+, HER2-
abbadoodles…
Joined: Jun 2007
Posts: 1230
Apr 27, 2008 03:07 pm abbadoodles wrote:

jdg, I lost my eyebrows and lashes for the first time about six weeks after finishing chemo (A/C only).  Then, the lashes fell out again after another three months, not the brows.  Then, lashes fell out again after yet another three months.  A couple of weeks ago, I noticed several lashes falling out and was prepared to lose them for a fourth time, but it never happened.  Just about that group of five or so.  I think I am back on a normal schedule finally!

It's a stinker, isn't it?  I had heard it would take several rounds before the hair loss of lashes would get back on schedule so I didn't feel in a panic but it still is a pain.

Tina

ulla_hamsa
Joined: Sep 2007
Posts: 757
Apr 27, 2008 04:04 pm ulla_hamsa wrote:

dera jdg1

i can feel u ..

i finished my chemo in 25th january..i had 3 FEC and 3 taxotere

i lost all my eyebrows and lashes after the third FEC it was exactly 3 months after starting chemo...and they started to come again after 1month after i finished my chemo,,the happy news is that they came healthy and so thick ,,till now i didnt notice any thinning in them...

u can depend on supplements also..i didnt take any supplements during chemo,,but during rads i started to have the biotin pills and the vit,E

i beleive it helps alot in having them so fast and so healthy,,,

i take 3 pills of biotin daily(each pill contain 1000mg )

and i take about 900mg of vit.E (dont be afraid of the high doses)

we r not consisdered as healthy norrmal ppl to have the normal IU doses..our doses r much more higher than the doses for normal healthy ppl..

i hope i was some help for u dear

best wishes with ur treatmenst

ULLA
Dx 8/14/2007, IDC, 2cm, Stage IIIa, Grade 3, 4/27 nodes, ER+/PR+, HER2-
artsee
Joined: Feb 2008
Posts: 363
Apr 27, 2008 05:55 pm artsee wrote:

Wow, with the eye lash thing. This goes to show us just how long this stuff continues to stay in our system. Here I am ecstatic that with having one Tx left I haven't lost the eye lashes. Guess I could expect it as long as 6 month down the road eh?Yell

Evie


Dx 1/15/2008, IDC, 1cm, Stage I, Grade 3, 0/2 nodes, ER+/PR+, HER2-
jdg1
Joined: Oct 2007
Posts: 541
Apr 28, 2008 11:55 am jdg1 wrote:

Is anyone using Retivalash? 

I am taking Biotin but I guess not enough.  I will up it to 3000 I was only taking 1000 as far as Vit E I have not been taking it so I guess I will need to add that to all the other vitamins I am taking.

I guess for me it is just really hard because I work and am trying to look as normal as possible and it is hard to.  I am tired physically and mentally and when I seen this it just sent me in a tail spin.  I know this doesn't end but normalcy is what I am looking for. 

Thank you for all your input I really appreciate it. 

Infiltrating Ductal In-Situ Stage IIB Grade 1 No node involvment, ER/PR + HER 2 -, Oncotype DX 17
Dx 5/30/2007, IDC, 0/2 nodes
Nanegge
Joined: Jun 2007
Posts: 120
Apr 28, 2008 11:56 am Nanegge wrote:

Hi, Ladies!

Many women have mentioned eyebrows and eyelashes falling out weeks, even months after completing chemo. After six rounds of taxotere and carboplatin, I never completely lost my eyebrows - just the outer halves. My eyelashes thinned, but hung in there save for a few defectors that dropped out near the end of treatment.

I used a product called Revitalash - www.RevitaLash.com - that I am still using, six months after my chemo ended. I think that it has certainly made my lashes longer. It's pricey and I got mine for less on eBay (but not used..cause that is just..ewww), but it seems to last. Also, there is a touching story about the MD who created the product as a gift for his wife http://revitalash.com/the-story.html

I also used gel from Billion Dollar Brows - www.billiondollarbrows.com - and that helped fill out the thinning. Both products claim to have helped women who have been through chemo-realted hair loss, but should only be used after completing chemo, and are not effetive to rub over the entire scalp! I didn't try it, but that is what I have read! :)

Finally, I have been mega-dosing on biotin, with the knowledge and blessing of my doctor, of course! Biotin is a B-vitamin that aids in hair and nail growth. I take 5000 mcg (I think it's mcg...whatever the standard dosage unit it. It might be mg) daily, and while I am not seeing ubergrowth in my hair, I can't really complain about the 3 -5 inches of hair I have six months after chemo ended. My nails are growing really well and seem to be a little stronger.

Sorry for being so long winded, I just know so very well what you are going through, especially the frustration over appearance. I was hysterical on several occasions, holding clumps of what used to be beautiful, long, curly hair. I am talking Ativan-hysterical - a pill that my family affectionately calls the Damn-it-all pills!

I still want to cry when I see my reflection and I look more like my brother than a girl. I can't change that, but if I can help someone else get through this - then I can feel a little better, and maybe this whole crazy journey makes a little sense.

Nan
Dx 5/1/2007, IDC, 3cm, Stage II, Grade 2, 1/12 nodes, ER+, HER2+
osufan
Joined: Apr 2008
Posts: 16
Apr 28, 2008 01:13 pm osufan wrote:

I am half-way through chemo and I still have both lashes and brows (thinned out).  My friend lost all lashes and most of her brows and starting using revitalash after chemo.  Within 2 weeks of using it her eyelashes starting coming in.  After one month they were thicker than before chemo. She loves it and I plan to use it after my treatments too. It is so weird how this effects us all.

jdg1
Joined: Oct 2007
Posts: 541
Apr 28, 2008 01:51 pm jdg1 wrote:

Nanegee,

You and I feel the same as in looking like a brother.  I hate looking at myself in the mirror but with eyelashes and eyebrows I somewhat feel a little better.

I like how you and your family refer to Ativan.  I agree it is the Damn it pill.  I think if I had some this wknd I would have taken them because I just got so upset loosing the eyelashes again.  Someone else mentioned the Biotin and well as Vit B so I need to take more Biotin and add the Vit B to my daily regimen as well.

I also had curly hair not as long as yours but past my shoulder.  My hair growth seems so slow, but that is because I am waiting anxiously for its return. 

Infiltrating Ductal In-Situ Stage IIB Grade 1 No node involvment, ER/PR + HER 2 -, Oncotype DX 17
Dx 5/30/2007, IDC, 0/2 nodes
jdg1
Joined: Oct 2007
Posts: 541
Apr 28, 2008 01:52 pm jdg1 wrote:

Osufan,

My lashes did not fall out until my last treatment with Taxol.   I thought I was saved.  I am not sure if I should use the revitalash now being they are starting to fall out again.

Ladies any thoughts?

June

Infiltrating Ductal In-Situ Stage IIB Grade 1 No node involvment, ER/PR + HER 2 -, Oncotype DX 17
Dx 5/30/2007, IDC, 0/2 nodes
smithlme
Joined: Dec 2007
Posts: 414
Apr 28, 2008 02:57 pm smithlme wrote:

AC took my hair, but Taxol took my eye lashes and eye brows. They started to grow back soon after chemo ended. It's been 8 months since chemo ended and they've thinned out twice...

Linda

Dx 3/31/08, DCIS, ER+/PR- "In the book of life, the answers aren't in the back" - Charlie Brown
Dx 3/28/2007, IDC, 2cm, Stage II, Grade 3, 0/9 nodes, ER-/PR-, HER2-
wishiwere
Joined: Dec 2007
Posts: 1459
Apr 28, 2008 03:30 pm wishiwere wrote:

A/C took my hair, but not all my lashes/brows.  My brows were already thin from the hypothyroid stuff, so I was surprised I didn't loose the rest of them.  Now all are growing back and even the brows are thickening up, although that might be the levothyroxine.

One thing I wanted to mention or ask about is that I noticed on the vitamin E I have, that it's listing Soybean as one of the ingredients. I use for some skin repair on places I've been zapped for pre-skin cancer.  Do you ladies take on that doesn't contain soy, or are you concerned about that ingredient at all?

wishiwere
Dx 9/21/2007, ILC, 1cm, Stage I, Grade 2, 0/4 nodes, ER+/PR+, HER2-
jdg1
Joined: Oct 2007
Posts: 541
Apr 28, 2008 04:46 pm jdg1 wrote:

Wishiwere,

Good point on the Vit E.  Do they actually have the vitamin without the soybean?  I will look into that as well because I was told to stay away from soybean products.

June

Infiltrating Ductal In-Situ Stage IIB Grade 1 No node involvment, ER/PR + HER 2 -, Oncotype DX 17
Dx 5/30/2007, IDC, 0/2 nodes
rockthebald…
Joined: Apr 2008
Posts: 505
Apr 28, 2008 06:39 pm rockthebald wrote:

jdg1 -- i am sorry for your situation, but am grateful that you raised the issue.  for some reason, i have coped pretty well (so far) w/ just about anything thrown at me but when I think about losing my eyebrows and eyelashes . . .

i had good luck with biotin a few years ago when i dropped a television AND a couch on my big toe (not deliberately) and had to regrow a toenail.  but is it okay to use it DURING or BEFORE chemo? i.e., if it helps promote cell growth among rapidly dividing cells, does that include cancer cells?) 


Dx 2/20/2008, IDC, 1cm, Stage , Grade 3, 1/4 nodes, ER+/PR-, HER2-
HeatherBLoc…
Joined: Dec 2007
Posts: 817
Apr 28, 2008 06:49 pm, edited Apr 28, 2008 06:51 PM by HeatherBLocklear HeatherBLocklear wrote:

If I lose my eyelashes and eyebrows, I'm going on a rampage. I'm serious.

Annie

LorenaB
Joined: Feb 2008
Posts: 535
Apr 28, 2008 06:56 pm LorenaB wrote:

I've had 3 of 4 tx of A/C and eyebrows are thinning slightly (but they were thick to begin with so no one but me would notice).  Eyelashes are hanging in there so far.  I'm not doing taxol and I'm hoping they will stay put.  Annie, I'm with you.  It's like adding insult to injury.


Dx 12/20/2007, IDC, 1cm, Stage II, Grade 3, 1/11 nodes, ER+/PR+, HER2-
abbadoodles…
Joined: Jun 2007
Posts: 1230
Apr 29, 2008 10:57 am abbadoodles wrote:

Just a note of hope:  After my lashes and brows fell out, they immediately started growing back in.  It really does not take long.  In a very few cases, there are issues but I think these are anomalies.  Most people's lashes come right back in and just the same as before.

Tina

Nanegge
Joined: Jun 2007
Posts: 120
Apr 29, 2008 01:57 pm Nanegge wrote:

June - You can start the Revitalash now if you want. Since you have finished chemo - and assuming it has been more than 3 weeks since your last infusion, the loss you are seeing is actually the normal cycle of loss/regrowth that everyone experiences. Chemo girls like us lost a bunch of eyelashes at once, so our "cycles" are a little messed up, making it seem like we lose all of them at once. I think now is an ideal time to use a regrowth product and get that cycle back in line.

It is interesting that you were told to avoid soybean products. My oncologist told me that while he didn't want me to go crazy and overload, it was perfectly safe for me to have soy products, like the Slik soy milk, in moderation. I know there has been a lot of conflicting info about soy out there, but it seemed like the general consesus was coming around to an acceptance in moderation.

Rock - I took supplements all through my chemo treatments, and my onc knew (evetually!) what I was on. He said that as long as it wasn't estrogen-realted, he didn't care. I never needed a Neulasta shot and my RBC counts actually improved. Among my regeime was biotin, which is vitamin-B, and as far as I know, does not feed cancer cells. Of course your onc is the final word for what you should and should not do, and he/she might not want you on anything for fear that it will affect the chemo.

Wish- I think I have seen pure Vitamin E Oil in the health food store. I bet that you could apply it directly to the scalp. I have some Doo Grow hair oil and that is what I do. As you can tell, I am willing to try just about anything to get my hair growing! :)

Nan
Dx 5/1/2007, IDC, 3cm, Stage II, Grade 2, 1/12 nodes, ER+, HER2+
SuperMujer
Joined: Mar 2008
Posts: 98
Apr 29, 2008 06:53 pm SuperMujer wrote:

Annie, I'm joining the rampage line when my brows and lashes drop out.

Was'nt my hair enoughYell I just finished Adria and start Taxol in two weeks. I'm sure that they will go soon after.Cry

LA

SuperMujer!
Dx 1/2008, ILC, Stage II, Grade 2, 1/15 nodes, mets, ER-/PR-, HER2-
SuperMujer
Joined: Mar 2008
Posts: 98
Apr 29, 2008 07:02 pm SuperMujer wrote:

Ann,

You're a champ!!! Thanks for the useful info..

LA

SuperMujer!
Dx 1/2008, ILC, Stage II, Grade 2, 1/15 nodes, mets, ER-/PR-, HER2-
survivor219…
Joined: Apr 2008
Posts: 1
Apr 29, 2008 07:15 pm, edited Apr 29, 2008 07:29 PM by survivor219 survivor219 wrote:

Hey don't worry about eyebrows and eyelashes.  They do grow back. 

otter
Joined: Jan 2008
Posts: 1863
Apr 29, 2008 08:46 pm otter wrote:

survivor, I know you mean well, but some of us are going to worry anyway, OK?  I mean, I can cover my bald head with a cap or a scarf or a wig; but WTH do I do when I have no eyelashes or eyebrows???  I can't use adhesives on my skin and I can't wear most standard types of makeup, so saying, "Oh, just stick on some false eyelashes!" won't cut it.  And, I guess I was hoping not to spend an hour every day putting on fake body parts just to hide what BC has done.

OTOH, what choice do we have?

otter 


Dx 1/14/2008, IDC, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR-, HER2-
LorenaB
Joined: Feb 2008
Posts: 535
Apr 29, 2008 09:48 pm LorenaB wrote:

Survivor, I noticed your comment before you edited it -- and it wasn't only about eyebrows.  Are you ok?

Lauren


Dx 12/20/2007, IDC, 1cm, Stage II, Grade 3, 1/11 nodes, ER+/PR+, HER2-
jdg1
Joined: Oct 2007
Posts: 541
Apr 30, 2008 01:28 pm jdg1 wrote:

It was really hard for me the first time I lost my eyelashes and eyebrows because it made me feel like I can't cover anything up now.  I know it seems like petty stuff to be worried about but I had to keep up an appearance as I worked throughout all of my tx.  For me to lose them again is just upsetting, I know there are worse things out there and I am sorry if I offended anyone by starting this post.

Infiltrating Ductal In-Situ Stage IIB Grade 1 No node involvment, ER/PR + HER 2 -, Oncotype DX 17
Dx 5/30/2007, IDC, 0/2 nodes
otter
Joined: Jan 2008
Posts: 1863
Apr 30, 2008 02:07 pm otter wrote:

jdg1, I sure hope you didn't offend anyone.  I know that, of all the chemo SE's I read about, losing eyebrows and eyelashes was rarely mentioned.  What I read was that it was such a surprise to women who had already lost their head hair (which they were expecting).  Now, after reading these BCO boards, I realize that I might not lose eyebrows and eyelashes until after my last chemo tx; and when they grow back, they might fall out again ... and again ... etc.

Hrumph!

otter 


Dx 1/14/2008, IDC, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR-, HER2-
WellWater
Joined: Dec 2007
Posts: 1818
Apr 30, 2008 02:18 pm WellWater wrote:

I am 9 weeks out of T/C chemo - had lost a good amount of eyebrows and lashes and now it seems the few remaining hairs are abandoning ship.  I don't mind the bald head, that can be covered with a wig or cap but I cannot walk around with a bag over my face - at least not all the time! 

UGH


Dx 11/7/2007, ILC, 1cm, Stage I, Grade 1, 0/0 nodes, ER+/PR+, HER2-
abbadoodles…
Joined: Jun 2007
Posts: 1230
Apr 30, 2008 03:25 pm abbadoodles wrote:

Oh, shucks, no comments about freaking out about tx se's are out of line. 

Hey, when the oncs tell you that A/C causes you to lose ALL body hair, that's just what it means.  Almost everyone loses it EVERYwhere. Wink  Gawd, it's awful.  You have every right to be upset.

Tina
HOLLYROD
Joined: May 2008
Posts: 5
Apr 30, 2008 10:50 pm HOLLYROD wrote:

I was diagnosed jan 8, 2008 with invasive ductual carcinoma and just finished my last round of chemo.. and the hair was bad, but i agree the eyebrows and eyelashes are thinning and just an outward reminder of my illness .. i no longer wear my wigs mostly scarfs dont care much what other people think .. since too much trouble to try to look like someone not going thru this battle.. afterall i did nothing to bring this on and neither did the rest of my breast cancer sisters.. so i am starting to feel proud of where i am at.. sick and all.. i have madt it thru surgery and chemo and will start radiation on mon   

HOLLYROD
Joined: May 2008
Posts: 5
Apr 30, 2008 10:50 pm, edited Apr 30, 2008 10:52 PM by HOLLYROD HOLLYROD wrote:

I was diagnosed jan 8, 2008 with invasive ductual carcinoma and just finished my last round of chemo.. and the hair was bad, but i agree the eyebrows and eyelashes are thinning and just an outward reminder of my illness .. I no longer wear my wigs mostly scarfs dont care much what other people think .. since too much trouble to try to look like someone not going thru this battle.. afterall i did nothing to bring this on and neither did the rest of my breast cancer sisters.. so i am starting to feel proud of where I am at.. sick and all..I have made it thru surgery and chemo and will start radiation on mon   

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