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« Forum: Radiation Therapy: Before, During and After: What to expect from treatment and ways to manage side effects.

Topic: tender breast

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Joined: Sep 2007
Posts: 3
  • Posted on: Sep 13, 2007 06:50 pm, edited Sep 13, 2007 06:50 PM by Diw
Diw wrote:

I have had only 4 rad tx's (out of 33) and my breast are very tender - with the rad side more so.  I wear the same bras as always, same diet, and just finished my period a week ago so this is not normal for me.  I have heard a lot about skin problems but nothing about this deep tenderness. Is this normal?

Posts 1 - 21 (21 total)
Bendcoles
Joined: Jun 2007
Posts: 46
Sep 13, 2007 06:54 pm Bendcoles wrote:

I'd say the answer is yes. The radiation makes my breast tender too.

Diane

Diane
Alli
Joined: Dec 2006
Posts: 94
Sep 14, 2007 05:55 am Alli wrote:

My breast was also very sore and tender and especially sensitive at the nipple.  The sensitivity eased up some during treatment.  The soreness/tenderness will last a while.  I am 5 months post treatment and can't tolerate close hugs and find myself guarding my breast because it is still a little sore.

Good luck to you,

Alli

watson
Joined: May 2005
Posts: 1183
Sep 14, 2007 10:13 am watson wrote:

Hi,

It's been 2 years since my radiation treatment and I STILL have tenderness.  The close hugs and tummy sleeping are all done very carefully now.  Oh, and mammograms are even less fun than before!  Yell

But it's tolerable.  Take care!

Watson

HollyHopes
Joined: Feb 2007
Posts: 356
Sep 14, 2007 12:37 pm, edited Sep 14, 2007 12:37 PM by HollyHopes HollyHopes wrote:

Hello,

I finished up with rads about 2 weeks ago.  I have extreme tenderness and sensitivity at the lumpectomy site and also the nipple.  I can't stand the seatbelt across me when I drive (right breast was affected).  I hope it eases up....I'm sure it will.  I hope you will do ok...I found wearing soft sports bras much nice than my usual 'boulder holder' underwires!!  At home I go braless...the best feeling!


Dx 2/7/2007, IDC, Stage I, Grade 3, 0/3 nodes, ER-/PR-, HER-
CaliforniaK…
Joined: Sep 2006
Posts: 374
Sep 14, 2007 01:51 pm CaliforniaKate wrote:

After I finished rads I would cringe everytime someone looked like they were going to hug me. The sensitivity lasted about a year. I used to wear a fanny pack around my waste when driving, and would hook the seat belt under the bottom of the fanny pack so it wouldn't touch my chest area. All that eventually went away.     Kate

SNJulie
Joined: Jun 2007
Posts: 44
Sep 18, 2007 07:33 pm SNJulie wrote:

Diw

I was super sore from radiation. Both of my breasts were incredibly tender, felt like it did when I was pregnant... I asked all the docs about it ... no one could understand the tenderness on the "normal" side.  It was especially bad when I went from lying down to standing.   

The tenderness started to go away after treatments.  It has been 2 months and is getting better but still no sleeping on my stomach or tight hugging.  Still hurts a ton when I take my bra off.

Julie

dawnjs5k
Joined: Mar 2007
Posts: 105
Sep 18, 2007 07:47 pm dawnjs5k wrote:

I just finished my rads last week.  I have a lot of sensitivity or tenderness in my breast.  I do have it in the left side a little, but in the right side a whole bunch.  Up and down stairs in miserable for me.  My doc told me that the tenderness could last up to 2 years.  He said what was left at that point was not going away.  I am ever so hopeful that it will beging to get better.

Dawn

Diw
Joined: Sep 2007
Posts: 3
Sep 19, 2007 09:39 pm Diw wrote:

Thanks for all your comments!  Julie you have described it so well I know you feel my pain.  It does seem to be a confussing issues. I received three different answers from the same office in the same day.   The techs said. "that is not a symptom of radiation" with such assurity that I was annoyed. The nurse said the tenderness is a symptom but could not explain the reason.  She was most sympathatic and suggested an anti-inflamatory.  The Dr. said it was from the lumpectomy and all "the little nerves were waking up."  Hum I thought... Prior to the first rad tx, I felt back to normal and was quite pleased that all the little nerves had begun to work right - so was my husband. 

The nurse was most helpful and the Advil has helped but I don't like taking anything.  I also increased exercise - despite the pain - and this seems to have helped.  Keep climbing those stairs Dawn - Just don't bounce!  

clairecbron…
Joined: Sep 2007
Posts: 3
Sep 23, 2007 12:45 pm clairecbronte wrote:

Thanks to all of you, not that I'm glad we're all in pain, but that it's a normal side effect.  It's been 5 months since my radiation treatments and my breast hurts more now than ever.  I'm glad to hear that the pain will lessen with time!!

Thanks,

Claire

HollyHopes
Joined: Feb 2007
Posts: 356
Sep 29, 2007 11:12 pm, edited Sep 29, 2007 11:12 PM by HollyHopes HollyHopes wrote:

ah....what we all go through is just amazing...we are warriors....even though, perhaps reluctant ones...my boom still hurts...especially the nipple areola area...


Dx 2/7/2007, IDC, Stage I, Grade 3, 0/3 nodes, ER-/PR-, HER2-
nevaeh
Joined: Oct 2007
Posts: 80
Apr 16, 2008 07:28 pm nevaeh wrote:

I finished rads in Jan 08 and during that time my contralateral breast became very tender and sore.  My bc surgeon did an ultrasound and it was normal and told me it was an "emphathy breast" reaction to the rads.  Hmnn.

Now, it's April, contralateral breast is still sore and tender and the one that had bc is very very sore and tender.  Seemed to get a little better after rads and then--now worse.  Saw my OB/GYN and she did a breast exam and didn't see or feel anything odd.  R/L Breast MRI in February was clean.

Gosh, I am troubled and SORE!  No one seems to have any answers.  You know - scared about recurrence, trying to be positive. 

In addition have this right side rib cage pain.  Sometimes so sharp it takes my breathe away and I exclaim in pain outload scaring all around me.  One doc says nerve inflamation; another possibly a cracked or broken rib.

Am I normal.  Most of my friends and family think I'm paranoid and over-reacting.  I truly want to get back to the world of the living and not complain, but I hurt and I am scared.

Any comments, help, prayers.  Thanks.

Look Well to This Day and Trust in God
Dx 8/1/2007, ILC, , Stage I, 0/1 nodes, ER+/PR-, HER2-
Pam40
Joined: Apr 2008
Posts: 15
Apr 17, 2008 03:49 pm Pam40 wrote:

Hi Djw,  My Rad Onc team does the same thing to me.  Every pain or symptom I have had throughout rads has been explained to me by them saying it is not from radiation.  Yet I never had any of it before and felt fine after surgery.  Makes you want to just scream!!!  Yes I have had not just breast soreness but very intense pain with swelling.  The pain changes in intensity from little to bad and vice a versa.  I have 6 more treatments to go, am burned on my arm and under my arm.  I definitely feel your pain.  One lady suggested swimming which I plan to start as soon as the rad techs don't need me to keep the marks on me any more.  I think swimming heals the entire body much faster than any other exercise.

Pam

VBG
Joined: Jan 2008
Posts: 192
Apr 17, 2008 04:12 pm VBG wrote:

Hi All,

I too had swelling and tenderness.  The tenderness started right after my lumpectomy and got worse and included more swelling and pain after rads.  I am now 18 months past rads and still have all the same issues.  All the Docs, BS, onc, rad onc all could not figure out why I had so many issues!  I kept going back each 3 months and no one could give me an answer.  They did an ultra sound to look for infection but saw nothing but "inflammation".  The belief is that there is necrosis in the tissue and since my lymph system was compromised due to rads and SNB evidently the "inflammation" could not find a way out!

Very frustrating to see all these "experts" and all of them look at you and have no explanations.

BTW the good news about my persistence is that I eventually got my onc to agree to annual breast MRIs and in the first one they found a .6mm mass.  So while I do not think any of my symptoms had anything to do with the BC recurrence it did make me continue to push for tests which allowed me to find the BC much sooner!

My take away is that none of us is crazy and if you are concerned about anything and do not feel you are getting adequate answers keep going and keep pushing until you do!  Get a second or third opinion if you need it! 

You are all in my prayers!


Dx 5/21/2006, ILC, 1cm, Stage I, Grade 1, 0/2 nodes, ER+/PR+, HER2-
Connie07
Joined: Feb 2008
Posts: 53
Apr 18, 2008 03:31 pm Connie07 wrote:

I thought I was turning into a whiner. My boobs ache, both of them. the BC one on left hurts the most. I'm 6 months out of my 33 rads and I'm still having flaky skin on that nipple. The surgeon had said I wouldn't even notice the space where she removed in lumpectomy. WRONG. There's a nice size dent. There's a scar I can see and feel. I went this week to a prosthetic store and they were the nicest ladies ever. She validated my concern over the difference in size (nobody EVER mentioned the shrinkage factor) and promised to help with a bra that has a pocket to keep a custom sized device in place. She even gave me a loaner foam piece and it made them look more alike than EVER. YAY.  They sell special swimsuits too. My ins. helps with 80%. Never thought I'd need insurance to buy a bra.


Dx 6/6/2007, DCIS, 5cm, Stage I, Grade 1, /0 nodes, ER+
nevaeh
Joined: Oct 2007
Posts: 80
Apr 18, 2008 06:09 pm nevaeh wrote:

My dear sisters,

I am so sorry for your pain; however, knowing I am not alone, knowing its "not in my head" and that all my friends, family and doctors telling me with words or unspoken looks that I should be well by now, the radiation doesn't cause "that", your breast is just the same size, you should be okay now right--you're done with treatment. 

Anyway, thanks for the responses.  FYI my BC Surgeon ordered an anti-inflammatory.  I'm just not sure. You see, I have prescriptions for anti-depressents, anti-inflammatory, nerve pain, pain pain, constipation, and only the Lord knows what else.  If I took them all I'd probably be dead even though they are all prescribed (so much for what are you taking list).

For me, I am going to go about the business of living.  I'm going to eat, sleep, drink, make love, work, garden, and whatever else til it hurts.  I hurt anyway so why the hell not.  If this BC beast rears its ugly head again, I'll cry and weep and continue to pray like I do now for myself and all of you.  But, you know what - I'll be ok and so will you.  And, I'm going to give myself permission to know that I do hurt and it's ok to be gentle with myself when I do.

Trusting in the Lord,

Look Well to This Day and Trust in God
Dx 8/1/2007, ILC, , Stage I, 0/1 nodes, ER+/PR-, HER2-
linda6101
Joined: May 2008
Posts: 3
May 7, 2008 07:02 pm linda6101 wrote:

I am so greatful for your outlook.  I find it very inspiring!!  It's been a year since radiation.  My nipple remains very sensitive, especially when wearing certain clothes and/or being hugged.  Sometimes it is very painful if any clothing touches it.  Other times it doesn't bother me as much.  I savor the times I feel good and try to remember when I don't that I'll feel better again.  I 've had the same frustrations as a lot of you about the lack of validity for this.  My radiologist said my symptoms would go away a month after treatment.  My uncology surgeon says my problem is about 1 % of the population.  I'm so sorry that any of you have pain or discomfort but also comforting to hear about similar situations.

snowyday
Joined: Jun 2007
Posts: 1244
May 7, 2008 07:14 pm snowyday wrote:

I didn't wear a bra through my rads treatment because I did one day and it tore my skin under the breast so I just didn't wear one, but it was winter.  I did try a bicycle top you know the short sleeved tight ones it felt sort of good because it didn't move around and rub the skin. I also slathered on pure Aloe Vera Gel the clear stuff, not coloured and it was a strange feeling when I'd apply it you could literally feel the heat coming out weird. The worst part is the nipple itching I was constantly holding my hand over it any change in temperature would cause it.  Stil get that a bit but not to often. My breast healed well, but in the last month the outside of it started feeling really tender like an idiot I thought good pms I'm going to get a period, sadly I'm looking forward to one, I think it will make me feel a little normal. But still no period just the tenderness. Don't quite understand why it is starting up now.  What I don't get is the denial that comes from the rad onc...it's alway an answer like....really well that's new or thats different, one day I'm going to tell him fry a testicle and let me know how it feels a few months later.  That was mean but it would be funny.

PN
Dx 5/18/2007, IDC, 3cm, Stage IV, Grade 3, / nodes, mets, ER-/PR-, HER2-
4darmstrong…
Joined: Jan 2008
Posts: 14
May 8, 2008 12:41 pm 4darmstrong wrote:

Snowyday,

   

       Yes, that was mean but we all agree with you. It would be funny.

Sandra
Dx 10/11/2007, IBC, , Stage IIIb, Grade 2, ER+/PR+, HER2-
linda6101
Joined: May 2008
Posts: 3
May 17, 2008 09:25 am linda6101 wrote:

I feel the same way you do and have wanted to say the same thing!!!  My rad told me that a month after rad I wouldn't know I had it.  It's a year later and my nipple is still very sensitive.  My dermatologist recently prescribed Zonalon in combination with Aquafour (not sure of sp.)  I would recommend you ask a doc about this option.  I am feeling much better.

VBeegle
Joined: May 2008
Posts: 4
May 17, 2008 10:45 pm VBeegle wrote:

Has anyone had any seeping around the nipple?

Connie07
Joined: Feb 2008
Posts: 53
May 19, 2008 12:55 pm Connie07 wrote:

What I love about this site is that we all have the same concerns, we all tell our docs and all of our docs say we are nuts. THEY are nuts, they don't do radiation on themselves, they just practice it on us. He said, after the first week, "see?, this is ALL we are doing to you". He never said all the side/after effects. I thought he was the honest one, looking me straight in the eye. Telling me he was going to be right there through all of it. Last time I went and lightly complained, he blew me off. I left feeling stupid and empty. LOOK- DOC... its smaller. LISTEN TO ME... it HURTS. it's enough to want to take pills everyday. And that breast looks different and that hurts my feelings in a weird way.

About seeping, no, I haven't had that, but there's a waxy sort of discharge and it itches a good bit. They didn't let me use anything but corn starch when the skin broke down. Now I don't care. It reminds me all by its self every day. Never thought hugging would be a problem. Never in a million years did I ever think I would stuff my bra, don't like that either. I should be back in the bitch and moan thread. 

 


Dx 6/6/2007, DCIS, 5cm, Stage I, Grade 1, /0 nodes, ER+

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