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chemomom Joined: Aug 2007 Posts: 166 |
Dec 17, 2007 02:45 pm
chemomom wrote:
Hi Barbie. I'll be there with ya! I have my last of 6 chemo this Thurs and will be starting Rads in January as well. I already had my CT's and x-rays and have my tattoos for the rads. Can't wait to lie around topless every day! But I hear that compared to everything else, rads is a breeze. Guess we'll find out soon. Angie Dx 7/16/2007, IDC, 6cm+, Stage IIb, Grade 3, 0/3 nodes, ER-/PR-, HER2+ |
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Miss_Lolli Joined: Oct 2007 Posts: 541 |
Dec 17, 2007 06:20 pm
Miss_Lolli wrote:
Hi girls! I go for my planning session tomorrow as well.. (you'll be in my thoughts Barbie). And I'll be starting right after the New Year too...whoopie! lol I think I'm more nervous about the mapping than the first zap, just for the sheer length of time it will take. Angie, I hope you're right and it does seem like a breeze. Just one more step. My chemo ended the end of Nov. so I'm really starting to get my energy back and want to hang onto it. Did you learn anything that you hadn't seen on the boards at your planning session? Well...let's keep in touch girls and hold each other's hands through this next part. If I stumble you can help me up. lol Happy Holidays! Lori
Dx 8/2007, IDC, 1cm, Stage II, Grade 2, 1/17 nodes, ER+/PR+, HER2- |
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DGHoff Joined: Sep 2007 Posts: 213 |
Dec 17, 2007 07:07 pm
DGHoff wrote:
Hey there all, I'm set for rads in January too, but not until the 21st (still have 2 left of weekly Taxol/Herceptin). Hey Miss Lolli, I'm from the Twin Cities as well! Maybe the rads will help us stay warm during the thick of things this winter! DeAnn Dx 6/14/2007, IDC, 6cm+, Stage IIIa, Grade 3, 7/8 nodes, ER+/PR+, HER2+ |
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3boys4me Joined: Mar 2007 Posts: 217 |
Dec 17, 2007 09:19 pm
3boys4me wrote:
I may be joining you. I have my last AC tx on 1/7 and don't know how long I will have to wait before starting rads. Hopefully not long - I really want to get this done and over with. Though then it'll be reconstruction, but that seems like a long way off... Dx 2/2007, IDC, 5cm, Stage IIb, Grade 2, 6/14 nodes, ER+/PR+, HER2- |
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Miss_Lolli Joined: Oct 2007 Posts: 541 |
Dec 18, 2007 12:34 am
Miss_Lolli wrote:
DeAnn....well maybe there is an upside to this rad thing. We'll be walking around with a built-in hand warmer right where it's convenient. lol Just have to remember not to take advantage in public. Did you watch Monday Night Football tonight? Sure am happy with the Vikes turn around! I didn't play fantasy football this year, so I needed that. Well...here's wishing for a quick winter and some hair for us all by the time it warms up. I'll report back and let everyone know how the planning went. My first tattoo....Oh boy! lol Lori
Dx 8/2007, IDC, 1cm, Stage II, Grade 2, 1/17 nodes, ER+/PR+, HER2- |
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shrink Joined: Jun 2007 Posts: 861 |
Dec 18, 2007 08:33 am
shrink wrote:
I'll be joining your group in January too. I've completed AC, Taxol and had a bi-lat mast. two weeks ago. I'm due to meet with the radiologist later this week for planning. I'll be taking Xeloda concurrently since all lymph nodes taken during surgery were pos. for cancer. (@^$*^!) Let's do it. Ladies! |
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wackyjackie
Joined: Aug 2007 Posts: 478 |
Dec 18, 2007 08:51 am
wackyjackie wrote:
Hi Girls, I'm jumping in over here. I started rads yesterday, so I'll be in for the whole month of January too. It felt like nothing. We'll see as time goes by. The girls on the December thread have some sunburn type effects. I'll keep you posted. Good luck to all of you. Lots of hugs, Jackie |
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mrs_X_Sunne
Joined: Apr 2007 Posts: 448 |
Dec 18, 2007 11:10 am
mrs_X_Sunneedazee wrote:
Hey Jackie, I am such a follower!!! Hi gals, I have had 8 radiation treatments, and will be receiving radiation throughout January as well, so I would like to visit you all on this thread too. I am starting to feel a little fatigued, but I'm always tired at the end of the day anyway. I am a stay at home mom of 5 kids, but my second occupation is a cancer patient. I spend about 14 hours a week driving to and from the hospital, and at various dr. appointments. I wish you all the best and look forward to getting to know all of my rad sisters. Stage 4 Inflammatory breast cancer, mets to the bones and lung.
Dx 5/10/2007, IBC, 6cm+, Stage IV, Grade 3, 3/5 nodes, mets, ER+/PR+, HER2+ |
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Breeze Joined: Dec 2007 Posts: 13 |
Dec 18, 2007 05:27 pm
Breeze wrote:
I start Jan 2nd. Today they made a foam impression of my body that I will lay in for the treatments. Anyone else have this? Dx 4/27/2007, IDC, 4cm, Stage IIIa, Grade 2, 3/5 nodes, ER+/PR+, HER2- |
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wackyjackie
Joined: Aug 2007 Posts: 478 |
Dec 18, 2007 05:54 pm
wackyjackie wrote:
Hi Breeze, Yes. I had the impression and it's so easy to just hop on the table and get situated. Literally, I am on the table for 5 minutes. Good luck. Lots of hugs, Jackie P.S.--Hi Sunnee, glad to have the company. |
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Barbie7 Joined: Nov 2007 Posts: 209 |
Dec 19, 2007 10:20 am
Barbie7 wrote:
Breeze - I didn't have a mold made, but I did get 4 tattoos. Still 2 or 3 more to come on first day of rad. the ones on my side weren't much more than a sting, but then they did one on my sternum and holy cannoli, I jumped off the table on that one. I don't know how people can get full tattoos! Barbie |
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Miss_Lolli Joined: Oct 2007 Posts: 541 |
Dec 19, 2007 09:36 pm
Miss_Lolli wrote:
Well, had my mapping yesterday...can't believe I was nervous about that for days. lol It really only took about half an hour when all was said and done....then again I have a "dry run" before I really start, so maybe they split what some people do in one visit into two appointments for me? Anyway, I was glad the CT scan wasn't a claustrophobic thing at all and was fairly quick. I got four tattoos, which felt like mosquito bites...then again, I didn't have one on my sternum, that doesn't sound very comfy. This was my first tattoo ever, and now with this association, I can guess most likely my last. lol So, I have "practice" on the 2nd and start for real on the 3rd. Does anyone else have to go for longer than six weeks? I guess since my tumor was close to the chest wall, and close margins, I get seven. I hope those of you that have already started are still feeling well. Hugs Lori
Dx 8/2007, IDC, 1cm, Stage II, Grade 2, 1/17 nodes, ER+/PR+, HER2- |
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GaleTx Joined: Nov 2007 Posts: 84 |
Dec 19, 2007 10:46 pm
GaleTx wrote:
Hi ladies, I am jumping in over here too.I have had 2 rads and will be January rad too and until Feb 5th. Only 31 more to go! Sunnee, glad you got new boobs! Sorry you are so tired,keep the faith. Hugs,Gale Dx 9/27/2007, DCIS, 1cm, Stage I, Grade 1, 0/1 nodes, ER+/PR+, HER2- |
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shrink Joined: Jun 2007 Posts: 861 |
Dec 20, 2007 01:45 pm
shrink wrote:
I had my "simulation" session today. Since my surgery was just over 2 weeks ago and since the drains just came out on Tuesday, I hadn't been able to do the range of motion excercises except for yesterday. Keeping my arms over my head was a little bit of a strain but everything else went OK. I didn't want the tech or the radiologist to see my scars but I guess that's another thing I'll just have to get over. I'm scheduled for 6 weeks of rads beginning Jan 3. There was no body mold but 4 tatoos. The sternum tatoo hurt but the rest were no big deal. |
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chemomom Joined: Aug 2007 Posts: 166 |
Dec 20, 2007 10:32 pm, edited Dec 20, 2007 10:33 PM
by chemomom
chemomom wrote:
I also had the mold made, but just of my legs. And I find the tattoos to be very disappointing-- I don't have any others and I only have one where I can attempt to look at it and it is the tiniest darn thing! I wanted to "show them off." :) I couldn't feel the 2 on my sides-- still numb from surgery. I just had my last chemo and the rad onc had said start 2 weeks after tx but my regular onc said wait three, so I'll be starting maybe around 1/10 (also my first Herceptin only tx). And I think I was told I'd have about 7 weeks. Not really sure yet though. I ordered a crystal deodorant stick from Amazon as I was told no regular deodorant, powder, etc under the arm to be treated by the rad onc. Since I am staring back to work... I don't want to take any chances, even though I have also heard that rads prevents any stinkies from perspiration. Other than that, I didn't get many tips. Angie Dx 7/16/2007, IDC, 6cm+, Stage IIb, Grade 3, 0/3 nodes, ER-/PR-, HER2+ |
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lizyeh Joined: May 2007 Posts: 279 |
Dec 20, 2007 11:20 pm
lizyeh wrote:
I may be joining you. I am getting mixed recommendations from all my doctors due to the fact that I only had one positive node and I also had neo-adjuvant chemo so they really don't know how many nodes I may have had. And to complicate things, I just had my implant exchange surgery a week ago and am afraid that the radiation will ruin it. Does anyone else here have implants? Dx 4/13/2007, IDC, 1cm, Stage II, Grade 3, 1/11 nodes, ER+/PR+, HER2- |
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DGHoff Joined: Sep 2007 Posts: 213 |
Dec 20, 2007 11:27 pm
DGHoff wrote:
Hi Lizyeh, I'm actually getting my expander out and implant put in before I start rads on the 21st. My PS has found in his practice, and the studies are backing him up, that there is less risk of infection, etc if done before rads starts. There is definitely greater risk of capsular contraction when you do rads with an implant, but the radiation shouldn't hurt the implant at all. It just depends on how much scar tissue builds up around the implant. He said that massaging it should help a lot to decrease the buildup. Also, I'm getting one that has some surface texture and that is supposed to help keep the scar tissue from building. What kind of implant did you get? Angie, I hear you on the tattoos. I figure if I'm gonna have a tattoo I should at least show it off to folks. Oh, and I have one of those crystal deoderant sticks, and they work AMAZINGLY well. Even my husband has switched over to using one because they really do keep you from stinking! DeAnn Dx 6/14/2007, IDC, 6cm+, Stage IIIa, Grade 3, 7/8 nodes, ER+/PR+, HER2+ |
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lizyeh Joined: May 2007 Posts: 279 |
Dec 20, 2007 11:47 pm
lizyeh wrote:
Hi DeAnn, Thanks for the info. I will look forward to hearing your progress. Any special way of doing the massaging? I got smooth unfortunately and I know that I have a higher risk of capsular contracture because of that but I didn't know that before he put them in. Dx 4/13/2007, IDC, 1cm, Stage II, Grade 3, 1/11 nodes, ER+/PR+, HER2- |
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jbw3843 Joined: Jul 2007 Posts: 46 |
Dec 20, 2007 11:54 pm, edited Dec 20, 2007 11:57 PM
by jbw3843
jbw3843 wrote:
Hi girls. I'll be starting rads in January. I had my 11th Taxol of 12 today (Thurs. 12/20). I have one more Taxol and then my doctors want me to take a 3 week break. I started back in July with 4 AC followed by the Taxol. I'm ready for a break. I'll be following your advice. I hear the rads are much easier than the chemo. I was told I'd have 7 weeks. I had two nodes positive so I'll get the radiation in the tumor area and also in the armpit. Glad to be joining the January girls! I concur. The crystal deodarant has been wonderful. Jane |
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nash Joined: May 2007 Posts: 1428 |
Dec 21, 2007 12:19 am
nash wrote:
Hi, all! Add me to the list with a Jan 2 start date. Followed some of my August chemo sisters over here. I'm due for 38 tx (7 1/2 weeks) with a chest boost. Had my simulation and tattoos this week. Was delighted when the rad onc told me that my ribs will be permanently weakened on the rad side and that I will develop a dry cough from the lung damage. Whee! This could be as much fun as chemo! Dx June 2007, age 38, Stage IIa 2.7 cm pleomorphic ILC, ER+/PR+ HER2-, CAFx6, rads, tamox
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chemomom Joined: Aug 2007 Posts: 166 |
Dec 21, 2007 07:28 am
chemomom wrote:
Oh Nash... not one more thing!! If it's any consolation I didn't get any of that news from my rad onc. Are you keeping these special side-effects all to yourself? Maybe they are just telling you the worst case scenario just in case?? Why do you always draw the short straw? I will keep my fingers crossed for you. Angie Dx 7/16/2007, IDC, 6cm+, Stage IIb, Grade 3, 0/3 nodes, ER-/PR-, HER2+ |
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LottaQuilts
Joined: Jul 2007 Posts: 208 |
Dec 21, 2007 07:48 am
LottaQuilts wrote:
Just finished my last chemo yesterday and have my mapping session on 12/27.... so I'm jumping on too. Jane and I are buddies from the chemo in July thread, but I'll be nice to get to know the rest of you as well. I'm in for 6 weeks plus a couple "boosters"..... I forget how many. That was way back in June and I've been chemo-brained since! Got myself some Sween Cream as I noticed a lot of girls recommending it. At any rate, let's cheer each other on through this next adventure! Abbi dx 3/15/07, lump. 5/15, 1.4 cm; ER+; 1 of 3 nodes+; A/Cx4; Taxol x12; 3rd gen survivor but BRCA neg (go figure)
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nash Joined: May 2007 Posts: 1428 |
Dec 21, 2007 10:49 am
nash wrote:
Hey, Angie--it's like bumping into each other at Target to chat on a different thread! It's the darn chest wall boost that is prompting the rad onc to deliver the cheery news about my innards being damaged. She did chipperly tell me that they'll be able to miss my heart with the beams and just get the pericardium. Dx June 2007, age 38, Stage IIa 2.7 cm pleomorphic ILC, ER+/PR+ HER2-, CAFx6, rads, tamox
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Miss_Lolli Joined: Oct 2007 Posts: 541 |
Dec 21, 2007 05:17 pm
Miss_Lolli wrote:
Aw Nash...I feel for ya. I was told the same thing about my ribs, and I'm sure mine are already weakened, as I cracked them playing sports years ago. They did say they would have to "nick" the lungs but sure failed to mention anything about a cough. Did they say that was a maybe or a temporary thing, or something you will always have? That would just stink! Lori
Dx 8/2007, IDC, 1cm, Stage II, Grade 2, 1/17 nodes, ER+/PR+, HER2- |
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katoMato Joined: Jul 2007 Posts: 466 |
Dec 21, 2007 09:22 pm, edited Dec 21, 2007 09:24 PM
by katoMato
katoMato wrote:
Hi everyone, I was wandering around and ended up here, and realized that I just had to throw my two cents in about the cough. No one mentioned it to me, i developed it just PRIOR to rads - but the rads definately exacerbated it. The Rad onc and techs insisted that rads weren't to blame, and maybe it is a coincidence, but it existed nonetheless. The GOOD NEWS is that it IS going away (slowly). I'm a week post last rad and don't cough nearly as much anymore. It's definately going away. Did a little research and found that Taxotere can have a cough as a cumulative effect. So we may never know. Have a good Christmas! Kaye
Dx 3/27/2007, IDC, 1cm, Stage IIa, Grade 2, 2/14 nodes, ER+/PR-, HER2- |
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paxton18064
Joined: Jul 2007 Posts: 363 |
Dec 21, 2007 09:32 pm
paxton18064 wrote:
I will be joining the january group. I met with my onc today for what was suppose to be my last taxol tx. She said I shouldn't do the last tx because of the neuropathy. I'm from the sept chemo group. I already have the chemo cough so I don't know what will happen with rads. I'm still a little in shock to be done with chemo. Oh and I'm from mn, too. We're taking over I guess. I only watched the beginning of the vikes game and when I heard the next day that they'd won, I was pretty surprised. Dx 7/19/2007, IDC, 2cm, Stage II, Grade 3, 0/1 nodes, ER-/PR-, HER2- |
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nash Joined: May 2007 Posts: 1428 |
Dec 21, 2007 10:15 pm
nash wrote:
Hey, Lori--don't know if the cough will be permanent or not. The rad onc didn't really say. I figure, whatever will be will be. Kaye--I'm glad your cough is finally going away. Seems like you've had it for just about forever. Did they ever do any imaging of your lungs? I went in to the rad office today for final imaging before I start on 1/2, and was disheartened to have not one, but two male techs. I've gotten so used to being examined by women (surgeon, onc, rad onc, rad tech who did my simulation CT), that I was really thrown off by having to bare my chest to two strange men. Very disconcerting. Blech. Dx June 2007, age 38, Stage IIa 2.7 cm pleomorphic ILC, ER+/PR+ HER2-, CAFx6, rads, tamox
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Miss_Lolli Joined: Oct 2007 Posts: 541 |
Dec 22, 2007 12:40 am
Miss_Lolli wrote:
Well...Happy Holidays to Paxton! Done with chemo woohoo! I was shocked about the football game too, started out a bit rough. As you can see by my avatar, I sit on the couch watching sports all winter, cuz I hate being cold! I try to make up for it during the nice weather, but I guess I'm asking Santa for a rebounder this year. I noticed when learning about chemo and snooping through all the threads, that you stay active outdoors even in the winter. I really admire that, good for you! Nash...two male techs? ugh! I think I've bared my breast to more people in the last few months than the forty-some years before that. I may be out of modesty at this point. Kaye, thanks for the info on the cough. Hope yours totally disappears soon. My rad office gave me a script for a cream called radiaplexRx. Apparently you can put it on even right before rads. Anyone heard of, or used this one? Have a lovely weekend all... Lori
Dx 8/2007, IDC, 1cm, Stage II, Grade 2, 1/17 nodes, ER+/PR+, HER2- |
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wackyjackie
Joined: Aug 2007 Posts: 478 |
Dec 23, 2007 09:15 pm
wackyjackie wrote:
Hi Girls, Merry Christmas to all and a Happy, Healthy New Year!!!! Lots of hugs, Jackie |
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paxton18064
Joined: Jul 2007 Posts: 363 |
Dec 24, 2007 09:25 am
paxton18064 wrote:
I know vikes lost last night. It was 4th quarter when I went to bed. I don't really watch sports usually. Merry Christmas! Dx 7/19/2007, IDC, 2cm, Stage II, Grade 3, 0/1 nodes, ER-/PR-, HER2- |
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