Skip to content
Forum IndexForum: Radiation Therapy - Before, During and After → Topic: Choosing a location for radiation therapy
« Forum: Radiation Therapy - Before, During and After: What to expect from treatment and ways to cope with side effects.

Topic: Choosing a location for radiation therapy

Log in to post a reply
Arlington, VA
Joined: Feb 2008
Posts: 106
  • Posted on: Apr 1, 2008 04:23 pm
beegirl wrote:

I'm fortunate to be able to choose among several locations for radiation therapy. What is the most important criteria to use? Why would some people say (off the record so without any detail) not to go to a certain place? Location is important to me but I also want to be sure to go to the best place.


Dx 11/2007, ILC, 2cm, Stage IIb, Grade 1, 1/6 nodes, ER+/PR+, HER2-
Posts 1 - 13 (13 total)
PAlady
PA
Joined: Jan 2008
Posts: 156
Apr 2, 2008 09:09 am, edited Apr 2, 2008 09:10 AM by PAlady PAlady wrote:

Hi Beegirl!

I only have one local place to go to, so no choice really. We are within 2 hours of Buffalo, Pittsburgh, and Cleveland and a lot of people go to one of those cities for 2nd opinions etc. I ended up going to Pittsburgh for my surgery and was very happy with that choice. I even contemplated going there for my chemo which a lot of people around here do. 

I never even got a second opinion for the rads anywhere else, because I don't want to go back and forth that far everyday. I do have a friend who went back and forth to Cleveland (2 hours each way) for radiation last summer. She did not like the doctor she had here. Unfortunately, we only have a choice of 3 drs. here (all at the same facility) and I am not thrilled with any of their bios. My dr. is the same one she didn't like and I don't have a problem with him.

So, that was a long way of saying, I think it has to do with how you click with your doctor.  I think the other thing I would look at would be what type of equipment they have available to do it and the reputation of the facility.

Lucky you to have a choice.  Good luck deciding!

Dx 10/22/2007, IDC, 1.2cm, Stage I, Grade 2/3, 0/3 nodes, ER+/PR+, HER2-
LUVmy2girlZ…
Fl
Joined: Nov 2007
Posts: 2290
Apr 2, 2008 11:10 am LUVmy2girlZ wrote:

Beegirl ~

I had asked my surgeon for a couple of recommendations...I went to another Rad.Onc. ( rated 16 in the nation cancer center ) and they actually, suggested somewhere close as treatments/rads is a big commitment and can take a toll.  I asked if it was standard procedure across the board as far as treatments ( another words same treatment ) and the Dr. agreed 

So, I went w/ one of my surgeons recommendations and they said, they have the IMRT at this particular location and that would be best...Just something you may want to consider.


Dx 11/19/2007, DCIS, Stage 0, Grade 3, 0/3 nodes, ER-/PR-
beegirl
Arlington, VA
Joined: Feb 2008
Posts: 106
Apr 2, 2008 08:30 pm beegirl wrote:

Luvmy2 - What is an IMRT?

Bee


Dx 11/2007, ILC, 2cm, Stage IIb, Grade 1, 1/6 nodes, ER+/PR+, HER2-
LUVmy2girlZ…
Fl
Joined: Nov 2007
Posts: 2290
Apr 2, 2008 09:59 pm LUVmy2girlZ wrote: <table width="100%"><tbody><tr><td width="45"> </td><td width="100%">  <table width="100%"><tbody><tr><td>

What is Intensity-Modulated Radiation Therapy and how is it used?

Intensity-modulated radiation therapy (IMRT) is an advanced mode of high-precision radiotherapy that utilizes computer-controlled x-ray accelerators to deliver precise radiation doses to a malignant tumor or specific areas within the tumor. The radiation dose is designed to conform to the three-dimensional (3-D) shape of the tumor by modulating-or controlling-the intensity of the radiation beam to focus a higher radiation dose to the tumor while minimizing radiation exposure to surrounding normal tissues. Treatment is carefully planned by using 3-D computed tomography (CT) images of the patient in conjunction with computerized dose calculations to determine the dose intensity pattern that will best conform to the tumor shape. Typically, combinations of several intensity-modulated fields coming from different beam directions produce a custom tailored radiation dose that maximizes tumor dose while also protecting adjacent normal tissues.

Because the ratio of normal tissue dose to tumor dose is reduced to a minimum with the IMRT approach, higher and more effective radiation doses can safely be delivered to tumors with fewer side effects compared with conventional radiotherapy techniques. IMRT also has the potential to reduce treatment toxicity, even when doses are not increased.

Currently, IMRT is being used to treat cancers of the prostate, head and neck, breast, thyroid and lung, as well as in gynecologic, liver and brain tumors and lymphomas and sarcomas. IMRT is also beneficial for treating pediatric malignancies.

Radiation therapy, including IMRT, stops cancer cells from dividing and growing, thus slowing tumor growth. In many cases, radiation therapy is capable of killing cancer cells, thus shrinking or eliminating tumors.

</td></tr></tbody></table></td></tr></tbody></table>

Dx 11/19/2007, DCIS, Stage 0, Grade 3, 0/3 nodes, ER-/PR-
trigeek
Orlando, FL
Joined: Aug 2007
Posts: 641
Apr 2, 2008 10:38 pm trigeek wrote:

ok I am already going through rads but someone had told me about the IMRT and they said that if the tumor has already been removed.. and in my case the whole breast has been removed there is not point in doing IMRT because I will get the whole area(not a specific area)  radiated thoughts ?

Live Deliberately ! http://www.aylin-yeahright.blogspot.com/
Dx 8/3/2007, ILC, 2cm, Stage II, Grade 2, 2/6 nodes, ER+/PR+, HER2-
larousse
Joined: Jan 2008
Posts: 297
Apr 2, 2008 11:09 pm larousse wrote:

Hi all, I asked my rad onc about IMRT after hearing about it and I was pissed that it isn't what they are doing with my breast.
But, he explained to me that they make the machine perform (by some settings) so that it actually works like IMRT. He said that IMRT is very expensive (like $75,000 isn't?), it isn't reimbursed by insurance for the right breast treatment. Basically the performance is the same as an IMRT treatment. I don't know if that made any sense.
I found that I don't get info on anything unless I drill with questions. It is too bad, they could definately benefit from a little marketing, I guess it would cost them a few seconds of explanations. Sorry just a little irritaded with that mode, don't tell unless asked, rant...rant...


Dx 12/31/2007, DCIS, <1cm, Stage 0, Grade 3, / nodes, ER+/PR+
LUVmy2girlZ…
Fl
Joined: Nov 2007
Posts: 2290
Apr 3, 2008 08:39 am LUVmy2girlZ wrote:

As my Rad. Onc. explained to me ...( I had a mastectomy as well trigeek, and a positive margin brought me to 35  ( 7 weeks ) of rads )  To top it off I had just DCIS...the Rad. Onc. said I would have a 50/50 chance of recurrence and that would most likely be invasive.  I too am having my whole breast radiated 25 rounds w/ 10 boosts.  Because I had a mastectomy w/ expander I was told this would target the area w/ little risk to my other tissue/organs as well as control the radiation depth etc. I know the other technology works well too...it isn't what it used to be. There are risks however either way. 

larousse ~  I know, I feel like w/ ALL my Dr.'s no one explains in full detail anymore unless asked...perhaps it gets monotonous??  So, KEEP a list and always ask !

Your right it is costing  $ 75,000 ++ and I am required to pay 10% ( or cap $ 2,000 ) of that cost not including co-pays and Dr.s as you know insurance varies.


Dx 11/19/2007, DCIS, Stage 0, Grade 3, 0/3 nodes, ER-/PR-
Determined1…
Joined: Sep 2007
Posts: 737
Apr 14, 2008 07:30 pm Determined1 wrote:

Hey Beegirl, back to your original question.  I'm in Arlington, too (I've followed you a bit over on the TC Only thread on the Chemo board, but never posted).  I was trying to choose between G'town and Arlington Hospital for rads (I did my chemo over at G'town because I got the oogies talking to both Butler and Feigert).  I called both rad depts on the same day and heard back from G'town right away.  I made an appointment there to consult.  I really liked the doc--good personality.  The accommodations are older, but the communication there is really good and the techs all knew my name immediately.  I didn't hear back from Arlington Hospital till a week after my original call.  Since I'd been in to see the doc at G'town in the meantime, and liked him, I decided to do rads at G'town.  Georgetown is not bright and shiny like Arlington, but I decided there was more to it than a shiny hospital.  I will say the drive to G'town is longer and you do have to pay for parking, whereas there are a few free parking spaces at Arlington for rad patients.  (But wait, don't I remember you saying you could walk to Arlington?)

Long story short, we do have options here.  If you haven't already made your decision, I'd take the time to check out your alternatives.

D1

The things that we're afraid of are gonna show us what we're made of in the end.
Dx 8/17/2007, IDC, 1cm, Stage I, Grade 2, 1/7 nodes, ER+/PR+, HER2-
beegirl
Arlington, VA
Joined: Feb 2008
Posts: 106
Apr 16, 2008 09:15 am beegirl wrote:

D1 - Haven;t checked back here in awhile. I sent you a PM.

Thanks, Bee


Dx 11/2007, ILC, 2cm, Stage IIb, Grade 1, 1/6 nodes, ER+/PR+, HER2-
NancyD
New City, NY
Joined: Feb 2008
Posts: 1235
Apr 16, 2008 02:36 pm NancyD wrote:

I think an article like this might make you think about where you choose to go:

http://www.cancer.gov/clinicaltrials/results/postmastectomy-radiation0106

Quality has a lot to do with the outcome, according to it. So do your research and don't just pick the closest or easiest to get to. Pick the best for your cancer.

sharonw
Leesburg, VA
Joined: Dec 2007
Posts: 55
Apr 17, 2008 09:05 am sharonw wrote:

Bee Girl and D1-

I live in Leesburg and am starting rads at NYU Cancer Center this Monday - I am early stage. clear nodes, and no vascular invasion and was looking for a rads facility in the DC area that uses a prone table (lying face down and sparring the lung and ribs and heart) - couldn't find one - found a rad onc named Formenti at NYU with a great deal of experience with a prone table - they are also at Hopkins, Sloan, and Philly - but NYU is also doing a rads trial of the accelerated IMRT rads therapy- I will be getting 15 treatments (daily M-F for three weeks and at each treatment getting a boost to the tumor area so there are no boosts at the end) the entire treatment is on my stomach sparring my important organs.  I also wanted to tellyou that I met with Susan Pierce at INOVA Fairfax - avery experienced and compentent rad doc - but she only does whole breast on the back - my onc and breast surgeon from G'town highly recommended her.  Good luck with your choices - I am so glad to be getting the rads overwith!

Sharonw

when you're going through hell, keep on going
beegirl
Arlington, VA
Joined: Feb 2008
Posts: 106
Apr 17, 2008 08:29 pm beegirl wrote:

Nancy - thanks for the article. My onc specialized in bc at NCI before joining the private group next to VHC in December. I had a lumpectomy rather than a mastectomy, plus I'm certain the hospital radiation oncology uses the latest equipment, etc. They may even have IMRT. Yesterday my onc told me that if she didn't believe I would get appropriate treatment here she wouldn't hesitate to send me elsewhere.

  

Sharonw - I'd been wondering where you were! Sounds like you've been doing lots of research. I'm not sure I understand how it works when you're on your stomach--is the radiation done from below? Given your early stage diagnosis, you've been hitting all the treatments. That's great that you can do it in 3 weeks, too. Let us know how it goes at NYU.

I'm now set for my simulation at Arlington on May 13, about 3 weeks after my last TC chemo.


Dx 11/2007, ILC, 2cm, Stage IIb, Grade 1, 1/6 nodes, ER+/PR+, HER2-
sharonw
Leesburg, VA
Joined: Dec 2007
Posts: 55
May 15, 2008 05:29 pm sharonw wrote:

Beegirl and D1 -

Just finished my 15 rad treatments at NYU Cancer Center - it was an amazing experience!  We have nothing in the entire DC/Baltimore area to compare with this center - it is truly comprehensive an state of the art - I flew into NYC on Monday mornings and had my Monday treatement in the afternoon and then Tues.-Fri. in the afternoon and flew home friday afternoons.  The doctors,nurses, and staff were amazing and their programs - I did the three week course getting the same dose of rads as the 6 1/2 week program and I also was radiated in the prone position - face down with the breast hanging down and radiated from the underside - only my breast received rads - my skin did great - used Biafine and aloe vera and castor oil - was able to wear a bra throughout and I have big girls - had lots of energy - went around NYC everyday and exercised everyday - am glad to be finished with rads and have started Femara - noticing some night sweats but not much else - am so glad to be home - want to thank the many women on this site who were so inspirational - God bless you all and take care!

when you're going through hell, keep on going

© 2008 Breastcancer.org. All rights reserved.