I was curious if others had multiple areas of invasion when their ILC was diagosed. I had six different areas of invasion. Each area was <1cm so my stage is 1a. I guess the various cancer cells all decided to start invading at once. I also had isolated cancer cells in my first node. It makes me wonder if anything was in my other breast and was not seen because they didn't expect to find anything in my prophylactic mastectomy side. I'm really glad I opted for the bilateral mastectomy. gandl
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wallycat Joined: Apr 2007 Posts: 683 |
Mar 20, 2008 04:12 pm
wallycat wrote:
Mine was in one spot. I thought a few gals posted multi-focal.... I'm sure they'll surface. |
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Lynn12 Joined: Dec 2006 Posts: 1018 |
Mar 20, 2008 04:20 pm, edited Mar 20, 2008 04:20 PM
by Lynn12
Lynn12 wrote:
My ILC was multi-focal. 7.5cm and found in all four quandrants of my right breast. They didn't distinguish how many areas of invasion there were, just the largest was 7.5cm and the ILC was multi-focal. Therefore they staged me at IIb Lynn
Dx 11/7/2006, ILC, 6cm+, Stage IIb, Grade 1, 0/1 nodes, ER+/PR+, HER2- |
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PeggyDixon Joined: Mar 2006 Posts: 87 |
Mar 20, 2008 04:51 pm
PeggyDixon wrote:
Hi Gandl - mine was mutifocal too, and in all four quadrants of my left breast. Like Lynn12, they didn't say how many areas there were specifically, just that it was in several areas of the breast. I think that is fairly common with ILC. Hugs and good luck. Peggy
Dx 1/19/2006, ILC, Stage IIIc, Grade 2, 12/28 nodes, ER+/PR+, HER2- |
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trigeek Joined: Aug 2007 Posts: 628 |
Mar 21, 2008 12:27 pm
trigeek wrote:
Joining the multifocal train, right breast biggest one measuring 2.5 cm multifocal involvement was in in 3 quadrants. Live Deliberately ! http://www.aylin-yeahright.blogspot.com/
Dx 8/3/2007, ILC, 2cm, Stage II, Grade 2, 2/6 nodes, ER+/PR+, HER2- |
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ihopeg Joined: Nov 2006 Posts: 130 |
Mar 23, 2008 08:56 pm
ihopeg wrote:
Gandl, Mine was multi-focal too. I had 4 different areas in my rt. breast. Three were 2 cms and one was a few mm. My dr added the sizes together to get the Stage IIIc. ilene Ilene
Dx 11/10/2006, ILC, 5cm, Stage IIIc, Grade 2, 19/20 nodes, ER+/PR+, HER2- |
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karen1956 Joined: Feb 2006 Posts: 1311 |
Mar 24, 2008 12:59 am
karen1956 wrote:
I had at least 3 places on my breast as well as lymph nodes - so stage 3. Two were found on US and the other one and lymph on MRI. Prophy side came back atypical lobular hyperplasia. Karen Karen in Denver
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LauraGTO Joined: Aug 2005 Posts: 4717 |
Mar 25, 2008 10:10 pm
LauraGTO wrote:
Me too! I had three tumors (in the same breast) one of which was not even able to be "pathologilized" because of a garganchuous Hematoma that developed due to a majorly invasive core biopsy. Yikes...sounds scary...huh! ILC has a tendancy to be multi-focal. Best wishes to you...keep us posted. STRENGTH for today, HOPE for tomorrow!
Dx 7/21/2005, ILC, 4cm, Stage II, Grade 2, 1/11 nodes, ER+/PR+, HER2- |
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Patelia Joined: Mar 2008 Posts: 9 |
Mar 25, 2008 10:33 pm
Patelia wrote:
I was wondering how your ladies cancer was found - since lobular is difficult to diagnose on a mammo. My sister had been having mammo's for yrs. This yr they decided that a bx was needed because of a calcification. They said nothing to worry about because only 20% are + for cancer. She then went to a different well known facility for her bx. They told her all her previous mammo's were pretty much s*** - overpenetrated too dark and undiagnostic so they didn't really have anything to compare them to. (Nice! You think you are doing the right thing by having a mammo, and you find out you wasted 10 yrs because they were s***) Well that calcification turned out to be ILC? I have read that it is not typical for ILC to be from calcifications. Does any one know the answer. I am thinking that by the grace of GOD this was found by accident because of the calcification. Anybody have an idea? We haven't spoke with the Dr yet because everyone and their brother is on spring break. They called her Fri told her she had cancer - she is having her MRI tomorrow and won't be able to find out anything until next wk because everyone is on vacation. Where is the justice? I feel bad for the poor thing. Your info would be greatly appreciated. |
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Lynn12 Joined: Dec 2006 Posts: 1018 |
Mar 26, 2008 08:00 pm
Lynn12 wrote:
Patelia, There is a thread called 'What's your ILC story' in this ILC forum. You'll read how many of us were diagnosed. Lynn Lynn
Dx 11/7/2006, ILC, 6cm+, Stage IIb, Grade 1, 0/1 nodes, ER+/PR+, HER2- |
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LauraGTO Joined: Aug 2005 Posts: 4717 |
Mar 28, 2008 05:59 pm
LauraGTO wrote:
Patelia - How's your sister doing? STRENGTH for today, HOPE for tomorrow!
Dx 7/21/2005, ILC, 4cm, Stage II, Grade 2, 1/11 nodes, ER+/PR+, HER2- |
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tt214 Joined: Apr 2008 Posts: 13 |
Apr 28, 2008 02:46 pm
tt214 wrote:
Hello to all: I am new at this and have recently been dx'd with LCIS with a small component of invasive in the left breast. I have been given the choice of radiation and close follow-up or bilat mastectomies. I also have very dense breasts and am considered a hard read. I am stage 1 N-0, M-0. It seems to me that most of you chose mastectomies. Would you mind sharing on how you came to this decision. |
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gandl Joined: Mar 2008 Posts: 30 |
Apr 28, 2008 07:19 pm
gandl wrote:
ILC is harder to see on mammograms and harder to feel. I'm a worrier and would have felt that it was hiding somewhere else if I had not had a bilateral masctectomy. I didn't really have a good choice about one mastectomy because of the multiple locations of invasion on that side. gandl gandl
Dx 1/28/2008, ILC, <1cm, Stage Ia, 1/6 nodes, ER+/PR+, HER2- |
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Gitane Joined: Feb 2008 Posts: 242 |
Apr 29, 2008 12:51 am, edited May 2, 2008 02:31 AM
by Gitane
Gitane wrote:
Mine was found by mammogram, but could not be seen on films from years previous. It was large, so had to have been there, just wasn't seen. Mine was multi-focal too, the MRI shows a "multitude" of nodules. How does that make you feel, they couldn't even count there were so many. Anyway, I also had no choice about mastectomy on the left, but chose the right mastectomy because I didn't want to deal with the anxiety. |
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tt214 Joined: Apr 2008 Posts: 13 |
Apr 30, 2008 05:41 pm
tt214 wrote:
Thanks for getting back to me. I am still sitting on the fence regarding breast conservation, radiation and close follow-up, and bilat mastectomies because of the LCIS. I too fear what could be hidden, but just can't quite get there, one hour I am considering the mastectomies and the next I am back to conservation, sometimes I wish I didn't have the choice. Oh and then to choose the type of reconstruction is another ordeal (implants or my own tissue) there are pros and cons to everything. Why does it have to be so hard? |
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Gitane Joined: Feb 2008 Posts: 242 |
May 10, 2008 01:08 am
Gitane wrote:
tt214, I just wrote a whole bunch on the "invasive lobular carcinoma" thread so I won't repeat it. I'll just add I had reconstruction with expanders/implants and am glad I have boobs again, even perkier than my old ones. Dx 7/05 Pleom. ILC/DCIS, Stage 2b, multifocal, Nodes ITCs and 1micro, ER+PR- Her2-
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skstrand Joined: Jul 2008 Posts: 1 |
Jul 4, 2008 05:05 pm, edited Jul 4, 2008 05:06 PM
by skstrand
skstrand wrote:
Hi My name is Susie. I have just been diagnosed with ILC. It was originally diagnosed as an infection. One that didn't respond to antibiotics. There are at least 2 locations, one of which is 6-7 cm. I was told that the lymph node is involved, although they haven't told me the extent of involvement. I am terrified. I have an appointment with a surgeon on Monday or Tuesday, and will possibly have more tests.( Shouldn't they be doing a CAT scan or MRI to find the extent of the cancer?) Knowing you are all out there and are either cured or fighting successfully is a great help and a comfort for me. I feel I must hide most of my fears as I have 4 loving daughters and I have a great difficultly handling their reaction to my condition. Any advice will be gratefully accepted. My prayers are with us all. Susie |
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smerf Joined: Jun 2007 Posts: 226 |
Jul 4, 2008 05:30 pm
smerf wrote:
So sorry this is happening to you, but glad you found this site. I had IDC,but I'm sure someone will come on soon to share some information with you. Come vent here as often as you want, because we all get it. Big hugs to you, dear. You can do this, and we will be here to help. Pat Dx 2/13/2006, IDC, 2cm, Stage II, Grade 2, 0/3 nodes, ER-/PR-, HER2- |
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SherriG Joined: Jan 2005 Posts: 3530 |
Jul 4, 2008 05:44 pm
SherriG wrote:
Hi, Susie. I'm sorry you are dealing with this now. You are in the worst place, right after diagnosis and waiting for appts and tests. I was diagnosed in 2004 with a HUGE 8cm mass and lots of nodes involved. It seemed that the waiting for test results was endless. Once you get all of your baseline scans done your onc and surgeon will know more of what they are dealing with. Also, your pathology report will have information that will assist them in charting a treatment plan. Once you get started with treatment you will feel much better. Just sitting and waiting is terrible. I couldn't wait to get started with active treatment. I'm glad you found us. There is tremendous support here from women who "get it". Diagnosed 11/05/04 Stage 3 ILC "Lump is a four letter word!" Sherri
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