Topic: Age at diagnosis

Actually I had read the ILC is found most often in women between 45 and 55.  I had IDLC and was 49 and premenopausal at diagnosis.  My ER was 80% and PR 75%, with strong staining intensity.

You know, Liz, you're right about the 45-55 age range. But it seems like somewhere I'd read ILC tends to show up in older women--maybe I'm confusing it with the info that said ILC rates were rising in post-meno women b/c of hormone replacement therapy.

So maybe it's not so weird that I got ILC in my 30's, or at least no weirder than if I'd gotten any other sort of bc. 

And I was premenopausal.

I also read that ILC is more common in women on HRT, thus post-meno, and theoretically that would put them in the 50+ group.

I was never on HRT, I was 1 month shy of my 50th b-day (so technically, 49)  and I was pre(peri)menopause.

My ER/PR was not ranked in percents ...I was a score of 7 out of 8 for both.

I was 48, premeno when dx'd, 4mm ILC er/pr+.  Never have taken hormones, nor the Pill.  No anti-hormonals either.  Still pre-meno two years later.

Mom and two aunts were all post-meno IDC, not ILC like me. 

I was Dx at 49 years 9 months and peri-menopausal.  Chemo stopped my periods then Lupron and ooph slammed me into menopause.  My ER/PR receptors were in the 80's and low 90's (I think).  Karen

I was 37  when dx, and premeno.  I had a hysterectomy !

I was 51 at diagnosis but not post-meopausal.  ER+ >90%; PR+> 90%; HER2 negative. 

There is lots of good information about invasive lobular cancer - do a google search for the words.  The British cancer society suggests that ILC, which affects only 10-15% of women, is most common in women in the 45-55 age group.  One of the articles I read when I was first diagnosed suggested that ILC is less likely to be eventually fatal than ductal carcinomas, which is very reassuring for those of us with ILC, although it is more likely to spread to the other breast.

Thanks for the replies, ladies. Carol--you asked if anyone else is doing an ooph. My onc wants me on tamoxifen for five years, then wants me to have an ooph and go on an AI for another five years.

Little G--wanted to pass on some info that my onc told me. She said that ILC gals are at risk for a new primary of either ILC or IDC (or IBC, for that matter), and thus she has me doing both MRI and mammos, so that I'm having some sort of imaging every six months. I know MRI is more sensitive than mammos, but just thought I'd mention it.

I'm actually going for my first ever digital mammo next month. I'm excited about the new technology, which is supposed to make reading the films much easier for the docs. 

I was 54 and had been on HRT for 7 years.  I was strongly E+ >90%  Pr+ 90%  Her2-.

I had just turned 45 at dx time. I was pre-menopausal. My tumors were 95% ER and 75% PR.  Her2neu was negative.

Hi Nash, I'm glad you asked a question and all us lobulars reappeared on the board. It's nice just to check in and say Hi. I was older, 57 years old. ER+ PgR-, the path report just said "strong diffuse staining" for the ER and no staining at all for the PgR. I'm finding the PgR- seems to be almost as rare as pleomorphic, and the combination of PgR- and Pleomorphic is almost unheard of. Yipes. I was also under the impression that the ILC diagnosis came a bit later in life, but it doesn't seem so for the people posting here, does it?

I was 44 and premenopausal,er and pr positive,dont know percentages though...Pepperpot x

I was dx at 36. premen. stage II