Topic: Good 3 Neg story

Joined: Dec 2003
Posts: 704

Posted on: Mar 24, 2008 02:57 pm, edited Mar 24, 2008 02:58 PM by jeng

jeng wrote:

Hi Ladies - I posted for the first time in many months on another thread - advertising my 4 year survival. Several mentioned the encouragement they gained from my post and others like it. Being 4 years out, and being young - I just don't discuss my medical history with people very often. Well, today at work, I found out that one of my co-workers is a triple neg - she had 2 lumps, mast, 5 pos nodes - and she was DX in 12/03 She is FINE! She had a mast and 6 rounds of TAC. She worked through it all (teaching elementary school) - she had rads too. Her onco told her 3 years was the magic number for triple negs. (My onco said 5)

Anyway - if some of you were lifted by MY story, you must be much further lifted by my friend's! 5 Nodes - and she is fine! Yippee....

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FloridaLady… Joined: Dec 2006 Posts: 459	Log in to post a reply Mar 24, 2008 03:11 pm FloridaLady wrote: Jeng, Thank you for a wonderful post. Girl's let those doctor's know you are not a statistic in their medical books. They can't lump everyone together. Even though they will not tell you..triple neg means they really don't what kind of bc we have. Flalady trip neg stageIV spread to IBC & 7 recur's, Treat Alt & Conv
twink Joined: Feb 2007 Posts: 1564	Log in to post a reply Mar 24, 2008 03:19 pm twink wrote: Love hearing these stories...thank you. Dx Jan/07, IDC, Stage IIb, 3/17+ nodes, Triple Neg, neoadjuvant & adjuvant chemo, bilat mast, ALND, rads, immed recon.
HeatherBLoc… Joined: Dec 2007 Posts: 801	Log in to post a reply Mar 24, 2008 06:22 pm, edited Mar 24, 2008 06:23 PM by HeatherBLocklear HeatherBLocklear wrote: Thank you so much for your story and that of your friend. I have been very down over the past few days because from everything I read and no matter where I turn, there's nothing but bad, bad, bad news about triple negatives. I think that even more than women with other types of BC, we triple negs really hunger for stories like yours -- they keep our hopes alive, and hope, as much as the chemo and other medical procedures, is what helps fuel recovery. Thanks again from the bottom of my heart. Annie
Shirlann Joined: Feb 2002 Posts: 6058	Log in to post a reply Mar 24, 2008 06:45 pm, edited Mar 24, 2008 06:47 PM by Shirlann Shirlann wrote: This is so crazy, I know it is not wrong to tell the stats, but when I was diagnosed in 1998, Triple Neg diagnosis had just become possible, and few statistics were available. So, no one said much of anything. I know that sticking your head in the sand is no solution, but I have never worried about the Triple Neg at all, just because I didn't know I should. Anyway, I am 9 & 1/2 years out, still fine, and I am so sorry that this thing has added grief to an already difficult time. Oh, one other thing, that we don't want our other sisters to hear. At first, they realized that Tamoxifien increased chances of us developing uterine cancer, but no one was too concerned because this cancer is easy to find and simple to treat, but as the years have gone by, they found that THIS particular uterine cancer, the one from Tamoxifen, was VERY, VERY aggressive. So that is another thing. (Don't mention this to gals on Tamoxifen) Anyway, love you all, Shirlann
susieloutoo… Joined: Sep 2007 Posts: 99	Log in to post a reply Mar 24, 2008 06:51 pm susieloutoo wrote: So happy to hear for you, your friend and us! Susie Dx 4/11/2007, IDC, 5cm, Stage II, Grade 3, 2/8 nodes, ER-/PR-, HER2-
janekhaldy Joined: Jul 2007 Posts: 26	Log in to post a reply Mar 24, 2008 06:52 pm janekhaldy wrote: I always see you post and thank you SO MUCH for your always positive comments! Dx 7/31/2007, IDC, 2cm, Stage IIb, Grade 2, 1/12 nodes, ER-/PR-, HER2-
lisamed123 Joined: Feb 2008 Posts: 22	Log in to post a reply Mar 24, 2008 07:53 pm lisamed123 wrote: Thank you so, so much for your stories. I am just looking for hope. I am doing scans this week and starting chemo in a couple of weeks.
laurap Joined: May 2005 Posts: 1283	Log in to post a reply Mar 24, 2008 08:07 pm laurap wrote: thanks ladies.... love to hear those good 3x- stories....just love them, they make me breath deep and smile ear to ear... i am 3.5 years out now and sooooo hope that i can inspire women the way you have sometime down the line... i just wish i could see more on the cure side of things..... but if it is an odds game for now, so be it... roll! laurap
dunner1 Joined: Oct 2003 Posts: 162	Log in to post a reply Mar 24, 2008 10:12 pm dunner1 wrote: I know I have posted many times but for those that haven't seen my stats.... Triple Neg. and 5yrs., 1 month, 19 days, and 12 hrs AND I'M NOT TOO SURE HOW MANY MINUTES out!!!!!!!!!! Too many nodes to count too!!!!!!!!!!!! TAKE CARE!!!! Love- Dunner Dx 2/5/2003, IDC, 4cm, Stage IIIb, Grade 3, ER-/PR-, HER2-
dhettish Joined: Mar 2008 Posts: 261	Log in to post a reply Mar 24, 2008 10:48 pm dhettish wrote: Whooo Hooo! So glad to hear the good news. I just finished my chemo and started into that worry and wait. I saw an e-mail of my husband's and he was telling someone that my prognosis was good. I felt he was wrong. Why???? No he is right! My prognosis is good! Thanks for the hope! Debbie Debbie Dx 8/6/2007, IDC, 2cm, Stage II, Grade 3, 1/23 nodes, ER-/PR-, HER2-
defeatbc Joined: Mar 2008 Posts: 13	Log in to post a reply Mar 28, 2008 05:59 pm defeatbc wrote: Thank you so much for sharing your story. I've just been diagnosed, and this is just the most refreshing thing to hear. Gives me so much hope.
HollyHopes Joined: Feb 2007 Posts: 347	Log in to post a reply Mar 28, 2008 11:53 pm, edited Mar 28, 2008 11:53 PM by HollyHopes HollyHopes wrote: thank you so much for sharing the story...i am 6 months post tx and am hoping, praying and doing a little dance every day that this never comes back...you bring me hope my sistersn and courage if the day should ever come when i have to post about a recurrence...i love you ...treatment completed 8/31/07... Dx 2/7/2007, IDC, 1cm, Stage II, Grade 3, 0/3 nodes, ER-/PR-, HER2-
twink Joined: Feb 2007 Posts: 1564	Log in to post a reply Mar 29, 2008 04:26 pm twink wrote: Yay Dunner! I wanna be just like you. Dx Jan/07, IDC, Stage IIb, 3/17+ nodes, Triple Neg, neoadjuvant & adjuvant chemo, bilat mast, ALND, rads, immed recon.
snowyday Joined: Jun 2007 Posts: 1140	Log in to post a reply Mar 29, 2008 04:58 pm snowyday wrote: Thank you, thank you, thank you, we really needed some good results posted here. PN Dx 5/18/2007, IDC, 3cm, Stage IV, Grade 3, / nodes, mets, ER-/PR-, HER2-
linda447 Joined: Jan 2007 Posts: 7	Log in to post a reply Mar 29, 2008 10:27 pm linda447 wrote: One more happy camper...thank you so much Dx 2/5/2006, IDC, 4cm, Stage IIIa, Grade 3, 5/5 nodes, ER-/PR-, HER2-
Labgal Joined: Nov 2004 Posts: 234	Log in to post a reply Mar 31, 2008 06:01 pm Labgal wrote: I am three yrs four months out and still NED! I wish all of my triple neg sisters just starting their journey the best! Hang in and hang on... Cathy Abell Dx 11/11/2004, <1cm, Stage I, Grade 3, 0/0 nodes, ER-/PR-, HER2-
Youwearpink… Joined: Mar 2008 Posts: 40	Log in to post a reply Mar 31, 2008 08:55 pm, edited Mar 31, 2008 09:12 PM by Youwearpink Youwearpink wrote: Hello Ladies, I am also a triple neg. AND BRCA 1 AND BRCA 2 positive! I will be a 6 years survivor in June!!!!!!!!!!! I had one positive node! I also (THANK GOD) did not realize the trip neg was something to worry about. Lord knows I was a nervous wreck all the time in the beginning and worried about EVERYTHING already. I was only 26 and had a newborn. But, I want to let you all know that I heard soooo many success stories. One I held onto REAL tight was from a friend's sister. She was also a triple neg (I think, I know she was def Er/pr neg) and she had 17, yup not a typo, 17 positive nodes. She is a 12 year survivor to date! So keep your head up ladies. I love hearing the positives........ Dx 6/23/2002, IDC, 1cm, Grade 3, 1/9 nodes, ER-/PR-, HER2-
jacqueline Joined: Sep 2007 Posts: 42	Log in to post a reply Mar 31, 2008 09:37 pm jacqueline wrote: Thanks for the great stories everyone. Holly I am 5 months out of treatment. I found a great book to read, "Dancing in Limbo" Take Care everyone Jacqueline
Vickan Joined: Apr 2008 Posts: 37	Log in to post a reply Apr 10, 2008 10:46 am Vickan wrote: I love to read about you and the "friend" you write about. This is so important for a newcomer as me to hear that it is possible and beatable! Thx! Dx 1/28/2008, IDC, 3cm, Stage , 2/17 nodes, ER-/PR-, HER2-
sharebear Joined: Apr 2007 Posts: 309	Log in to post a reply Apr 10, 2008 11:09 am sharebear wrote: I don't want 3 negs. to think it's all bad. I was first diagnosed in 8/95 at age 32. I was good to go until 1/07 when I found another lump on the other breast. It's now 4/08 and as far as I'm concerned, I'm fine again. This time, I removed the breasts. Oh and did I mention that I'm BRCA 1. 13 years........Age 45.........Life is good! Sharon
Vickan Joined: Apr 2008 Posts: 37	Log in to post a reply Apr 10, 2008 11:33 am Vickan wrote: Sharon, Brilliant news although I am sad to hear that you had to remove your breasts. I removed mine in Jan 2008 when I found the lump and it was cancer. I will be checked for BRCA1 in a couple of weeks... I do not know how long it will take to get the result. I have 2 effected lymphnodes as well so I thought everything was dark for me... but as you write Life is good!!! Thanks for sharing! You give me spirit! Dx 1/28/2008, IDC, 3cm, Stage , 2/17 nodes, ER-/PR-, HER2-
cmb35 Joined: Oct 2005 Posts: 975	Log in to post a reply Apr 10, 2008 12:04 pm cmb35 wrote: Girls, Triple neg dx in May 2005 at age 41, will be 3 years next month and I'm still NED. There are a few more of us hanging around here too. Hang tough! Dx 5/27/2005, IDC, 1cm, Stage II, Grade 3, 1/15 nodes, ER-/PR-, HER2-
Vickan Joined: Apr 2008 Posts: 37	Log in to post a reply Apr 10, 2008 12:09 pm Vickan wrote: cmb35, good that hear and find that you and some more are still hanging in.. thought may days were counted... Lovely to hear that you still NED soon getting 3 years! Dx 1/28/2008, IDC, 3cm, Stage , 2/17 nodes, ER-/PR-, HER2-
Gorilla12 Joined: Aug 2007 Posts: 12	Log in to post a reply Apr 10, 2008 02:40 pm Gorilla12 wrote: Hi Everyone, I was diagnosed in 7/05 and am approaching my 3 yr. mark NED!! I wish I had heard more positive news about triple neg back in 2005. So I am happy to post it here so others can feel good about it. Take care!
Vickan Joined: Apr 2008 Posts: 37	Log in to post a reply Apr 10, 2008 02:45 pm Vickan wrote: Gorilla12, Lovely to hear. I feel happy to know - it is possible. All the best with your 3 yr mark NED!! Post me if you would like to tell me more - I am really keen to hear positive news at the moment.... Dx 1/28/2008, IDC, 3cm, Stage , 2/17 nodes, ER-/PR-, HER2-
FloridaLady… Joined: Dec 2006 Posts: 459	Log in to post a reply Apr 10, 2008 02:46 pm FloridaLady wrote: Hurray! Gorilla! I hope you celebrate long an hard... Flalady trip neg stageIV spread to IBC & 7 recur's, Treat Alt & Conv
twink Joined: Feb 2007 Posts: 1564	Log in to post a reply Apr 10, 2008 09:59 pm twink wrote: Yay Gorilla and cmb! I wish you many more NED years. If you can't be kind, have the decency to be vague.
Judine Joined: Apr 2004 Posts: 5	Log in to post a reply Apr 21, 2008 09:49 pm Judine wrote: Hi All, I was triple negative diagnosed 5/03 stage IIA 2.7 cm tumor. I'm approaching my 5 year mark in May and all is good!
twink Joined: Feb 2007 Posts: 1564	Log in to post a reply Apr 21, 2008 09:52 pm twink wrote: Wonderful news Judine! If you can't be kind, have the decency to be vague.
dellmonica Joined: Apr 2008 Posts: 4	Log in to post a reply Apr 22, 2008 02:53 am, edited Apr 22, 2008 02:53 AM by dellmonica dellmonica wrote: I was diagnosed on 2/4/08 triple neg and I just completed Cycle 1 of 6. Taxotere and Cytoxin. Cycle 2 will include neulasta. I love all these positive comments!! My Onc told me there was nothing but negative stuff on the internet for triple negs. I was glad to prove him wrong. Peace and Blessings to all my sisters (and the few brothers)

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