Topic: Flalady Update

Hi Floridalady,

It must have been a very difficult appointment and frustrating.  I agree with wishwere.  I would get another opinion, perhaps see a woman and get her perspective. 

I'll send you some positive energy~~~~~~~~~

Warmly,

 Sadie

Hmmm, this gives you pause, doesn't it, Flalady. I'm glad to see you had a followup, yet it does sound a tad confusing. And to wait so long at the appointment, which isn't so unusual when you see the top doctor, is hard on top of taking in the words and making sense of them in a complicated situation.

So, now is it you wait for a while until a third scan is done down the road to break the tie, so to speak?

I'm wondering if interventional radiology might be able to deliver a pellet chemotherapy, as a way to deal with your findings, should it be technically feasible at some point. I know your surgeon thought maybe cyberknife at some point too.

I'm sure you'll keep on with your current personal regimen. I'm hoping in a bit some clearer direction may come your way as to recommendations. Surely some triple negative breast expert might have experience with slow growth situations.

I'm glad to see you post. I've been wondering how you are. Thanks for the update. I'll be thinking on this and you.

Tender

Flalady,

I think on the East Coast, Lisa A. Carey, MD, Associate Professor of Hematology/Oncology at the University of North Carolina, Chapel Hill, North Carolina is widely recognized as an expert in triple negative disease. She routinely lectures on it around the country, and has studied it based on it's prevalence in the "Carolina project". I think of her name particularly in your localized situation, due to it's slightly unusual nature, since Dr. Carey has been deeply involved in exploring the behavior of these tumors based on their underlying biology. She may be as interested in your specific situation as you are in her expertise. I understand she is approciable and kind.

Perhaps you might wish to look around at her writings some, and ask your own oncologist. Maybe he could head up a phone consultation with her, providing a summary of your treatments, and history of the disease and where on the chest, and of course your CAM therapy.

One has to wonder if your tumor harbors some special tumor suppression gene expression atypical of triple negatives, or genes involved in metastatic suppression or stromal suppression (the background on which cells must attach and migrate etc) which may be a real help to all triple negatives to study while providing help and treatment for you.

Please consider this woman oncologist. She's a gracious, knowledgable person.

Glad to see your Living in Hope again,
Tender

davita,

Please be sure to read the thread "where are all the triple negs".  There are some wonderful positive stories on this thread that hopefully will ease some of your fear.

Flalady