Hi everyone!!!
Did anyone listen to the Triple Negative Conference held by the "Living Beyond BC" website? I missed it today and was wondering if anyone has any new info to share.
Thanks, Jacqueline
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LisaSDCA Joined: Jan 2007 Posts: 1221 |
Apr 18, 2008 08:53 pm
LisaSDCA wrote:
I listened to it. It was good. I heard nothing I hadn't heard before. The speaker, a Dr. Carey (sp?) from UNC, was pleasant. She encouraged checking into clinical trials via clinicaltrials.gov and trialcheck.org. Also mentioned that 2 Erbitux trials (epidermal growth factor inhibitor) will be reported at the ASCO meeting coming up soon. She mentioned a CALGB trial that has an arm incorporating Carboplatin and Avastin into the neoadjuvant setting for triple negative patients, but I haven't found that one yet (just curious - I would have jumped at it myself a year ago) One point that the lecturer made in no uncertain terms, which I do not think gets said often enough in oncology offices "My patients are NOT responsible for if their cancer comes back or not - there is no data to support that - NONE." She said this in response to those questioning whether the extra-low-fat diet was desirable or do-able, how lifestyle affects recurrence, etc. It is not something you do or don't do, or don't do well enough. No blaming the patient in her practice! Lisa Dx 1/24/2007, IDC, 2cm, Stage II, Grade 3, 0/5 nodes, ER-/PR-, HER2- |
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janekhaldy Joined: Jul 2007 Posts: 26 |
Apr 19, 2008 02:28 pm
janekhaldy wrote:
I too, missed the seminar. Has anyone seen it posted somewhere? Dx 7/31/2007, IDC, 2cm, Stage IIb, Grade 2, 1/12 nodes, ER-/PR-, HER2- |
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marshabel Joined: Feb 2007 Posts: 154 |
Apr 19, 2008 05:43 pm
marshabel wrote:
I listened to it, too. I agree with Lisa that there wasn't too much new info, but still found it encouraging that they were even having a conference about triple negs! Janekhaldy - if you go to the LBBC website, they replay their conferences for 30 days so that you can listen. Although, I did get an email from them yesterday saying that their site was down, so don't know if it is fixed yet. Marsha Dx 2/1/2008, IDC, 2cm, Stage IIIa, Grade 3, 1/14 nodes, ER-/PR-, HER2- |
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jacqueline Joined: Sep 2007 Posts: 47 |
Apr 19, 2008 07:43 pm
jacqueline wrote:
Hi Lisa, Jan and Marsha; Thanks so much for taking the time to give me the conference information. Jacqueline |
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kbugmom Joined: Jan 2007 Posts: 1253 |
Apr 20, 2008 01:38 pm
kbugmom wrote:
Dr. Lisa Carey from unc chapel hill is my dr. She is wonderful and listens and cares. I did erbitux once almost died . She told me if my scans are not so good will go to next chemo that there is a trial starting next month. We will see and continue to pray and believe. |
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jacqueline Joined: Sep 2007 Posts: 47 |
Apr 20, 2008 10:04 pm
jacqueline wrote:
kbugmom; I hope that your scans are ok. Will think of you. Jacqueline |
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Analemma Joined: May 2005 Posts: 786 |
Apr 22, 2008 03:33 pm
Analemma wrote:
You can listen to a replay of the conference with this link (hope it works)> If you were unable to listen today or would like to hear the teleconference again, you may access a free online replay from 2 pm on April 19 until May 18. If your computer does not have a media player installed, you may download a free copy at the website of Real Player or Windows Media Player. dx triple neg in 2005, mets to chest and supraclavical nodes 12/07 , chemo, remission 2/08
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Analemma Joined: May 2005 Posts: 786 |
Apr 22, 2008 03:34 pm
Analemma wrote:
Oh, dear. Try this: http://audioevent.mshow.com/342299/?tr=y&auid=3556543 dx triple neg in 2005, mets to chest and supraclavical nodes 12/07 , chemo, remission 2/08
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