Topic: It's official, I'm triple neg

When I was diagnosed last March with IDC, it was a triple neg. This March I was diagnosed with a new primary, DCIS, that was ER+/PR-. My Onc said that every Cancer can be different, even in the same person...

Linda

Offical today- I'm now Triple negative.

Jan '08 was Dx with HER2/neu 3+, I've been treated with TCH x3. I'll complete one more treatment of TC, minis the Herceptin (I've received $15,000 worth to date). Was misdiagnosed because they didn't do a FISH test on my biopsy and tumor.

After my last treatment of TC, I'll start 4 rounds of Adramycin & Cytoxan. Now sure how safe I feel starting a new chemo treatment plan.

All this because of careless DX and testing. It's scary!

Thank God I asked to be seen by Dana Faber in Boston on a secound opinion.

Has anyone else had a similar experience?

Welcome to the club Suzanne.  It is scary to think of what kind of havoc mis-dx can do.  I can't say that I was mis-dx'd but I did have a lab mess up on the needle biopsy results.  They came back negative on both breasts.  Turns out they'd tested the right breast tissue twice. The BC was in the left.  Thankful for my BS' diligence.  It's good to find a medical team you can trust.

Hang in there Suzanne. Better to know now than later or never.  Having your Tx adjusted is a good thing albeit not a great prospect in some ways. Nobody wants more chemo....well, hang-on, I did.  More chemo meant (means) killing those little feckers.... cancer be gone!@!

Lastest update: My Tumor slides have now come back Triple Negative, but we're still waiting for the third FISH testing results of my Lymph Node, testing is being done at the Mayo Clinic. The preliminary Lymp Node results seem to be Heterogenous (showing both Negative and Positive HER2/neu). The waiting continues- the hardest part of all this.

I only have till June 27 to get another opinion on the second course of Chemo (scheduled for June 27), but can't go for the opinion until all testing is complete. I'm already 3 months late starting the proper Chemo for Triple Negative.

Any suggestions?

My first thought is to start the A/C on 6/27, and continue with the

2nd opinion on the A/C. My confidence with my Onc. is shot. She is the one that missed the correct Dx. She is the only game in town, I thought with my visit to Dana Faber in Boston things would of been cleared up but now things are just more convoluted. My visist to Dana Faber was 5/14 and there still isn't a written report back.

1st thing I must do is have another MUGA scan ( I've completed 3 TCH & 1 TC) then start the 4 A/C. I must let all the pathologists get there final reports in. Then find an Onc. (maybe Beth Israel) to pull all the info together for my final Dx.