Ok-
I've searched the threads, and read some of your thoughts...
I'd love to hear what you have decided to take, post treatment, as prevention.
I did both chemo and rads, and now I'm on tamoxifen. I just started to take a green tea extract capsule... with my multivit and B6 (for periph neuropathy).
I'm wondering about adding other things...
thanks for any ideas you may have!
Sue
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wallycat Joined: Apr 2007 Posts: 662 |
May 13, 2008 09:15 am
wallycat wrote:
I feel that Tamoxifen is my best bet. I do use ground flax in cereal for omega-3/fiber. I do use alpha-lipoic acid to lower glucose. I just started Quercetin for my birch tree allergies. I drink green tea (high dosage supplements can hurt your liver). Of course, I still drink wine, I eat meat and tofu. I hate cancer...and I hate it more for being a crap-shoot :( Dx 4/07; ILC 1.8cm, ER+/PR+, HER2 neg., Stage 1, Grade II, 0/5 nodes. Bilateral Mast., tamoxifen
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joanne_eliz
Joined: May 2007 Posts: 495 |
May 13, 2008 11:22 am
joanne_elizabeth wrote:
I take calcium, glucosamine, multi, fish oil, probiotics, quercitin, garlic, zyflammend, curcumin, astralagus, d-glucarate, DIM-Plus and probably a couple more. Don't know if any of them do anything, but they seem to be safe. I eat some whole soy and drink only organic milk and eat only organic yogurt except for ice cream every once in awhile. Ditto what wallcat said - I also hate this crapshoot. Joanne_elizabeth
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anomdenet Joined: Feb 2008 Posts: 71 |
May 13, 2008 12:28 pm
anomdenet wrote:
I'm taking the list of supplements on the right side of the this link. http://breastcancerchoices.org/sup.html I'm using Iodine as a substitute for Tamoxifin/ Arimidex. Anom |
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Dejaboo Joined: Mar 2008 Posts: 567 |
May 13, 2008 12:33 pm, edited May 13, 2008 04:28 PM
by Dejaboo
Dejaboo wrote:
Hi Anom, I want to take Iodine as a Substitute for Tamox/Arimidex. Can you tell me what kind you bought & were you purchased it? How much do you take each day? To answer your Poll Question. Right now I am taking Vit D, Calcium & Melatonin I plan on Adding Iodine, Tumeric/Curcumin, CoQ10. Maybe Omega 3 Im still researchign all of the above. I will probably find others that I will consider adding. Thanks, Pam Dx 3/7/2008, IDC, <1cm, Stage I, Grade 1, 0/1 nodes, ER+/PR-, HER2+ |
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DATO Joined: Jun 2006 Posts: 78 |
May 13, 2008 04:14 pm
DATO wrote:
I'm taking Green tea extract, CoQ10, Omega 3, Vitamin E, Citracal, Glucosamine/Condroitin/MSM, Multivitamin, and Arimidex. Dx 5/12/2006, IDC, 1cm, Stage IIIa, Grade 3, 6/9 nodes, ER+/PR+, HER2- |
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twink Joined: Feb 2007 Posts: 1561 |
May 13, 2008 04:26 pm
twink wrote:
ooh... I'm almost embarassed to type this list (evidence of me trying to win the crapshoot)... CoQ10 (just started last week) D3 B12 Multi Calcium Cod Liver Oil Black Cohosh Folic Acid Curcumin Flax oil I eat organic. Don't eat red meat more than a couple of times per month. I drink wine and expecially enjoy my martinis. I eat lots of fruit and watch my fat intake. I think I'll add C to that list next week. If you can't be kind, have the decency to be vague.
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AnneW Joined: Oct 2002 Posts: 1953 |
May 13, 2008 11:18 pm
AnneW wrote:
Taking for general health/prevention: --Body Balance liquid vitamin & mineral supplement --Indole 3 Carbinol --P5P --Fish Oil --Cal/Mag/D3 --L-Carnitine --Aromasin Doing for general health/prevention: --exercising my ass off --drinking way less alcohol (but still enjoying a weekly martini!) --eating a balanced diet --laughing alot --letting go of what I cannot control To me, it's not just about the supplements. Anne 2002 IDC stage 1, grade 1, rads & AI
Dx 9/18/2007, ILC, <1cm, Stage I, Grade 1, 0/1 nodes, ER+/PR+, HER2- |
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anomdenet Joined: Feb 2008 Posts: 71 |
May 14, 2008 09:05 am
anomdenet wrote:
Hi Dejaboo, I take Iodoral iodine tablets. The doctors prescribing it recommend 50-100 mg for breast cancer patients. After a couple of years you can cut down the dosage somewhat. I get mine at www.breastcancerchoices.org/order because they are the cheapest and I got a free iodine loading test through them to see what my starting point on iodine was. As a side benefit, I lost some weight and my mind got sharper --tho I still can never remember where I put down my glasses! Anom |
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Dejaboo Joined: Mar 2008 Posts: 567 |
May 14, 2008 09:20 am
Dejaboo wrote:
Thanks Anom! Your wearing your glasses! LOL I sure would love to get some of my Memory back! Dx 3/7/2008, IDC, <1cm, Stage I, Grade 1, 0/1 nodes, ER+/PR-, HER2+ |
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Estra Joined: May 2008 Posts: 3 |
May 14, 2008 07:59 pm, edited May 15, 2008 01:03 PM
by Moderators_Tami-Melissa
Estra wrote:
This Post was deleted by Moderators_Tami-Melissa.
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BinVA Joined: May 2007 Posts: 1204 |
May 14, 2008 08:03 pm
BinVA wrote:
Geez, I've totally flunked the prevention class with my first three. Chocolate, coffee, smoking, gardening, laughing, and more yard work. That's it. Kissed my memory good-bye a couple of months ago! |
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mrsdeg Joined: Jan 2008 Posts: 53 |
May 15, 2008 01:46 am
mrsdeg wrote:
Thanks for all of the info! What a good website, Anom, thanks! That was what I was looking for. I'm also doing organic dairy and poultry and some fruits and veg (cost permitting). I'm trying to be active and get to my ideal weight and stay there (this time!) Laughing, gardening, and sleeping are all on my list, too! I'm staying away from flax and soy due to my 100%ER+/100%PR. Do you all agree with that? Thanks! Gotta go roll those dice! Sue "I can do all things through Christ Jesus who strengthens me Phil 4:13"
Dx 6/11/2007, IDC, 5cm, Stage IIb, 16/17 nodes, ER+/PR+, HER2- |
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allysonw Joined: Oct 2007 Posts: 594 |
May 15, 2008 07:21 am, edited May 15, 2008 07:34 AM
by allysonw
allysonw wrote:
Like you my bc was highly ER+ also PR+. In addition to faithfully taking Femara and every 3 month Lupron injections I take a few supplements and have a longish list of things I make a point of eating or make a point of avoiding. There are no guarantees but I get a lot of satisfaction out of my efforts to stack the odds in my favor. *D3 1600mg *calcium citrate w/magnesium about 1200mg *maitake/reishi mushroom *milk thistle extract w/artichoke and dandelion extracts *rosemary extract *melatonin *1/2 c organic grape juice most days * 2 Brazil nuts most days *sometimes fish oil or eat sardines *green tea- amt varies- at least 2 cups daily *no alcohol *no red meat (haven't eaten this for years) *whole grains, low fat, high plant food diet (although lately logging my intake I've realized I'm not doing as well as before and need to work on this). *limit dairy and consume only organic *avoid soy and flax * exercise daily at least 30 minutes but often 1 hour or more- doing triathlon training so this will continue to increase * I've lost weight about 25 pounds since just before dx 1 year ago and intend to lose about 10 more *Also eat mostly organic- we joined an organic farmshare this year with my daughter and will soon be picking up and picking our huge share of all sorts of organic fruits and vegetables. We are also doing some gardening- put in strawberries, raspberries, and a couple of blueberry bushes this month. * Also raise our own chickens and eat a lot of eggs- this started a little before the bc dx. Previously I hardly ever ate eggs. Recently I've heard they are beneficial in prevention so am extra glad we have such an abundance right in our backyard. Dx 5/18/2007, ILC, 3cm, Stage IIIa, Grade 2, 6/17 nodes, ER+/PR+, HER2- |
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Bliz Joined: Jun 2007 Posts: 475 |
May 15, 2008 08:09 am
Bliz wrote:
DIM green drink liquid multi-vitamin black cohosh fish, flax, borage Zyflamend more organic food water through a filter Dx 6/13/2007, IDC, <1cm, Stage I, Grade 1, 0/3 nodes, ER+/PR+, HER2- |
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joanne_eliz
Joined: May 2007 Posts: 495 |
May 20, 2008 11:18 am
joanne_elizabeth wrote:
Ally, Why do you avoid dairy and do you rely on calcium supplements for most of your calcium? Thanks, joanne Joanne_elizabeth
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Connie07 Joined: Feb 2008 Posts: 53 |
May 20, 2008 11:36 am
Connie07 wrote:
Congrats to all of you doing so much, as I sip my coffee with liquid creamer which I just learned is a bad thing, but it's sooo good. I got BC and my husband got healthy. He does the shopping now, and feeds me lots of lean meat, legumes, whole grains. I have to go buy my lite beer if I want it, and I do. He's lost almost 60 pounds. I lost 20 but it's creeping back, hmmmm might be that beer? Pretty amazing that I didn't gain a ton. I've added a multi, 500 mg calcium with mag/D. A green tea supplement with an appetite suppressent, iron and E-500. Had a blood panel 2-weeks ago but haven't seen the results yet. It's like they don't want you to know. Dx 6/6/2007, DCIS, 5cm, Stage I, Grade 1, /0 nodes, ER+ |
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allysonw Joined: Oct 2007 Posts: 594 |
May 20, 2008 04:30 pm, edited May 20, 2008 04:31 PM
by allysonw
allysonw wrote:
Joanne- My oncologist mentioned dairy as something to avoid or limit, in addition to soy and flax. Dairy from hormone treated cows is a particular concern. However, all dairy is a problem because the cows are pregnant so much of the time and the hormones from the pregnancy spill over into their milk. This is potentially a big problem for someone like me with a highly hormone sensitive cancer at high risk of recurrence. In addition IGF-1, present in all milk from humans and cows, has been implicated in accelerating tumor growth and increasing risk of breast cancer. I supplement heavily with calcium citrate which is better absorbed than some other forms of calcium. I haven't quit milk entirely but I do try to limit it and to have organic products when I do use milk. My goal is to whittle it down to being a rare treat. Dx 5/18/2007, ILC, 3cm, Stage IIIa, Grade 2, 6/17 nodes, ER+/PR+, HER2- |
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joanne_eliz
Joined: May 2007 Posts: 495 |
May 20, 2008 05:05 pm
joanne_elizabeth wrote:
I have read the same thing your onc says, but now eat organic yogurt for the calcium. I find it nearly impossible to get enough calcium without dairy. Very few oncs tell you this though - 2 where I go said dairy was no problem. Do you mind if I ask where your onc is? So how much calcium do you take? Right now I take about 800mg/day plus a yogurt. Thanks, Joanne Joanne_elizabeth
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allysonw Joined: Oct 2007 Posts: 594 |
May 20, 2008 05:21 pm
allysonw wrote:
Joanne- No problem. He's at Dana Farber in Boston MA. I took his advice very seriously since like most MDs he overall has had little to say about nutrition and recurrence prevention other the methods that involve meds (which I also take full advantage of !!!). I try to take at least 1000mg- it should be 1,200 total from suppements and food. You are probably in the ballpark. Allyson Dx 5/18/2007, ILC, 3cm, Stage IIIa, Grade 2, 6/17 nodes, ER+/PR+, HER2- |
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joanne_eliz
Joined: May 2007 Posts: 495 |
May 21, 2008 03:40 pm
joanne_elizabeth wrote:
That is a very prestigous place. It is so frustrating that he says no soy or milk or flaxseed. The onc here said fermented soy is GOOD and some docs say the same about flaxseed. It is so frustrating that there are no good answers to this . Joanne Joanne_elizabeth
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cureme1 Joined: Apr 2008 Posts: 11 |
May 21, 2008 05:33 pm
cureme1 wrote:
Hey I haven't started chemo yet but am taking D1000mg, green tea, dark green fresh veg, carrot/celery/kale juice, oat milk, 2000mg calcium supplements, selenium,only multi grain bread , organic free range chicken and beans.... |
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allysonw Joined: Oct 2007 Posts: 594 |
May 21, 2008 09:51 pm
allysonw wrote:
Joanne- I know, the info on soy and flax is confusing. For peace of mind I am mainly avoiding both until there is conclusive evidence that they are safe. Dairy I think is less ambiguous in that there are some real problems with it that are not just theoretical/correlational. Dx 5/18/2007, ILC, 3cm, Stage IIIa, Grade 2, 6/17 nodes, ER+/PR+, HER2- |
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joanne_eliz
Joined: May 2007 Posts: 495 |
May 22, 2008 05:22 am
joanne_elizabeth wrote:
I know the theory about dairy - even the organic has naturally occurring growth hormones, but the onc said there are no studies which show this actually promotes breast cancer. I seem to pick a middle of the road - drink almond milk (whatever the heck that is!) and eat organic dairy non-fat yogurt. I sometimes eat fermented soy, but not often and do eat flax since everything I have read seems to think that has a preventive impact on breast cancer. It docks with a weaker estrogen in receptors so the stronger ones cannot to put it simply. In her book Waking the Warrior Goddess she specifically recommneds flax - think she had her hand in the development of brevail. I had this pang of terror last night thinking yikes you may only get one shot at this, but how DO you get it right? Joanne Joanne_elizabeth
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allysonw Joined: Oct 2007 Posts: 594 |
May 22, 2008 06:01 am
allysonw wrote:
Joanne-I do the same- almost exactly. Almond milk in my cereal, etc. Lowfat organic milk in my coffee if I am out of oat milk (which tastes better in coffee than almond or rice milk). I have lowfat organic yogurt here and there, and occasionally some other dairy but not as a daily thing. I will eat flax if it happens to be in something in a small quantity but I don't seek it out. I know it may be more beneficial than harmful but I am waiting for more definitive evidence. It is hard to know if one is "getting it right." I know those pangs of terror all too well, although thankfully have not had one recently. With all the ambiguity in these things I can only do my best. It also helps me to keep my focus on those things that really seem to make a BIG difference, like daily exercise and maintaining a healthy weight (with the goal of getting to and staying on the low side of healthy). Allyson Dx 5/18/2007, ILC, 3cm, Stage IIIa, Grade 2, 6/17 nodes, ER+/PR+, HER2- |
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mrsdeg Joined: Jan 2008 Posts: 53 |
Jun 6, 2008 03:30 am
mrsdeg wrote:
bumpin... "I can do all things through Christ Jesus who strengthens me Phil 4:13"
Dx 6/11/2007, IDC, 5cm, Stage IIb, 16/17 nodes, ER+/PR+, HER2- |
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LindaMemm Joined: Jan 2008 Posts: 194 |
Jun 6, 2008 09:32 am
LindaMemm wrote:
Anom, thanks for the interesting link. I have been doing liver and colon detox's so it was good to read that this is a good thing. I am taking a multi vit, with no iron, calcium, magnesium, selenium, vit c, vit d, vit e, bcomplex, coq10, omega3, melatonin, and some progesterone drops because my level is low. I am going to talk to my holistic doc about the iodine next time I see her. |
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joanne_eliz
Joined: May 2007 Posts: 495 |
Jun 6, 2008 10:58 am
joanne_elizabeth wrote:
Linda, What makes you think the multi with no iron is good? Is iron a bad thing to use? I have also heard it may be good to take one with no copper. Have you heard that? Thanks, Joanne Joanne_elizabeth
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allysonw Joined: Oct 2007 Posts: 594 |
Jun 7, 2008 06:27 am
allysonw wrote:
Since I last posted here I have switched to using oat milk in my coffee. It works MUCH better than almond or rice milk and has more protein too- 4 grams versus 1 gram. It's calcium fortified like the others. Dx 5/18/2007, ILC, 3cm, Stage IIIa, Grade 2, 6/17 nodes, ER+/PR+, HER2- |
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jason222 Joined: May 2008 Posts: 26 |
Jun 7, 2008 07:45 am
jason222 wrote:
Hi everyone, Would like to ask, some seems to be avoiding flax, may i know why? coz i just bought flax seed oil for my mum. Not sure if what i'm doing is right. Any feedback is greatly appreciated. |
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LindaMemm Joined: Jan 2008 Posts: 194 |
Jun 7, 2008 09:49 am
LindaMemm wrote:
Joanne, I have read several books and they all say no iron, except for pregnant women. It makes cancer grow or something. As for the flax Jason, like soy there are different opinions about it , for ER pos BC's like mine, depending on its processing. I think it is okay if it is ground up, but used in moderation. I avoid anything controversial so I avoid it completely, as well as soy and dairy. I use the vanilla flavored rice milk with cereal and have learned to drink my tea "straight up". Now that summer is here, I make my own blends for ice tea, mixing different flavors of herb tea with black and green tea. Since I gave up soft drinks, I drink a lot of tea so I have to mix it to cut down on the caffeine. I use to be a huge dairy consumer. Now if I want some cheese, I buy the European stuff because they are much stricter about what their cows are fed and injected with. Jason, give your Mum Dr. Jane Plante's book on the dairy link to BC. I can't remember the name of it right now, because I lent it to a friend, but google her name and you can read all about it. Since lack of vit d is a major link to BC I take a megadose supplement of 5000 IU. On my last blood test, my vitamin d level was still on the border pf good and low. I read it is hard for menopausal women to maintain Vit d. |
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