I have been on Herceptin now for 8 months and done with A/C and taxol for 5 months. I now have split thumbs and index fingers and nails that get nasty splits.
Do any of you folks who have been on Herceptin have the same complaint? What to do?
And I had a clean PET scan today 1 year after my initial diagnosis. Hooray!
Thank you all for being out there
Henny
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nitewind Joined: Sep 2006 Posts: 92 |
Mar 11, 2008 10:14 pm
nitewind wrote:
Hi Henny and congratulations on your clean scan, great news! About the nails, I've always had very strong nails, I used to have to have my dh clip the ones on my right hand because they were just to tough for me to do. I had the a\c, taxotere, rads and finished my year of herceptin this past December. My nails are a mess. Some will grow a little, but will break and split quite easily. I've even had some split in half so it's like I have two layers of nails,yuck! I've recently tried coating them with something called "hard as nails", to soon yet to see if it will make a difference. I'll let you know if it works for me. Again, congrats on the clean scan, that's the most important thing! Hugs Susan |
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nagem Joined: Apr 2006 Posts: 172 |
Mar 12, 2008 03:56 pm
nagem wrote:
I finished Herceptin a year ago (preceded by AC/T), and although my fingernails have recovered, my toenails are a disaster. One toe has only half a nail, and many of the other toenails have the consistency of croissants, as my teenage daughter put it. Very embarrassing as it looks as if I have some dread fungal infection, and I'm sure people worry about contagion. I don't blame them! Dx 9/23/2005, ILC, 1cm, Stage IIa, Grade 3, 1/13 nodes, ER-/PR-, HER2+ |
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Sassa Joined: Jan 2008 Posts: 325 |
Mar 12, 2008 07:52 pm
Sassa wrote:
I have the same problems with my fingers (and toes). I had my last herceptin infusion on February 13 so I am hoping that the nails will eventually grow out and the skin peeling and cracking will stop. The best thing I found for the splitting skin was a handcream that contains paraffin from Bath and Body Works. It is from the True Blue Spa line and is called "Look, Ma, New hands." I also would put Bag Balm on my feet and wear a pair of socks while it absorbed. Dx 12/6/2006, IDC, 1cm, Stage I, Grade 3, 0/9 nodes, ER-/PR-, HER2+ |
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henny Joined: Mar 2008 Posts: 49 |
Mar 12, 2008 08:45 pm
henny wrote:
Thank you all for the good ideas.
Dx 3/10/2007, IDC, 1cm, Stage IIa, Grade 3, 1/15 nodes, ER-/PR-, HER2+ |
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kimbly Joined: Feb 2008 Posts: 174 |
Mar 13, 2008 01:41 pm
kimbly wrote:
SO it's the herceptin that causes the splitting. My nails are strong but each treatment makes 2 or so fingers have splits on the end. Painful and annoying and interferes with my typing LOL Dx 11/21/2007, IDC, 1cm, ER+/PR+, HER2+ |
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JeannieBell
Joined: Mar 2008 Posts: 25 |
Mar 13, 2008 01:55 pm
JeannieBell wrote:
I too have the "split finger syndrome" (ha).... and like you (kimbly) didn't know till just now that it is the Herceptin.... WOW! I just thought it was a combination of everything! It is usually my thumb and index finger (right hand only) that split... and boy, does it hurt.... and just when one of them start to heal, I go and pull or clip the skin around my nail and there it goes again...and it takes forever to heal... and then round 2 with the other finger......YUK!! I haven't had any problems with any of the other fingers or my nails and toes... just the 2 fingers...Weird?!? but then again, since treatment began, everything is weird... and I mean, Everything! JeannieBell
Dx 11/21/2007, IDC, 6cm+, Stage IIb, Grade 3, 9/21 nodes, ER+/PR-, HER2+ |
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Zzap Joined: Jan 2007 Posts: 97 |
Mar 13, 2008 07:11 pm
Zzap wrote:
I finished my year of Herceptin back in December 2007 and my nails are STILL weak. They split and peel very easily. Before treatment, I had very strong nails. My fingers seemed to have quit splitting though, so that's a good thing. Crazy the stuff this treatment does to one's body... Jenn
Dx 10/2/2006, 6cm+, Stage IIIa, Grade 2, 3/7 nodes, ER+/PR-, HER2+ |
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nagem Joined: Apr 2006 Posts: 172 |
Mar 14, 2008 08:49 am
nagem wrote:
Well, of course, I can't be sure Herceptin had anything to do with my nail troubles. I took AC/T also, which turned my nails brown and made them fall out. Dx 9/23/2005, ILC, 1cm, Stage IIa, Grade 3, 1/13 nodes, ER-/PR-, HER2+ |
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bevnurse Joined: Jan 2005 Posts: 487 |
Mar 14, 2008 01:18 pm
bevnurse wrote:
I also did AC/T and my nails were terrible after the taxotere! But I finished my second round of herceptin in August of last year and my nails are very thin with lots of ridges (run from base of nail up to tips) . The nails on my hands tear easily as soon as they reach the end of the nail bed but don't split along the ridges. I asked my Onc when this might correct itself and she did'nt have any idea. Beverly
Dx 11/11/2004, IDC, 4cm, Stage II, Grade 3, 1/8 nodes, ER-/PR-, HER2+ |
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janie44 Joined: Mar 2004 Posts: 1988 |
Mar 14, 2008 05:50 pm
janie44 wrote:
I finished Taxol in 11/2004 and Herceptin in 11/2005 and my thumb nails still pull away from the nailbed 1/2 and 3/4 of the way down. All the fingernails have ridges and I will not even get started on the toenails. I am really beginning to wonder if this is permanent!?!?! |
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jan125 Joined: Aug 2006 Posts: 222 |
Mar 16, 2008 06:56 pm
jan125 wrote:
My fingers stopped cracking (almost). I wear gloves when doing dishes and cleaning with water or any type of chemical. I also wear gloves outside and coat my hands with Vaseline at night... Also, keep cracks covered with bandaids (I have developed new and bizzare ways of wrapping my finger tips) and some antibiotic cream so they don't get infected. Good Luck, Jan |
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Aponi Joined: Apr 2006 Posts: 13 |
Mar 29, 2008 12:02 am
Aponi wrote:
Wow, I had no idea herceptin caused this! My nails are all horrid & they used to be nice. I finished treatment 7 months ago. Aponi
Dx 2006, IDC, , Stage IIIb, Grade 3, / nodes, ER-/PR-, HER2+ |
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Sassa Joined: Jan 2008 Posts: 325 |
Apr 1, 2008 07:53 pm
Sassa wrote:
I finished my herceptin treatment on 2/19/08. I noticed today that the skin on my finger tips and toes is no longer cracking and peeling. I hope my nails recover sometime in the next year. Dx 12/6/2006, IDC, 1cm, Stage I, Grade 3, 0/9 nodes, ER-/PR-, HER2+ |
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blue16 Joined: Dec 2006 Posts: 262 |
Apr 1, 2008 08:02 pm
blue16 wrote:
Hi All: Liquid bandaid works for me. You brush it on the skin around the cracks (mine are all split at the end corners of my nails)..... I finish Herceptin Jan 31st and my nails are still not right... |
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penneyz Joined: Apr 2008 Posts: 3 |
Apr 4, 2008 12:14 am
penneyz wrote:
I finished Herceptin 11/2006 and my fingers still split and my toes still look like I have a fungus. My dematologist told me to fill the split fingers with super glue, that it wouldnt hurt me and its cheaper than liquid bandaid. I give up on my feet. dx 2/5/5 stage III 2 lymph nodes + Her2+ Penneyz |
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nancy53 Joined: Jun 2007 Posts: 37 |
Apr 6, 2008 07:33 pm
nancy53 wrote:
wow,i feel so much better knowing i am not alone with these cracks around my thumb and index finger,my fingernails refuse to grow and my toenails are just brown and disgusting. i have placed the blame on the taxol,the numbness for sure,but i guess the herceptin has to take some of the blame too. do you ever feel like your just falling apart? nancy Dx 4/13/2007, IDC, <1cm, Stage I, Grade 3, 0/4 nodes, ER-/PR-, HER2+ |
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pnpmary Joined: Mar 2007 Posts: 20 |
Apr 12, 2008 03:54 pm
pnpmary wrote:
Hi all I always heard of the problem with nails and taxol. My nails were a little thinner on the taxol but I didn't have the nail splitting problem I have now with the herceptin (I like the croissant analogy!). It was during the summer, though, so my hands and nails always fare better in the warmer weather. I had skin splitting until vacation a few weeks ago in the sunny carribean As a nurse practitioner I'm washing my hands constantly and figured it was a combination of the meds, cold winter and handwashing. Now, however, my finger nails split into layers as soon as they get to the end of the finger. It's very annoying. Fortunately, my toes are fine. I do get a pedicure once a month (I never get manicures) so I wonder if the nail polish is somewhat protective. |
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sedosa Joined: Jan 2007 Posts: 97 |
Apr 13, 2008 12:30 am
sedosa wrote:
I use super glue for cracks and Nail Envy as a protector on nails. It is expensive and i get it from beauty supply house, but if I follow directions I can have nice nails again.
Learn a new language and get a new soul
Dx 1/7/2007, IDC, 2cm, Stage IIIa, Grade 3, 7/11 nodes, mets, ER+/PR+, HER2+ |
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AnnaM Joined: Oct 2005 Posts: 1109 |
Apr 13, 2008 06:14 am
AnnaM wrote:
It gets better. I had the cracked nails, skin, fungus on toenails, everything imaginable. I finished my year of Herceptin in early 2007 and my nails are back to normal and the skin is only as dry as it was before treatment. I used Tea Tree oil, Aquaphor, Bag Balm, you name it. Get something that smells good (sure ain't Tea Tree oil) and just know you're kicking cancer butt and will soon be back to that new normal. Really.
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debski Joined: Feb 2007 Posts: 4 |
Apr 18, 2008 11:43 am
debski wrote:
Finally I have found people who have the same problem. I have found that my fingers split just where the nail and skin meet at the tip. It is really annoying/painful and really gets in the way of doing things. It makes me think what is going on inside my body that I don't know about. No wonder I feel so tired. |
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nagem Joined: Apr 2006 Posts: 172 |
Apr 20, 2008 05:12 am
nagem wrote:
I get this too. I've found that putting polysporin on it with a band-aid for a couple of days helps. I've also read that dipping your split fingertip in yogurt (I kid you not) helps, since in many cases it's a fungus (haven't tried this one). Dx 9/23/2005, ILC, 1cm, Stage IIa, Grade 3, 1/13 nodes, ER-/PR-, HER2+ |
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swimangel72
Joined: Feb 2008 Posts: 377 |
Apr 20, 2008 07:35 am
swimangel72 wrote:
Wow - another thing to worry about before I start Herceptin....."to be forewarned it to be forearmed" - contrary to what my onc's nurse tells me - "stay away from the internet"! HAH! I'm sooooo grateful to the internet, and the information from this great web site and you fantastic ladies! ![]() Dx 2/5/2008, IDC, <1cm, Stage I, Grade 1, 0/7 nodes, ER+/PR+, HER2+ |
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talbrig13 Joined: Jan 2007 Posts: 269 |
Apr 26, 2008 09:32 pm
talbrig13 wrote:
I finished Herceptin in January and my nails are all splitting and breaking. Glad to know I am not alone. Thought I was! Terry :)
Dx 12/8/2006, IDC, 1cm, Stage I, Grade 3, 0/3 nodes, ER+/PR+, HER2+ |
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frostyiris Joined: Feb 2007 Posts: 10 |
Apr 28, 2008 06:49 pm
frostyiris wrote:
I have four more rounds of Herceptin and I'll be so very glad when they're over. My fingernails are terrible - they won't even grow out to the ends of my fingers before breaking and splitting. I used to have nice hard nails - maybe I will again one day. |
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Denny123 Joined: Jan 2004 Posts: 2384 |
May 3, 2008 11:56 pm
Denny123 wrote:
I guess that I am very lucky-I have been on Herceptin for 4 1/2 years and will be on it for life. I am Stage 4 with liver mets that have been in remission for 3 1/2 years (thanks to Herceptin). Anywho, my nails split a bit along the sides, but they do best if I keep them short. In most of the above cases, definitely Taxotere or Taxol will cause the major nail problems. Denise |
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bluewillow Joined: Jul 2007 Posts: 484 |
May 15, 2008 05:57 pm
bluewillow wrote:
Hi everyone, I just came back from my bi-monthly check-up while on Herceptin, and I asked the nurse practitioner about my awful looking nails. She immediately responded "it's the Taxol". I asked her if the Herceptin would also affect them, and she said no, that they are purely because of Taxol, and that it could take up to a year or two to improve. SHe's a great NP and I have lots of confidence in her, but did she have to be so truthful? Best regards, Mary Jo Mason's Granny
Dx 7/26/2007, IDC, <1cm, Stage I, Grade 3, 0/4 nodes, ER-/PR-, HER2+ |
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margret Joined: May 2008 Posts: 7 |
May 22, 2008 04:59 pm
margret wrote:
Denise, just had to comment, you've been on herceptin for 4 and a half yrs. That sounds good to me , I have been on it for 2and a half,its helped me too, I have bone mets and he says I will be on it for the rest of my life. Some problems , my nails are awful , it is the herceptin [ didn't take taxol] . I think it is affecting me in other ways, but I don't want to get off it. margret
Dx Stage IV, 4/19 nodes, mets, ER+/PR+, HER2+ |
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margret Joined: May 2008 Posts: 7 |
May 22, 2008 05:00 pm
margret wrote:
Denise, just had to comment, you've been on herceptin for 4 and a half yrs. That sounds good to me , I have been on it for 2and a half,its helped me too, I have bone mets and he says I will be on it for the rest of my life. Some problems , my nails are awful , it is the herceptin [ didn't take taxol] . I think it is affecting me in other ways, but I don't want to get off it. margret
Dx Stage IV, 4/19 nodes, mets, ER+/PR+, HER2+ |
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margret Joined: May 2008 Posts: 7 |
May 22, 2008 05:06 pm
margret wrote:
Mary jo I have never been on Taxol, but my nails have been a mess since I started on herceptin 2 and a half yrs. ago. they have split,my thumbs have cracked open,it hurts, can't use them for anything, my nails pull off and expose raw flesh. I had very strong nails and used them for everything. margret
Dx Stage IV, 4/19 nodes, mets, ER+/PR+, HER2+ |
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konakat Joined: Jun 2007 Posts: 40 |
Jun 7, 2008 06:11 pm
konakat wrote:
My nails are splitting and cracking -- I was on Taxol but this started happening 3 months after finishing Taxol and still on Herceptin. Unless I am getting a very delayed Taxol effect, I think it's the Herceptin.... I just keep them cut very short, less chance of snagging, etc... Shredded lots of pantyhose anyway though.... |
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