Topic: Just a little stressed out

Oh Laura, I know who scared you much be right now...its good that your appt for biopsy is soon....Im praying with Lexi above that things turn out to be a reaction or something...

Please let us know and keep posting so you dont feel so alone....

Hugs

Jule

Just wanted to let everyone now that I will be getting my results on Monday.  I will let everyone know what the outcome is.

The only problem that I have had so far with the biopsy is that the stitches did not hold so I am keeping the area covered with bandages.

Thanks for all of the support.

Laura

Laura,

A few steri-strips, cut in half, and then attached to one side of the incision, gently pushing the opposite skin edge forward, and slipping the steri strip across works wonders in a situation like this. There almost as good as stitches if you get the tension right, and you can buy them almost everywhere. Then a dollip of triple antibiotic and a gauze cover and you're good to go! Of course, best to let your surgeon know.

Tender

Laura,

I just saw your post! This is just simply great, wonderful, vundabaar news!!!!

Thank you for letting us know. I'm so very, very happy for you.

All the best,
Tender

Laura

I met with my radiation oncologist yesterday for the first time. He told me that the typical way that IBC behaves when it recurs is open sores. I would definitely do as much followup as possible to make sure that it isn't a reccurance.  Good luck to you!

Good luck to you. I hope your gut feeling is wrong as well. I see you are in Detroit. I am writing from Ypsilanti Michigan. We're both lucky to have U-M close by for second opinions when necessary. Please do update.

Well its has been a world wind the last few days.  I had the main sore removed on Wednesday just having a little pain other then that I am OK. 

My oncologist called me yesterday and gave me some news that I was not ready to hear or handle.  I had a CT scan done last week of my chest, abd, pelvis the scan came back with some of the lymph nodes under my right arm are swollen.   

Well today I saw my oncologist we went over everything and my path report from Wednesday which came back negative which is great however I still do not have an answer of what the sores are from. The biopsy that the derm did last week also came back negative.  So to be on the safe side my onc wants me to see my breast surgeon which to my surprise it could get an appointment with him this Monday. I know that I will have to have some kind of biopsy I just hope that I can get this done before the holidays.

Laura    

Im keeping up with you and wishing you well.

hugs

kim

va 

Well I was not able to have my biopsy prior to the holidays.  My surgeon wanted me to have a PET Scan done before he does the biopsy. My onc called me yesterday to see what was going on beacuse he has not heard anything from the surgeon.  I told him that the surgeon wanted a PET scan done prior to doing the biopsy. I told him that I was getting the results the next day and he asked me to have the surgeon fax him a copy of the PET scan results.  He asked me to call him after I met with the surgeon. Today I was given the results of my PET Scan the findings: 1) PET/CT scan exhibits a right axillary FDG avid lymph node, with maximum SUV of 4.8.  This intensity of uptake is suspicious of metastatic disease. 

2) Irregular and border line FDG avidity is seen at several vertebral levels as well as the bilateral SI joints, likely representing degenerative disease. I'm not  worried about this second conclusion I had a bone scan done last month which came back negative.

I am schedule for my biopsy on Monday morning. The surgeon told me that he should have the results 3 days after the procedure.

About 2 hours ago I spoke with my onc and told him what was going on.  He told me that once he gets the path report we will sit down and discuss it.  He asked me if I had an appointment with him soon I told him that I am scheduled on Jan 11th for a mediport flush and the following week with him.  He told me if anything comes back positive we will meet on that Friday instead of having the mediport flush.  Both of us are keeping our fingers crossed that this is nothing.  

Laura

Kim:

Thanks I will check it out this site.  As for how long I have had the NED it was two years august of 07.

Kim:

Thanks I will check it out.

Laura

Well I had my MRI on Sunday, Jan 19th it took over a week to get my results.  On Monday, Jan. 27th I was told that the MRI showed a rupture in the implant.  I had surgery on Jan 30th when my plastic surgeon removed the implant it did not have a rupture in it.  She also opened the swelling under my arm which turned out to be a hematoma.  So since there was no rupture how on earth did I get silicone in my lymph nodes.  Now I am concerned that the lab screwed up.  I spoke to my onc to see what he thought about having the lymph nodes out for a second opinion.  He asked me to contact my surgeon and have them send the tissue out to the Mayo Clinic.

I spoke to my surgeon on Monday and asked for a second opinion on my lymph nodes.  I told him that my onc and I wanted a second opinion from Mayo Clinic.  So now I am waiting to hear from Mayo.  

Laura

Sorry about the taking so long to give an update.  I have been fighting with the lab to send my tissue slides.  So I got my surgeon involved to see if he can help me with this.  I have been calling his office every week to see if anything has come back from Mayo.  On Monday I was finally able to get the lab to send the samples out to Mayo. Hopefully I will get the results next week.  I will keep everyone posted.

Laura

I finally received my second opinion pathology report from Mayo.  The only thing that I understood on the report was Negative for carcinoma .  Not sure what everything else means.

"Reactive lymph nodes characterized by follicular lymphoid hyperplasia with focal follicle lysis, monocytoid B-cell hyperplasia, and focal foreign body giant cell reaction."

This report was much more in-depth then the one that I received back in January.  What a big load off my mind.