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« Forum: IBC (Inflammatory Breast Cancer): Just diagnosed, in treatment, or finished treatment for IBC.

Topic: help in canada

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Joined: Feb 2008
Posts: 9
  • Posted on: Feb 14, 2008 04:18 pm
prestressed wrote:

Hi   I do not know what to do , This  has been going on for about 7 months  and no  questions are getting answered. first  my left  breast squirted a greenish brown thick  discharge  then bloody  that went on for about 3 months   then  the same breast  became very swollen  red hot and itchy it lasted for about  6 days  made an appt  but by the time  i could get in  it had went away . he sent me for a ultrasound and made appt with a surgeon  at this time  the ultra sound showed nothing .  the day of the ultrasound the pain and swelling started up again  but still had  2 weeks till  the appt  with the  specialist,  it went away  before that appt again . so they never got to see it .  he sent me for a mammo  the results  came  back normal.  during  xmas  it inflammed again  i went to the emerg they gave  antibiotics and sent for another ultrasound  but still nothing  . the first round  of antibiotics did not work  so had to get another prescript .  that helped for about  1 month . I was sent to another specialist Awoman at that  she  said it was a bacterial infection. That  was 2 weeks ago.  But  2 days ago(1 day after taking antibiotics for something else) it is starting all over again .   I have seen about 10 docs  including the ones from emergency room 3 times. Anyone here know a doctor i can go to  that  knows  what they  doing?  

thank you    any help  will be greatly appreciated  

Prestressed

Posts 1 - 11 (11 total)
Beesie
Joined: Jan 2006
Posts: 3183
Feb 14, 2008 05:15 pm, edited Feb 14, 2008 05:17 PM by Beesie Beesie wrote:

While nipple discharge is really scary, in almost all cases - about 95% of the time - it's the sign of a benign condition.  Since your symptoms come and go, that does seem to indicate that it might be an infection. And I suspect the difficulty you're having in being treated is that by the time you get to the doctor, the symptoms have disappeared.  But obviously, since the symptoms then come back, whatever is causing the problem hasn't left your system.

Since the last doctor said that she thought it was a bacterial infection, did she prescribe antibiotics?  It sounds as though the original antibiotics worked, although not quickly and not completely, since the infection reactivated later.  With a really stubborn infection it sometimes takes a stronger antibiotic or several rounds of prescriptions before the infection is completely gone.  You mention that you are now on antibiotics for something else, but that doesn't mean that this antibiotic would work for this. There are different types of antibiotics that each work in different ways.  Some antibiotics, while able to get rid of one type of infection, might actually put you at risk of other types of infections.  So it could be that the antibiotic that you are taking for something else actually triggered the infection to act up. 

I think that rather than find a new doctor, I'd recommend that you stick with one doctor who can follow this through until the infection is completely cleared up.  I think part of the problem you're having is that you haven't had a single doctor who's aware of all these episodes; you've seen 10 different doctors who each have seen only a piece of the total picture.  Is there one of the doctors that you've seen that has the best idea of what you've been going through?  That would be the person I'd suggest you see now. 

prestressed…
Joined: Feb 2008
Posts: 9
Feb 14, 2008 09:01 pm prestressed wrote:

Yes  i have  one doctor  it is  just hard to get in  to see him   and  have had to go to emerg twice  with 4  doctors altogether trying to figure this out .  my doctor  sent me to a specialist   then he referred me to another  all my documentation  has been noted with my physician.  I just started more antibiotics  yesterday  especially for  this problem . they  all are saying  diferent things to me . as for an infection  they still can't ell me why ?   i am getting this   i can post  a pic  of it as i was told to take  by the physician yesterday . Thank you  for getting back  to me    Ps  i did exxagerate a bit   i guess it was 7  docs in total   Sorry about that      

kimmie39
Joined: Oct 2007
Posts: 308
Feb 15, 2008 11:33 pm kimmie39 wrote:

Hi

I   answer but I will say from personal experience that you can see multiple docs who are all wrong!!!!!!!!!!!!!!!!!!!!!

I did and it took me three months of pushing for answers to be diagnosed!!! 

If you believe something more is up, thats all I would need to see a breast specialist and specifically ask if they are familiar with IBC and what test it would take to see if thats what you have. Although I personally STILL had a doc tell me he was familiar and in the end found he was not!!! 

IBC can and does go undetected on mammos and ultra sounds!!

I had to have a MRI to detect it and I had to insist on the MRI to get them to give me one.

IBC is serious business .  Its aggressive and like all cancers potentially deadly.

Please do not mess around if you have the slightest indication.

God bless

kim 

Recurrent IBC Stage 3b Rt and Left w/ node involvement er - pr- her2-/ updated to stage 4 11/25/07 bone mets found on CT
prestressed…
Joined: Feb 2008
Posts: 9
Feb 16, 2008 12:41 am prestressed wrote:

i have to report mirena  iud     i am   very lost    and any help  will  be greatly appreciatied 

   if  i am in trouble i need help 

prestressed…
Joined: Feb 2008
Posts: 9
Feb 16, 2008 12:53 am prestressed wrote:

thank you     any answer  is better than none      i really appreciate it 

i just  wish it  could e

xplain why 

prestressed…
Joined: Feb 2008
Posts: 9
Feb 16, 2008 01:02 am, edited Feb 16, 2008 06:49 AM by prestressed prestressed wrote:
This Post was deleted by prestressed.
prestressed…
Joined: Feb 2008
Posts: 9
Feb 21, 2008 09:13 am prestressed wrote:

hi   had  a doc's appt yesterday   he referred  me to another  surgeon   they called this morning  with the date and time  of  June 24th .  unbelievable. 

kimmie39
Joined: Oct 2007
Posts: 308
Feb 21, 2008 09:06 pm kimmie39 wrote:

NO WAY!!! Are you serious. Call them back and explain nwhy thats not acceptable or go to a different surgeon.

Kim 

Recurrent IBC Stage 3b Rt and Left w/ node involvement er - pr- her2-/ updated to stage 4 11/25/07 bone mets found on CT
ateepay
Joined: Jan 2008
Posts: 9
Feb 25, 2008 03:02 pm ateepay wrote:

You need to start demanding....Tell them you demand they RULE OUT Inflammatory Breast Cancer,
and WAITING is not an option.
I am so sorry you are going through this...

Patti Bradfield
President
The Inflammatory Breast Cancer Foundation
www.eraseibc.com

lexi4
Joined: Nov 2005
Posts: 1966
Feb 25, 2008 05:21 pm lexi4 wrote:

prestressed,

Yes, you really need to demand an appt much sooner. IBC is very aggresive and not to be taken lightly. Please do try to get a new appt.

Hugs,

Lexi

prestressed…
Joined: Feb 2008
Posts: 9
Jul 12, 2008 12:39 am prestressed wrote:

hi    It  has been four months since  i have been on  here    i have not  had anymore inflammation since  the   6th round of  antibiotics     but still have  discharge     going  for a ductogram    finally something    in 5 months  .  all i have to report      i wish all the best       thank you  

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