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caaclark Joined: Feb 2006 Posts: 648 |
Aug 28, 2007 02:35 am caaclark wrote: Yes. I just posted about this a few weeks ago. I am over a year out and had the same problem. I was wearing a new bra and thought that it could be the cause. I stopped wearing it and the itching went away. Several people told me that it could be nerves regenerating. |
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nagem Joined: Apr 2006 Posts: 174 |
Aug 28, 2007 10:02 am nagem wrote: I had insane itching during the initial healing period. I thought I was going to lose my mind because I didn't want to scratch the raw scars and the itching was ferocious. It seemed to be linked to a rash that moved around my chest for a few months. In my case, the whole syndrome seemed to be caused by the oil-based moisturizer I was using. All gone now, thank goodness. My dermatologist suggested I switch to something called Calming Creme. I think it's made by Eucerin. It's kind of thick and pasty though, so convenient for winter only. Anyway, may I suggest a visit to a dermatologist? |
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ddd Joined: Mar 2006 Posts: 133 |
Aug 29, 2007 05:55 am
ddd wrote:
It could very well be nerves regenerating. I have had some areas that start itching, then become somewhat painful or throbbing, then that goes away and I have new feeling in the area. For itching that may not be nerve related, I have had great luck with simple Johnson's Baby Powder. If a bra is itching when I take it off, I rub the entire chest area with lots of baby powder and put on a soft cotton T-shirt. Seems to clear up almost anything. ddd |
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Candyce Joined: May 2004 Posts: 1455 |
Sep 7, 2007 05:02 pm
Candyce wrote:
I have itching--especially in the summer and when I have had prosthesis on for a long time. I wondered if I was allergic to the silicone. It seems like the factors of heat and time play into it.
Candyce |
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Ter Joined: Oct 2006 Posts: 375 |
Sep 7, 2007 06:45 pm
Ter wrote:
I too have this NOW on my R masct, not my left one, the R was done in Nov 04, and my dh says "its healing" which i know does take time, as they took a good part of nodes under arm invasive, and I told him I thought it might be "fathom" pains/itch, as when someone has a limb amputated. I just can't get rid of it, driving me nuts! Ter When it rains, don't forget to jump in the puddles!
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Beesie Joined: Jan 2006 Posts: 3159 |
Sep 7, 2007 07:57 pm
Beesie wrote:
I'm almost 2 years out and I still have severe itching. It's not constant - it tends to come and go - but right now I'm in one of those stretches where I'm getting the itching every day. Thre's nothing I can do to stop it and it drives me crazy. This seems to be one of those things that the docs never tell you about. In fact, from earlier threads, it seems that most docs don't even know about it, or deny that the itching has anything to do with the mastectomy. But it happens to too many of us for it to be a coincidence. It's got to be phantom itch. Ahhhhhh! |
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MzzHope Joined: Apr 2007 Posts: 27 |
Sep 9, 2007 03:08 pm
MzzHope wrote:
OMG. Yeah. The itching.I think it is nerves regenearating, too. Because I had my surgery in February and it seems to be a bit better now. It does not bother me during the day. But sometimes at night it drives me wild. One other weird thing..... I have phantom nipple sensations. Like if it is cold... I still cross my arms over my chest because I think that my nipples are showing. LOL!
~Hope |
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Beesie Joined: Jan 2006 Posts: 3159 |
Sep 9, 2007 05:29 pm
Beesie wrote:
Hope, I get that too. It is sort of funny but very strange. I had a single mastectomy so I have one natural breast & nipple and one implant reconstructed breast with no nipple. (I replied to this post because the itching problem happens to some of us whether we've had reconstruction or not). When I get cold or get a shiver, I get exactly the same "nipple" feeling on both breasts. It's so weird. |
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sam52 Joined: Oct 2003 Posts: 1141 |
Sep 10, 2007 11:29 am
sam52 wrote:
It is nearly 6 years for me since I had the (single) mast; when I take my clothes off at night I get the most terrible itching on the mast site.I just rub it with the flat of my hand and it seems to go away quite soon. Lately I have been getting it at odd times during the day. I have to watch myself because I sometimes just go in there and have a good scratch! It's kind of catching, like people talking about head-lice. As soon as I started reading this thread, the itching started up! Glad to see I'm not the only one with itching problems. But nerves regenerating...after 6 years??? I wonder. Sam in UK |
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lvtwoqlt Joined: May 2007 Posts: 2390 |
Sep 10, 2007 03:46 pm
lvtwoqlt wrote:
I agree with sam this must be contagious, as I was reading the post I started itching also. I also find myself wanting to scratch at inappropriate times. Sheila How About APP STATE!!!
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MzzHope Joined: Apr 2007 Posts: 27 |
Sep 10, 2007 08:17 pm
MzzHope wrote:
Wow, Bessie.. so it even happens when you have been reconstructed. How odd. This itching thing really is contagious, though. Everytime I even SEE this thread it gets me started again. sheesh~! |
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Ter Joined: Oct 2006 Posts: 375 |
Sep 12, 2007 03:49 am
Ter wrote:
I have to laugh, even though like I mentioned I itch too, almost feel like a monkey in a zoo! I dont wear a bra, as none is needed, but make sure what ever top I wear is extremly soft, winters I wear cotton camesoles or the satiney ones or the stretchy like ones, do have 2 very pretty ones that are dark skin tone, one has lace around the front and I use to wear when i had boobs, This past year I wore one in the winter as its by a co. that makes like soft womens thermals etc and cami's a tiney bit of the black lace, as my top had a zipper, I kind of wanted to feel "sexy" or something ,heck i dont know, it did make me feel prettier, as prior to BC being an -A cup, they say if you have it "flaunt it" well I never flaunted it...but I have a nice set of legs so I wore skirts, keeps the distraction from up above, but now, I could care less.. as after I have read of SOOO many having many more surgeries and diff things happing w/reconst. Im really pleased I did not. as of the itching still, I am using a new thing of babypowder, Johnson and Johnson "melon" scent..its great, especially with the heat we have been going thru in summer.. thats it for now. Ter When it rains, don't forget to jump in the puddles!
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Gippy Joined: Sep 2007 Posts: 3 |
Sep 21, 2007 09:50 pm
Gippy wrote:
I'm six years out and still have this occasionally. It drives me crazy! Also, Ter, you said you just go flat. Don't you feel vulnerable? My surgery was really 'tight' and my chest is so caved in two spots, I feel like I could put my finger right through my skin and ribs. It makes me feel vulnerable enough to even sleep in a smaller set of protheses. Gippy |
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mcalot Joined: Jul 2006 Posts: 31 |
Sep 22, 2007 12:20 am
mcalot wrote:
I have been gone for a while and have not checked the site. Your replies have made me laugh so hard! I can relate to them all. I had no idea that so many of us had the same problem! I did bring this up to my oncologist at my last check up and he is having me get a skin scraping by a dermatologist as the itching is only in an area that is red(but not from scratching) and is just below the mastectomy from the cancer side. The other mastectomy is not red and does not itch. He is a very cautious doc and checks out all my concerns. I will let you all know what they find. Laurie |
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LilyMae Joined: Oct 2007 Posts: 1 |
Oct 14, 2007 12:12 am
LilyMae wrote:
I had a double mast in 2002 and reconstruction in 2004. All of a sudden, I have itching all the time in my left breast (which is totally numb and without feeling as I had a transflap). I want to scratch it but there is no way to get to it. Does anyone know of anything in the way of natural food supplements or meds that will help take this itching sensation away? LilyMae |
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BoobsinaBox
Joined: Mar 2007 Posts: 57 |
Oct 14, 2007 12:18 am
BoobsinaBox wrote:
LilyMae, I have a spot on my right mast scar that itches quite frequently. I use a very small amount of 1% hydrocortisone cream on it - usually morning and night, and while it doesn't take care of all the itching, it does relieve most of it. The scar is numb, and yet I get relief. I didn't think it would work, and others have said it didn't help them, but it is a fairly inexpensive thing worth trying. And good luck! This itching is awful when you can't even touch it! |
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Monica_2 Joined: Oct 2007 Posts: 1 |
Oct 16, 2007 07:23 pm, edited Oct 16, 2007 07:25 PM
by Monica_2
Monica_2 wrote:
I am two weeks out of AC/Taxol DD and I am now experiencing worsening itching with every shower. It started with my hands and feet and now almost throughout the rest of my body. Has anyone experienced this? Benadryl doesn't work. |
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puppyholic Joined: Sep 2007 Posts: 257 |
Nov 12, 2007 10:16 pm
puppyholic wrote:
I just started this itching a couple of days ago and it's definitely not the skin that's itching. It's coming from inside like LilyMae - no way to get to it. I had a bilat diep. It's awful. Luckily, so far it's only on one side. It's driving me wild. It doesn't seem to be affected by the bra or no bra - yikes! I hope it goes away soon before I go out of my mind! |
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lornal Joined: May 2008 Posts: 1 |
May 12, 2008 10:54 am
lornal wrote:
Hi,I am new to this site. I am desperate. Had a bilat. masc. one year ago. Had free tram flap after the third reconstruction surgery I have been having severe itching on the belly area and breast area. Ended up in the hospital 3 wks ago it broke out into a rash. Not one doc knows what it is. And can not stop this itching. It is usually ok during the day and starts up around 4-5:00pm. and gets way worse around 8 into the night. I am now at an allergist he think it may be the scrub they use before surgery,gave me meds. NOTHING works, has anyone found out what this is? Or a doc to help with this?
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