Hi guys,
I have a new pain I've been suffering with for the past 3 weeks. I was very worried that it was mets, because it's on my bc side, but now it appears that it's a tight 'stringy-thingy' that goes from my breast (or more specifically, no breast) vertically down to the bottom of my rib. It hurts a lot.
Six months after my hysterectomy, I had an emergency surgery when scar tissue wrapped around my intestines. I'm wondering if this is the same kind of scar tissue.
I'm not sure whether to go back to my PS, who removed my implants on Jan 11, to my BS, who did my bilateral 3 years ago, or to my regular Dr.
Anybody know what this could be, or who I should see?
sally
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Erica Joined: Oct 2003 Posts: 1426 |
Mar 17, 2008 03:53 pm
Erica wrote:
Don't panic, Sally. It sounds exactly like something I had (twice) called Mondor's Disease. It's a superficial thrombosis, almost like the cording that some women (including me) get after lymph node removal. Cording tends to run down the arm. Mondor's goes from the breast down toward the abdomen. Mine went almost as far as the waist and I could see the 'cord' clearly in the mirror. The first time it appeared was over a year after I'd had lumpectomy/radiation to my right breast, so at first I freaked out. Then I did a big search on the Internet and even found a picture of it. It lasted about 2-3 months, during which time it very gradually disappeared. Later, I told my PCP about it and she said it sounded as if I'd made the correct diagnosis. The second time it occurred was after my bilateral mastectomy, again on the right side. This time it didn't last as long. My PT confirmed that it was Mondor's. As with cording, I found that gently pressing along the 'stringy thingy', though it hurt when I did it, actually relieved the pain and probably helped it resolve more quickly. Mine didn't hurt constantly, but caused a sharp, searing kind of pain when I did things like raising my arm--any kind of stretching motion. I hope this is helpful and I hope it's what you have--since it's both benign and will go away! You can find lots of info online if you Google 'Mondor's Disease.' BTW, it's apparently very common among women who have breast augmentation--any kind of surgery around the breast area puts you at risk. Barbara http://breastfree.org
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SLH Joined: Oct 2007 Posts: 510 |
Mar 17, 2008 04:24 pm
SLH wrote:
Thanks Barbara! Mine sounds exactly like yours. I didn't see it until a few days ago, so I was feeling worried for a couple weeks. But now it's clearly a tight cord of tissue. I'm so glad I can ask these questions here, because I hate running to the dr. I just got my bone density checked on Friday (I take Arimidex). Good news that since I've been taking Fosomax, it's increased quite a bit! But I told the endocrinologist that I felt worried every time I had a pain, (I didn't tell him specifically about the tight cord) that it might be cancer coming back. He chewed me out, said that I was making myself sick by worrying about it. So thanks for sharing! sally |
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otter Joined: Jan 2008 Posts: 2224 |
Mar 18, 2008 03:20 pm
otter wrote:
SLH/Sally-- Yeah, well, that's easy for HIM to say. I have yet to meet a doctor who very clearly lays out two lists for me: 1) These are the things you need to worry about. If these happen, be sure to call me right away. 2) These are the things you DO NOT need to worry about. If these happen, don't worry--they are trivial and of no consequence. Please do not bother me about these things. I have not developed Mondor's, but I do have the "cording" in my armpit (mast/SNB on Feb. 5 of this year). One "cord" appeared about 2 wks ago, and the other has arisen since then. They both hurt like the dickens--much like a recent bruise. Stretching exercises also hurt because of them, but once I've sloooooowly stretched them out, they feel lots better. I don't know how you relieve the pain and tension from the ones that go down your ribcage toward your belly, though. How does that work? otter Dx 1/14/2008, IDC, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR-, HER2- |
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SLH Joined: Oct 2007 Posts: 510 |
Mar 18, 2008 08:00 pm, edited Mar 18, 2008 08:02 PM
by SLH
SLH wrote:
Hi otter, I'm not sure how to relax this cord yet, but knowing that it's not mets is a huge burden off me. I've been thinking that I should look up a therapist in the BC center to help me get past feeling like every pain is cancer returning. Under the topic “Moving Beyond Cancer”, there’s a conversation called I'M DONE WITH MY TREATMENT - NOW WHAT? It has good info from the Hopkins Breast Center about how to live life after BC. For the past 3 years and 5 surgeries, my drive to be well has fueled my adrenalin. But I feel depressed now that I've done all that I can do, and still the cancer might be there. How do I get that feeling out of my head?! sally |
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otter Joined: Jan 2008 Posts: 2224 |
Mar 19, 2008 04:53 pm
otter wrote:
SLH/sally, I wish I could help you with the "what next???" feeling. I'm not there yet, since I don't yet know if I will be getting chemo. For some reason, and with some technique I don't understand, I've been able to get on with my life...at least in the interim and to a reasonable degree. My dh would not agree--he wants us to go back to how things "used to be"; but I at least need to wait until the chemo issue is resolved. On Monday when I was feeling so bad about my Oncotype mess-up, I called a woman I used to work with. What I wanted was advice about picking a new oncologist. My former colleague has been battling Stage IV BC, with bone mets, intractable pain, anemia, the whole deal; but you wouldn't know it from talking to her. Even though BC has totally changed her life, she conveys such a bright, good-as-new outlook on things that she could not help but infect me with optimism. She refuses to let it get her down. She's not a pollyanna; there isn't any false optimism there. It's just that there are certain things she enjoys in her life, and things she thinks are important; and she has decided to let those things rule her days. I think she copes with her BC by investing herself completely in those other important things. I am, and always will be, a "worry-wart." I sure hope that once the chemo question is resolved, I can get on with my life and not be concerned about every ache or pain. I guess if you have done all you can do, maybe a small case of "denial" would be a good thing. Hugs... otter Dx 1/14/2008, IDC, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR-, HER2- |
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mimi1030 Joined: Oct 2007 Posts: 554 |
Mar 19, 2008 06:38 pm
mimi1030 wrote:
Maybe a bone scan would put your mind at ease. Bone density really cannot detect anything like lesions on the bone, you would need a bone scan for that. To give yourself peace of mind, maybe ask the doc to order one for you. Anyone who has pain somewhere who has a hx of BC, should be allowed to put there minds to rest regardless of wether the doc thinks it unnecessary. It is your mind afterall and not there's. Mom has Stage IV mets to liver and bones, details of dx below
Dx 9/29/2007, IDC, <1cm, Stage IV, Grade 1, 0/1 nodes, ER-/PR-, HER2+ |
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slarson Joined: Apr 2008 Posts: 1 |
Apr 29, 2008 10:43 am
slarson wrote:
I had a lumpectomy last Nov. I now have pain under my right rib. They say I have a gall stone and I am having my gall bladder removed Monday. I feel like I am falling apart. It is continuous pain and often through my back. I really do not want to have surgery again. S |
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MAMHOP Joined: Aug 2007 Posts: 653 |
May 2, 2008 08:21 am
MAMHOP wrote:
S, Are you having a laprascopic gall bladder removal? I had one 10 years ago and it wasn't bad at all -- felt great within a few days. I know that you don't want more surgery - no one would, but the relief of the gall bladder pain (which can be bad) is well worth it. I wish you the best of luck with your surgery. M. |
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