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Topic: Bad PS visit made me reconsider reconstruction

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Joined: Mar 2008
Posts: 78
  • Posted on: Mar 30, 2008 07:22 pm
Sable wrote:

I had a visit this week to a PS. He talked to me less than 10 minutes and did not give me any choices in what was to be done. I got the "this is what I am going to do" and that is it. And over all he pretty much made me feel like he was doing me a favor. I went home and had a meltdown over the whole idea and told hubby that I was reconsidering even having the reconstruction done. I did talk to my surgeon and decided to wait until after my surgery and all my chemo was done and healed up to think about reconstruction. I am hoping that I made the right decision. I'm just so unsure about so many things right now.


Dx 3/11/2008, IDC, 2cm, Grade 3, ER+, HER2+
Posts 1 - 14 (14 total)
Erica
Joined: Oct 2003
Posts: 1367
Mar 30, 2008 08:31 pm, edited Mar 30, 2008 08:32 PM by Erica Erica wrote:

The advice my breast surgeon gave me was that if I was unsure about reconstruction, it was a good idea to delay it. She said that the most unhappy patients she had were those who had doubts but went ahead anyway and then regretted it. You can always do reconstruction after you've finished treatment. And you don't have to worry about complications from recon delaying that treatment. I hope your husband's okay with your decision. I'm sure his support will be helpful.

I had a somewhat similar experience to yours, although in my case the PS was okay. I had a consult and he described what he saw as my recon options. I actually scheduled reconstruction, then started having massive anxiety attacks. I concluded that I wasn't ready for it, at least not at that point.

It's been 1 1/2 years and I'm doing fine with no recon, but it's reassuring to know I can change my mind at any time. You will have that option, too. And you'll have time to research your reconstruction choices and find a plastic surgeon you like, if you decide to go that route.

Barbara

BreastFree.org 

swimangel72…
Joined: Feb 2008
Posts: 413
Mar 30, 2008 08:49 pm swimangel72 wrote:

There are so many wonderful plastic surgeons - I hope you'll get a second opinion before deciding. My ps spent about 90 minutes with me going over all the different options - even playing a movie for me and giving me a free book about reconstruction. I will say that after my unilateral mastectomy and Diep on March 3rd my recovery is taking much longer than I expected........due to developing a staph infection. I ended up spending an extra 11 days in the hospital. I still have bandages on my "tummy-tuck" area - and can't stand up straight or walk for very long. I am finally finished with all the antibiotics and pain meds. So my advice is to take your time deciding and be 100% sure before proceeding - you'll need all the mental strength you can muster to help you recuperate.


Dx 2/5/2008, IDC, 1cm, Stage I, Grade 1, ER+/PR+
rockwell_gi…
Joined: Mar 2008
Posts: 230
Mar 30, 2008 08:55 pm rockwell_girl wrote:

What my PS did with me was told me about all the options available.  She did share that she wasn't able to do all the different surgeries but could refer me to someone else if I chose one she couldn't do.

Sable you'll do great hang in there.

Sandy/Sunshine : )
Dx 3/4/2008, IDC, 1cm, Stage I, Grade 1, 0/2 nodes, ER+/PR+, HER2-
otter
Joined: Jan 2008
Posts: 1865
Mar 30, 2008 10:38 pm otter wrote:

Sable, please seek a 2nd opinion.

The day after I got my BC diagnosis (from a biopsy), my onco surgeon told me she wanted me to talk to a plastic surgeon so I could learn about all the options available to me.  The meeting with the plastic surgeon and his nurse took a whole hour.  I watched a short video, looked through a book of photos of completed surgeries, and learned about the variety of PS approaches that were done there.  (This PS was very good.  About all he did was work with breast cancer patients referred to him by the surgical oncologists in that hospital.)

The PS checked to see what tissue I had available for constructing a new breast (belly fat is a good thing in this case), he marked all my scars from previous surgeries (appendectomy etc.), and he had the nurse take pictures of me, all marked up, so he would have a record if I decided I wanted reconstruction.  He also spent a lot of time answering every question I could think of.  He did all this, despite the fact that the first words out of my mouth were, "I don't think I am going to want reconstruction, but Dr. X asked me to talk to you about my options anyway."

In the end, I decided to have a mastectomy without reconstruction.  I'll still have that option open to me later, though, if I change my mind.

Please, please, do not let yourself be pressured into making a decision in either direction; but find someone who will give you the time and attention (and respect) you need to make your choice.

otter 


Dx 1/14/2008, IDC, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR-, HER2-
Sable
Joined: Mar 2008
Posts: 78
Mar 30, 2008 10:59 pm Sable wrote:

Wow, I wish he had given me more time to hear about other options. A less than 10 minutes (literally) was not enough time for anything. I am definately going to explore more doctors later on.

My husband said many times he is happy with whatever my decision is, he just wants me to get better. And I think that is what I need to do at the moment, get thru this surgery, chemo and stuff and then explore what there is out there.

I am so very happy that I joined this forum. It took about 2 weeks after dx to get in here but I am learning so many things from you ladies. I am so grateful for your honesty and the fact that you are here also.Cool


Dx 3/11/2008, IDC, 3cm, Grade 3, ER+, HER2+
nagem
Joined: Apr 2006
Posts: 174
Mar 31, 2008 06:59 am nagem wrote:

If you do decide to go forward with reconstruction, I suggest you NOT use the doc who gave you 10 minutes. This is not the person you want to have to deal with for any postsurgical complications. By the way, I had a lengthy meeting with a plastic surgeon plus attended an hourlong movie about breast reconstruction plus received numerous written materials—and decided it was not for me. I still have such warm feelings about that surgeon, however, that I refer everyone to him (I've also seen his work in person, since a friend of mine used him).


Dx 9/23/2005, ILC, 1cm, Stage IIa, Grade 3, 1/13 nodes, ER-/PR-, HER2+
kiki
Joined: Sep 2007
Posts: 98
Mar 31, 2008 08:46 am kiki wrote:

Sable, please find yourself another PS.  I have just gone through an 8month ordeal with an uncaring PS (who has a severe God complex).  She made my life a living hell.  Keep looking until you find someone who makes you feel at ease.  You'll know when it's right.  Good luck.

Laugh today do housework tomorrow!
Dx 6/4/2007, IDC, 1cm, Stage I, Grade 3, 0/1 nodes, ER+/PR+, HER2-
cat
Joined: Nov 2007
Posts: 20
Mar 31, 2008 02:43 pm cat wrote:

Sable,

If you are near the Cincinnati area. I could give you the name of a great pS. I had my bi-lat mas in dec. 07. I still have my expanders in and they look great! I will be having exchange for silicone in May.


Dx 10/19/2007, DCIS, 4cm, Stage 0, Grade 3, 0/2 nodes, ER+/PR+
rockwell_gi…
Joined: Mar 2008
Posts: 230
Mar 31, 2008 03:18 pm, edited Mar 31, 2008 03:23 PM by rockwell_girl rockwell_girl wrote:

Today I found these lyrics on this forum, it's from the song I run for life:

It's been years since they told her about it
The darkness her body possessed
And the scars are still there in the mirror
Everyday that she gets herself dressed
Though the pain is miles and miles behind her
And the fear is now a docile beast
If you ask her why she is still running
She'll tell you it makes her complete

I run for hope
I run to feel
I run for the truth
For all that is real
I run for your mother your sister your wife
I run for you and me my friend I run for life

It's a blur since they told me about it
How the darkness had taken its toll
And they cut into my skin and they cut into my body
But they will never get a piece of my soul
And now I'm still learning the lesson
To waken when I hear the call
And if you ask me why I am still running
I'll tell you I run for us all

[Chorus]

And someday if they tell you about it
If the darkness knocks on your door
Remember her remember me
We will be running as we have before
Running for answers
Running for more

I did a google reach and found the vidoe.  It made me cry but not really sad tears.  If you never heard it I would suggest to check it out : )

adding this link to see if it would work to get everyone to the video:

http://www.youtube.com/watch?v=sEZHISEL4lk

Sandy/Sunshine : )
Dx 3/4/2008, IDC, 1cm, Stage I, Grade 1, 0/2 nodes, ER+/PR+, HER2-
swimangel72…
Joined: Feb 2008
Posts: 413
Mar 31, 2008 04:24 pm swimangel72 wrote:

Thanks Sandy - I never saw that video - it brought tears to my eyes too!


Dx 2/5/2008, IDC, 1cm, Stage I, Grade 1, ER+/PR+
roseg
Joined: Sep 2004
Posts: 7480
Mar 31, 2008 04:38 pm roseg wrote:

I think if you decide to wait that you'll be fine. They're been various studies and women who delay reconstruction are generally just as happy, sometimes happier than those who do it immediately. You spend a lot of time with the Plastic Surgeon so finding one you get along with and feel good about is really important.

Are you sure you won't be getting radiation? 

Rose
Sable
Joined: Mar 2008
Posts: 78
Mar 31, 2008 06:22 pm Sable wrote:

no I am not positive that I am not getting radiation. The surgeon said yes there is a greater possiblity that I am not going to have to. There is a reason that I am being stopped from having the recon at the same time. We don't know what it is yet, I'm sure it will show itself soon enough.

There are multiple docs locally that I can test out. Definately going to give it a try after all the "making me glow in the dark" drugs are done. Wink


Dx 3/11/2008, IDC, 3cm, Grade 3, ER+, HER2+
Callygee
Joined: Mar 2008
Posts: 73
Apr 1, 2008 05:56 pm Callygee wrote:

Thanks for the song lyrics Sandy,
I need to know I'll be at a later point and will be able to look back.
I don't feel like I can do this anymore.
After chemo, surgery, chemo, I wait to schedule mastx,
then radiation, then reconstrux + 6 mos.

How do you with a scar and no breast feel about
seeing your scar? I hear some of you seemingly
accepting it? I'm afraid it will be a reminder...
until I can get reconstrux.

just a bit weary & wimpy today...

Vz_mom
Joined: Feb 2008
Posts: 59
May 4, 2008 08:43 pm Vz_mom wrote:

Callygee, be as weary and wimpy as you want.  this is hard!

personally, I'm proud of my scars (I've got 4) from the surgeries.  my scars are part of my life story, just like my C-section scar is.  while I'd prefer to not have them at all Wink, I needed to get them, and for me anyway, it's now a major part.  the scars act as a reminder to be more aware of my health and my body's changes. 

I also want my daughter to see me proud of my body, with all its imperfections.  the last thing I want her to see is me acting like my appearance is more important than my being here with her.  I can't expect her to be proud of her body and her physical appearance, no matter what it is, if I'm not proud of mine.  that's what makes me able to accept my scars.

hth...

Kalen
Dx 1/18/2008, IDC, 5cm, Stage IIIa, Grade 3, 3/7 nodes, ER+/PR+, HER2-

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