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Topic: Axilla Lymph Node UPDATE

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Joined: Aug 2007
Posts: 43
  • Posted on: Aug 10, 2007 11:02 am
WorriedMary wrote:
Hi Everyone,
My name is Mary and I am 46 years old. I want to give you a bried history of my problem and perhaps some of you may identify with what I am going through and possibly give me some comments.
Several years ago I was told by my primary doctor to get a mamogram. I did and it didn't come out as I thought it would. They found calcification in my right breast and had a biopsy done. Thank God it came back negative. However, a year later had another biopsy and again resurfaced with calcification on the left breast. Once again, biopsy done and negative. Third time, the same on the right breast and negative. I was then only 40 years old. There is history of breast cancer in my family. My oldest sister was 48 when she passed away from breast cancer. Since then, I've been having mamograms and sonograms of my breasts. Last year (3/6/06) I had a mamo and sono done in my right breast which came back abnormal. I went to them because while taking a shower I found/felt a hard nodule under my armpit which I found to be disturbing. The doctor couldn't find it but I KNEW it was there. I was told to get a sono which came back indicating the following:
Examination shows evidence of 20 x 8 mm (2.1 cm)? oval shaped solid nodule noted rt mid axilla. This appears to fall into <font> <!--color--></font> PROBABLY benign category. When I came back to the breast doctor with the results he told me the nodule is very deep in my underarm. Surgery (lymph node biopsy) was an option, however, he told me that I could possibly have compications with my right arm and since I am right handed it may be more of a problem. Before contemplating on surgery, which I was ready for, he sent me to my primary doctor for blood works (TB and HIV). Those came back fine and I went back to see the breast doctor again. If the blood work came back fine, then we were going to talk AGAIN about surgery. That didn't happen. He (breast doctor) changed his mind and decided to wait a couple of more months to see if there were any changes. By now I am frustrated, tired but most of all worried to death. Okay, so I now wait a couple of months and to my surprise I am out of health insurance. (long story) I was also in the process of selling our home and moving out of state so time just passed by in a hurry. However, I noticed the lymph node becoming larger,harder and more palpable. I am still without insurance and my husband cannot put me with his health insurance until November. So, what am I to do? I am also having other medical issues as well. I have deep vein thrombosis (superficial) in my right leg. It gets really swollen and painful! The night sweats are killing me because I can't hardly sleep at night, feeling extremely tired even if I don't do much around the house. I am not working, so there's no reason for me to be feeling so tired.

Well, that's my story. Thank you for letting me vent!

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Shirlann
Joined: Feb 2002
Posts: 6686
Aug 10, 2007 12:44 pm Shirlann wrote: Hi Mary, this is sure been a hard time for you. What a mess to be without insurance so long. Dang it. Some of the other girls know some agencies that will do some tests for free, I will see if I can locate them to help you.

Most breast cancers (and who knows what the lymph node is) are 8 to 12 years old when large enough to be found by any means. There are a few exceptions. But if you have no choice but to wait until November, it might be alright.

A lymph node under your arm without any evidence IN your breasts could be from a number of things. An ingrown hair, an infection somewhere else in your body. In and of itself, it needs to be checked, for sure, but does not mean breast cancer on its own.

Still, we are pro-active on this board and would have this thing out and under a microscope, in a perfect world.

Beware of treatment that might keep you off your husband's insurance, "pre-exisiting conditions". I don't know and you can surely ask, if this is an issue. If it isn't, and the insurance will sign you up no matter what, then consider talking to a clinic that will let you make payments with no interest, and also give you a price break. This only needs to be an out-patient procedure, not a hospital event. This helps the cost.

It is a dillemma, what to do? I would check the insurance about pre-existing condition provisions, and then try to get to a free clinic, or one that you pay on a sliding scale, or at least, one that will understand you are a payer yourself. They have a whole list of prices, depending on who they are billing.

I hate to have you wait, on very rare occasions, the cancer is pin-sized and the lymph node could represent lymph node involvement, this is not common, but would be something you should not wait on.

Other gals will be along and hopefully, with other, better, ideas.

Gentle hugs, Shirlann
WorriedMary…
Joined: Aug 2007
Posts: 43
Aug 10, 2007 04:36 pm WorriedMary wrote: Hi Shirlann,
Thank you so very much for your warm reply. I have taken your advice and I'll see what I can come up with. I don't think I can wait until November. I'm literally going nuts. I found a health insurance provider where I live and I am going to see if they can sign me up until my husband's insurance kicks in. I don't know if they do that but it is worth a try. Since my husband is the only one working at the moment, money is extremely low right now. If it was only myself and my husband it wouldn't be a problem, but we have four children in our home. In any event, I will try as hard or as much as I can to get some insurance.

I try to keep myself thinking positive but sometimes thoughts cross my mind. I keep myself informed by reading many articles about lymph nodes and the more I read about them, the more some of them sound like me.

As soon as I have any information, I'll let you know. Thanks again for your response. It is truly appreciated.

Mary
LizM
Joined: Sep 2005
Posts: 1695
Aug 10, 2007 04:53 pm LizM wrote: Mary, with your family history and prior biopsies you are at an increased risk of getting breast cancer. If it were me I would definately get a biopsy as soon as possible. My sister was diagnosed with breast cancer just a year and a half before me. I had two biopsies on calcificatons the previous year before my diagnosis which both came back benign but did show atypical cells. If your prior biopsies showed any atypical cells that puts you at an even higher risk of developing breast cancer. I don't want to scare you but I had a thickening in my breast that 2 breast surgeons and 2 gyn drs all said was nothing. That nothing turned out to be breast cancer. If I had followed my gut a year earlier my breast cancer may have been diagnosed at an earlier stage. The nodule in your lymph node may be nothing but the only way to be sure is to have it biopsied.
kwriter
Joined: Aug 2007
Posts: 6
Aug 11, 2007 04:31 am kwriter wrote: Hi Mary, I am going through the waiting to find out stage right now. I have no insurance and I found out that nearly, if not all county Health Departments have a program for uninsured women to get breast exams. They will pay for your mammogram, ultrasounds, etc. It might be worth checking out.
NKinPA
Joined: Feb 2007
Posts: 12
Aug 11, 2007 05:55 am NKinPA wrote: Hi Mary - you just wrote my story that started exactly one year ago. They were watching calcifcations, I found a lymph node that worried me, gyn dr couldn't feel it and then thought it might be from a tick bite, surgeon said let's give it a month and see what happens. I was also going nuts with worry. My daughter, who is an onco nurse, said we're not waiting and insisted on removing the node. It was positive and here I am a year later after surgery, chemo and radiation. Early detection is most important and if possible I would not wait. Most hospitals will take payments and better to be making payments for the rest of your life. My other daughter, who is a social worker, says to contact your county health department. PA has a breast and cervical cancer screening act that provides free screening for women with no insurance. There has to be options and I totally understand your mental state at this time of not knowing. Do you have a church that could help you out? Hang in there. Nancy
FitChik
Morrisville, NC
Joined: Sep 2005
Posts: 4400
Aug 11, 2007 07:10 am FitChik wrote: Well I was about to reply and aadvise you to get to your county's health department or the county hospital's clinic, but I see that some very wise women preceeded me here. I used to be a social worker in a county hospital and we had plenty of patients who 'fell into the crack' between eligibility for Medicaid and ability to pay for private insurance. These patients received services anyway. You can work out a payment plan and stretch it out for forever if necessary. So I would encourage you, as others have, to go ahead and get yourself in for the care thaat you need and deserve...asap. It could be nothing, but you need to know. And the deep vein thrombosis is serious as you could throw a clot if it's not attended to immediately.

Good luck...and let us know how it goes.

Marin
NKinPA
Joined: Feb 2007
Posts: 12
Aug 13, 2007 12:57 pm NKinPA wrote: Mary - I checked it out and PA dept of health has info on their website for free screening and treatment. There is a number to call to find screening in your area. If you need more info I can get it for you but I'm not sure how much I can post on this site. Please get checked and good luck. Let us know how you make out. Nancy
WorriedMary…
Joined: Aug 2007
Posts: 43
Aug 21, 2007 06:25 pm WorriedMary wrote: Hi Liz,
Thanks for taking the time to write back. I am so sorry to hear about you and your sister. The doctors have never told me that I have atypical cells in my breast so I guess that is a good sign. However, I feel very hesitant when doctors tell me "eveything is okay" when I feel a lump under my armpit. It is a constant reminder when I shower and it only makes me more frustrated. I feel as thou sometimes I may be going out of my mind and perhaps IT IS in my mind. But then, I feel it again and again. It does reassures me that there is a lump and its only getting bigger... now, could that be also just in my mind? HUM!!!

Thanks again for your thoughts.

Mary
WorriedMary…
Joined: Aug 2007
Posts: 43
Aug 21, 2007 06:37 pm WorriedMary wrote: Hi Nancy,
I'm so sorry I have not responded sooner to you and the rest of the posters. You know, it is so soothing to hear from people whom have gone or are going through the same problems/challenges that "life" throws at us.

I have contacted PA's Dept. of Health. I told them my situation and the gentleman on the line transfered me to a clinic not to far from where I live. However, I called the clinic and they told me that they do not provide free mamo's. I explained to the receptionist over the phone my situation and then she said that I need to come over on Monday and they will give me some paperwork to be filled out.. like 4 pages of them... and then they may find a program for me. More than likely, according to her, I fall into a category that may allow me to do something about getting a mamo and sono. The first though she said that I needed to be seen by a breast specialist opposed to just have a mamo done. So, here I am waiting for Monday to get here. On another note, I also applied on-line for Medicaid adn today I received an appointment to be seen next week. If that doesn't work out then I will have to apply for some type of temporary insurance which I took a look at today. The prices are not that cheap but if it means paying that amount until my husband's insurace kicks in, then I will have to do it.

I will keep all of you posted as soon as I have more news. In the meantime, I will check in as soon as I can to read your responses and to possibly offer some support to the community.

God Bless,

Mary
WorriedMary…
Joined: Aug 2007
Posts: 43
Aug 21, 2007 06:49 pm WorriedMary wrote: Hi Marin,
Thank you as well for answering and your advice. Just on Saturday I went to the ER. For the past three days before then, I noticed that the area around my right knee was swelling, especially on top and to the right of my knee. I couldn't take it anymore and decided to go to the ER. I was afraid that because of my thrombophlebitis my knee was getting swollen. They had a sonogram done of my right veins on my leg and they found NO clogs. Now, this left me wondering about my knee since the doctor didn't bother much about my knee. She just asked me if it was hurting a lot in the inside of my knee and if I had fallen. None of it was true so she felt that the swelling of my knee came from the pressure I have in my calf. I was told to stay away from being standing too much and to elevate my feet as much as I can. HA! I was given pain medication and sent home. I am still feeling pressure in my knee and it clicks at times. Oh, I was also told to follow up with an orthopedics and of course a vascular doctor. Okay, how am I supposed to do that! Waiting time again.

I can only imagine the bill that will come to me in a couple of days. I told them that I did not have any insurance and will be billed. So, I guess when I go to the Medicaid appointment I can take that bill to them to show that I do need some help.


Well, thanks again for your insight. I will keep all of you posted.

God Bless,

Mary
melanie48
Joined: Aug 2006
Posts: 292
Aug 21, 2007 07:02 pm melanie48 wrote: just had lymph node removed from armpit...Axilla thank god B9..it was huge and my thoughts were the worst after having a left side mastectomy 2 years ago


melanie
WorriedMary…
Joined: Aug 2007
Posts: 43
Aug 22, 2007 10:14 am WorriedMary wrote: Hi Melaine,
I am thrilled to hear that your lymph node came back benign.

Mary
NKinPA
Joined: Feb 2007
Posts: 12
Aug 26, 2007 05:11 pm NKinPA wrote: Mary - I'm glad things are starting to work for you although I know they never seem to move fast enough. Waiting is the worst. Good luck tomorrow and remember you have to be a little pushy. Be your own best advocate. Sending good thoughts your way! Nancy
dalycity
Daly City, CA
Joined: Mar 2007
Posts: 154
Aug 26, 2007 05:59 pm dalycity wrote: I want to add that when I found my lump under my arm, one of my doctors thought it was a tumor in the axilla lymph node, but it turned out to be breast cancer in the 'high end' of the breast tissue since breast tissue goes all the way to the underarm. My breast surgeon said the tumor is in an unusual place, but technically it is still breast cancer; why, of course.

Always sending good thoughts your way, dear ladies!
WorriedMary…
Joined: Aug 2007
Posts: 43
Aug 28, 2007 10:41 am WorriedMary wrote: Hi Nancy and everyone,
Thanks Nancy for your reply. I thank you for giving me good information and something to think about when I go back to the doctor. I am also sorry to hear that this happened to you. When I saw last my doctor about about a year ago he stated that the lymph node was very deep into my underarm adn that is why it was not that palpable. With that being said, I will keep you in mind.

On another note, I went yesterday to the clinic. I was given some type of program where I was able to get started with seeing a doctor. I filled out tons of paperwork, then I was seen by a doctor. I was given a breast, cervical and colon exam. I was then referred to have a mamogram done. I have a scheduled appointment for September 7th. I was given that date to have time to get my films sent to the place where I am going to have done the mamo. I am happy that everything is falling into place for now. I've been trying to call the clinic where I had my mamogram done and they keep switching me to the "record" department. And, of course, no one picks up. I will keep trying until I get someone. I would hate to travel all the way to NYC to get the films.

Well, this is it for now. I will certainly keep all of you posted.

God Bless,

Mary
WorriedMary…
Joined: Aug 2007
Posts: 43
Aug 31, 2007 05:41 pm WorriedMary wrote: Hi all,
I wanted to keep you informed of what has been happening. I went to the clinic where I am supposed to have the mammogram done and filled out a form so the other clinic that I had in NYC can send the films by mail. Hopefully it will get to PA on time for my appointment.

On another note, I went to see my primary doctor today because for the past 3 weeks I noticed a large swollen/enlarged mass (almost the size of my palm) on my right side around my rib cage. I paid no mind thinking that maybe I slept wrong but it has not gone away. There is no pain in the immediate area; however, there is at times discomfort/pain on my back (shoulder blade/lung) and in front/right of my stomach. I've always had the pain in my stomach since I suffer from ulcers so didn't give it another thought. In any event, I went today and the doctor immediately told me I needed to get a CT scan of chest and right sided lateral trunk with contrast. This is to rule out mass chest wall malignancy (cancer). As well as having several blood work done: ANA, CMP,CBC, RF, FBS, TSH, LFT.

Since my ANA came back positive (1:80)(320) last year he wants to run it again. I was seeing a doctor for Lupus but because the other blood work did not come back positive I was told that perhaps it may be rheumatoid arthritis.

Well, until I have the CT done and blood work I will not know what on earth is wrong. He also mentioned it could be fatty tissue but to tell you the truth he did not convince me of that. I still have no insurance and the program I was given for the mammogram does not cover anything else.

Oh, I failed to mention that the program I was given is called Healthy Woman 50+ program. For those living in PA you can visit the site in the event that someone else is in the same position I am in (NO insurance!)

http://www.health.state.pa.us/php/HW/default.htm

**Excuse me if I was not supposed to place a link here but I thought it may be beneficial for others**

Okay then, that is my update. May you all have a safe and blessed weekend filled with joy!

Mary
WorriedMary…
Joined: Aug 2007
Posts: 43
Sep 7, 2007 07:37 am WorriedMary wrote:

Hi Eveyone,

 

As you all have noticed, changes have been made at this site. When I came back today, after trying so many times yesterday, I noticed my screen name changed and to top it all of most of my posts here have been deleted. I posted an update which I am not going to start writing it now since everything is going so crazy here. In any event, I wanted to let you know that the appointment I had for today (diagnostic mammogram) has been reschedule because my films in NY were not sent. According to the receptionist, the request was placed at another box and they did not see it. Now I have to wait until Thursday of next week. :( I hope some of you did read my last post because I am going through hell right now because of other problems. Ladies, I am going nuts!

 

Well, I hope everything is going well for all of you.

 

Mary

NKinPA
Joined: Feb 2007
Posts: 12
Sep 8, 2007 11:33 am NKinPA wrote:

Mary - I couldn't wait until today to find out how you made out.  Now another wait!  I know the waiting game is the worst part.  Just keep positive (I know that's not easy) and Thursday will soon be here.  If they still don't have the films be pushy and ask for the mammogram anyway.  It's what is there today that counts, not what was on the last one, but I know they like to compare.  Hope your other health problems are resolving.  The lump on your side could be a fatty mass.  My husband had that and had it removed. Hang in there and keep busy.  Did you get the CT scan and blood work or are you waiting for insurance?  Keep us posted.  We care.  Nancy 

WorriedMary…
Joined: Aug 2007
Posts: 43
Sep 9, 2007 08:55 am, edited Sep 9, 2007 09:00 AM by WorriedMary WorriedMary wrote:

Hi Nancy,

Thanks for writing back and thinking of me. As you well know, yes, the waiting period is the hardest part of all. I rather know what is going on with my body than to be guessing what is wrong. I tried getting the mamo done but the nurse said that the radialogist will not perform any tests without the old films. I even explained to her that I have the doctor's notes stating the measurement of the lymph node and where exactly was located. But she said it couldn't be done. The radiologist would rather have the films.

Nope, I still have no insurance in order to do the required tests. But you know what? I leave it in God's hands. I am drained right now and my thoughts are scrambled all over the place. Trying to get self diagnosed? No, BUT, I do try to do searches on the internet and what I am reading about my "symptoms" are not on the bright side. You see, my father passed away several years ago of lung cancer and I am a smoker as well. I started late in my 20's (what a time to start smoking!)But again, things are may not be as bad as they seem. In any event, I just can't wait until I am able to find out what is wrong, if anything. I remember last year I saw every doctor on earth. Well, it seemed that way. But they could never find anything wrong with my symptoms I had at that time. It was a year from hell! I just hope this year is not the same.

 

I am so happy I'm able to come to this site which I hope no more changes will be made ONLY for the better. It seems many people are complaining about the changes but I know the moderators are trying their best. I feel the site was better when I got here and many feel the same. But with life, comes changes, and we have to adjust to them. Right?

 

Take care and I look forward to hearing from you again as well as others in the forum.Sealed

 

Mary

Shirlann
Joined: Feb 2002
Posts: 6686
Sep 10, 2007 05:48 pm Shirlann wrote:

Oh sweet Mary, I have read through the posts and what a dang mess!  It seems that it is time something went right for you.

Sounds a lot like Lupus, or another auto-immune thing, just because you seem to be popping out all over, and as you know, Lupus just loves stress, and that is for sure a factor for you.

Please come and post often, we have had a very bad few days here, changes to the site, but things are getting back to normal at last.

You are in my prayers and in my heart.

Gentle hugs, Shirlann

 

 

WorriedMary…
Joined: Aug 2007
Posts: 43
Sep 10, 2007 08:30 pm WorriedMary wrote:

Hi Shirlann,

Thanks soooo much for writing back! Yes, at times I do think it has to do with Lupus. There are so many things going on. Lupus tends to hide and not show up until it is fully blown. My husband's aunt has Lupus and it took her a long while for her to get diagnosed. Well, lets see what other "issues" come up. I come here every single day, a couple of times to see if anyone writes back. Sometimes this place IS my sanity!Wink

I was wondering when I placed my update, if anyone else with an enlarged axillary lymph node had a swollen right rib cage. And, if so, what was their diagnosis.

Thanks again and I will check back in later on.

Mary

WorriedMary…
Joined: Aug 2007
Posts: 43
Sep 13, 2007 09:47 pm, edited Sep 13, 2007 10:49 PM by WorriedMary WorriedMary wrote:

Hi everyone,

Here is the next update. Yesterday, I went to the ER because I couldn't take the pain on my chest and back. It felt as though someone was sitting on me and my back was being stabbed and burned. I told the doctor what my primary doctor had recommended and he did as so. The CT came back negative. My lungs are clear, no cancer. So, good news!!!! However, I have to wait for the blood work results until tomorrow when I see my primary doctor. I asked the ER doctor about the swelling on my rib cage and he said that he doesn't know what that is. It is not coming from the inside of my body. He said that perhaps the blood work will give me some answers.

The day finally came today and had the diagnostic mammogram and ultrasound. I was called back a second time to have my left breast done again since they are very dense and the radiologist wanted to make sure of something. That something, I don't know. Then waited for the ultrasound. It doesn't fail that whenever I have an ultrasound, a technician  looks like I can be her motherCry. I am not against "young" techs but when you are in so much doubt you would rather have someone that is very experienced. Anyhow, to make matters worse, she asks me if I don't mind if a student does the images but she will be right there besides herSurprised.  I complied and allowed the student to do the images. I was very paranoid, to say the least, wondering if she knew what she was doing. Perhaps she missed something, did not take measurements correctly, did not probe deep enough? I don't know! but the technician did tell the student more or less what to look for and she also went over the images. In any event, when the lump was found... I never took my eyes off the monitor... I knew it was it.

I asked her for the measurements and told me that the lymph node measured 1.7cm. The last time it measured 2.1. I asked her if she saw anything else and she said no. The radiologist will look at the images and then will proceed  to send them to the clinic where I am being seen. I asked her if the radiologist or a doctor will come in and give me the results. She said no, they are under staffed today and therefore they will not come out and speak with the patients. Okay, so I am so used to having the results given to me on the same day and by now I am almost pulling my very short hair!! I guess the results will be in by Monday or Tuesday.

I have a question for you. Do you get apprehensive when a "young" tech does your ultrasound images?Undecided I understand they have to start somewhere in their career; however, when there is something of a significance I think you rather have someone more experienced. I'm I correct or am I being paranoid.Undecided

On another note, do you get "puffiness" on your face if you have breast cancer/Lupus? On my left side of my face (top of cheekbone area) below my eye, I have a rounded puffy mass. I've had this for the past month or so. Now, about 2 days ago I noticed on my right side (around lacrimal area) coming down and under my eyes a puffy mass. Today, I looked as if someone had knocked me on my eye!Embarassed

I'm sorry, but I am trying to put my puzzled body/symptoms together!!Undecided

Until tomorrow with more updates.

Mary

Have a blessed night!!Laughing

WorriedMary…
Joined: Aug 2007
Posts: 43
Sep 14, 2007 06:55 pm WorriedMary wrote:

Hi guys,

Here is another update (9/14). I called the clinic for my breast and informed them that I finally had my mamo and ultrasound done. I was told in 1-2 WEEKS I should hear from them. I almost passed out! She said that they need to read the films and so forth. Okay, so now another waiting period!

Secondly, I went to my primary doctor to get the results. Overall, everything, according to him, looks good. I am not too sure of this doctor. He just flipped the pages of the report as if he was looking at a blank page. He skimmed through it like nothing. Again, asked many questions and none had a thorough answer. When I asked him about the puffiness in my face, he said everything seems to be  pulling towards Lupus. However, without the ANA blood work nothing can be conclusive. The hospital did not do the ANA blood work and that is the main one I wanted results from. In any event, I have highlighted the ones that came back H (high)/L (low)/A (abnormal).

Mind you he flipped through the pages and told me I was fine and nothing wrong with the bloodwork.

GRANULOCYTES PERCENT- 44 L                 (50-75)   Granulocytopenia -  Some people use this term in place of Neutropenia.

White blood cells fight infection.  The white blood count (WBC) is part of a complete blood count (CBC) that is used to check your blood counts.  There are several types of white blood cells.

LYMPHOCYTES PERCENT- 49 H     (25-45)

Lymphocytes are formed in lymphatic tissue throughout the body. Lymphatic tissue are a network of fibers and cells that help protect the body against disease. Examples of places in the body where lymphocytes are made that are made of lymphatic tissue include the spleen, thymus, tonsils, and lymph nodes.

DIRECT BILIRUBIN - <0.1 A  (0.1-0.5)

Direct (or conjugated) bilirubin. Direct bilirubin dissolves in water (it is soluble) and is made by the liver from indirect bilirubin. The direct bilirubin fraction is that portion of bilirubin that has undergone metabolism by the liver. If the direct bilirubin is low, while the total bilirubin is high, this reflects liver cell damage or bile duct damage within the liver itself.

GLUCOSE- 146 H         ( 74-118)

The blood glucose test is ordered to measure the amount of glucose in the blood right at the time of sample collection. It is used to detect both hyperglycemia and hypoglycemia and to help diagnose diabetes.

RHEUMATOID FACTOR-  <20.0 A         (0.0-19.0)

This test is most often used to diagnose rheumatoid arthritis. About 80% of patients with rheumatoid arthritis have positive RF tests. It may also be used to rule out or diagnose other inflammation-related conditions.It may be ordered along with other autoimmune-related tests, such as an ANA (antinuclear antibody) along with a CBC (Complete Blood Count) to evaluate the body's blood cells.

CT RESULTS

Heart is not enlarged. There is minimal atelactasis- fibrotic scarring present at both lung bases posteriorly and inferiorly..

Conclusion--minimal fibrotic changes are present in both lung bases posteriorly.

*Atelectasis is a collapse of lung tissue affecting part or all of one lung. This condition prevents normal oxygen absorption to healthy tissues.

I would love to hear your thoughts.

Mary

leaf
Joined: Dec 2005
Posts: 3193
Sep 15, 2007 08:22 am, edited Sep 15, 2007 08:35 AM by leaf leaf wrote:

I have not gone through this whole thread, but it sounds like all these tests are really stressful. They would be for anyone!! I am not a doctor, and even if I was, we cannot diagnose you. Only your doc can really put everything in context. Its good not to just chase abnormal labs around - you have to look at the big picture-including your symptoms.

I have not heard of a person who had facial puffiness as their symptom of breast cancer.

I have seen people with lupus who have facial puffiness because they sometimes treat lupus with steroids which can make you puffy. I don't know if lupus can make you puffy if you aren't being treated with steroids. There are many other reasons why you could be puffy.

Of course, I get nervous when I have someone who is inexperienced take care of me. But it also depends on what they are doing and what is going on in your body. You don't want an inexperienced person doing brain surgery on you, because they only do brain surgery on people who have a serious condition. But I don't mind someone inexperienced taking my medication history or taking my blood pressure or doing something that will probably turn out normal.

Most of your abnormal labs look like they are only barely out of the normal range. These lab value ranges are just that - ranges. You can have pretty 'abnormal' numbers that are nothing to be worried about. I had *very* abnormal numbers the morning after I had surgery, and they just discharged me. They weren't anything to worry about. Different labs have different values of abnormal. I don't know if you recently ate when you had your lab test - if you were fasting when you had this lab done, then you may want to get further testing to rule out diabetes.
I have some lung fibrosis, and I've never had pneumonia (besides walking pneumonia). It says it is minimal, so I wouldn't worry about this unless your doc is worried.
Was you total bilirubin high? It sounds like it wasn't, so I wouldn't worry about this unless your doc is worried.

I know its awfully easy to worry and sometimes it simply isn't possible to not be worried. I don't see any of these labs as being horribly worrisome - it will be fine to wait for what your doctor says for the final word.

My mother had 'laboratory lupus' - she tested positive by laboratory results, but she never had symptoms of lupus. She died about 35 years later from unrelated causes after having a positive ANA, and never had lupus symptoms.

If you're going through hell, keep going-Winston Churchill
WorriedMary…
Joined: Aug 2007
Posts: 43
Sep 19, 2007 11:12 pm WorriedMary wrote:

Hi "leaf"

I'm so sorry to hear about your mother. I want to thank you for your support and insight. Yes, I'll have to wait for the other test results to see what it shows up. There is so much going on right now that I can't even think straight anymore.

Once again, thank you for everything!

Mary

WorriedMary…
Joined: Aug 2007
Posts: 43
Sep 19, 2007 11:31 pm, edited Sep 19, 2007 11:43 PM by WorriedMary WorriedMary wrote:

Here is another update since my last mamo and ultrasound.
ULTRASOUND STUDY OF THE BILATERAL BREASTS.

"The patient had ultrasound with attention to the right axillary area because of clinical history. There is an oval 17x6.3x6 mm circumscribed structure which may have some mild distal acoustic enhancement. It has a relatively lucent center and some slight vascular signal in its center. It could represent a Lymph node which is replaced with some fat in the center. I am uncertain as to its exact etiology. I suggest correlation for any palpable abnormalities in this area. A follow up ultrasound with attention to this in approximately 8 weeks."

"The left breast was evaluated by ultrasound because of mammographic density. All four quadrants of the retroareolar area on the left were surveyed. There is no abnormal solid or cyst mass identified on the left."

IMPRESSION

"Small circumscribed 17mm lession in the right axilla, possibly a small fatty replaced Lymph node. This should represent a benign structure. No abnormal focal mass indentified on survey of the left breast as described above."

INDICATION

Follow up mammogran/RT axilla palpable, survey fo the left breast.

DIAGNOSTIC BILATERAL MOMMORGRAPHY

HISTORY: Right breast axillary node

"The current film mammography was done with radiopaque marker placed at the righ axillary area and axillary tail view was performed. A compression spot film over the left breast and craniocaudal projection was also done. The breasts are heterogenously dense. The left breast appears to be generally more dense than on the previous study. Compresive spot film was done and shows increase in parenchymal glandular density, but no focal abnormality is appreciated.
The apperances of the distribution of parenchymal glandular tissue is otherwise similar to the previous examination. No focal isometric density is noted in the right axillary area in the region of the radiopaque marker. There may be a tiny Lymph node, less than 10mm very deep within the right axilla, not entirely included on the film. There is a small benign calcification in the medial aspect of the left breast and inferior right breast. "

"The patient will have ultrasound directed toward the axillary area of the right breast and survey of the left breast because of the apparent increased density.

The ultrasound showed a small focal area in the right axilla which could represent a small Lymph node with a relatively hypoechoic lucent center, perhaps due to some fatty replacement or atrophy. No sonographic abnormality was seen on the left."

END OF REPORT

------------------------------------------------------------------------------
Could you possibly explain what all of this means (highlighted)? If my first ultrasound founded a SOLID mass, as mentioned in my first post, why do I need to wait another 8 WEEKS! Shouldn't I be able to get a biopsy at this point? How can he/radiologist detect benign findings if no biopsy was done? I don't understand the fatty tissue part and then becomes a Lymph node. Could you explain?

I appreciate anything you have to suggest to me. I am more lost now than before! I contacted the clinic and was told that I should just wait for the 8 wks. If anything, contact the radiologist. I went in person, after I picked up the results at the clinic, and was told the radiologist was not in. And, more than likely, he will not be able to do or say anything to me.

Thanks

Shirlann
Joined: Feb 2002
Posts: 6686
Sep 22, 2007 02:10 pm Shirlann wrote:

Hi dear, you have had a lot to deal with.  I am not a doc so I can't know what they are finding, but it looks like at least for now, they do see something.  We are very pro-active on this board, and the only way to know for POSITIVE what is going on, is when the suspect tissue is under a microscope.

So keep on pestering the daylights out of all these providers.  Just keep insisting on a biopsy of suspicious areas.  If you drive them completely crazy, they hopefully will do the biopsies.

Anything short of that is guesswork, sometimes well-informed guesswork but guesswork, none the less.

The Lupus question had muddied the waters.  But I believe you can have Lupus and breast cancer.  One does not preclude the other.

Keep after them, just don't give up.

Gentle hugs, Shirlann

NKinPA
Joined: Feb 2007
Posts: 12
Sep 26, 2007 09:09 pm NKinPA wrote:

Dear Mary, Wow, I have no real idea what all that means.  I agree with Shirlann that you need to keep pestering them for a biopsy.  I was lucky that I had a pushy nurse daughter who kept insisting things move along faster.  At least you have their attention and they want to see you again in 8 weeks.  I know that seems like an eternity but in the scheme of things I guess it really isn't.  If it was something really obvious they would have picked it up.  My sister-in-law has lupus so I know it can be very difficult to diagnose.  Hang in there and keep us informed.  Nancy

Sillymommax…
Chancellor, SD
Joined: Jul 2007
Posts: 39
Sep 27, 2007 05:42 am, edited Sep 27, 2007 05:42 AM by Sillymommax4 Sillymommax4 wrote:

Wow you do have a lot going on. I can't even begine to make it all come out in my head. All I can say is keep pushing to get all of this come to a head and get a final diagnosis. after that you can come up with a plan for treating what is going on.

Silly
WorriedMary…
Joined: Aug 2007
Posts: 43
Oct 6, 2007 09:47 pm WorriedMary wrote:

Hi all,

Thanks so much for your feedback. I'm still hanging in! I've had so much going on with me that it is totally insane.  I am waiting for the next appt. date (11/14) to see what they have to say. I am still not feeling well and I don't know what is going on. But, I try not to think about so many things and keep busy around the house and with the kids. Hopefully, I will start work soon and it may just help me to take my mind off of things. I don't know how I am going to do it since my right knee is still very swollen regarless of what I do.

Well, I don't want to bore you to tears. I just wanted to drop by and say hello. I hope all of you are having a relaxing weekend.

Take care and I talk to you soon.

Mary

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