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« Forum: Not Diagnosed but Worried: Meet others worried about developing breast cancer for the first time.
Joined: May 2008
Posts: 22
  • Posted on: May 17, 2008 04:57 pm
Teaches wrote:

Hi all,

I've been dealing with a suspicious area on a mammogram since Mar. 27.  I've had additional views and an ultrasound, been to a breast surgeon, left that doctor, and started again with another.  I'm scheduled for an MRI this week... two actually, 5 hours apart.  What can I expect? 

The lack of information from the first doctor was the major reason that I moved on.  This doctor seems very direct, but I need that.  She seems to think that I have a malignancy.  The original ultrasound report said 2cm possible fibroadenoma. 

I seem to lose at least 50 IQ points immediately upon entering a doctor's office.  Can any one suggest how to handle this better?

Thank you!

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AnneW
Joined: Oct 2002
Posts: 2048
May 17, 2008 05:46 pm AnneW wrote:

Write down all your questions as you think of them while you're home. Then take them with you to the office visit. Or, take someone with you to the appointment, who knows your concerns, and can also act as a second set of ears. Lastly, take a tape recorder so you can replay instructions/info when you are home and can process it better.

The notes on a card is my favorite, especially when the doc is pressed for time. Tell him/her up front that you have a list of questions.

My MRI was no big deal for me. You get an IV placed for the contrast material, then you lie boob-first onto a table with cones to put the boobs in, and your forehead on a pillow like a massage table. The table underneath you slides you feet first into the machine. You'll get earplugs, but there's a lot of clanging noise. The table moves a bit to get the pictures needed of your breasts.

That's about it. I didn't have a claustraphobia issue, but others may tell you otherwise about their experiences.

Good luck!

Anne

2002 IDC stage 1, grade 1, rads & AI
Dx 9/18/2007, ILC, <1cm, Stage I, Grade 1, 0/1 nodes, ER+/PR+, HER2-
barr28
Joined: May 2008
Posts: 2
May 17, 2008 05:54 pm, edited May 17, 2008 05:54 PM by barr28 barr28 wrote:
This Post was deleted by barr28.
barr28
Joined: May 2008
Posts: 2
May 17, 2008 05:55 pm barr28 wrote:

My MRI was no be deal.. I too was afraid of what to expect, I ask a bunch of questions to the nurse who put the IV in.  And when I got in the room for the MRI, everything was explained to me step by step what to expect..  Just ask as many question that you want to feel comfortable about what is being done..  Don't be afraid to ask questions...

Good Luck!!!!

wishiwere
Joined: Dec 2007
Posts: 2076
May 17, 2008 06:11 pm wishiwere wrote:

First MRI, just about didnt' go through it, b/c I have 'slight' claustro...as long as they allow me to NOT wear the headphones I did fine.  Took from 10pm and we were out by midnight.

The second was for a MRI Bx of what turned out to be a second lump, this time ILC.  That was NOT fun, but doable and over in about 4 hours. 

wishiwere
Dx 9/21/2007, ILC, 1cm, Stage I, Grade 2, 0/4 nodes, ER+/PR+, HER2-
Shirlann
Joined: Feb 2002
Posts: 6509
May 17, 2008 06:34 pm Shirlann wrote:

Honey, my bunch took 3 months to diagnose me.  And that was after 2 years of telling me it was nothing.  I was not pleased!  It is so hard.

But remember, they are very good guessers, BUT no one knows what is what until that tissue is under a microscope with a good pathologist, period.  Everything else is a guess.

So try not to worry too much until you know.

Gentle hugs, Shirlann

Kim32
Joined: Jan 2008
Posts: 47
May 17, 2008 08:15 pm, edited May 17, 2008 08:18 PM by Kim32 Kim32 wrote:

Why 2 MRI's?  They should be able to do both breasts at the same time.  Unless the other MRI is for something else.  I personally would not allow anyone to do a double dose of contrast dye in one day!  Maybe one is with contrast and one is without.  I don't know.  I just wanted to give you a heads up.  I would ask your doctor for an explanation.

stephanieb
Joined: Apr 2008
Posts: 23
May 17, 2008 11:43 pm stephanieb wrote: I actually fell asleep several times during my MRI.  It took about 45 minutes total, but they only did one MRI.  First without contrast, then added the dye while I was still in the machine.  Make sure to ask them for blankets if you are a cold natured person (like me).  It was really not too bad and my tech let me know how many minutes were left with each set of pictures.  Good Luck, Stephanie
Courage doesn't always roar, Sometimes courage is the little voice that whispers I'll try again tomorrow.
Teaches
Joined: May 2008
Posts: 22
May 18, 2008 01:28 am Teaches wrote:

THANK YOU All!  I appreciate your comments.  They say 2 MRI with dye, one breast at a time, because the dye has to leave your system before they put dye in the second breast.

I don't THINK that I am clastrophobic, but have never really been in a situation to know for sure.

I feel a little bit better knowing what to expect.  I agree that only a biopsy will tell for certain. 

Thanks again!

Kim32
Joined: Jan 2008
Posts: 47
May 18, 2008 01:02 pm, edited May 20, 2008 03:47 PM by Kim32 Kim32 wrote:

If I were you I would ask to go to a different facility that could do both of your breasts at the same time.  Not only will it save you time and money, it will save you from being double dosed on the contrast dye.  I have read that it takes anywhere from 24 to 48 hours for it to leave your body.  Please do some research on the contrast dye.  It is called gadolinium and there is a black box warning on it that it could cause NSF (Nephrogenic Systemic Fibrosis) It is supposed to only apply to people with kidney problems, but I would still be careful about too much of it in such a short time.   

nash
Joined: May 2007
Posts: 1324
May 18, 2008 01:41 pm nash wrote:

My breast MRIs are always done bilaterally, simultaneously, with contrast. I agree with Kim that you should find a facility that can accomodate that. I'd just assumed all breast MRI were done in that manner--never even heard of a place doing one breast at a time with a wait in between.

Good luck, and keep us posted. 

Dx June 2007, age 38, Stage IIa 2.7 cm pleomorphic ILC, ER+/PR+ HER2-, CAFx6, rads, tamox
awb
Joined: Aug 2005
Posts: 1861
May 18, 2008 01:53 pm awb wrote:

I've also never heard of doing the breast MRI for one breast at time. I've had 3 of them; always done bilateral.  Before my most recent one (March) I had to have a blood test to check kidney function .  I questioned that as I did not have to have blood drawn before the other 2.  They said it is a new policy as the contrast dye can affect the kidneys. I had just had blood drawn at the oncologist's in Dec, but they said it has to be within 30 days of the MRI, so I had to go again.

Anne 


Dx 9/5/2003, LCIS, Stage 0, 0/0 nodes
CherSpirit
Joined: May 2008
Posts: 2
May 18, 2008 10:25 pm, edited May 18, 2008 10:28 PM by CherSpirit CherSpirit wrote:

I start to get nervous when the elevator door takes too long to open. This is the only "symptom" of claustrophobia I have. I was able to control it when I was trapped in a stalled evevator with my two babies.

When I had my MRI, I told the doctor about this and he gave me several sedatives just in case. I wasn't going to take them until they started closing me into the machine. The techs were very patient and waited the 1/2 hour it took for the meds to work before putting me back.

If you are nervous, it is better to be safe and have some meds with you so you can get the test over with. You can always throw them out if you don't need them.

I also agree with the others who advise against two doses of dye in the same day. I developed a serious allergic reaction because of a test where more than one dose was used. I ended up in ICU for several days. Now I can not have any dyes at all. This limits the non invasive testing that can be done for me so please be careful.

Teaches
Joined: May 2008
Posts: 22
May 18, 2008 10:54 pm, edited May 18, 2008 10:55 PM by Teaches Teaches wrote:

The MRI facility is one of the best in this large city.  I never gave a thought to the two dyes in a day issue.  I'm just so glad to be doing something after nearly two months of worrying!

I'm a teacher who, after MUCH thought, decided to retire.  I love teaching and know I will miss it, but my aging parents and my already-retired husband need more of my time and attention.  After much agonizing about it I decided to retire and a few weeks later became involved in this breast issue/scare.  Now my life is on hold.  I really need to know what I'm dealing with so I can decide how or if to proceed with retirement, as I haven't put anything in writing yet.  There are decisions to make about health insurance and pension surivor benefits that I must make now...OR do I stay employed as I have nearly two years worth of sick leave???

At this point my thought is to just do the MRI and get things moving.  My breast surgeon is recommending it and also recommending this facility.  She has an outstanding reputation.  I'm inclined to trust her judgment.  I feel as if I'm caught in a medical maze!

Joia
Joined: May 2008
Posts: 71
May 18, 2008 11:08 pm Joia wrote:

I had a pre-lumpectomy MRI and an MRI-guided core biopsy within the space of a couple weeks.

The noise of the machine is very loud. At the beginning of the procedure, I was lying face down with my arms by my side when the technician put the headphones on me. She didn't quite cover one ear and the noise of the machine was too much. For the second one, I made sure that the headphones were on properly and it was fine. I also took an anxiety-reducer (Ativan) for the second one.

I don't know if it is the same at every facility, but I was given a "panic button" that I could press at any time. If I did, they would have immediately removed me from the machine. This was of some comfort as I didn't know what to expect either.

For the duration of the test, tt helped me to focus my mind on some happy event rather than listening to the loud clanging noise.  


Dx 4/17/2008, IDC, 2cm, Stage IIa, Grade 3, 0/0 nodes, ER+/PR+, HER2+
jalydiju
Joined: May 2008
Posts: 141
May 19, 2008 06:35 am jalydiju wrote:

Hi Teaches,

The best thing for you to do is that what makes you least anxious. If it's not bugging you about having each done seperately and you want answers soon and you trust your health care team, then thats what you do.

Any thing unknowen is scarey, if you are claustrophobic then you may need a little something to relax. Had a few MRI's and I need a little help to keep me calm, it is a good idea to keep your eyes closed and think about someone special and the joy that they bring to your life while the machine does its thing. Works for me.

Hope its good news for you and am with you in thought as you go through it all.       

Jalydiju

leaf
Joined: Dec 2005
Posts: 2719
May 19, 2008 11:52 am leaf wrote:

When I had an MRI, they put a damp towel over my eyes. That helped me. I didn't get headphones, but did get ear plugs. For me, it was like being right next to a jackhammer.

The tech was very sensitive to how traumatic this could be. She asked me several times if I was OK even though I gave her no reason to be concerned.

If you're going through hell, keep going-Winston Churchill
nash
Joined: May 2007
Posts: 1324
May 19, 2008 12:38 pm nash wrote:

Teaches, I can understand wanting to go forward with the MRIs this week, and like Jalydiju said, if you feel better getting it done sooner than later, just do it. I would ask them, though, why they're doing each breast separately--there must be a valid reason, and I'm curious what it is. 

Good luck this week--you'll be fine. The breast MRI is one of the easiest MRIs to have done, IMO.  

Dx June 2007, age 38, Stage IIa 2.7 cm pleomorphic ILC, ER+/PR+ HER2-, CAFx6, rads, tamox
austin2k3
Joined: Jun 2007
Posts: 48
May 19, 2008 01:14 pm austin2k3 wrote:

Hi Teaches,

So, I felt a little like I was in a milking machine, not unlike a stereotactic biopsy, and my tech had absolutely NO personality and told me nothing except that she was going to start injecting the contrast material. I was HOT but a little fan seemed to be circulating air but my main complaint was that it would have been nice for someone to tell me to get my head comfortable. I had my MRI last Thursday and still have a stiff neck. No results yet and I'm not sure how long it takes. I did have alot of comparison films so I'm not going to rush anybody. Knowing what I now know, I'd ask for a mild sedative or a tech with a brain. Let us know what happens.


Dx 5/8/2007, DCIS, 3cm, Grade 3, 0/1 nodes, ER-/PR-, HER2+
Teaches
Joined: May 2008
Posts: 22
May 20, 2008 01:43 pm, edited May 20, 2008 01:45 PM by Teaches Teaches wrote:

Thank you all for your responses!

I had the first MRI this morning.   The only explanation for having 2 was... this is how we do it... very congenial and reassuring.  I also discovered that I am indeed clastrophobic.  I have gained a new degree of empathy for the poor Chinese earthquake victims.  It took ALL of my willpower to do it and the thought of doing it again is daunting.  Saying a prayer over and over got me through it and I guess I'll do the same this afternoon.  Catholics have a belief in atoning for their sins and I think I did a little of that today. 

Oh, when I left they gave me a CD labeled... "Left Breast".  Now what am I supposed to do with that!!!  I popped it in my computer at home and the only thing I was able to do was to play a game of checkers (REALLY!)  The rest wasn't able to be deciphered.  I wonder if I'll be able to play chess with the "Right Breast" CD.  Have I said yet that I am developing a real dislike for the medical profession.

Trying to not be a baby or a drama queen...but having trouble not being a sarcastic b**ch.

Teaches

nash
Joined: May 2007
Posts: 1324
May 20, 2008 02:45 pm, edited May 20, 2008 02:46 PM by nash nash wrote:

Glad you check in, Teaches!

Well, "this is how we do it" is sort of a lame reason for putting you through two separate MRIs when every other facility on the planet appears to do them simultaneously. Here I thought they had some interesting reason that I hadn't heard of. Tell them that the girls on the board, in our collective experience, think they're all wrong. I'm sure they'll love that.

I'm especially sorry that you have to go through another MRI today having discovered that you're claustrophic. That blows. Like you said, just pray like mad and think of all the poor souls you're freeing out of purgatory by doing this. Laughing

And, hey--I didn't get any nifty games with my breast CD. Maybe THAT"S the benefit of having them done separately.  Sealed

Dx June 2007, age 38, Stage IIa 2.7 cm pleomorphic ILC, ER+/PR+ HER2-, CAFx6, rads, tamox
Teaches
Joined: May 2008
Posts: 22
May 20, 2008 03:57 pm Teaches wrote:

Hi Nash,

I've done my best for the poor souls... I couldn't make myself go back.  Fortunately I asked them to do the "problem side" this morning.  That will have to be enough.  Now I can wait again for the next step.

nash
Joined: May 2007
Posts: 1324
May 20, 2008 06:06 pm nash wrote:

I don't blame you for not wanting to go back. Let us know when you get the results.

Dx June 2007, age 38, Stage IIa 2.7 cm pleomorphic ILC, ER+/PR+ HER2-, CAFx6, rads, tamox
jalydiju
Joined: May 2008
Posts: 141
May 21, 2008 09:47 pm jalydiju wrote:

Hi Teaches,

What a crock of s**t they have given you for a reason why. I have learnt through having to deal with my sister#2 illness, that you have to keep asking and asking and how important it is to be in the drivers seat in managing your own situation.

I dont blame you for not going back. Were they aware of how distressing it was for you? If they were how heartless not to do all on the spot.

I was lucky had 2 seperate appointments and due to a cancellation was able to have both done together.

Better chess than poker.

Hope results are in soon and is good news. hinkng of you.

Jaly

Teaches
Joined: May 2008
Posts: 22
May 23, 2008 01:52 am Teaches wrote:

Hi Nash and Jaly and all,

I still have no results.  I know that I'm just an ordinary person not a special case, but you'd think I'd have some result in two months!  If past experience holds true, I'll get a call on Friday at 4:45, right before our holiday (Memorial Day) weekend, with very little information... just enough to be alarming.  I guess I should beat them to the punch and call in the AM.

This is getting so tiresome.  I don't know why it has to be so difficult.

drcrisc
Joined: Apr 2008
Posts: 431
May 23, 2008 02:01 am drcrisc wrote:

Teaches,

Just found this thread floating around and I can empathize with the waiting issue.  I just waited for 2 weeks to get a second opinion on my surgical pathology report from a well-known hospital.  Waiting and not knowing are so difficult; I don't think care providers get that unless they've been through it.  I would definitely call them first if I were you!  I called my onc's office every other day while we were waiting.  Hope it's good news...

Cristine ~ Blessed are the flexible, for they shall not get bent out of shape!
Dx 3/24/2008, IDC, 1cm, Stage I, Grade 2, 0/3 nodes, ER-/PR-, HER2-
Teaches
Joined: May 2008
Posts: 22
May 23, 2008 03:02 pm Teaches wrote:

I took your advice drcrisc.  I called and was told nothing.  They'll try to get back to me before the weekend, which leaves them about an hour.  Sure.

jalydiju
Joined: May 2008
Posts: 141
May 23, 2008 08:02 pm jalydiju wrote:

Hi Teaches,

Isnt it a pain. So annoying not to be able to get any straight answers and to have to wait is agony at times.

I was out all day yesterday when my GP rang and left message re results of FNA. Message said " Not terribly urgent but Dr wants to disscuss your results ". Terribly urgent? I hate that. Why cant they say " you need to make an appointment to disscuss your results" and it was the infliction in her voice that made me want to really slap her.

Dont have to wait out public holiday but do have to see out weekend.

Take a deep breath and try to have a great long weekend.

Warm smiles and huggs        Jaly

Teaches
Joined: May 2008
Posts: 22
May 28, 2008 05:58 pm Teaches wrote:

Hurrah!  My doctor called last night and I have an appointment for tomorrow.  I don't know anything more than that but at least something is happening!  FINALLY!

jalydiju
Joined: May 2008
Posts: 141
May 28, 2008 08:39 pm jalydiju wrote:

Hi Teachers,

SOOOOO glad to see that you can move your playing piece one step forward on this gameboard.

I hope that by tomorrow that you have a get out of jail free card.

Feel like Ive been handed a deck of miss a turn.

Hope to see great news posted on this thread on your next post. SmileyCentral.com

Thinking of you.........Jaly

Teaches
Joined: May 2008
Posts: 22
May 29, 2008 04:29 pm Teaches wrote:

Is it the blind leading the blind?  I went to my appointment and found that I was to have a core biopsy, but the suspicious area isn't palpable... duh...  Plan B... they sent me to another center to have an ultrasound guided biopsy, which I then had.

The expressions, and/or lack of, of the radiologist and nurse made me feel like I'm deadmeat.  Now I get to wait again.

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