Hello All,
I am wondering if anyone else out there has both BRCA 1 & 2 mutations? I have not met anyone or spoke to anyone with the same. Are you out there and R u okay?
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Youwearpink… Joined: Mar 2008 Posts: 40 |
Apr 1, 2008 10:27 pm
Youwearpink wrote:
Hey Ladies, I check this strand daily hoping for someone to respond. Anyone out there with some good news or positive stories??????????????? Dx 6/23/2002, IDC, 1cm, Grade 3, 1/9 nodes, ER-/PR-, HER2- |
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roxy42 Joined: Jul 2007 Posts: 221 |
Apr 2, 2008 01:08 pm
roxy42 wrote:
Yes I do.Well I should say that my dr thinks I do because i have another mutation gene p53 and if you have that chances are you have the BRCA 1 and 2.I'm In the high risk group because how large the tumor was 3cm and 1 node positive,and because of that mutation.Its been along 9 months of treatment.I have had 6 months of kemo 6 weeks of radiation 2 lumpectomy and a week ago I had a full historectomy because my cancer was ER/PR positive her2 negative.I hope and pray that the historectomy worked and it keeps me from having a reacurance.My Dr for the first time is being positive about my chances.Its a scary thing to have BC but to have the mutations it makes it more stressfull.I'm positive that all will be ok I'm a strong beleaver in the power of prayer.God has got me through every step of the way.Godbless roxy |
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Youwearpink… Joined: Mar 2008 Posts: 40 |
Apr 2, 2008 08:59 pm
Youwearpink wrote:
Hello Roxy, Thank you for your response. I really appreciate.I had a hysterectomy too. I am HR/PR negative. I just did it to avoid ovarian cancer.I am tri neg. I am 5 1/2 years out. I am very fortunate! I remember when I was first diagnosed I was asking God to let me see my daughter enter kindergarten, ...She is in 3rd now. Wow, I am fortunate and I plan on seeing my grandbabies in kindergarten. I am always looking over my shoulder. Nervous about what my funky genes are going to stir up next. Thank you again for your response. I wish you the best recovery! Godbless you too! Stacy Dx 6/23/2002, IDC, 1cm, Grade 3, 1/9 nodes, ER-/PR-, HER2- |
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veggievet Joined: May 2003 Posts: 744 |
Apr 4, 2008 11:19 pm
veggievet wrote:
Dear Stacy, We have had several women with both mutations on the FORCE website. You might also post there (http://www.facingourrisk.org) . The website is devoted to people with hereditary breast or ovarian cancer or a BRCA mutation. I have a BRCA 2 mutation myself. Hugs and love, Sue |
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Hannahbanan… Joined: Feb 2008 Posts: 95 |
Apr 10, 2008 10:51 pm
Hannahbanana wrote:
I am waiting for my test result to come back. I keep wondering if I did the right thing in being tested but my mother passed away from ovarian cancer at 56 and I have an aunt with bc. I have had a mastectomy on my right breast after dx of dcis and my surgeon brought up the test from my history and being 44. Did you have a hysterectomy by choice because of a positive test? Dx 2/7/2008, Paget's, Stage 0, Grade 3, 0/7 nodes, ER-/PR- |
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Youwearpink… Joined: Mar 2008 Posts: 40 |
Apr 12, 2008 10:38 pm
Youwearpink wrote:
Hello, I did have a hysterectomy because of the results, I also already had cancer twice at the age of 26. I am planning a left mastec this summer. Already had the rt. when diagnosed, Dx 6/23/2002, IDC, 1cm, Grade 3, 1/9 nodes, ER-/PR-, HER2- |
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