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Topic: How to tell young child?

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Joined: Apr 2008
Posts: 9
  • Posted on: Apr 16, 2008 09:05 am
Anne-Sophie wrote:

Hello,

I was diagnosed last week and I will receive the results of my genetic test next week. My treatment options will be reviewed and decided on then. My concern is about what to tell my 7-year-old daughter and how to tell her? She was already freaked out last week when I went for my biopsy, I don't want to scare her more than unavoidable. Anybody had a similar situation?

Thanks,

Anne-Sophie


Dx 4/10/2008, DCIS, Stage 0
Posts 1 - 9 (9 total)
DianeE
Joined: Jan 2008
Posts: 119
Apr 16, 2008 09:19 am DianeE wrote:

Anne-Sophie,

So sorry that you have to go through this.  I feel telling our kids was the hardest part of the bc thus far.  My kids were 11 and 8 and we sat down and told them we had to have a talk.  We told them Mom has breast cancer and is going to be going to many appointments to get some treatment to take the bad cells out of her body.  We told them I would be having surgery later and then we kind of listed the things that would change...no hair, more tired, other people in our house, but we also told them the things that would not change...we love you, we will not lie to you about what is going on, you will still have friends over, we will still do fun stuff but it might not be as often or for as long as before depending on how Mom feels.  The 11 year old said she already knew something was wrong from all the appointments I'd been going to, and she cried.  The 8 year old told the entire neighborhood about it and was very much into asking questions.  I am now 5 months out from my last chemo, had surgery and finished rads Feb 22 and life is starting to feel normal again.  I think it is important once you tell your daughter to frequently ask if she has any questions and keep her teachers in the know.   I would respond to her questions but be aware of not giving more info than their little heads can handle.  When my kids asked what kind of surgery, we told them but did not go into a lot of details.  My parents came and stayed with us for treatment weeks and surgery and when I told the kids recently they were coming for a visit, they both went white and said,"whats wrong now?"  So for as resiliant as kids are, it weighs heavily on them.  There may be a group or resource at your cancer center that can help you with any issues that come up.  Good luck and let us know how you are doing.  This website is great for support and you may find yourself coming back frequently just to read.  I know I did.

Diane


Dx 7/7/2007, IBC, 2cm, Stage IIIb, Grade 3, 2/22 nodes, ER+/PR+, HER2-
LUVmy2girlZ…
Joined: Nov 2007
Posts: 1809
Apr 16, 2008 09:31 am, edited Apr 16, 2008 09:32 AM by LUVmy2girlZ LUVmy2girlZ wrote:

Anne-Sophie~

I have a 9 & 12 year old, at I had received the diagnosis over the phone while they were in the very room with me, needless to say I cried...I was so scared and because I had so much involved in my breast I had to wait until the final surgery to tell my final diagnosis.  What they could tell me is that I had DCIS however I had multiple widespread of areas.  My children cried w/ me and I wish I could have been so strong for them...I explained through my tears that mommy was just so disappointed w/ this news but to not have them worry as mommy and daddy are going to do all the worrying and we are going to beat this together..I thinks its okay to cry yet I constantly reassured them that with Dr.s/Faith/Family we are going to be just fine.  Like Diane said, let the teachers know just so they can have a watchful eye...my youngest ended up speaking to the guidance councilor about it too...I didn't mind at all.  They have been both my strength and support and soon you will be back to the "norm" though forever etched in your mind.  Speak positive to them, and I tried my hardest to not change a thing as far as sports/school/friends ...I wanted to continue just as it was.

Best of luck...I know its the hardest to tell your children..you don't want them to hurt.

Much LUV

Laughter, is the shock absorber that eases the blows of life....
Dx 11/19/2007, DCIS, 5cm, Stage 0, Grade 3, 0/3 nodes, ER-/PR-
Shirlann
Joined: Feb 2002
Posts: 6166
May 8, 2008 09:32 pm, edited May 8, 2008 09:33 PM by Shirlann Shirlann wrote:

Honey, the only problem with not telling any age child, that can talk, is, they hear.  They have antennas and hear everything, that private phone conversation where you cried, the hushed tones and worried looks.  They IMAGINE much worse than if you just tell them.  Well, I have cancer (it is important to say the word) but I will be well.  I need you to: Take out the trash, feed the dog, dry the dishes, empty the dishwasher, whatever fits their age group.  They know something is up and will worry more if you say nothing or try to hide the cancer part.

My favorite story is one of our sisters sat all the kids down and told them, then said they would go to Disneyland after she was well.  She had a variety of ages of her kids.

The littlest one went out on the porch and literally shouted to all the neighbors; "My mom has cancer and we're going to Disneyland".  They all broke up laughing.

Point being, they will know anyway, and worry less is you are honest to their age.  A little knowledge for the little ones, more for the older ones and teens, let them ask. 

DO NOT worry about crying, honest fear they understand, lying to them, they don't understand.

Good luck, gentle hugs, Shirlann

DAPHNESPLAC…
Joined: Apr 2008
Posts: 42
May 8, 2008 09:43 pm DAPHNESPLACE wrote:

I was diagnosed 4/17,am scheduled for a mastectomy next Wednesday,& still haven't had the "talk" w/my 12 year old son & 9 year old twin girls.  I've been rehersing in my mind, but my mother dies from metastatic breast cancer & my dad died from cancer also.  I know as soon as that word comes out, my son is going to be afraid.  The girls may not understand yet.  Everyone says the words will come to me, but I would imagine if I tell them about the mastectomy, won't that freak them out? Should I leave that part out for now? Any suggestions? Thanks, friends

Tigwin
Joined: Mar 2008
Posts: 212
May 8, 2008 10:57 pm Tigwin wrote:

Hi Anne,

You should check the bookstore...there are several books that help you discuss cancer or being sick with children. They put the story into the age the child can understand.  I read one at the store to see how they told the story. I was very impressed.  Don't underestimate the stregth or smarts of a child.  Good luck that is going to be a hard one ...just be honest and positive.


Dx 2/28/2008, IDC, , Stage , / nodes, ER+/PR+, HER2-
Shirlann
Joined: Feb 2002
Posts: 6166
May 9, 2008 10:13 pm, edited May 9, 2008 10:14 PM by Shirlann Shirlann wrote:

Daphne'splace, my love.  I know how hard this is, especially since your family history is bleak.

But remember, you cannot truly keep this kind of a secret, and I am sure you know that.  This journey is too long and too tough.

So have a family meeting.  Tell them you are not worried (that's a lie) but they need to hear that.  Tell them you feel bad telling them this but as a family, if they will all help and work together, and you will get well, and you will.

Be sure and tell them that treatment is much better now than it was in the grandparents day.  It is, I am 9 years out of treatment and my treatment info is way out of date.  Just assure them you will be fine.

If you cry, you cry.  You are only human and the only complaint I have ever heard from grown up people is that "no one told me anything and my mom, dad," fill in the blanks.  Without exception these people are bitter and mad and felt as though they were not "worthy" to hear bad news.

The book suggestion is a good one.  But your children are old enough for the basics.  Say the word cancer, tell them your hair might fall out if you have chemo, tell them you might cry now and then or be very tired.  Then these things will not scare them.

It is hard, I was glad mine were all grown.

Gentle hugs, Shirlann 

LorenaB
Joined: Feb 2008
Posts: 544
May 10, 2008 08:24 am, edited May 10, 2008 08:26 AM by LorenaB LorenaB wrote:

Daphne, I agree that your kids need to know what is going on -- I think it will be scarier and harder for them if they don't understand what their mom is going through.  I had a very wise piece of advice from the social worker at the hospital where I'm getting treatment: You don't have to tell children everything, but everything you tell them should be the truth. (Actually, I think this is good advice for parenting in general.)  I don't mean that it's not ok to tell them that you'll be ok in the end even if you are afraid that this may not be the truth -- because the truth is, most of us do come out on the other side and live out our lives (and I'm certainly not planning for any other path!).

My son is younger than your kids (he turned 7 in March) but I've found that short, not-too-heavy conversations inserted when it feels right have worked better than sitting down to have "the talk."  When I first told him about cancer and surgery, he listened briefly to my explanation but soon got up and started bouncing around the room.  Right around when I was dx, his father (we're separated) had a bad case of kidney stones.  Even though the comparison isn't remotely medically accurate, I tried to explain that just like Papa needed to get those little rocks out of his body, I needed to get the "bump" out of my breast, but they needed to do surgery to take it out.  Also, he had just been watching the Magic School Bus episode where they take a journey through the inside of the body, so I tried to use this to help him to understand. 

Then when I started chemo in March, I described it like a "crazy medicine" that will make me sicker before it makes me better, and I tried to make it sound silly that soon he would have a "bald Mom."  He was sort of freaked out for a few days but at this point, he is the person who is least bothered by my hair loss -- honestly, I still can't look in the mirror at my bald head without cringing but he isn't bothered by it at all. I have not yet told him about my upcoming mastectomy - I think it's better to wait until a few weeks before, so that he knows what the plan will be for him while I'm recovering (he's going to stay with his father for 2-3 weeks) and can process the information, since at his age he's just getting the concepts of dates and waiting, etc.  Obviously this is different for your children since they are older.

Sorry for writing a book - I know our experiences aren't identical, but I hope some of this is helpful.  I also agree with what Shirlann said about treatment and survival rates being VERY different now than they were a decade ago.  I hope this will be a big reassurance to your kids, especially the 12-year-old who can really understand such things.

Good luck!


Dx 12/20/2007, IDC, 1cm, Stage II, Grade 3, 1/11 nodes, ER+/PR+, HER2-
chemosabi
Joined: Jul 2005
Posts: 7044
May 10, 2008 10:32 am chemosabi wrote:

For Our Children:

http://www.youtube.com/watch?v=nvRoV_Mj0pA

Nicki
DAPHNESPLAC…
Joined: Apr 2008
Posts: 42
May 10, 2008 08:33 pm DAPHNESPLACE wrote:

Thanks for all the kind words. I am hoping to talk to the kids tomorrow. 

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