Ok folks I have the sweetest guy. He has helped me to the best of his ability BUT....He is driving me crazy wanting me to try herbal cures! I have been an RN for the last 30 yrs and I would just as soon go to a witch doctor. I don't want his mushrooms and noni juice (what the heck is a noni anyway??). I have tried to be the voice of reason and give logical medical information. I understand that this is something he can't "fix". He doesn't seem to understand or doesn't want to that might mean there is "no surefire cure".
I have printed out a list of caregiver/spouse sites but how can I get him to go get help if he is in denial?
By the way I am IDC stage 3b with elevating tumor markers even on xeloda although it has at least slowed the growth. I went to my Doc today, he says that it is trying to come back. I am really concerned that Jeff will have a meltdown.
Any advice is appreciated.
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jellydonut Joined: Jul 2007 Posts: 283 |
Apr 26, 2008 09:46 pm
jellydonut wrote:
Why not discuss the mushrooms with your onc? If he/she says it can be helpful for you to take them along with chemo, it will solve your problem. Noni juice has been around for a while making claims that have not been medically substantiated (sp?). I took it for about six months (years ago) but did not notice any difference. Again, you may want to discuss it with your onc and if he/she approves you can keep the peace at home. There is also info on Pubmed. http://en.wikipedia.org/wiki/Noni You may also search this site for both "mushroom" and "noni" for more information. They've been discussed in the "alternative" section of this site. The very best of luck to you. Jelly Six Years.
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lLinda Joined: Dec 2007 Posts: 124 |
Apr 26, 2008 11:44 pm, edited Apr 26, 2008 11:51 PM
by lLinda
lLinda wrote:
LA-Lady, As we all know these fellas feel helpless during this time anyway, and he feels this is what he knows to help. Yep--fix it!! Now I do believe in "all kinds of supplements" not as a cure, but sometimes to help from how the Chemo depletes the body. So I have taken things!!! I say to go to one of the Health Food stores and read information that you might think will benefit you and go from there. I did drink Noni Juice the whole time I took Xeloda, did it help?? I only wondered what the side effects would have been like had I not have. My Onc had told me to take Vitamin B6 200 mg per da, for neuropathy which surprised me. Because a lot of these Drs. have no idea of Alternative Supplements that are out there, and would probably say not to take them--like I say, I don't know where I would be without some of the supplements I take--My Onc has called my case "Unique" because I have been Blessed not to have a lot of the ugly side effects that have gone with the Chemotherapy that I have been on, and I feel I have had my share and some elses' share in my 9 1/2 Yrs. Maybe if you read about these suggestions, it would help hubbies ego. Does he do Supplements or is someone else giving him this info? When I was 1st diagnosed, everyone had info for what to do. However I was already in to supplements before CA. If it is something to help us to feel better, I am all for it. Good Luck and hang in there. Linda C. LINDA C
Dx 11/17/1998, DCIS, 1cm, Stage IIIa, 6/ nodes, ER-/PR-, HER2+ |
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badboob67 Joined: Jan 2007 Posts: 2256 |
Apr 27, 2008 04:51 pm
badboob67 wrote:
LA-lady, Whether it's your hubby pushing alternatives or traditional treatments on you, it can sure cause friction! I think they (our husbands) sometimes scramble and clutch at straws in an effort to "do something" rather than sit "idly" by and watch the one they love suffer through such a difficult and frightening experience. He so wants to make it better for you--to make the problem go away! Being on the receiving end of all of his "helpful advice" and suggestions can be tough and can make us feel insulted, worried, and unsupported. So, in an effort to "fix" it all, the situation leaves both parties feeling less than appreciated. Perhaps if you sat down with your husband and clearly spelled out for him the things that he says/does that you do find very helpful (e.g. picking up take-out for dinner when you are dog-tired, throwing a load of laundry in the washer, giving you a nice shoulder rub) and praise him for doing them, you can explain that you understand his alternative therapy suggestions come from a place of love and caring--but they just aren't the thing for you and his suggestions do not help you to feel supported. Sometimes we just have to make it very plain and clear what it is we need and want in the way of love and support from our spouses. He'll feel better because he'll know he's doing something that you truly find helpful and you'll feel better not having to figure out what a "noni" is--or how to squeeze the juice out of it! ((((HUGS)))) When you're down to nothing, GOD is up to something! http://bb67.wikispaces.com/
Dx 2/15/2006, IDC, 5cm, Stage IV, Grade 2, 24/27 nodes, mets, ER+/PR-, HER2- |
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