I was a little bit more than freaked out yesterday, when I requested a copy of my hospital records and found out that they spell my name WRONG!!!!! Are you kidding me????? I was admitted twice last year, let them operate on my twice, and was in there 8 days!! I am a little nervous about what the records are going to show when I get the actual copies. How about when I have my next surgery?? Am I going to be the right person then?!?!?!?!
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AnneW Joined: Oct 2002 Posts: 2000 |
May 16, 2008 04:25 pm
AnneW wrote:
I get my name misspelled all the time. It's insane. But as long as my birthday is right, I let it go. Maybe I shouldn't? Anne 2002 IDC stage 1, grade 1, rads & AI
Dx 9/18/2007, ILC, <1cm, Stage I, Grade 1, 0/1 nodes, ER+/PR+, HER2- |
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otter Joined: Jan 2008 Posts: 1897 |
May 16, 2008 04:55 pm
otter wrote:
I don't know... after my experiences these past 4 months, I find it hard to believe my treatment center could ever mix me up with someone else. Any time they do anything at all, they ask for my full name and birthdate. Whenever I call my onco's office, they ask for my address and birthdate. Of course, my name, birthdate, and hospital/case number were on my arm band during hospitalization and surgery, and everyone who walked in the room looked at the band and asked me to confirm the information. This past Wednesday I had chemo tx #3. Every single time the chemo nurse brought in a new bag of stuff to hook up to my i.v., she asked for my name and birthdate, and checked it against the label on the bag. We finally made a joke of it--I was telling her I was Josephine somebody-or-other, and she started remembering that. She said the odds of ol' Josephine and the real me being there on the same day, having the same chemo regimen, and having exactly the same birthdate were so rare as to not be worth worrying about...but she still checked each time. Maybe a mis-spelled name is one more reason to check the paperwork every once in awhile? otter Dx 1/14/2008, IDC, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR-, HER2- |
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Nann Joined: May 2008 Posts: 30 |
May 17, 2008 01:42 am
Nann wrote:
You can contact the medical records department at the hospital and tell them about the error. Don't be surprised if they cannot correct it based on your phone call. There are very strict rules regarding what changes they are allowed to make to a medical record, so you may have to go there in person to actually get the change made. Dx 4/10/2008, DCIS, 2cm, Stage 0, Grade 2, 0/0 nodes |
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SLH Joined: Oct 2007 Posts: 509 |
May 17, 2008 12:56 pm
SLH wrote:
At my hospital when giving blood, I gave them my full name and spelled my last name, which has an odd spelling. They said there was another person with exactly the same name--first, middle, and last--as me! Then I gave my birthdate, and they told me hers, which I calculated her to be 102 yrs old! |
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Held Joined: Sep 2007 Posts: 136 |
May 17, 2008 02:13 pm, edited May 17, 2008 02:14 PM
by Held
Held wrote:
I have a rather unusual first name. I went to an ER when I was in college, and when they were taking my personal information, they told me there were 2 other women in the hopital that day with the same name! This is not a large hospital. I was 17 years old before I met anyone with the same first name as me. Can you imagine the odds of 3 of us with the same first and last name in the hospital on the same day??? They did tell me one of the other ladies' last name was spelled slightly different. During each of my hospital stays (this past year), I had to stop the nursing staff several times from giving me the wrong medication, so I am nervous about what the records show. I am going to be really pissed if there is incorrect information in there. I command you - be strong and courageous! Do not be afraid or discouraged. For the Lord your God is with you wherever you go. - Joshua 1:9
Dx 9/7/2007, DCIS, Stage 0, Grade 3, 0/3 nodes, ER+/PR- |
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snowyday Joined: Jun 2007 Posts: 1244 |
May 17, 2008 02:45 pm
snowyday wrote:
Held make sure that they always confirm with your birthdate before they do anything and have them go back and check every single thing that they've done, oh my what next. That's scary. PN
Dx 5/18/2007, IDC, 3cm, Stage IV, Grade 3, / nodes, mets, ER-/PR-, HER2- |
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Held Joined: Sep 2007 Posts: 136 |
May 17, 2008 02:54 pm
Held wrote:
Good thing I was there for a bilat mast - they might have taken the wrong one!!!!! The scariest part of the medication errors was that I was on narcotics and not always "with it". I CAUGHT the mistake 3 times - how many times did they give me the wrong medication because I didn't notice it was the wrong dose???? I command you - be strong and courageous! Do not be afraid or discouraged. For the Lord your God is with you wherever you go. - Joshua 1:9
Dx 9/7/2007, DCIS, Stage 0, Grade 3, 0/3 nodes, ER+/PR- |
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mthomp2020 Joined: Jul 2007 Posts: 285 |
May 17, 2008 03:40 pm
mthomp2020 wrote:
At my treatment center, there's another woman with the same first and last name as myself, and we were getting treatments on the same day every 3 weeks at the same time in the morning. My last name is VERY common, my first not so much, and we spelled our first names differently. Good thing there's a photo of the patient on the drug labels! Plus, of course, the birthdate. When my surgeon came in to see me right before my surgery, she gave me a marker and had me write on the side I was to have a mastectomy - never a bad idea! My biopsy sample had been marked with the wrong side when they sent it to the lab, but they did correct that. You really have to watch the hospitals sometimes! Dx 5/21/2007, IDC, Stage IV, Grade 3, mets, ER-/PR-, HER2+ |
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Held Joined: Sep 2007 Posts: 136 |
May 25, 2008 04:37 pm
Held wrote:
The copies of my medical records should be here any day now. I am already afraid to look at them. I command you - be strong and courageous! Do not be afraid or discouraged. For the Lord your God is with you wherever you go. - Joshua 1:9
Dx 9/7/2007, DCIS, Stage 0, Grade 3, 0/3 nodes, ER+/PR- |
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badboob67 Joined: Jan 2007 Posts: 2290 |
May 25, 2008 05:54 pm
badboob67 wrote:
Held, I received my records from my previous onc last fall when I switched to a different cancer center. I was absolutely apalled at the errors and misstatements I found. There was one statement that they had put in the "mini history" area of the doctors notes that was absolutely wrong and did not apply to me at all. This same statement was on the notes for EVERY visit I had there as well as in every correspondence between my onc and anyone else when he was communicating about my case. There were even medications listed as ones that I take which I not only have NEVER taken, but were drugs my HUSBAND takes. It was obvious that the NP and ONC were only half-listening at my appointments. Now, one could say that I was "confused" or wasn't remembering clearly, but I ALWAYS had either my husband or my mother with me. Seeing all the crap just solidified for me that I had made the right choice in switching oncs. I decided to go through my chart, page by page, and write (on separate paper) any corrections or clarifications. I have NOT sent those corrections to my previous onc (although I SHOULD have--I am STILL to angry about it). It is very important that the new onc and anyone I see from now on gets the CORRECT information. I also agree that it's a good idea to get copies of everything you can as soon after the fact as possible so mistakes like the one in my history are not perpetuated. For TWO YEARS, people had been reading this 5 sentance synopsis of my history/condition and 20% of the information was completely false! I have extensive bone mets and my history from these people says that I have DEGENERATIVE ARTHRITIS. Now, I can't say that there were any errors made because of that, but it seems to me that a radiologist might look at a bone scan differently if he thinks he's looking at someone with a known history of degenerative arthritis. I said all that to say this: Make your own notes (on copies of the records) and even write a short statement to ad to your records if there are errors that concern you. When you're down to nothing, GOD is up to something! http://bb67.wikispaces.com/
Dx 2/15/2006, IDC, 5cm, Stage IV, Grade 2, 24/27 nodes, mets, ER+/PR-, HER2- |
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Held Joined: Sep 2007 Posts: 136 |
May 25, 2008 07:04 pm
Held wrote:
That's a disgrace. I can see why you are so angry. That is one of the reason I am so nervous to look at them. That and I want to know how many times the doc wrote that she was worried about my "emotional health". Gee, I cried. I got histerical outside the OR. I wonder what wonderful things she had to say about that. Oh yeah, let's not forget the bitch nurse that insisted I sit up and eat something right after I barfed my brains out the morning after sugery, and I refused to do either. What do you think? Is there a note that I am a "non-compliant" patient? There are just so many questions I have that I didn't want to know the answer to when it was happening. Now I want to know. I know that I had "post-op" anemia (per my onco notes), but I want to know how much blood I lost, stuff like that. I can't wait to see what other errors there are besides the whopper that my name is spelled wrong!! I command you - be strong and courageous! Do not be afraid or discouraged. For the Lord your God is with you wherever you go. - Joshua 1:9
Dx 9/7/2007, DCIS, Stage 0, Grade 3, 0/3 nodes, ER+/PR- |
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Held Joined: Sep 2007 Posts: 136 |
Jun 7, 2008 07:36 am
Held wrote:
I finally got the copy of my hospital records I requested on Thursday night. I sat down and read every painful page. Some of it made me angry, some of it made me sad. I was startled to find some odd mistakes (other than my name being spelled wrong). I remember telling the "intake" nurse about a reaction I had to Ultram. It made me so dizzy I could not stand so I tossed it and told my doc not to give it to me anymore. They wrote my "drug sensitivity" to Ultram was PSYCHOSIS!!!! Are you friggin' kidding me?!?!? The first night I was in the hospital after my double, they took me to the bathroom right after I gave myself a hit of dilaudid from my PCA, which made me a little dizzy as well. I commented to the nurse that it looked like the dried milk on the door was moving. She thought I was hallucinating. I told the social working the next moring, because I thought it was funny. She (the social worker) wrote in her note I reported to her I WAS hallucinating. Some of her notes also seem to imply I was "drug-seeking" - HALLLOOOOO - I didn't want to be in pain!!!!!! Oh yeah, and lets not forget the notes all over the place that I was very, very very anxious and tearful. I want to tell them all to BITE ME!!!!!! Does anyone have a clue?!?!? Reading some of that stuff makes me want to never tell anyone (medical professional) anything about how I am feeling physically or mentally. I command you - be strong and courageous! Do not be afraid or discouraged. For the Lord your God is with you wherever you go. - Joshua 1:9
Dx 9/7/2007, DCIS, Stage 0, Grade 3, 0/3 nodes, ER+/PR- |
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NativeMaine
Joined: Mar 2007 Posts: 482 |
Jun 7, 2008 02:36 pm
NativeMainer wrote:
I have a last name that is commonly mispelled. I have found that the insurance company won't pay out if the office or hospital sends in a bill with my name mispelled, even if everything else is correct. Checking your records is a VERY good idea, and making corrections as necessary. Also, once a year you can ask for a list of everyone who has looked at your records from any hospital. They have to give you this info as part of the privacy act so patients can keep track of who is looking at their records. dx 3/07, Stage 2, Grade 2 IDC, 2.8cm, ER+PR+, Her2(-), SN-, lumpectomy & rads
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Thai Joined: Mar 2008 Posts: 65 |
Jun 7, 2008 04:53 pm
Thai wrote:
My MRI came back stating tumor in RIGHT breast (it is in the LEFT). I contacted surgeon first to make sure I did not have something in the unaffected breast, and for a few minutes he could not believe the radiologists made a mistake in his report. But as I talked and he reviewed his paperwork, he found out I was correct. ALWAYS look at your medical records and request copies. I really felt this was a human error, but had I not followed up on this, who knows what may have become of this. Dx 3/14/2008, IDC, 2cm, Stage II, Grade 3, 1/ nodes, ER-/PR-, HER2+ |
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AnneW Joined: Oct 2002 Posts: 2000 |
Jun 7, 2008 05:12 pm
AnneW wrote:
Held, Please don't take too much offense at the nurses' notes. They are indeed subjective. One person may say "hallucinating" while another may say "disoriented." These are people entering your sphere for just a few moments in a span of time, recording what they saw/what you said or did/etc at that moment. Believe me, as one who has written volumes of notes, it is not personal, and not meant to be an attack. By documeting that you were tearful and anxious, that is what the nurse saw. How nice it would have been if s/he took a sec to hold your hand and acknowledge what s/he saw. You would get your feelings validated, get some time to vent or cry or whatever, and the nursing note would still say, "Patient appears anxious and tearful." That said, there is no excuse for inaccurate observations, or documenting the wrong data. I hope the more pressing issues such as having the name wrong are cleared up. Anne 2002 IDC stage 1, grade 1, rads & AI
Dx 9/18/2007, ILC, <1cm, Stage I, Grade 1, 0/1 nodes, ER+/PR+, HER2- |
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Held Joined: Sep 2007 Posts: 136 |
Jun 7, 2008 07:29 pm
Held wrote:
Anne, I am dealing a little better with the comments that I was VERY VERY VERY anxious and tearful and upset a little better. I understand I have a right to my feelings and no one has a right to judge them, but that is how I felt - that they were judging me. I really hate that there is a note of any kind that I have a psychiatric disorder because I was anxious/depressed about having cancer and needing a mastecotomy. But for the love of God, how the heck do you get DIZZY and PSYCHOTIC mixed up?!?!?!?!??! I command you - be strong and courageous! Do not be afraid or discouraged. For the Lord your God is with you wherever you go. - Joshua 1:9
Dx 9/7/2007, DCIS, Stage 0, Grade 3, 0/3 nodes, ER+/PR- |
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AnneW Joined: Oct 2002 Posts: 2000 |
Jun 8, 2008 11:39 am
AnneW wrote:
I agree that "psychotic" is waaayyy out of line. That's a diagnosis made my a mental health professional, and requires medication as such. However, there are transient psychoses that are not the same as being psychotic, but people who don't knw the difference shouldn't use the word. If these are just nurses notes, then you do not have a medical diagnosis of psychosis, and nothing sent to the insurance company coding that. You jsut had a totally insensitive and dare I say imcompetent person making a diagnosis that s/he had no business making. Anne 2002 IDC stage 1, grade 1, rads & AI
Dx 9/18/2007, ILC, <1cm, Stage I, Grade 1, 0/1 nodes, ER+/PR+, HER2- |
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Held Joined: Sep 2007 Posts: 136 |
Jun 8, 2008 02:31 pm
Held wrote:
It is listed on the "in-take" history page that goes into the hospital computer system about me. It lists all my diag, and all my allergies. Under allergies it says Ultram - psychosis. Remeron, benadry, phergan - seizures. The seizures part is correct. I command you - be strong and courageous! Do not be afraid or discouraged. For the Lord your God is with you wherever you go. - Joshua 1:9
Dx 9/7/2007, DCIS, Stage 0, Grade 3, 0/3 nodes, ER+/PR- |
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leaf Joined: Dec 2005 Posts: 2428 |
Jun 8, 2008 04:02 pm, edited Jun 8, 2008 04:04 PM
by leaf
leaf wrote:
It is not uncommon to have incorrect information in a patient's chart.
If you're going through hell, keep going-Winston Churchill
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Held Joined: Sep 2007 Posts: 136 |
Jun 8, 2008 05:45 pm
Held wrote:
I know mistakes happen, we are all human. However, this is a handwritten note, and seriously how does anyone confuse dizzy with psychosis?????????????? And if I ever end up (physicallly against my will) at this hospital again I will be sure to point this out to them. How would anyone know what mistakes appear in their chart unless they send for a copy of the chart like I did. It cost me almost $120.00 for them. Maybe I am freaking out over nothing, because I have really struggled with the whole "psychiatric disorder" (anxiety, depression) label that is in my chart. The psychosis note was like pouring salt into a wound. I command you - be strong and courageous! Do not be afraid or discouraged. For the Lord your God is with you wherever you go. - Joshua 1:9
Dx 9/7/2007, DCIS, Stage 0, Grade 3, 0/3 nodes, ER+/PR- |
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Isabella4 Joined: Mar 2005 Posts: 1521 |
Jun 8, 2008 07:11 pm
Isabella4 wrote:
I have some terrible errors on my records, some absolute totally wrong, and no way can I have them altered. Years ago, my first DH had about probably 4 years of mental health problems. He ended up being diagnosed with endogenus (sp) depression, had ECT treatment, was admitted to psychiatric hospitals 4 times, and saw umpteen psychiatrists. The last psychiatrist he saw was a private one, we decided to pay for what we had been told was the best one locally. I went twice with ex DH to see this man, ex DH went on seeing him for months. 20 -odd years ago I had a car crash, had a bad whiplash, and went to our local hospital to try and get some relief from the pain, during my visits it kept being sort of mentioned I was making it out to be worse than it was, and a lot of it was 'in my mind' One Dr said, in his conversation to me 'with your history' ....I was taken aback and asked him what he meant. He said with my history of 'MANIC DEPRESSION' I went beserk at him, no doubt he thought I HAD got manic depression !!....but he insisted that was what MY psychiatrist had written in my notes. I went to see my GP, and requested a copy of all my records, and there it was....ex DH's psychiatrist had labelled me a manic depressive, I had only seen him twice on visits with exDH, but this man said he had been to see me at home, totaly untrue, when he was supposed to have visited me I had left DH, and was living in another county. He said he had given me drugs, again totaly untrue, and had suggested a spell in a psychiatric ward for me, again absolutely untrue, I had left ex DH at the time he had 'supposedly' seen me. I went bananas at my GP but she said she couldn't remove anything at all, she wasn't my GP at the time this had been going on so she didn't know if I was telling her the truth or not, and the psychiatrist in question would not remember me after about 15 years had passed. By chance in the paper I saw that this psychiatrist was up in court for saying that a woman was badly depressed when she wasn't. The woman had been going thru a divorce, her ex had sent Dr M. to see her, she was in the bath, came downstairs in her dressing gown, but would not answer the door to the Dr, as she didn't know him, and all he saw was a shadowy figure behind frosted glass. On this alone he labelled her 'depressed'and wrote a report for her ex which was going against her in a divorce case. Dr. M got some sort of reprimand, I can't remember exactly what, I don't know where the article is at this minute, but I kept the cutting, and took it to my GP but she wouldn't do anything, and I knew Dr M would certainly not admit he had made all this up, he would be in more trouble, so I just have had to let it ride. I do not know what Drs are thinking about me when they see me, I was particularly upset when I was dx'd because I felt, probably wrongly, that all the new Drs I was seeing would think I was a manic depressive it they read back in my records.....so I just had to live with it. Dr M was a particularly emminent dr in this area, he had private practices and spouted at conferences, so how would anyone believe me ?? This will be with me forever now, if I go a bit dotty as I get older, up will come this manic depressive label, and it could alter the way I am treated, maybe ??? As my GP is NOT behind me on this I don't stand much chance of ever being believed. Isabella. Dx 5/14/2003, IDC, 1cm, Stage I, Grade 1, 0/26 nodes, ER+/PR+, HER2- |
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Held Joined: Sep 2007 Posts: 136 |
Jun 9, 2008 08:56 pm
Held wrote:
Geezzzz, now that just adds a whole new level to "that sucks". I command you - be strong and courageous! Do not be afraid or discouraged. For the Lord your God is with you wherever you go. - Joshua 1:9
Dx 9/7/2007, DCIS, Stage 0, Grade 3, 0/3 nodes, ER+/PR- |
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AnnNYC Joined: Aug 2007 Posts: 1597 |
Jun 9, 2008 09:16 pm
AnnNYC wrote:
Isabella, that is really maddening... didn't mean that to be a pun... but it is terrible, isn't it. All one's totally justifiable and righteous indignation gets "read" as supporting the false diagnosis! How awful. Held, the "psychosis" business is also a drag -- hopefully far less pervasive since it is listed as a drug effect -- albeit a mistake. I hope you have better luck getting your chart changed. I noticed about 6 months after my mastectomy that my BS, in her first consult letter to my other doctors after BC diagnosis, said that I reported habitually having 3 alcoholic drinks per DAY! That upset me! She and I didn't even discuss it -- I wrote down on the intake form that I drank "socially" and that the MOST I ever have is 3 drinks per WEEK! I suppose this doesn't make a whole lot of difference, but again I don't like that people will think I'm a heavy drinker, and that I'm "protesting too much" (revealing a "drinking problem" by my strenuous "denial"!!!) by asking to have it corrected! I'm also concerned that it's bad data, in case my records are "de-identified" for use in some kind of study about the risks of drinking. Or if it is seen by my insurance company... Dx 3/9/2007, IDC, <1cm, Stage I, Grade 2, 0/5 nodes, ER+/PR+, HER2- |
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ginger2345 Joined: Jul 2005 Posts: 1176 |
Jun 10, 2008 07:58 pm
ginger2345 wrote:
Under HIPAA, you have the right to request a correction to your medical record. The facility should have a form to fill out. They surely will correct any factual mistakes. Ginger
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