hi everybody-i've been on this sight for a few weeks, but haven't been on this thread before. i was diagnosed in dec '07 with idc stage 1 and dcis stage 0. i had a bilateral mastectomy followed by chemo. i had reconstruction on one side and because of infection, am awaiting it on the other side.
dianne
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drw Joined: Feb 2008 Posts: 2031 |
Mar 12, 2008 12:14 pm
drw wrote:
hi again-i meant december '06. |
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jpann39 Joined: Dec 2006 Posts: 2657 |
Mar 12, 2008 12:18 pm
jpann39 wrote:
Hi Dianne Welcome to the IDC thread....its a wonderful place to talk with others that have similar dx and treatment plans.... Hugs Jule If you think you cant do something, its a sure thing you CAN!!!!!
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drw Joined: Feb 2008 Posts: 2031 |
Mar 12, 2008 12:31 pm
drw wrote:
thanks jule!
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jpann39 Joined: Dec 2006 Posts: 2657 |
Mar 12, 2008 12:33 pm
jpann39 wrote:
Your very welcome Dianne I hope things are going well for you... Jule If you think you cant do something, its a sure thing you CAN!!!!!
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RIV54 Joined: Apr 2007 Posts: 240 |
Mar 12, 2008 12:34 pm
RIV54 wrote:
Hi, Dianne, welcome. When did you have your reconstruction? What type did you have? I have a tissue expander and am scheduled for my transfer March 19. Gina
Dx 3/9/2007, IDC, 1cm, Stage IIIa, 6/25 nodes, ER+/PR-, HER2- |
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Sige Joined: Apr 2006 Posts: 2030 |
Mar 12, 2008 12:56 pm
Sige wrote:
Hi Dianne- Welcome to the site. I had IDC but only required a partial mast & radiation. Sorry you have to be here and sorry about the infection - I got one too. Like we need something ELSE besides bc. Hope you are feeling well otherwise. Hugs Peggy Sorry...my karma ran over your dogma.
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drw Joined: Feb 2008 Posts: 2031 |
Mar 12, 2008 01:00 pm
drw wrote:
hi gina-
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drw Joined: Feb 2008 Posts: 2031 |
Mar 12, 2008 01:02 pm
drw wrote:
thanks peggy! |
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NaughtybyNa
Joined: Oct 2003 Posts: 620 |
Mar 12, 2008 01:55 pm
NaughtybyNature wrote:
Hi Dianne: I also had IDC; I had a fine needle biopsy, followed by removal of the tumor under local anesthesia (the proper term fails me right now, sorry), and than a lumpectomy to make sure that they got all the margins cleared. Had 10 lymph nodes removed, all negative. I had four rounds of chemotherapy, 33 rounds of radiation and do not take any aftermath meds. because... I guess I really don't know why... may be the fact that I was negative for the hormones levels. This will be my 5th year as a survivor, and I now follow my BC "adventure" w/ a yearly mammogram/ultra sound b/c my breast tissue is very dense; a mammogram alone w/ not unveil everything that needs to be unveiled. I have now several cysts on my "orange", the good boob, and two on my "lemon" the "bad" boob. I also had the Gene test done; just to make sure (to a degree) that I will not pass it to my daughter. I am the first one in my family w/ BC, but there have been other types of cancer on my side of the family and also on my daugther's side of "that" family. Looking forward to meet you. Class of 9/5/2003 - " If knowledge is power, I prefer ignorance’s bliss!"
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drw Joined: Feb 2008 Posts: 2031 |
Mar 12, 2008 02:34 pm
drw wrote:
lilia-
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dancer51 Joined: Feb 2008 Posts: 34 |
Mar 12, 2008 02:59 pm
dancer51 wrote:
Hi Diane, I was diagnosed with IDC and had a bilateral with node resectioning and expanders put in. After my first chemo tx I ended up back in surgery to have fluid drained, a culture done, and the right chest area irrigated. All this delayed my second tx. All is well now. Chemo is scheduled for this Mon. I wish you the best. Dx 10/21/2007, IDC, 6cm+, Stage IIIb, Grade 3, 4/8 nodes, ER-/PR-, HER2- |
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drw Joined: Feb 2008 Posts: 2031 |
Mar 12, 2008 03:27 pm
drw wrote:
dancer51-
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NaughtybyNa
Joined: Oct 2003 Posts: 620 |
Mar 12, 2008 04:20 pm
NaughtybyNature wrote:
Dianne: go to the "Put a face to the name" thread under the Moving Beyond Forum... I am there... LOL As a "cocktail", I was given Adriamycin and Cytoxan and that is due to Cytoxan that I lost all, ALL, my hair, but my arm's hair (?). Class of 9/5/2003 - " If knowledge is power, I prefer ignorance’s bliss!"
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RIV54 Joined: Apr 2007 Posts: 240 |
Mar 12, 2008 09:03 pm
RIV54 wrote:
Dianne, sorry you had such an ordeal. Things seem to be looking up though. Continued success. Good luck. Gina
Dx 3/9/2007, IDC, 1cm, Stage IIIa, 6/25 nodes, ER+/PR-, HER2- |
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drw Joined: Feb 2008 Posts: 2031 |
May 3, 2008 05:49 pm
drw wrote:
hi everybody-just wanted to let u know that after many trials and tribulations, i finally had my left implant put in yesterday. now i have a matching set!
Dx 1/3/2007, IDC, 1cm, Stage I, Grade 2, 0/16 nodes, ER+/PR+, HER2- |
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swimangel72
Joined: Feb 2008 Posts: 470 |
May 3, 2008 05:52 pm
swimangel72 wrote:
Great news Dianne - I hope you're feeling OK and that you have nothing but bright and healthy days ahead of you! 3/3/08 Right-side mastectomy with immediate Diep
Dx 2/5/2008, IDC, <1cm, Stage I, Grade 1, 0/7 nodes, ER+/PR+, HER2+ |
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drw Joined: Feb 2008 Posts: 2031 |
May 3, 2008 08:53 pm
drw wrote:
thanks swimangel! where in ny are u from? i am from queens originally and as an adult lived on the upper west side of manhattan for many years.
Dx 1/3/2007, IDC, 1cm, Stage I, Grade 2, 0/16 nodes, ER+/PR+, HER2- |
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Mariedoll Joined: May 2008 Posts: 5 |
May 14, 2008 01:19 pm
Mariedoll wrote:
Hello, This is my first time on this tread and just found the website last night. I hope I am writing in the correct place as I have never done this before. I, too, have IDC. I was diagnosed March 6, 2008, had a lumpectomy on March 31 the tumor was 3 cm, second surgery to clear margins on April 14th, had mammosite radiation for five days and now must decide to have chemo or not. I am hormone receptor positive and had the oncotype DX test, I have a reoccurance score of 15 which put me in the low risk range for chemo. I need HELP!! My onc suggested chemo, but the differential is only 3% and they aren't sure chemo will help or not. I must make a decision this week. Please, is there anyone that can help me in this hard decision since both onc I saw said it is up to me as to what to do and they can't advice me do to the small percentage. PLEASE HELP Mariedoll |
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swimangel72
Joined: Feb 2008 Posts: 470 |
May 14, 2008 02:33 pm, edited May 14, 2008 07:20 PM
by swimangel72
swimangel72 wrote:
Hi Marie - you might get more responses to your question if you create your own brand-new thread. I'm so sorry you have to be in the "gray-area" with the Oncotype DX.....a score of 15 is considered low, but you might want to get a second opinion from a different oncologist because your tumor size is large. My tumor size was small....but my Oncotype DX score was intermediate at 22. It's strange, but the size of the tumor doesn't play as big a role as it used to it seems. The fact that my tumor was Her2+ played an important role in the decision to get chemo. Did you get a Fish test on your tumor - also are you ER/PR positive? All this information would have been sent to the company that did your Oncotype scoring......ultimately, a second opinion will give you much peace of mind (in some cases, a THIRD opinion is even required!) Good luck Marie and again I'm sorry you have to go through all this! 3/3/08 Right-side mastectomy with immediate Diep
Dx 2/5/2008, IDC, <1cm, Stage I, Grade 1, 0/7 nodes, ER+/PR+, HER2+ |
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lilwebb Joined: Apr 2008 Posts: 8 |
May 14, 2008 02:41 pm
lilwebb wrote:
Hi Mariedoll, I don't post often, but will today because I was in your shoes not too long ago. Unfortunately my onco score was 23, and my onc. strongly suggested I do the chemo. I started last Friday, May 9th. All went ok and I felt fine till Sunday night. Then I entered 2 1/2 days of hell. Sorry, but although many people may say its doable, prepare for the worst. These last couple days have been horrible. I just started feeling well enough to sit at the comp.and post. I hate to be a downer, I am normally very upbeat, but this knocked me down for the count. I had thought I would be able to get up and feel well enough to go to work today, but was unable. About 2pm the fog lifted, and I am feeling somewhat alive again. I can't believe I have to go though it 3 more times. I am 42 and have 3 young kids, this is why I have decided to get chemo. I hopefully will be able to look back and feel as if it was all worth it someday. I doubt I would have done chemo with a score of 15, but many here have. Good luck with your decision. Many prayers, Kim Dx 3/10/2008, IDC, 1cm, Stage I, Grade 3, 0/1 nodes, ER+/PR+ |
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