I just got my pathology report - IDC primary tumor was 9 mm, second tumor was DCIS, Grade 3, sntinel node was negative BUT the mastecomy results found an intramammary lymph node that was positive for metastatic cells. They staged me at stage 2 because of the intramammary node- other than that they said it would have been stage 1. Surgeon seemed optimistic that the mastectomy probably got it all but they are recommending chemo as a safeguard because of the high grade and the intramammary node. He said 25-50 % find an intramammary node but usually when the node is positive, the sentinel node is also positive- so Im a little unusual to have a positive intramammary node and a negative sentinel node.
Any one similar or have thoughts? I will be meeting with the oncologist soon and I really dont know how soon chemo will start. I was diagnosed 3/18/2008 and surgery was 3/27/2008- left mastectomy with SNB and delayed reconstruction.
Kristy
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jerseymaria
Joined: Nov 2007 Posts: 283 |
Apr 2, 2008 07:14 pm
jerseymaria wrote:
hi kristy. i'm really sorry that your path came back positive. my mast was 2 years ago and i had to wait 4 weeks before starting chemo to recover from the surgery. i did however have more surgery to put the port in the day before the 1st chemo. wouldn't do that again. i get somewhat sick from the general and then ac the next day wasn't a good combo. the onc will fill you in on when to start although it was my bs that said 1 month. Dx 2/27/2006, 3cm, Stage IIIb, Grade 3, 9/27 nodes, mets, ER-/PR-, HER2+ |
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maryannecb Joined: Nov 2005 Posts: 2320 |
Apr 2, 2008 07:21 pm
maryannecb wrote:
Hi KristyAnn, the surgery is now behind you. focus your thoughts on healing and prparing for chemo. Think of the chemo as your helper in this and you may be able to look forward to it, kind of... The chemo will be over before you know it, really. Fists up!
Dx 9/20/2005, IDC, 6cm+, Stage IIIa, Grade 2, 2/14 nodes, ER-/PR-, HER2+ |
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amberyba Joined: Mar 2008 Posts: 275 |
Apr 19, 2008 06:08 pm
amberyba wrote:
Kristy Ann, it is confusing, I had lumpectomy for idc and sentinel nodes were negative...makes one wonder if you don't have a mastectomy and check for intramammary nodes something may go unnoticed. It may be a blessing in disguise. where were your primary tumors located? I have just healed from my partial mastectomy done at the first of March, I believe healing is beneficial before treatment begins, This gives you a chance to strengthen your body. May the Lord bless and Keep you! Lord be with KristyAnn through all her treatments, put special people in her path to encourage her. give her doctors wisdom. In Jesus Name, Amen Romans 8:37-39 No, in all these things we are more than conquerors through him who loved us. For I am convinced that neither death nor life, neither angels nor demons,[m] neither the present nor the future, nor any powers, neither height nor depth, nor anything else in all creation, will be able to separate us from the love of God that is in Christ Jesus our Lord. Have a blessed weekend In Jesus Love, Amber Amber Almond
Dx 2/2008, IDC, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+, HER2- |
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Mar04 Joined: May 2008 Posts: 10 |
May 11, 2008 08:03 pm
Mar04 wrote:
I had my lumpectomy and sentinal node biopsy on Apr 28 and just found out that my margins were clear and the two lymph nodes removed were negative. But there was an intramammary lymph node found with the tumor. So, now what? Even the docs were confused as this is not a common occurance. They basically are telling me not to have more lymph nodes removed since the 2 were negative. They are not recommending a mastectomy though I wonder if I should have one. They are recommending a stronger chemo treatment than they originally planned ( I am triple negative ). Does anyone have any other info on a postive intramammy lymph node with negative regular lymph nodes? Thanks! |
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TenderIsOur
Joined: May 2007 Posts: 3157 |
May 11, 2008 08:39 pm, edited May 12, 2008 05:38 PM
by TenderIsOurMight
TenderIsOurMight wrote:
This Post was deleted by TenderIsOurMight.
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twink Joined: Feb 2007 Posts: 1586 |
May 11, 2008 09:04 pm, edited May 11, 2008 09:05 PM
by twink
twink wrote:
In my case, two sentinel nodes showed positive for micromets. Another one did too. This third node wasn't a sentinel node but was harvested in the process. I've often wondered whether this node was technically an 'intramammary node'. I went on to a full axillary node dissection (all 14 negative) and adjuvant chemo (4 carboplatin). I'm seven months out of chemo and often hopeful that I'll be okay. If you can't be kind, have the decency to be vague.
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Mar04 Joined: May 2008 Posts: 10 |
May 11, 2008 09:09 pm
Mar04 wrote:
Thank you ladies.... Can you tell me what you mean when you say intramammary node radiation? Is that different that total breast radiation that I will have when chemo is finished? |
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twink Joined: Feb 2007 Posts: 1586 |
May 11, 2008 09:11 pm
twink wrote:
I think it's the same thing Mar. I had full breast radiation (28 of 'em) and 8 boost to the tumor bed. If you can't be kind, have the decency to be vague.
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MAMHOP Joined: Aug 2007 Posts: 633 |
May 12, 2008 08:19 am
MAMHOP wrote:
Twink -- I would think that your third node which was not a sentinel node is NOT an intramammary node -- I believe they are located in a different place - not in the armpit area. M. |
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BethNY Joined: Nov 2004 Posts: 4029 |
May 12, 2008 04:25 pm
BethNY wrote:
Kristy I had a positive intramammary lymph node. On my original Ultra sound, they thought there was another mass on top of the palpable tumor. During surgery, it turns out is was a ILN that was cancerous. My sentinal node had micromets of .15 (it would've had to be a 2.0) to be considered a positive node. I was treated like you- as stage two cancer, grade three weakly ER +, her2+++. I did dose dense chemp- 4 ac followed by 4 Taxol-- then I had reconstruction, and then I went on to do a year of herceptin. I am approaching my 4 years anniversary this summer. I don't think you should get overly concerned about the ILN. You got clear margins with surgery, and now are on to the next phase of your tx. What's your next step? I told you I only play to win....
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mbpetit Joined: Feb 2008 Posts: 53 |
May 12, 2008 05:43 pm
mbpetit wrote:
To BethNY--- I noticed your diagnosis seems similiar to mine. It is great to see someone closing in on 4 years. I just had my 2nd Herceptin tx after DD AC (4) and Taxol(4). I had mast. w/ SNB that originally came back clear...then oops...final pathology revealed 1mm of cancer in one of the two nodes removed, so I am going in on Friday for AND to remove more nodes...pray they are clear!! I am 38, married with a 5 year old little girl...so it is great to see you approaching your 4 year anniversary...congrats! You are an inspiration to all of us just starting this process. Dx 11/14/2007, IDC, 2cm, Stage IIa, Grade 3, 1/2 nodes, ER+/PR+, HER2+ |
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TenderIsOur
Joined: May 2007 Posts: 3157 |
May 12, 2008 05:52 pm
TenderIsOurMight wrote:
KristyAnn,
It cannot be emphasized too strongly that treatment of each patient is a highly individualized matter. (FDA-approved labeling for warfarin (Coumadin) NDA 9-218/5-105)
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BethNY Joined: Nov 2004 Posts: 4029 |
May 12, 2008 05:56 pm
BethNY wrote:
mbpetit, I have a feeling you'll have a great outcome from surgery. It's highly unlikely after chemo to have positive nodes. Remember to read up about Lymphedema so you can take precautions with your arm now that you're having more nodes removed. Also, once taxol is over, and you're only doing herceptin alone, life will be much easier-- especially if you're on the three week regimen. I felt that after herceptin my hair grew twice as fast!! I rarely come to this part of the boards, and only did so b/c I saw this particular thread-- Pretty soon you'll be done with the active treatment part of this mess, and you can come join us on the moving beyond forum. Cancer really is such an awe inspiring journey. With every passing year I definitely feel so much different then where I was the year before. It does get easier, and you do get the chance to reclaim your life. If you ever need anything feel free to drop me a PM-- Keep fighting the good fight-- you're sooooo close to the finish line. I told you I only play to win....
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KristyAnn Joined: Mar 2008 Posts: 130 |
Jun 25, 2008 10:26 am
KristyAnn wrote:
I have TCH number 4 (out of 6 total) tomorrow so I am making progress. I will ask in 3 weeks when my onc returns (she is on vacation today) about rads- there was some uncertainty whether I would have radiation since my SNB was negative BUT I declined to have the axillary dissection. My onc and surgeon disagreed on the ALD and I got a third opinion who felt that my biggest risk was not the axillary nodes but that cells had escaped the breast and felt that chemo ASAP was the best way to reduce my risk- so I went with that opinion (it matched the surgeon) - its just such a scary situation when two highly qualified doctors cant agree and leave me to make the final decision! Kristy Dx 3/18/2008, IDC, <1cm, Grade 3, 0/1 nodes, ER-/PR-, HER2+ |
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