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Topic: Did Hair Come Back Better or Worse?

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Joined: Jan 2005
Posts: 666
  • Posted on: Nov 12, 2007 03:11 pm, edited Nov 12, 2007 03:11 PM by shorbr
shorbr wrote:

My hair took no time to grow back once my last chemo treatment was done, but the texture is awful. It is mushy, and even after relaxing my hair, I find that I have to relax at least every 3 weeks. I also keep it short like I did in the past. I try not to complain about my hair because I remember when I had noneCry, but this new texture is getting on my nerves.

How about you ladies?


Dx 8/31/2004, IDC, 1cm, Stage I, Grade 3, 0/1 nodes, ER+/PR+, HER2-

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fd411
Joined: May 2006
Posts: 1246
Nov 12, 2007 06:10 pm, edited Nov 18, 2007 09:28 AM by fd411 fd411 wrote:

I normally have coarse hair. When it started growing back, it was like curly baby hair. There was no need to relax it or anything. It was nice and low maintenance short and curly like that. But after a few months of growing in, the normal coarse texture of my hair returned. I kept it short, because it was hard to comb when it started getting longer, and I wanted to stay away from the relaxer. Now I'm in treatment again and it's falling out so I'm curious how it will come back again.

Felicia
Joined: Nov 2004
Posts: 1885
Nov 12, 2007 07:39 pm Felicia wrote:

I didn't have chemo, but I remember that my mom's hair grew back really fine and curly. She also didn't need to relax it for a while, but it also went back to its regular texture after a few months and then got even more coarse. She had to relax it more often, too.

Karate Girl Kiai!
shorbr
Joined: Jan 2005
Posts: 666
Nov 13, 2007 08:41 am shorbr wrote:

Before chemo I had "nice" hair sometimes helped with a relaxer, but NOW, it is awful. When it grew back it came in fine and straight, like it was when I was a little girl, but its just that I find that I need relaxer more often now.


Dx 8/31/2004, IDC, 1cm, Stage I, Grade 3, 0/1 nodes, ER+/PR+, HER2-
happy2bme
Joined: Apr 2006
Posts: 217
Nov 14, 2007 04:08 pm happy2bme wrote:

My hair took forever to grow back. When it did it was fine and straight  like babies hair for a few months and now it is like a jheri curl. I do not need to perm it but I am limited to how I can wear it because it is so curly and fine. I always had hair that did not really need perming but had thicker longer hair. I am not complaining I was bald for very long and am happy for what I have but (here's the but) it has been over a year and my hair is still short and not growing? Any tips? Benita p.s. I miss going to the salon  

"God so LOVED the world", "the greatest of these is LOVE" Blessed to have love Benita,Danielle and Liam
shorbr
Joined: Jan 2005
Posts: 666
Nov 15, 2007 09:22 am shorbr wrote:

I went to salon last nite. Never had a problem growing hair, but this texture sucks. My hair looks like a big old "wig". Let me stop complaining. I'm letting it grow out for a while because I am getting a "cap" called  wet and wavy. I am going on a cruise in the beginning of January and this will be a new look for me. Personally, I hate weaves, extensions, but I am gonna try this because my stylist thinks I need a change. I trust her and will let her do her thing. Kinda scared, but I will do it. Besides, no one from home will see me with this new hair, except the people who are traveling with me. Always had long hair, but it was very thin, and long hair does not look good on me. I believe I look better with shorter hair.


Dx 8/31/2004, IDC, 1cm, Stage I, Grade 3, 0/1 nodes, ER+/PR+, HER2-
Felicia
Joined: Nov 2004
Posts: 1885
Nov 15, 2007 09:34 am, edited Nov 15, 2007 09:35 AM by Felicia Felicia wrote:

We've always have had a "thing" about our hair, but it's funny how cancer changes even that. Sigh...

I didn't have chemo and had been growing my hair back to one length after years of short, tapered cuts when I got my dx. I felt sooo fortunate to have dodged the chemo bullet, but when I got tired of having to do my do as it grew (especially with the athletics - what a pain! How many ponytails can you wear?!?), I was too afraid to cut it in case the cancer came back and I did have to have chemo. Being 6'2" and thin, I've gotten more than my share of "Can I help you, SIR?" when peole approach me from behind and I'm wearing a cap and sweats. I was too afraid of having to deal with that again - especially having no breasts - that I've kept the hair past its shelf life. It was like having cancer put me right back in junior high with all the body issue drama...

But I interviewed a woman last week who had a BEAUTIFUL cut and I thought about letting the scissors fly again. I hear you about time for change!

Karate Girl Kiai!
CurlyKatFL
Joined: Apr 2004
Posts: 206
Nov 15, 2007 11:16 am CurlyKatFL wrote:

My hair came back fine and a lot straighter. I used to braid my hair a lot and now it won't even stay in braids. I definitely don't need to relax it anymore. It's been this way for 18 months so I am not sure if it is going to change.


Dx 4/23/2004, IDC, 3cm, Stage IIIb, Grade 3, 1/13 nodes, ER+/PR+
shorbr
Joined: Jan 2005
Posts: 666
Nov 15, 2007 11:58 am shorbr wrote:

Good for you Curly...no more relaxers. Relaxing my hair was something I did as a young woman, it wasn't necessary, but everyone else was doing it. I really do try not to complain about HAIR, and I remember promising to myself that I would never complain about having a bad hair day. How quickly I forgot :)


Dx 8/31/2004, IDC, 1cm, Stage I, Grade 3, 0/1 nodes, ER+/PR+, HER2-
sparker38
Joined: Nov 2007
Posts: 130
Nov 16, 2007 07:53 pm sparker38 wrote:

Hi,  I haven't started chemo yet but as far as hair.  Dealing with polycystic ovarian disorder I am hopeing that the hair does go and never come back.  Not on my head though.  I am and always have been very hairy all over.  I even hate to say it but I have facial hair.  It is very embarrasing but theres nothing I can do about it.  My dr. wouldn't take my ovaries when I had a partial hysterectomy because I was too young.  My hair grows very fast.  So I am hoping that if it does come out of my head it will grow back fast.  The rest can stay away.  I am tired of having to mow every few days...lol...The sad part is that my daugher bless her heart has inherited her mothers genes and is already dealing with facial hair at 15yrs old.  She is so self conscience about her self but she is strong and smart...(she gets it from her moma)...She is hangin in there with me.

Well be blessed

sabrina


Dx 10/8/2007, 2cm, Stage IIb, 3/24 nodes, HER2+
pnut2
Joined: Jun 2007
Posts: 86
Nov 16, 2007 08:11 pm pnut2 wrote:

when i was diaganosed with ca i had 12 weeks of chemo. my hair grew back wild. the back was straight, left side was coarse, the right side was curly, and front was a mixture. after my bilateral, i had to go back for four treatments of chemo,my hair fell out again. i am now bald. i am wearliy waiting to see what texure my hair will be!!! strangiest thing; my eybrows didnt fall out this time around. has anyone seen robin roberts bald? i saw a clip of her when her hair was being shaved off.

neva4
Joined: Aug 2007
Posts: 16
Nov 30, 2007 08:13 pm neva4 wrote:

My hair came back soft very thick and curly also white.

I had it cut after a month because it was so thick and curly,people were saying I looked like a black version fo Little orphen Annie.

It's been almost 6weeks and my hair has grown back already with all the curl's and thickness.I' not complaining and won't cut it this time because I have to go back on Chemo.

I'm stage IV with mets to the bone and they just found a mass in my lower left lobe.I was on Femra for the last 9 months.

Glad to have found this site like all the resy will be visting often. 

 I also get a lot of good comments about the whitness of my hair with my skin color/

lLinda
Joined: Dec 2007
Posts: 124
Dec 10, 2007 08:35 pm, edited Dec 10, 2007 08:37 PM by lLinda lLinda wrote:

MY HAIR CAME OUT THE 1ST TIME WITH THE ADRAMYCIN AND ALL IN 1999.  THIS MARCH OF 2007 I HAD TAXOTERE AND MY HAIR CAME OUT AND GREW BACK IN SOFT SILVER GRAY, AND I ALWAYS TINT MY HAIR DARK, AS IT LOOKS SO THIN, IN OCT. AFTER STARTING NAVELBINE  AND TYKERB(AND MY HAIR HAD JUST GROWN IN FROM MARCH) AND A BAD DIP IN WHITE BLOOD COUNTS TO 1.O, MY HAIR CAME OUT AGAIN---WELL, IT IS GROWING IN, BLACK--HAS ANYONE HEARD OF SUCH--I AM NOT MAD AT IT--JUST DID NOT EXPECT THIS, AND NEITHER HAS MY BEAUTICIAN--WE THINK DUE TO THE CHEMO, ANY ANSWERS OR THE LIKES??!!  I AM 60 YEARS OLD, SO THE GRAY GROWING IN WAS APPROPIATE.

LINDA C

LLINDA C
Dx DCIS, 1cm, Stage IIIa, 6/ nodes, ER-/PR-, HER2+
MRSSALLY54
Joined: Dec 2007
Posts: 3
Dec 29, 2007 11:32 pm MRSSALLY54 wrote:

MY HAIR CAME BACK LIKE IT WAS WHENE I WAS A CHILD ITS IS SO SOFT NOW AFTER A WHILE IT STARTED COMING OUT ON THE SIDES AND IN THE TOP OF MY HEAD ANY BODY HAVE ANY IDEAL WHAT TO DO

Lee27
Joined: May 2007
Posts: 58
Dec 29, 2007 11:33 pm, edited Dec 29, 2007 11:35 PM by Lee27 Lee27 wrote:

Sparker...your name sounds real familiar to me.  I've only found this site recently.  I THINK you are from the Chicago area. Correct me if I have the wrong person.  I am really glad to find this site...I know it is important to find other sisters out here going down the same journey.   My hair is starting to come in.  It is really short, but soft as as a babies.  I thought this day would never come for me.

MRSSALLY54
Joined: Dec 2007
Posts: 3
Dec 29, 2007 11:40 pm, edited Dec 29, 2007 11:43 PM by MRSSALLY54 MRSSALLY54 wrote:
This Post was deleted by MRSSALLY54.
MRSSALLY54
Joined: Dec 2007
Posts: 3
Dec 29, 2007 11:46 pm MRSSALLY54 wrote:

im in the same boat as a lot of you i dont want to go bald again i hated it so bad i cried all the time i didnt even go back to work i was gust to depress to go back every body said they understand but how can they if they havent been through this i am glad i found this site

Lee27
Joined: May 2007
Posts: 58
Dec 30, 2007 12:21 am Lee27 wrote:

Hi Sally. I am just growing my hair back. I continue to wear a wig.  Many think it is my real hair cut.  Fooled a lot of people I guess.  I wear scarfs at home, or my cotton pink skull cancer caps for comfort.  Hang in there.  It will be ok.


Dx 5/18/2007, IDC, 3cm, Stage II, Grade 3, 5/19 nodes, mets, HER2-
sparker38
Joined: Nov 2007
Posts: 130
Jan 3, 2008 10:25 am sparker38 wrote:

Hello all.  Happy New Year.

Hi Lee yes I am from Illinois.  About an hour in a half from Chicago.

A week after my second chemo my hair started coming out.  I was finally at the point of sporting a mo-hawk before I got up the nerve to finally shave all of it off with the help of my 12 year old son.  He wouldn't leave my side as I sat on the side of my bed and stared at my missing breast and my missing hair.  I think he was thinking I was going to freak out.  But for some reason I felt this overwhelming peace.  My daughter was not home at the time but when she came in and saw me she got angry.  She first said that she didn't see why I had to cut the rest off I should have waited longer, she didn't like how I looked, and she just kept stareing at me.  She finally appologized and said it wasn't her but the fear of what I am going through that scares her.  She is 15 going on 35.  My best girl friend.  She is used to it now.  I have never been one to wear weave or wigs so I went out to purchase my first wig.  I think it is cute but she doesn't like it.  I feel real uncomfortable wearing it so I don't.  I like wearing my hats.  Something I never did before either.  During the holidays I had a lot of company and I would just watch the reactions of people seeing me bald and it didn't bother me.  So after wearing long thick hair for 38 years I think the short hair look is the way I am going to go when it starts to come back.  I had the Mya Angelou look with the silver patch in the front.  I hope it comes back.  The only thing I hate is that the hair on my legs and arms are not going anywhere.  Thank God its winter so I don't have to shave my legs.  Ha ha.  Question?  Has anyone ever had a problem with pulling out hairs?  I think it's a OCD- nervous problem.  I pull out my eyelashes, eyebrows and hair on my head.  Have done it for years.  If anyone knows anything about this please let me know.

Take care all

sabrina


Dx 10/8/2007, 2cm, Stage IIb, 3/24 nodes, HER2+
mibriggs
Joined: Mar 2006
Posts: 329
Jan 12, 2008 04:02 pm mibriggs wrote:

Well now I have one big ole 70's fro... and loving it. LOL!

lLinda
Joined: Dec 2007
Posts: 124
Jan 13, 2008 08:11 pm lLinda wrote:

HELLO SABRINA,

YOUR SITUATION CAUGHT MY EYE AND HEART.  PLEASE TALK TO YOUR DRS. SO THEY CAN SEND YOU TO THE RIGHT PERSON, AS FAR AS YOUR URGE TO PULL OUT YOUR HAIR.  THERE IS A NAME FOR THIS, IT IS AN ILLNESS AND THERE ARE MEDS OUT THERE TO HELP AGAINST THIS URGE,AS IT IS A FORM OF HARM TO ONESELF, ALSO COUNSELING TO HELP TO.  YOU DO NOT HAVE TO LIVE WITH THIS--IT MAY TAKE SOME TIME, BUT YOU CAN GET THROUGH THIS--THE CANCER MAY YET BE ANOTHER STRESS AND CERTAINLY SO--TAKE CARE OF YOU--I HOPE YOU HEAR YOU POST SOON.

LINDA C

LINDA C
Dx DCIS, 1cm, Stage IIIa, 6/ nodes, ER-/PR-, HER2+
Deborahann
Joined: Jan 2006
Posts: 92
Jan 17, 2008 07:30 pm Deborahann wrote: I have a "modified version" of a 70s fro.  I simply add headbands to my hair to mix it up a bit.  I will never, never, add chemicals or dye my hair again....I love it just the way it isCool
Eat well, laugh often, and love always, DeborahAnn
eag011
Joined: Jan 2007
Posts: 6
Jan 18, 2008 08:20 am eag011 wrote:

Before bc I wore locs and had taken them out before diagnosis.  I've gone from past the shoulders natural hair to natural hair that has a completely different texture and seems to only have grown at a snails pace since my tx ended September 06.  Still, I am so thankful because after bc I hate wigs!!  :)

mibriggs
Joined: Mar 2006
Posts: 329
Jan 18, 2008 05:53 pm mibriggs wrote:

Deborah... I love your pic!  I did the head band thing too and sometimes I cainrowe the front (where the band would go) just to take away some of the volume lol!

Stay beautiful.

Mel

xox

lLinda
Joined: Dec 2007
Posts: 124
Jan 19, 2008 03:21 am, edited Jan 26, 2008 05:14 AM by lLinda lLinda wrote:
This Post was deleted by lLinda.
lLinda
Joined: Dec 2007
Posts: 124
Jan 19, 2008 03:22 am, edited Jan 19, 2008 03:25 AM by lLinda lLinda wrote:

HI SALLY,

EACH TIME MY HAIR HAS COME OUT AFTER CHEMO I HAVE HAD GOOD LUCK WITH ORGANIC ROOT STIMULATOR PRODUCTS--THE CARROT CREAM AND THE TEMPLE BALM FOR THE EDGES AND TEMPLES. THEY HAVE THERE OWN SHAMPOO. THERE IS HAIR MAYONNAISE--TREATMENT FOR DAMAGED HAIR--IT CAN BE BOUGHT AT MOST HAIR SUPPLY STORES AND WALGREEN STORES--A LIL PRICEY BUT WORTH IT.  HOPE IT HELPS-- WOULD LIKE TO HEAR FROM YOU SOON

GOOD LUCK

LINDA C

LINDA C
Dx DCIS, 1cm, Stage IIIa, 6/ nodes, ER-/PR-, HER2+
lLinda
Joined: Dec 2007
Posts: 124
Jan 19, 2008 03:36 am lLinda wrote:

HELLO SHORBR

DID YOU HAPPEN TO TAKE NAVELBINE AS A CHEMO AT ANY TIME---IT REALLY CHANGES HAIR----MY HAIR IS OF A FINE THIN GRADE--AND NOT A GOOD GRADE OF HAIR--I WEAR A CURL---THAT LOOKS LIKE A PERM TO KEEP IT HEALTHY(WHEN I HAVE SOME)BUT THE NAVELBINE HAD MY HAIR LOOKING SOFT AND ALMOST STRAIGHT AND 2 MONTHS OFF--I GET BACK "LINDA HAIR"---THAT IS THE GOOD THING ABOUT NAVELBINE--I KNEW MY HAIR WOULD BE PRETTY, I WEAR IT SHORT AND THE CUTS WERE SO CUTE--CANT WAIT TILL IT GROWS IN SOME MORE

BEST OF LUCK TO YOU

LINDA C

LINDA C
Dx DCIS, 1cm, Stage IIIa, 6/ nodes, ER-/PR-, HER2+
kmh2007
Joined: Jan 2008
Posts: 5
Jan 23, 2008 09:30 pm kmh2007 wrote:

Can anyone recommend a good shampoo? I have been using baby shampoo since it was gentle on my scalp.  My hair was orginally long and thick and now its short and curly. any suggestions

Deborahann
Joined: Jan 2006
Posts: 92
Jan 31, 2008 07:48 pm Deborahann wrote:

I am also using the "organic root stimulator" products.  Although I must admit, I'm a little concerned about the "petrolatum"(a gelatinous mass obtained from petroleum) in the olive oil hair dressing.  I am trying to elimate all "petroleum" (a by product of hydrocarbons) from my beauty regimen.

I am considering using "Carol's daughter" products once I finish using what I have.  Has anyone tried her products?  If so, I would be interested in your opinion...Thank you, Deborah Ann

p.s. Thank you Mel for your comment, you are too kindCool

Eat well, laugh often, and love always, DeborahAnn
Dx 11/4/2004, IDC, 3cm, Stage IIa, Grade 3, 0/7 nodes, ER-/PR-, HER2-
Lee27
Joined: May 2007
Posts: 58
Apr 30, 2008 01:05 am, edited Apr 30, 2008 01:06 AM by Lee27 Lee27 wrote:

Hi Deberanne,

I have a one inch soft afro right now.  Feels great not to have a bald cold head anymore.  My back of my head is about a half inch longer.  I continue to wear a wig that people think is my own hair.  It has 3 different colors of dark brown that makes it look so real.  It is so much like my original style.  I often tug on it with laughter when people that know me say they love my hair cut.

Is there a time period that must past before one does put a perm in their hair that you know of? I want to wear a short curly style now that it is growing back, so plan to just roll it with small rollers when it gets longer. 


Dx 5/18/2007, IDC, 3cm, Stage II, Grade 3, 5/19 nodes, mets, HER2-
joykeeperor…
Joined: Aug 2007
Posts: 155
Apr 30, 2008 01:09 am joykeeperorg wrote:

My hair is is fine and curly it started growing in Jan. Hopefully it wont go back to what it was I love being able to wet it an go! Im so glad not to wear the wig no more cause those things are so hot an not to mention with the hot flashes!

Work at your own Salvations with fear and trembling Phil. 2:12 an Please visit www.joykeepers.org!
Dx 8/2/2007, 5cm, Stage IIIa, 4/34 nodes, ER-/PR-, HER2-

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