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What do you wish you had known when you (or your loved one) were first diagnosed?
Share words of wisdom, unique tips, self-care, and coping advice for our newbies here! It will make a difference for all those joining us this year. Thank you!
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How well do you feel your family understands your diagnosis?
Please take our poll and share your experiences below on navigating a breast cancer diagnosis at any stage with your family!
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Share your stories of online support friends here: From the forums or zoom meetups
Hi All, We'd love to hear about the supportive relationships that have formed at Breastcancer.org. Thank you All for sharing! 💜 Your Mods
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MBC Caregiving Partners Virtual Zoom Meetups every other Tues at 4pm, ET
Hi All, Reminding you that we offer a free caregivers meetup for partners of someone with MBC every other Tuesday. If you are a caregiver, or have a partner who you think could benefit, please share. We meet every other Tuesday at 4pm, ET. People need to register here to participate:…
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How to fill out your Profile to let others know more about you!
Our community is built on connections and shared experiences. So, we’re excited to announce we’ve made it easier for you to learn much more about each other with our NEW Member Profile! Filling out your profile benefits you and others by allowing registered members to compare your information with theirs and create a…
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In Treatment? Join us on Zoom, Tues & Thurs weekly!
Hi Everyone, We have created a weekly virtual support group for all who are planning or going through active treatment. If you've just been diagnosed and are planning surgery, chemo, or radiation, join our weekly Zoom Meetups. We have two meetings for you to register for: Register here: Tuesdays at 1:00 PM…
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2 Word Phrase
This game has the poster making a new 2 word phrase starting with the second word of the last post. Only Two Words! Example: Post : Hand out Next poster: Out cast Next poster: Cast Iron Next poster: Iron Age Now let's begin the game~ Age Old
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Pain Before Diagnosis
Hi everyone. I’m hoping you guys can give me some information or ideas. I have seen my ob and I have a diagnostic mammogram and ultrasound scheduled in 4 days. I’m wondering about the pain. It is my biggest symptom. The pain started out like I was cold. It wasn’t very painful, but my nipple hurt like I stepped into very…
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PET Scan
Hi I am wondering at what point will the oncologist order a PET scan. Is it mostly for patients with a high risk or symptoms of other issues? Or can I request one just to be sure that I am "all good"? Just anxious to see if I have or not have any other thing going on. I have a diagnostic mammogram and MRI coming up in…
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US CDC guidelines for Lung Cancer screening
In the US, CDC does have a guideline for lung screening. And for some reason, lung screening, is not as widely known as colorectal or breast screening. But nonetheless, the language on their site does not include those whom have had breast cancer or have gone thru breast cancer treatments under the "whom should be…
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Can we have a forum for "older" people with bc?
I am an "older" woman with breast cancer (I was diagnosed at 65 and am now 66). I notice that most of the posts seem to be from people younger than I am (often by quite a bit...). I'd love to "talk" with others my age, exchange info about their diagnoses, effects on their lives, etc. I see that there is a forum for young…
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Illinois ladies facing bc
I'm very curious about all the Illinois ladies who are making this breast cancer journey or who have finished it. Where are you located? What's your diagnosis? Where are you in your treatment plan? How's it going for you? I thought we might be surprised to find somebody right in our own back yard that could use some…
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Will 30% of Early Stage (1-IIIA) go on to metastasize??
So I started this question in another thread but was hoping for additional feedback. With MBC awareness day last weekend, a stat is going around that caught my attention. Basically says that 30% of early stage BC patients will eventually have their bc metastasize AFTER adjuvant treatment. Susan G. Komen even states it here…
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Anyone experienced numbness and tingling on one side of your body?
My bc diagnosis was in 2021 and I had a lumpectomy and lymph node biopsy 12/21, followed by radiation 3/22. I was 71 at the time. My diagnosis was pure mucinous, clear margins, no lymph node spread, grade 2, stage 1.About a month ago I experienced complete numbness of my right leg and foot from the groin down. It lasted…
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My Husband, My Life, My Love, My Family, My Cancer
As I go through this forced path I have been thrown down, I have come to realize the love I have always had for my husband was strong. He is amazing and I love him with my very soul and entire heart. Never would I ever imagine the thought of dying and him being alone. Then the worst part hit me!! I can't seem to shake the…
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De Novo Stage IV
I'm wondering if there is a topic just for de novo Stage IV. I'd like to know how people found out. Did you have symptoms that led you to the doctor for an answer? Was it found out of the blue when you had another issue and how was it found? Are there others like me who have never shown it in your breast but only where it…
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So...whats for dinner?
I thought it might be fun to start a thread on what we are having, making or had for dinner. Sometimes it is the best tuna steak you ever had, sometimes it's a can of soup. But we all do it every night in some form or another. Maybe we can give each other ideas on what to make, or bitch about what we had, or the fact that…
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Mucinous Carcinoma of the breast
On April 21st I had a core biopsy and today I was told that I have mucinous carcinoma of the breast. When I investigated on this website, the information given was that this is a rare type of cancer, about 2-3% of all breast cancers and usually occurs in post-menopausal women over the age of 60. I am neither. I am 51 years…
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foods to get in grocery store
Foods to buy in grocery store . I will start with one word and you continue with last letter in word I give... pomogranete
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4 Letter Word Game
Hi Ladies, It is time to add a four letter word game. I received an email of a forwarded scrabble game. The game started with a four letter word and kept changing by one letter. I like playing here much better. Get your 4 letter words ready. First word: Word
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Bone Mets Thread
I've started this thread after suggestions that it would be useful. Mod Note: We have removed the original link as it is no longer viable. At one of our member's' recommendation we are offering this link as a resource for you. https://youtu.be/YpFfLrITfEI
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Waiting on biopsy
Hi! Never thought I'd be here, but I guess that's the same for everyone. Long story short, I found a lump while in the shower a few weeks ago. Went to see PCP, referred for mammogram and ultrasound. Got back the report with a bi rads score of 5. Findings: Heterogeneously dense breasts. Upper Inner quadrant, 1 o'clock,…
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Fall/Winter 2023/2024 Radiation Thread
Gather here to share experiences, ask question, get encouragement, and support others who are going through radiation therapy along with you. Please share your diagnosis, any previous treatment you've had, and your scheduled start date along with your radiation schedule. We're all here for you!
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Winter/Spring 2024 Radiation Thread
Gather here to share experiences, ask questions, get encouragement, and support others who are going through radiation therapy along with you. Please share your diagnosis, any previous treatment you've had, and your scheduled start date along with your radiation schedule. We're all here for you!
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Implant reconstruction after radiation
I have a recurrence of DCIS in my right breast. In 2017 I had a lumpectomy and radiation. I now need to have a mastectomy and I’m hoping to have an implant reconstruction, rather than the DIEP flap. Most of the conversations I’ve found on the success of an implant reconstruction years after having radiation are pretty old.…
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FAST Foward radiation treatment schedule option
Hi, this is my first post. I’m also not sure if my dx signature/details automatically attaches to my post. But I’ll add those details if I need to. I’m in Canada. The radiation oncologist gave me the option of the Fast Forward dosing schedule of treatment. It’s not first in line protocol here yet because it hasn’t been…
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Primary endocrine resistance
hello. I was dx with stage IV de novo in July 2023. ER/PR+, Her2 - small Mets to pelvis Treatment was Letrozole with Ribociclib. First scan after 4 months showed reduction. Second scan 3 months later showed bone mets reduced but small spots on liver. Told I was primary endocrine resistant. Moved on to capacetabine. On…
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Lets Post our Daily Exercise
I'm doing the Firm Cardio Step mix and will walk the dog for a mile later today. Lorrie
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March/April 2024 Surgery Support Thread
Please gather here to get and give support. Feel free to share your type of surgery, date, and let us know how you're preparing and how you're doing post-surgery. We're all here for you!
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10 years after BC diagnosis, I have mets in lung which are BC
Hi All My oncologist called this morning to confirm that the node in my lung is indeed breast cancer, it took them a few days to figure out but they knew it wasn't lung cancer. I'm so shocked. I had stage I, HER2+ breast cancer diagnosed 10 years ago and had a lumpectomy, lymph node removal (which was clear for cancer),…
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Kisqali/ribociclib, Faslodex/fluvestrant & Xgeva combo - Anyone?
I've been on this combo since Nov 2019. Since all treatment combos seem to offer their own side effects and challenges, I'd like to hear from others taking these drugs. Especially your experiences, duration of success and how you deal with the fatigue, itchiness, etc that goes along with this treatment.
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STEAM ROOM FOR ANGER
This thread is meant to be for RANTS and RANTING. Then Rant again. We need a place to simply get rid of the anger. Write it here. Unleash it all. Get it out. This isn't meant for the Stupid comments(great thread). This is for the gut wrenching, tell them off anger. IMPORTANT: When done ranting don't necessarily stick…
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Ribociclib/Kisqali with Letrozole - Any one on this combo?
I am starting this new forum for all those who are on this newly approved drug combo. I started on Kisqali/Letrozole combo 6 weeks ago and so far it has been tolerable. Letrozole gives me joint pain and low back pain. My oncologist has asked me to take this on alternate days. Would love to hear from others about their…
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how about drinking?
Where did our thread go? Is anyone out there from our drinking group? Did I miss something - like we became too offesive or ...well, drunk? I would love to hear from you gals! Janie
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Zometa side effects
I will be having my first infusion of Zometa this week. Has anyone had any side effects from Zometa? I hope to be able to travel a few days after and to go to work the next day and wonder if this is a reasonable plan.
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How long have you been Stage IV?
We have a thread of what age you were diagnosed at Stage IV, so how about "How long have you lived with Stage IV". Also please state if you were Stage IV from the get go. I'm asking for this information in hoping to have MANY more years than the 2-3 I was given and to give hope to those newly diagnosed with Stage IV. 1…