Hormonal Therapy - Before, During, and After
Discussion List
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Life after finishing Tamoxifen
I was diagnosed with stage 1a breast cancer in 2018. Having lost my sister to the same disease at a young age, I chose to have a double mastectomy and went on a 5 year Tamoxifen regimen. I just came off tamoxifen in October after taking it for 4 1/2 years. Last gyno appointment showed endometrial thickening (benign,…
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Kisqali (ribociclib) and ILC
I am having results with Kisqali, anastrozole, and Zometa undergirded with lots of prayer. I have had debilitating bone pain in my back for over 2-years. Finally diagnosed with Advanced ILC 27 Sep 2022. I started anastrozole in Oct, Kisqali in November, and had a Zometa injection in December. Two days ago, I became aware…
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Cycling through side effects, worse when I miss a dose
Just marked my 4-year anniversary of starting Tamoxifen and hoping to be done in a year. Side effects have been generally tolerable, although I'm starting to feel like I've cycled through all of them. At various times I've had muscle and/or joint pain, gyno issues, fatigue, mood issues, and a general unwell feeling. But…
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Premenopausal Tamoxifen Users Need Advice
Hi All, Are there any premenopausal tamoxifien users who have had very thick uterine lining and there was no fibroids or cysts? I am looking for your experiences and treatment outcomes please! I am scheduled for D&C and Hysterscopy next week. I am really nervous! Thank you!!
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BCI questions
Hello, I am in year 4 of tamoxifen and have struggled the entire time. I have profound fatigue and just feel flat, as if someone took away my ability to feel joy. With that being said I recently tried a break and went on 10 mg to see if it would help. I felt the same on the 10 so I am back on the 20 mg. I spoke to my MO…
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arimidex and carpal tunnel
My wrists are SO jacked up! Arimidex has caused such pain w Carpal Tunnel... both hands are completely numb alternating with shooting pains. Has anyone else experienced this? And if you have, what treatment avenues have you pursued? Outcome? Thanks in advance
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anastrazol
i am 3 months out from my last kadcyla. just had bloodwork and all looks pretty good except alk phos and calcium slightly high. i have read anastrazol can cause this and have been taking since march. anyone else?
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How to discuss declining endocrine therapy with your oncologist
I have decided that given my priorities, the specifics of my cancer, and medical history, I have decided not to take tamoxifen. (I did try AI's and was a train wreck). Do any of you have advice on how to discuss refusing endocrine therapy with your oncologist in a productive way? She really has been great in every other…