Stage IV/Metastatic Breast Cancer ONLY
Discussion List
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Viability of biopsy
after a year and a half first on THP and then just HP I have partial progression- one of the lesions increased a lot in uptake, a few lymph nodes increased in uptake and a couple of new avid nodes popped up. The lesion is 1 cm in the upper lobe of the left lung. Lymph nodes are in the right supraclavicular fossa (4mm),…
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Eye mets.
Hello, anyone with eye mets? Looking for words of encouragement. Eye doctor found lesion on my retina and am scheduled for an orbital MRI to confirm diagnosis. Onco is already pushing proton therapy with radiologist. Has anyone had this resolve on cdk 4/6 inhibitor?Thank you for your time.
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Cryotherapy for Lung Mets?
I have a low volume of lung mets and was stable for approximately 7 years just on Femara. Recently, 4 lung Mets slightly grew, I switched to Fulvestrant and have been stable since June 2020. I would like to have these 4 lung mets or at least the largest one cryotherapy ablated or with laser/heat ablation. Does anyone know…
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De Novo Metastatic
Hello, I’m new to blogging and to breast cancer. I’m overwhelmed by the speed of my diagnosis, even my doctors are shocked. November of last year I learned from biopsy and mammogram that I had Stage 1 A breast cancer. The tumor in the left breast was < 2 cm invasive ductal carcinoma grade 2. I was scheduled for bilateral…
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Medicare questions
This is pertaining to Medicare in the U.S.---- I will be eligible to start Medicare in January 2021--- 2 years after being approved for Social Security Disability. I do not know anything about Medicare as I am not close to regular Medicare age (I am 50 years old). I want to do some research now in preparation for applying…
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Genomic testing for stage IV
This is a thread for discussing next generation sequencing and molecular profiling of metastatic tumors through tests such as Foundation One, Caris etc. We can talk about the tests themselves as well as what the results mean and how they might affect treatment options.
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Kisqali Exemestane
Hello, Anyone on a Kisqali and exemestane combo? I'm just finishing my first cycle--after 8 rounds of paclitaxel was getting to be too much for me, my onco and I decided to try this oral chemo. Noticing my hair thinning, which is extra upsetting as I cold-capped with the paclitaxel expressly because I did not want to lose…
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When to stop taking Ibrance? Been Taking for Almost 4 years
Hello everyone, Trying to see if there are fellow people in the same boat as my mother. She was diagnosed with Stage IV breast cancer March 2017 (almost 4 years ago) when they found a tumor in her bones (metastasis). Since 2017, she's been taking Ibrance. In the first year, her tumor markers 15-3 and 27-29 fluctuated a lot…