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Costochondritis, Nerve Pain?
I am currently on Abraxane. For the past couple of months I have a few spots on/near my rib cage that is tender/painful to touch. There are two on my right side and one on my left. It seems to become the most prevalent after my Abraxane treatment. It feels like it’s a movable nerve or something to me. I have felt something…
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High ferritin levels and anemic
I have been anemic (of inflammation not iron) My ferritin levels are off the chart (5100, normal is 200) My Onco wants to get a PET scan asap because he's pretty sure of progression. My question is, when they took my blood work it was 1 week after radiation. Radiation definitely causes inflammation. Can someone give me…
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Requesting work accommodations?
Since my MBC diagnosis, I've been fortunate to be able to work from home (only upside to the pandemic). My employer now wants us to start returning to the office, and I am struggling with some serious fatigue from my meds. I want to talk with my MO about possible work accommodations, as in only working virtually, but I'm…
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Colitis
I've had a lot of diarrhea/stomach pain/cramping/nausea and i thought it was due to Verzenio. It's been getting worse so I had an appointment with a gastroenterologist. He did an endoscopy & colonoscopy and it turns out that it's a flare up of collagenous gastritis and colitis. I have inflammation from one end to the…
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Fluctuating Alkaline Phosphatase
My ALP is within normal limits, 105 (40-156), but it fluctuates up and down in the normal range consistently. Last month it was 70 and the month before that it was 100. Is this normal? Every time anything heads in the wrong direction I freak out. You’d think I’d be used to this crap by now. Jackie
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How About A Stage 4 Gallows Humor Thread?
There used to be a gallows humor thread many years ago on this web site. I can't find it. There are many times I still rely on gallows humor in order to cope with my situation. I think my family appreciates it too. I have forgotten so many good zingers during all this time, but I'll start with some tee shirts I bought over…
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MD Anderson
For those of you who have gone to MD Anderson for consultation - is there a difference between the main campus and the other MD Anderson sites in the surrounding area? I can’t get into the main campus until March but can get into the other sites earlier. Any recommendations on oncologists there? I want to do this right the…
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bone scan
Hello ladies! I just had my third bone scan. Had significant increase in mets at the last scan 3 months ago which was felt to be healing. This scan is stable without further metastasis. ? with oligometastaic bone disease will the bone scan ever be improved or is stable the best news I’ll get?
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Telling people??
Just diagnosed with Mets to spine after being 4 years out from Stage 1. Blindsided and devastated to say the least. Just told my kids tonight (husband and immediate family also know) and it went ok, but wondering about work and other friends. I’ve been lurking for a while and I know you ladies are a wealth of information.…
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Abraxane (chemotherapy)
I couldn’t find a thread that pertains just to Abraxane, so I started this one. I am on Abraxane since September 2021 (after a horrible 3 months on Piqray that didn’t work). I seem to mostly be tolerating it well, however with bouts of dizziness, constant clogged ears, occasional eye flashes and of course fatigue. Just…
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Catch Up on the Latest MBC Research!
If you or a loved one has MBC, take a look at the summary of cutting-edge MBC research disclosed at the San Antonio Breast Cancer Symposium (SABCS) in Dec. 2021! There's encouraging news for individuals with each subtype of MBC, and all information has been incorporated into my book, "The Insider's Guide to Metastatic…