Stage IV/Metastatic Breast Cancer ONLY
Discussion List
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Where are you now?
I'm MBC, but diagnosis is all screwed up. 😠 Where has everyone gone? I mean this...have you found another community forum to get info from others in same diagnosis/treatment. There is nothing much here anymore except complaints or funnies, lost the good advice and experiences.
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Lobular Oncologists in the Dallas Area
Hi there, First time posting but been lurking for the past 5 years since my diagnosis. We are moving to the Dallas area (East of Dallas) and looking for an oncologist or a clinic for my lifetime treatment. MD Anderson doesn't have any location in Dallas, odd. And they don't have any referral to a cancer center either. And…
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Determining progression
Hello, hope you would response to this question: when does your oncologist decide the cancer has progressed from current regimen? 1- A definitive trend in rising tumour's marker such as Ca27.29 or Ca15-3. Note that there are 7-10 benign causes of a jump in marker, although I haven't read any paper with respect to benign…
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Solid Lung Nodules
Hi Ladies, I hope you are all doing well. It's been a long time since I've posted anything so I hope you forgive my absence. At my catscan in October they found several small 2-3 mm lung nodules. My oncologist said not to worry as they were most likely nothing. I had my next 6-month scan just last week and they found…
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INSANE Itchy skin-rash-I need relief
my rash started on Ibrance. I stopped Ibrance now and thought it would go away but it’s not. It started on my upper back and left arm. Stopped there and when to right arm. Stopped there and now it’s on my neck and upper chest. It’s the worst here. So itchy I look like I had radiation. I need to scratch!! I’ve tried…
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"I Could Get Hit By A Bus" Comments
It still amazes me how people are insensitive when you tell them that your cancer is terminal and cannot be cured. After all these years, I still have acquaintances say to me "We all never know when we will die." "I could get hit by a bus tomorrow". Usually the person goes on their merry way, and I am still left with no…
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Symptoms of lung Mets
Hello everyone; I have Mets to my spine, which according to my last scan we “resolved”. I’ve had this persistent cough lately,with some pain on my upper back and I’m really fearing the worse. There’s no pain when I breath in and out,but my chest feels weird. I had Covid last year and I felt the same way. I don’t think this…
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What just happend?
I was diagnosed with Invasive lobular carcinoma that metastasized to the lymph nodes eight months ago. I was scheduled for a bilateral mastectomy with nipple sparing reconstruction placement of expanders same day and follow up surgery placing silicone implants surrounded by fatty tissues from my belly. It was agreed to by…
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Ra-223 Clinical Trial
Is anyone in the Ra-223 (radium) clinical trial for bone mets? If so, what have been your results? Any side effects?
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Let’s gripe!
It’s been one of those days and I’m in the “this stage iv stuff sucks” frame of mind. I’m tired of all of the bloodwork; I’m tired of the monthly Zoladex shots; I’m tired of the constant fatigue; I’m tired of living in 6-month segments in between scans; I’m sick and tired of worrying that while I feel good now, when is it…
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Anyone with Rib mets get pain in back - What do you do?
Hi, I have bone mets and noticed recently the right side in the back and front hurt - like it gets fatigues and then hurts, if I rest with a heating pad its better, but hurts if I am doing things. Does anyone experience and how do you manage it? It can be limiting.
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Diagnosed with bone mets
I tried to update my signature, but it didn't save. I'll work on it later. I am 56 years old. I was dx with IDC right breast, Stage 1, Grade 2, 2cm in 2009. I had BLM with a LD flap and tissue expanders. I had sentinel biopsy with 2 removed and rapid test showed no cancer in either, but later pathology showed micromets in…
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Swollen glands - Ibrance -Letrozole
hi It's my week off of Ibrance can't turn my head, swallow without pain my jaw also hurts.99.7 temp , chills. Is this a side effect? Anyone have this?