Stage IV/Metastatic Breast Cancer ONLY
Discussion List
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Weight gain on xeloda
I'm taking xeloda and I read it can make gain a lot of weight, did anybody experienced that? Also I read that hand foot syndrome is relater with better outcome...did somebody lasted long time on xeloda without too many adverse effect? Thank you! I'm so scared and so hope it will work on me!
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joint replacement while on Ribociclib
I have bone on bone osteoarthritis in my L shoulder which also is the side of my initial breast surgery and radiation in 2018. Currently I am on Ribociclib and Faslodex for recent mets to liver. My ortho is recommending joint replacement. Has anyone had a joint replaced while on these meds? Thanks,
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How to not be a negative person career-relationship wise?
Hello! Is it possible to resist the urge to punch your boss after he asks "but what about your career aspirations?" when you tell him you are not interested in going up the corporate ladder? Is it possible to dig oneself out of a hole: pushing loved ones away knowing you don't have long to live? Not wanting to meet new…
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In Remembrance of Nicolerod
Sadly, our beautiful nicolerod passed away Friday evening, September 22. She’d asked her friend, member beesy_the_other_one, to let us know. I’m just so sad and heartbroken over the news. 💔
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Multiple Organ Mets and on Kisqali/Ribociclib (3+yrs)
I always hear amazing stories from those with dx’d with bone mets de novo on this drug. Curious to hear from those with multiple organ mets or were dx’d secondary who have done well long term on the Kisqali/Ribociclib combo. Where were your mets, and how long have you been on this treatment?
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Mammograms and Colonoscopies
I'm only six months in on my stage IV diagnosis but I keep forgetting to ask my doctor about my upcoming 60th birthday and the dreaded colonoscopy. He already told me that I don't need to get mammograms but does that hold true for colonoscopies? (Fingers crossed).
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Progression after ribociclib (csk4/6i) and letrozole
Hi I had her2 neg er+ breast cancer in 2018. In 2022 i had recurrence in my bones (all over with 3 collapsed vertebrae) and liver. I was on ribociclib and letrozole that worked really well, pet was negative and most metastasis disappear. In August I had liver recurrence. Blood test and markers are ok and i feel well so i…
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Seattle -- looking for info./advice re: MBC treatment options/ locations ....
Hi all — my beau and I are likely to be moving to the Seattle area next spring (exact area not decided yet). I am looking for info. / advice regarding where to get MBC treatment and tips re: transportation and other practical advice. I am generally aware of Fred Hutch, but again am looking for practical tips about getting…
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Bone Pain
I just posted in the wrong group by accident, now I have to explain this all over again, in this group, the right group. My hip/thigh bone and down my leg to my knee is aching. The groin area gets painful and I cannot get up off a chair or go up stairs very well. This started about 2 weeks ago. I just had a Lattimus Dorsal…