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Mar 22, 2017 08:49AM
Had my second and hopefully last Gamma Knife operation Monday. Docs are quite delighted with themselves and seem confident that they zapped all the buggers. Headaches and nausea have gone -woo hoo! Just waiting for my vision to come back. All the swelling and pressure on my optic nerves has got things all mucked up. I am finding my way carefully about by shape and colour. Typing and reading are difficult; thank goodness for touch screens!
The fatigue has been unbelievable! Worse than when I had all the bone rads. The RO claims the Gamma Rays are not intense enough to cause burning where they exit and enter the skull - he says they are only full strength when all lined up together at their assigned treatment spots. Hope this is true 'cuz those burns suck!
Lori! ~ I've been so happy to see you back! Girl, you have been MISSED! Warn us if you are going to take a break from here ever again because we love you and worry. Okay? Are you getting any thing for those radiation burns? Black skin is not good. You may need antibiotics. Silvadene Cream is supposed to work wonders. You will need an RX for it. The cream protects from infection, speeds healing and soothes the pain, Some people like Aqauphor - it can be bought anywhere over the counter. When I had the Rad burns, in places a lady should never have, i used many a tube of Destitin. I used on other areas that burned too. Good old zinc oxide works nice. In my experience, ROs are not the best at pain or burn management. They need some nudging and sometimes a few kicks!
Peppy ~ Oh my! Dams and Damns! I am so sorry your Dad passed away. The sorting of our loved ones things is, well, hard to describe to someone who has yet do so. Overwhelming for sure, Then there are those little glimpses of personality that were before unknown, the happy memories tucked away..... May your bittersweet task have much sweetness waiting for you to find. Poor, poor Gus Gus! Any idea as to what got him? If only they could talk and tell us..... I hope you are giving him lots of chicken and turkey to aide in his recovery. I had a kitty that loved storms too. The louder the thunder, the quicker he'd run to sit in the yard and watch the "show". Silly kitties....
Lita ~ Having just completed my 3rd brain surgery in 4 weeks, I would like to remind you of the intent of this thread as stated in the topic box at the top of this thread.
Discussion will flow where it will as all threads do. This will be a happy place. I hope with lots of laughing. Talk of things, needs, rants as your mood or thoughts take you. Each person here has a history of helping others. Threads develop pseudo family groups. Fancy way to say we become like family. This family will have all the best a family has to offer, but none of the negatives.
Incessant droning on and on about death, misery, death, misery, death do not a happy place make. There are other threads more appropriate for such discussions.
We are all scared, all the time. No matter what our DX. We come to IT to laugh and escape/hide. We have serious talks here too, and that is okay. We are Sisters sharing our ups and downs; offering genuine love and support to one another. Seeing the pics of "our" precious babies and pups brings such joy. Seeing pictures of women out getting drunk 'cuz their gonna die any minute or pictures of cherished belongings that will be left behind 'cuz the owner is dying any minute.....well that is jarring not joyous.
Cancer is not a contest - who wants to wear the crown of Ms. Cancerous anyway? There is no cure. However, none of us has an expiration date stamped on us. Continually focusing on the negative is not healthy for anyone. We are all here doing the best we can, to live the best lives we can. All while being blessed by the best Sisters.
"Keep passing open windows"
2/2013, IDC, Left, 1cm, Stage IV, metastasized to bone/other, Grade 3, mets, ER+/PR-, HER2- (FISH)
2/20/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
3/1/2013 External: Bone
10/24/2013 External: Bone
3/2/2015 Femara (letrozole)
7/20/2015 External: Bone
8/31/2015 External: Bone
1/23/2017, IDC, 3cm, Stage IV, metastasized to brain, Grade 3, 0/0 nodes, ER+, HER2-
3/13/2017 External: Brain
3/20/2017 External: Brain
5/1/2017 Xeloda (capecitabine)