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Topic: INSOMNIACS place to talk in the wee hours

Forum: Emotional Crises: Anxiety, Depression & Other Emotional Effects —

Meet and support others who are affected by these issues around breast cancer fears, diagnosis and treatment.

Posted on: Apr 8, 2011 07:45PM - edited Aug 10, 2016 12:19AM by sas-schatzi

sas-schatzi wrote:

Welcome. This is called the insomnia thread, but we post 24/7/365. We call ourselves Owlettes :)

This is a safe haven. No nastiness, bullying, stalking or such allowed. I would like to keep the kind fabric of this thread intact.

Discussion will flow where it will as all threads do. This will be a happy place. I hope with lots of laughing. Talk of things, needs, rants as your mood or thoughts take you. Each person here has a history of helping others. Threads develop pseudo family groups. Fancy way to say we become like family. This family will have all the best a family has to offer, but none of the negatives.

May help with sleeplessness: circadian rhythm, melatonin--pub med evidence based research. http://www.ncbi.nlm.nih.gov/pubmed/21476953 Agometaline is approved for use in Europe/Australia for insomnia. It is NOT approve in the USA http://en.wikipedia.org/wiki/Agomelatine

How to naturally reset circadian rhythm with food : http://www.wisebread.com/how-to-naturally-reset-your-sleep-cycle-overnight

Article connecting insomnia and depression. It's a chicken egg thing--insomnia <----->depression.

http://blog.aarp.org/2013/12/02/is-curing-insomnia-key-to-curing-depression/?intcmp=AE-ENDART1-BL-REL

Second Sleep---The NORMAL for humans before the light bulb http://slumberwise.com/science/your-ancestors-didnt-sleep-like-you/

Autonomic dysfunction: http://www.holistichelp.net/dysautonomia-autonomic-nervous-system-dysfunction.html

BCO Member Notself's three day plan: 1. Get doc script for sleep aid, at lowest dose. 2. Set sleep time. 3. Take pill 1/2 hr to 1 hr before set time. 4. Do this for three days; 5. Should sleep on fourth night.. 6. Repeat steps 1-5 if sleeplessness has lasted more than one night.

Don'ts that are known to cause sleeplessness: Alcohol, coffee, chocolate, looking at computer screens before bedtime, sex and exersize(variable by person); Do's that promote sleep: Sex and exersize(variable by person) , book reading, foot massage, aromatherapy, sleepy teas. After dinner walk(variable).

Link to Warm & Fuzzy's (W&F) thread: Warm & fuzzy owls, goats, kitties, dogs, birds ETC. PICS &LINKS


.....................................

.................Holding each other. Close your eyes and feel our arms. We breathe as one-sas 2014

.

I wish everyone no pain or fear always---Camilegal, 2014

Our spirit will transcend to a different place. Why? Because nothing has value without this belief. Why be human and humane? Why the contact? Why anything, without belief? sas, 2014

"Yes, we ALL have had crap going on in our lives, but see, you have to look at it like YOU are still HERE! And so are we! So go walk outdoors, and watch a sunset.... or the sunrise, like I am going to do in a minute! Just thank God that you get another day.... See? That's your "present" ! Chevyboy, 2014

"People are in your life, for a reason, a season or a lifetime. The why we will never know, but the knowing isn't the important part. The importance is accepting that we were blessed to have had them" sas

Pray not to survive, pray to be.......... day to day, that you deal with today, with hope that tomorrow is good to excellent. We change our old ideas about days. We change our ideas about minutes when the need is there. At first, numb. Then a fog. Then a flurry of activity. Then a slow down of activity. There's more, but I'll leave that out for now. Feel the wind, feel the warmth, and breathe........................sas

"Be still and know that I am God" and "He Wept"- Susan3 and Loverfolife, 2015

Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
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Apr 20, 2017 08:59PM sas-schatzi wrote:

JWooohooo, Great advice. on all the scamming stuff. Thanks. Had another long talk with Shep. Her vision is the thing that is the trouble about posting. I suggested she post anyway, even if it was only one line. Even if it reads screwy b/c of spelling none of us will care.

Wren, Hahaha with you on the Ds having to tell your DH something. We women are so smart, it's a PITA that the guys just try to ignore us. I think I wrote about Mark Gungor. he's a minister that does marriage counseling. Many video's on YouTube. He is so funny.

Lita almost done YAY, Roses are beautiful. Cute bunny pic.

Wenchie your DH sounds like a hoot. The Microsoft guys are the strangest. Why they think anyone would turn over info is beyond me. It's click!. Sounds good about the doc. Ask on each thread that you are on what the first two year plan was? Enough people will respond that you will have some ammunition to talk with him about. You good use keywords "ASCO guidelines for patient follow-up."

In general, It's every three months after primary treatment for the first year. Can be every three months after that for a while(varies). Then the next move is every six months for 1-2 years, then every year for several years. Depends on the doc and the cancer. But ASCO should give you info on the plan for BC.

Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
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Apr 20, 2017 09:11PM sas-schatzi wrote:

Kathy, what blood test was 5 x's higher than normal that your doc didn't do anything with? Was it a rheumatologist you went too? Thanks, about Donnie, it was a momentary thing being mad. I was just spouting off. Donnie's using my car for work. I'm stuck at home during the day,, ergo no thrifting. But he tries to get me out during the evening. :) We had a great visit to our favorite restaurant. The 5 of us. and great food.

Loverly, hahaha " give the poor man a break! You are expecting too much. Can't have both Fabio and Bob the Builder at the same time." True, very true. Toilets blocked up last night. Thought we'd have to snake this morning. But whatever he did last night they were both clear and running well. Afraid it was the sign that the septic needed draining. But we are good to go, now.

Yay Mommy, stick to your plan.....

Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
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Apr 20, 2017 09:32PM M0mmyof2 wrote:

Mom does mean well but she doesn't always understand that what was popular once for kids may not always stay popular.

Hubby liked my idea of prowling the thrift stores for the Harry Potter books

If you value your freedom, thank a servicemember both serving and retired! Dx 3/27/2013, Paget's, Left, 0/0 nodes, ER-/PR-, HER2+ Dx 3/27/2013, IDC, Left, Stage IIIB, Grade 3, 0/0 nodes, ER-/PR-, HER2+ Chemotherapy 4/16/2013 Taxotere (docetaxel) Surgery 9/26/2013 Mastectomy: Left Surgery 9/26/2013 Prophylactic mastectomy: Right Targeted Therapy 10/28/2013 Perjeta (pertuzumab) Targeted Therapy 10/28/2013 Herceptin (trastuzumab) Surgery 1/29/2015 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 4/22/2015 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Apr 20, 2017 11:00PM WenchLori wrote:

My PS office called to set up an appointment for a skin check and see how my incision area is holding up. He warned me he may have to take a little saline out of my cancer side. It's been feeling pretty tight around my TE but I was told to expect this with radiation. I'm excited to see him! I haven't seen him in 6 months and I miss his humor.

It's nap time for me I think, to much fresh air toda 😴

If I stop laughing, I'll start crying! Lori Dx 3/18/2016, IDC: Papillary, Left, 1cm, Stage IIA, Grade 2, 2/13 nodes, ER+/PR+, HER2- Surgery 7/5/2016 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 8/4/2016 Taxol (paclitaxel) Radiation Therapy 2/19/2017 External: Chest wall Hormonal Therapy 5/22/2017 Arimidex (anastrozole) Chemotherapy AC
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Apr 20, 2017 11:10PM Jazzygirl wrote:

Are we talking about follow ups after treatment? Mine has always been every six months. My sister had it every three months, then went to six months about a year ago.

My MO told me I will continue to see him once a year after I am past the five years for any signs of late reoccurrence. I went down to yearly with the BS as of last summer so I did not have to see her in January. I will see her again this summer. She is my least favorite and am ready to move on from that one.....

My 5 years is this coming November, will be on the AIs through next March so I expect to be seeing my doctors this summer and next January and then not sure after that.

It does really can vary depending on your dx including type of cancer, stage, etc.

Dx 9/14/2012, DCIS, 1cm, Stage 0, Grade 1, 0/1 nodes, ER+/PR+, HER2- Dx 9/14/2012, IDC, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2-
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Apr 20, 2017 11:21PM WenchLori wrote:

Jazzy, yes, the after treatment follow ups. My MO told me I was free to fly away after my appointment on 5/23. My RO thinks my MO misspoke, and that MO made no mention of ending follow ups in his very long winded note to my RO. RO thinks that MO was thinking of someone else? We'll see. To many ROs and MOs in here LO-

If I stop laughing, I'll start crying! Lori Dx 3/18/2016, IDC: Papillary, Left, 1cm, Stage IIA, Grade 2, 2/13 nodes, ER+/PR+, HER2- Surgery 7/5/2016 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 8/4/2016 Taxol (paclitaxel) Radiation Therapy 2/19/2017 External: Chest wall Hormonal Therapy 5/22/2017 Arimidex (anastrozole) Chemotherapy AC
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Apr 21, 2017 02:34AM - edited Apr 21, 2017 02:38AM by Lita57

Mommy, I didn't even get Nancy Drew books...I had to read my aunt's hand-me-down Trixie Belden mystery books (from the 50s). Ho hum. They might be quaint today, but they certainly weren't cool back the late 60s when all the kids were trying to be "hip" and "in." You did not want to be caught during free reading time in class with a Trixie Belden book on your desk. "Gee whiz, where did you get that ol' book from...the thrift store?"

When I was in grade school, everyone was reading The Lord of the Rings, Catcher in the Rye, and One Flew Over the Cukoo's Nest. (I think your nephew may have more than a couple years to go b4 he's ready for those, unless he's a very precocious reader.)

Buy the young man what HE would like that's appropriate for his age. The Hardy Boys....geeeees!

In 2017?

Need I say more?


I've been dragged into an "arranged" marriage that I vociferously did not agree to...but divorce is completely off the table now that I'm married to Mr. Cancer. It's literally until death do us part. Dx 4/14/2016, IDC, Left, Stage IV, metastasized to bone/liver/other, ER+/PR+, HER2- Radiation Therapy 4/27/2016 External: Bone Targeted Therapy 5/15/2016 Chemotherapy 5/22/2016 Xeloda (capecitabine)
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Apr 21, 2017 04:03AM Wren44 wrote:

I read Hardy Boys and Nancy Drew in the 40's and 50's. Even then they seemed dated. What was a roadster? I puzzled over that one until I figured it out from context.

Lumpectomy & reexcision followed by mastectomy of right breast. Anastrasole.
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Apr 21, 2017 06:20AM Jazzygirl wrote:

Wench- agreed about too many oncologists and not always on the same page. My RO and MO were in different states, that was fun.

Dx 9/14/2012, DCIS, 1cm, Stage 0, Grade 1, 0/1 nodes, ER+/PR+, HER2- Dx 9/14/2012, IDC, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2-
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Apr 21, 2017 06:24AM Beatmon wrote:

I love mysteries and read every night. Might have started way back when with the Nancy Drew Series. I wish I had the whole series of both of those.

About 10 years ago I started donating all my books to the hospital for their lending library. I had hundreds. Now I'm a Kindle lover. So much easier to carry in my purse everywhere I go

Dx 7/27/2012, IDC, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2+ Surgery 8/9/2012 Lymph node removal: Left, Sentinel; Mastectomy: Left, Right Surgery 12/1/2013 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 7/1/2014 Reconstruction (left); Reconstruction (right) Dx 8/9/2014, IDC, Both breasts, Stage IV, metastasized to lungs, Grade 3, ER-/PR-, HER2+ Targeted Therapy 8/27/2014 Herceptin (trastuzumab) Targeted Therapy 8/27/2014 Perjeta (pertuzumab) Chemotherapy 8/27/2014 Taxotere (docetaxel)
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Apr 21, 2017 12:12PM M0mmyof2 wrote:

Lita, my mom tried to force me to read the Little House series by Laura Ingalls Wilder in the '80s. Can we say boring? Never read one single story. Would hide them as soon as I got them. Every kid I knew was into Star Wars at the time.


If you value your freedom, thank a servicemember both serving and retired! Dx 3/27/2013, Paget's, Left, 0/0 nodes, ER-/PR-, HER2+ Dx 3/27/2013, IDC, Left, Stage IIIB, Grade 3, 0/0 nodes, ER-/PR-, HER2+ Chemotherapy 4/16/2013 Taxotere (docetaxel) Surgery 9/26/2013 Mastectomy: Left Surgery 9/26/2013 Prophylactic mastectomy: Right Targeted Therapy 10/28/2013 Perjeta (pertuzumab) Targeted Therapy 10/28/2013 Herceptin (trastuzumab) Surgery 1/29/2015 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 4/22/2015 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Apr 21, 2017 01:39PM WenchLori wrote:

I'd only read books about horses so they are the only books my mom ever bought me. I still have my original Black Beauty, My Friend Flicka, Misty of Chincotique Island and Black Staliion books mom and dad gave me. No Little Women, Nancy Drew or Little House books for this horse crazy kid lol

If I stop laughing, I'll start crying! Lori Dx 3/18/2016, IDC: Papillary, Left, 1cm, Stage IIA, Grade 2, 2/13 nodes, ER+/PR+, HER2- Surgery 7/5/2016 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 8/4/2016 Taxol (paclitaxel) Radiation Therapy 2/19/2017 External: Chest wall Hormonal Therapy 5/22/2017 Arimidex (anastrozole) Chemotherapy AC
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Apr 21, 2017 03:30PM Jazzygirl wrote:

Wench- girls and horses. I used to ride when I was young until I had an accident (not a bad one, but messed up a knee for a bit). My parents put the cabash on my lessons, but took up riding once I was an adult. Not seriously, just when on vacations, etc. But the horse books, plastic horse toys, you name it were a big thing for me.

I love horses but won't ride these days, with these creaky old bones. One of my friends has a daughter who rides and is all things horses. So cute to watch. Them were the days!

Dx 9/14/2012, DCIS, 1cm, Stage 0, Grade 1, 0/1 nodes, ER+/PR+, HER2- Dx 9/14/2012, IDC, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2-
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Apr 21, 2017 07:09PM Lita57 wrote:

I remember those special horses they used to sell at hobby shops. I had a few of those...forgot the brand name.

I tried to read Little Women once, but the writing for me at the time was too stiff. I read King of the Wind also by Marguerite Henry about the Godolphin Arabian who was Man of War's ancestor. Yep, it was horse books, dog books, Wolf books, and any animal books for me too. I loved Wind in the Willows with Mr. Toad.


I've been dragged into an "arranged" marriage that I vociferously did not agree to...but divorce is completely off the table now that I'm married to Mr. Cancer. It's literally until death do us part. Dx 4/14/2016, IDC, Left, Stage IV, metastasized to bone/liver/other, ER+/PR+, HER2- Radiation Therapy 4/27/2016 External: Bone Targeted Therapy 5/15/2016 Chemotherapy 5/22/2016 Xeloda (capecitabine)
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Apr 21, 2017 11:39PM - edited Apr 21, 2017 11:41PM by magdalene51

I went through all the Nancy Drew books by the time I was 10. I started reading when I was 4. We didn't have a lot of books, but we were always at the library. Even on Sundays, our church had a library. All of us were avid readers. Then I was on to Elizabeth Goudge and Daphne du Maurier. I was always a devout Anglophile, even had English pen pals. (I still love all things British.) My two older sisters go through (literally) grocery bags full of paperbacks from the used bookstores, and my younger sister is a librarian (masters degree in library science). I have had to give up books, as I have problems focusing (both mentally and visually). Maybe because of the strong narcotics, I don't know. But I miss the days when I could curl up on the couch on a rainy Saturday and read a whole book. Nowadays I settle for Facebook and twitter, and if an article is too long, I have to skip whole paragraphs. (There's even a new anagram for that: tldr which stands for too long, didn't read.) I do better with my iPad than paper books, something about the backlit screen. And now that I have detached vitreous in both eyes, it's very distracting, akin to having great big gray dust bunnies floating around. The one in my left eye always tricks me into thinking a cat is sneaking into the room.



Mags Dx 4/16/2014, IDC, Left, 5cm, Stage IIIC, Grade 2, 4/8 nodes, ER+/PR+, HER2- Dx 4/16/2014, IDC, 5cm, Stage IIIA, Grade 2, 4/8 nodes, ER+/PR+, HER2- Surgery 5/21/2014 Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 7/1/2014 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 1/15/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 3/31/2015 Arimidex (anastrozole) Dx 7/14/2016, IDC, Left, 5cm, Stage IV, metastasized to lungs, Grade 2, 4/8 nodes, ER+/PR+, HER2- Hormonal Therapy 7/25/2016 Faslodex (fulvestrant) Dx 11/14/2016, IDC, Both breasts, 5cm, Stage IV, metastasized to bone/lungs, Grade 2, 4/8 nodes, ER+/PR+, HER2- Chemotherapy 11/16/2016 Halaven (eribulin)
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Apr 22, 2017 11:02AM JWoo wrote:

if it is a book, I'll read it!

Mags, have you thought about audiobooks? I listen to them when I drive or can't read a book for whatever reason. Tons of free ones out there to download.

I can't sleep if I don't read something. Even if it is just a pamphlet! I can't get my brain to stop if I can't read.

Audiobooks also work, especially if the narrator has a soothing voice.

Compassion should be your first reaction
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Apr 22, 2017 02:42PM M0mmyof2 wrote:

Nothing puts me in a good mood like a book. Plus it helps me relax before bed

If you value your freedom, thank a servicemember both serving and retired! Dx 3/27/2013, Paget's, Left, 0/0 nodes, ER-/PR-, HER2+ Dx 3/27/2013, IDC, Left, Stage IIIB, Grade 3, 0/0 nodes, ER-/PR-, HER2+ Chemotherapy 4/16/2013 Taxotere (docetaxel) Surgery 9/26/2013 Mastectomy: Left Surgery 9/26/2013 Prophylactic mastectomy: Right Targeted Therapy 10/28/2013 Perjeta (pertuzumab) Targeted Therapy 10/28/2013 Herceptin (trastuzumab) Surgery 1/29/2015 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 4/22/2015 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Apr 22, 2017 07:46PM Wren44 wrote:

DD has a very long commute and listens to audio books in the car. She greatly prefers them to reading. I'm so visual, audio books aren't really appealing.

Lumpectomy & reexcision followed by mastectomy of right breast. Anastrasole.
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Apr 22, 2017 08:59PM magdalene51 wrote:

Wren, I am the same way. Having been a graphic artist, having spent 30 years hanging around print shops, inhaling the fumes of printers' ink, I find the printed word on paper irreplaceable. I think I am just grieving that loss, much as I grieved the loss of my breasts, and the component of my decision to not have reconstruction which was, the real thing or none at all.

Finished off the week with still no word from the oral surgeon with a date for my teeth extraction. My fear is that if it can't happen before May 2, when I have my MO appointment, I may miss my window entirely. With scans showing 20% progression, he might say we can't wait to start another treatment plan, and put the dental work on hold. I would have to veto that. The spots where the teeth are broken are actually cutting the inside of my mouth. I took my cuticle nipper and broke off the worst two spots, but I have another coming up. If my mouth is dry at all and I try to move it - talk, or eat, or even smile! - it catches and tears. I've started wearing a mouth guard at night because of the sharp edges.

I think I've ranted on this thread about the surgeon who did my mx and left plenty of skin so I could reconstruct, in spite of my telling her clearly, and with witnesses, that I would never reconstruct. I had given it a lot of thought, talked it over with DH, and was adamant about my decision. As a result of her decision, a have huge saggy bags on both sides. I've developed fat necrosis, had to have additional biopsies (since the right side was prophylactic, there could have still been breast tissue). I never had a surgical follow up; 3 weeks after the mx, she did my port placement surgery, guess she felt that was sufficient follow up, except that I never actually got a chance to talk to her. Then I went right into treatment and have been on the hamster wheel ever since.

DH and I have discussed it, we're not the litigious type, but it has bugged me that I never made my displeasure known. The other day I called her office. I asked if I could leave a voice mail, and the receptionist pressed me for details, so I told her the whole story. She sounded very sympathetic, told me she took notes of it all and promised to convey it to the doc herself and be my "advocate". She asked how it could be made right, since I didn't want to go through any additional surgeries. I said I just wanted the doc to tell me why she went against my clearly stated wishes. Really, I want her to admit she was wrong. I'm not going to sue her, but she needs to LISTEN TO HER PATIENTS!!!!! What is so hard about that?

Ok I had no intention of writing a meganovel, but I have one more thing. So happy I have a PCP who does listen! I saw her this week, and we discussed my ongoing battle with chronic fatigue, which I had before cancer treatment. I said I have so much I want to get done and don't know how much time I have (not that anyone ever does, but sometimes it's more clear than others, if you know what I mean). So I asked her if she would prescribe something that might help. I suggested Adderall, since I was a little familiar with it - both of my sister's kids had been on it for ADD-ADHD years ago but I'd never tried it before. So she wrote me a script for it, told me to start out with 1/2 tab to see how I did. Tried that the first day, but didn't feel any different. Next day took a whole one. This is my third day on a whole one and it's a new world. No more napping! I haven't tried to do a lot, I think I will still need to build up my endurance, but I'm very pleased. I'm even going to try to make it to church tomorrow! (Maybe I'll even try to read again!) I still have to be careful about not overdoing, I know. But it's definitely better.


Mags Dx 4/16/2014, IDC, Left, 5cm, Stage IIIC, Grade 2, 4/8 nodes, ER+/PR+, HER2- Dx 4/16/2014, IDC, 5cm, Stage IIIA, Grade 2, 4/8 nodes, ER+/PR+, HER2- Surgery 5/21/2014 Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 7/1/2014 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 1/15/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 3/31/2015 Arimidex (anastrozole) Dx 7/14/2016, IDC, Left, 5cm, Stage IV, metastasized to lungs, Grade 2, 4/8 nodes, ER+/PR+, HER2- Hormonal Therapy 7/25/2016 Faslodex (fulvestrant) Dx 11/14/2016, IDC, Both breasts, 5cm, Stage IV, metastasized to bone/lungs, Grade 2, 4/8 nodes, ER+/PR+, HER2- Chemotherapy 11/16/2016 Halaven (eribulin)
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Apr 22, 2017 09:43PM M0mmyof2 wrote:

Well I got my nephew his birthday gift of his first Harry Potter novel. Couldn't find it at the thrift stores around here so I made a fast trip to Barnes and Noble and got it. I know he'll love it

If you value your freedom, thank a servicemember both serving and retired! Dx 3/27/2013, Paget's, Left, 0/0 nodes, ER-/PR-, HER2+ Dx 3/27/2013, IDC, Left, Stage IIIB, Grade 3, 0/0 nodes, ER-/PR-, HER2+ Chemotherapy 4/16/2013 Taxotere (docetaxel) Surgery 9/26/2013 Mastectomy: Left Surgery 9/26/2013 Prophylactic mastectomy: Right Targeted Therapy 10/28/2013 Perjeta (pertuzumab) Targeted Therapy 10/28/2013 Herceptin (trastuzumab) Surgery 1/29/2015 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 4/22/2015 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Apr 22, 2017 10:59PM susan3 wrote:

mags, happy you got some energy back. Hope you make it to church tomorrow:

Live and love fully Dx 3/2001, IDC, Stage IV, Grade 3, 40/5 nodes, ER+/PR-, HER2- Surgery 3/11/2001 Lymph node removal: Left, Sentinel; Mastectomy: Left, Right Chemotherapy 3/28/2002 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Doxil (doxorubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Gemzar (gemcitabine), Halaven (eribulin), Methotrexate (Amethopterin, Mexate, Folex), Taxol (paclitaxel), Taxotere (docetaxel), Xeloda (capecitabine)
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Apr 22, 2017 11:32PM WenchLori wrote:

Lita, I love Mr Toad too! Are you thinking of the Bryer horses? I had a box full of them and wish I still had them!

Mags, yay for energy! I hope you can make it for church tomorrow. I'm going to try to make it to church myself in the morning. I too have had several teeth break off since my chemo. I have very soft teeth so I was expecting it to happen. I think I'm going to visit Clear Choice to see what they have to offer and at what price. I had 10 pulled a few years ago and I have my partials but I haven't been able to wear my partials since I had chemo.

M0mmy, I bet your DN is going to love his Harry Potter novel too.

Jazzy, my horse is still in Texas, she's not really mine anymore but I still call her mine. I know where she is and I can ride her when I go home to Texas. Missy has been with my best friend for 15 years (I sold her 3 years ago) and Missy will always be with her unless I buy her back which might be when sheand I are both to old to ride lol


If I stop laughing, I'll start crying! Lori Dx 3/18/2016, IDC: Papillary, Left, 1cm, Stage IIA, Grade 2, 2/13 nodes, ER+/PR+, HER2- Surgery 7/5/2016 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 8/4/2016 Taxol (paclitaxel) Radiation Therapy 2/19/2017 External: Chest wall Hormonal Therapy 5/22/2017 Arimidex (anastrozole) Chemotherapy AC
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Apr 22, 2017 11:33PM - edited Apr 23, 2017 12:23AM by sas-schatzi

Hi everyone, Glad we all talked about credit, and cyber safety. I picked up a lot of tips.

There is a new search engine available that doesn't have ads or keep your information, or sell your information like Google does. They also don't censor query responses as google and Bing(Microsoft) do.

DuckDuckGo.com

Shopped for tile today. Think we did well. A speckled white, gray, black granite for the shower. White marble that has a grain of the brown and the gray is a shade of blue gray. Goes very nice together. Then a complimentary marble for a breaking thing. It will be 3 inches wide once cut. The store was absolutely huge. Called Floor and Décor. They are in 17 states. Lot's of staff to help with coordinating selections. My gal was Elsa. She never heard of Sound of Music. Long drive 50 minutes, but anything local didn't even come close to all the thousands of different offerings. We only hit probably 30 % of the story. Plus, made out like a bandit on costs.

Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
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Apr 22, 2017 11:41PM - edited Apr 23, 2017 03:34PM by sas-schatzi

Harry Potter, I have all my copies. Each read twice. All the CD's and video's all viewed many times. Always wonder about adults who thought I was strange as they thought them children books. Depending on the person, I would just smile and think many different thoughts about them.

Reading life long passion. Even full scientific studies were consider fun. Now processing differently.

Jazzy I think you wrote the abbreviation. TLTR. Perfect for my brain now.

HIHIHIHI Beatmom. Phyllis often mentions you. Appreciate your note while I was gone.

Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
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Apr 22, 2017 11:45PM sas-schatzi wrote:

This is a secret breaking post about Mags

Our Magdalene, is a graphic artist as she stated. But what she didn't say is she is a "Stunning graphic Artist".

If you can call her and talk her into showing you her stuff, you will be blown away by the beauty.

Shssh, don't tell her I told you

Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
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Apr 22, 2017 11:46PM WenchLori wrote:

Sassy, that sounds like my kind be of store! All the stores around here offer the same thing but at different prices. I got the exact flooring I wanted for our guest bathroom at an auction last year. We paid $12.50 for a 20'X20' room. Can't beat it if they have what you want there. It's laminate so no where near as nice as what yours sounds like. Our guest bath is on the upper floor. I think if we put granite or marble down our guest bathroom would join us in the living room! I can't wait to see pictures!


If I stop laughing, I'll start crying! Lori Dx 3/18/2016, IDC: Papillary, Left, 1cm, Stage IIA, Grade 2, 2/13 nodes, ER+/PR+, HER2- Surgery 7/5/2016 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 8/4/2016 Taxol (paclitaxel) Radiation Therapy 2/19/2017 External: Chest wall Hormonal Therapy 5/22/2017 Arimidex (anastrozole) Chemotherapy AC
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Apr 22, 2017 11:47PM Jazzygirl wrote:

Wench- what a beautiful girl. I bet you miss that darling horse. I never owned a horse, but wanted to.

Dx 9/14/2012, DCIS, 1cm, Stage 0, Grade 1, 0/1 nodes, ER+/PR+, HER2- Dx 9/14/2012, IDC, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2-
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Apr 23, 2017 12:11AM sas-schatzi wrote:

Mags caught this line " I find the printed word on paper irreplaceable. I think I am just grieving that loss, much as I grieved the loss of my breasts, and the component of my decision to not have reconstruction which was, the real thing or none at all." Well, they aren't as perfect as they ought to be, but even though my doc would be at the bottom of the list of docs that did good foobs. Foobs have a place, if they stay in place(versus the armpit). Just to add a different point of view. But baggies aren't the usual way to do it. TE's can be introduced successfully years later. Technically, it was a failed surgery(legal/medical) term. If you choose to have a revision to get the baggies revised or continue to reconstruction, insurance should cover it.

Tell that oral surgeon he may be jeopardizing your life expectancy if he doesn't get off his duff and make it happen. Making that up, but sometimes/oftentimes docs don't get the urgency and immediacy of needed ACTION. You also, could talk with the office manager, they are the ones that set the schedules. She in turn can put the pressure on the OR scheduling folks. I bet if you tell her your tale on Monday morning, she gets it done.

Going to look into Adderall. Thanks. Gary my counselor was convinced I was ADD-ADHD b/c of the intake interview and me. Do you now sleep better at night?

Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
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Apr 23, 2017 12:14AM sas-schatzi wrote:

Mommy, YAY the first installation of HP. How old is the nephew again? It's near 20 years old now. It's the best.

Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
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Apr 23, 2017 03:20AM queenmomcat wrote:

WenchLori: thank you for the photograph of Missy--she must be a respectable age by now. (My horse lived to 27 or thereabouts. I miss him to this day.)

Sassy: you only read your copies twice?

As for me, I'm thinking I want to do a double major at the local community college: Business (Computer information Technology track) and Computer Information Science (Networking track). I've already got a Bachelors and Masters degree from elsewhere so placing out of (I hope!) all the Gen.Ed. requirements.

But both subjects will be useful in whatever I choose to do in future....and moving on from this [beep] cancer diagnosis. I haven't had a true nightmare since last November. Too tired. Too used up all my anxieties.

Dx 5/27/2015, DCIS, Left, 1cm, Stage 0, Grade 2, ER+/PR+, HER2- (IHC) Surgery 7/7/2015 Lumpectomy: Left Radiation Therapy 9/1/2015 Whole-breast: Breast Hormonal Therapy 11/1/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)

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