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Topic: INSOMNIACS place to talk in the wee hours

Forum: Mental Health: Because Cancer Doesn't Just Affect Your Breasts —

Meet and support others who are affected by these issues around anxiety, depression & other emotional effects.

Posted on: Apr 8, 2011 01:45PM - edited Apr 2, 2018 04:30PM by sas-schatzi

sas-schatzi wrote:

Welcome. This is called the insomnia thread, but we post 24/7/365. We call ourselves Owlettes :)

No nastiness, bullying, stalking or such allowed. I would like to keep the kind fabric of this thread intact.

Discussion will flow where it will as all threads do. This will be a happy place. I hope with lots of laughing. Talk of things, needs, rants as your mood or thoughts take you. Each person here has a history of helping others. Threads develop pseudo family groups. Fancy way to say we become like family. This family will have all the best a family has to offer, but none of the negatives.

May help with sleeplessness: circadian rhythm, melatonin--pub med evidence based research. http://www.ncbi.nlm.nih.gov/pubmed/21476953 Agometaline is approved for use in Europe/Australia for insomnia. It is NOT approved in the USA http://en.wikipedia.org/wiki/Agomelatine

How to naturally reset circadian rhythm with food : http://www.wisebread.com/how-to-naturally-reset-your-sleep-cycle-overnight

Article connecting insomnia and depression. It's a chicken egg thing-..............-insomnia <-----> depression.

http://blog.aarp.org/2013/12/02/is-curing-insomnia-key-to-curing-depression/?intcmp=AE-ENDART1-BL-REL

Second Sleep---The NORMAL for humans before the light bulb http://slumberwise.com/science/your-ancestors-didnt-sleep-like-you/

Autonomic dysfunction: http://www.holistichelp.net/dysautonomia-autonomic-nervous-system-dysfunction.html

BCO Member Notself's three day plan: 1. Get doc script for sleep aid, at lowest dose. 2. Set sleep time. 3. Take pill 1/2 hr to 1 hr before set time. 4. Do this for three days; 5. Should sleep on fourth night.. 6. Repeat steps 1-5 if sleeplessness has lasted more than one night.

Don'ts that are known to cause sleeplessness: Alcohol, coffee, chocolate, looking at computer screens before bedtime, sex and exersize(variable by person); Do's that promote sleep: Sex and exersize(variable by person) , book reading, foot massage, aromatherapy, sleepy teas. After dinner walk(variable).

Link to Warm & Fuzzy's (W&F) thread: Warm & fuzzy owls, goats, kitties, dogs, birds ETC. PICS &LINKS

For all our dear Sisters .........

Image result for prayer for protection friend

Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
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May 13, 2019 04:12PM mnsotamom74 wrote:

thank you ladies, feeling less alone about all of this. My husband and I had a heart to heart and he misses me next to him at night but he also feels so bad if he’s causing me to wake just as I feel bad when all my tossing and turning and in and out of bed wake him. He reassured me that where we sleep in the house at night is not as important as just continuing to be supportive and there for each other in our day to day living. It’s so frustrating, I knew cancer would change my life in so many ways, this definitely wasn’t one area I was prepared for

Dx 10/25/2018, DCIS/IDC/IDC: Cribriform, Right, 3cm, Stage IIB, Grade 2, ER+/PR+, HER2- (IHC) Surgery 11/5/2018 Lymph node removal: Sentinel; Mastectomy: Left, Right Chemotherapy 1/7/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 4/4/2019 Prophylactic ovary removal Hormonal Therapy Arimidex (anastrozole)
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May 14, 2019 01:56AM Freebee wrote:

Just finished rads and my boob is a complete mess. The discomfort and stress is keeping me awake. When I do finally doze off, I get woken by a night terror (nocturnal panic attack). This is hell. Ran out of my sleep meds so drinking neo citron nighttime. I’m thatdesperate.

Dx 10/23/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery Lumpectomy: Left; Lymph node removal: Sentinel
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May 14, 2019 02:21PM mnsotamom74 wrote:

oh Freebee I’m so sorry, that sounds so terrible. Sending you (((hugs))

Dx 10/25/2018, DCIS/IDC/IDC: Cribriform, Right, 3cm, Stage IIB, Grade 2, ER+/PR+, HER2- (IHC) Surgery 11/5/2018 Lymph node removal: Sentinel; Mastectomy: Left, Right Chemotherapy 1/7/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 4/4/2019 Prophylactic ovary removal Hormonal Therapy Arimidex (anastrozole)
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May 17, 2019 07:49PM Beatmon wrote:

Someone needs to study why our sleep has gone to crap with treatment.

Dx 7/27/2012, IDC, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2+ Surgery 8/9/2012 Lymph node removal: Left, Sentinel; Mastectomy: Left, Right Surgery 12/1/2013 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 7/1/2014 Reconstruction (left); Reconstruction (right) Dx 8/9/2014, IDC, Both breasts, Stage IV, metastasized to lungs, Grade 3, ER-/PR-, HER2+ Targeted Therapy 8/27/2014 Herceptin (trastuzumab) Targeted Therapy 8/27/2014 Perjeta (pertuzumab) Chemotherapy 8/27/2014 Taxotere (docetaxel)
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May 17, 2019 08:03PM Betrayal wrote:

Freebee:

I had night terrors related to flashbacks from treatment. I woke up having panic attacks and then no sleep for hours. I mentioned it to one of my non-cancer physicians and was offered a drug named prazosin. It is a low dose antihypertensive, not used much anymore, but it worked. I take one 1 mg tablet at bedtime and can take up to 2 if needed. There are no hangover effects so that is the plus. Still have an occasional night terror but nothing like before.

I still have sleepless nights due to other BC side effects and wish I could get someone to offer a solution for them. So, yes we do need a study on why our quality of sleep is so poor especially when it is so critical to physical and psychological well-being.

Surgery 2/1/2016 Lumpectomy: Left Surgery 2/1/2016 Lymph node removal: Sentinel Surgery 3/4/2016 Lumpectomy: Left Radiation Therapy 3/31/2016 Whole-breast: Breast Hormonal Therapy 6/25/2016 Arimidex (anastrozole) Hormonal Therapy 5/19/2017 Femara (letrozole) Hormonal Therapy 6/16/2020 Aromasin (exemestane)
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Jun 6, 2019 10:32AM - edited Jun 6, 2019 10:33AM by JMouse

Freebee, that sounds just awful. I hope you find a solution soon. Sending healing thoughts your way.

mnsotamom74, I'm glad you have a loving and understanding partner to travel with you on this road, but I totally get your frustration. Beatmon is so right: someone should study us all to try to improve our sleep.

Someone asked me earlier tonight if I liked to sleep in late. I almost laughed like a Bond villain watching his secret lair complete with shark pool go up in flames. Pre-diagnosis and treatment, I liked my night owl self, cozily sleeping in late when life allowed. Now it's 4 or 5 hours sleep, changing sweat-soaked pajamas, and struggling to quiet my mind. Every night. It's so disheartening.

We all could use a frickin' break.

Multiple tumors with lymphovascular invasion. Dx 9/18/2018, IDC, Right, 3cm, Stage IIIC, Grade 3, 16/18 nodes, ER+/PR+, HER2- (FISH)
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Jun 8, 2019 12:46PM rljes wrote:

Jmouse - I too was soaked to the bone several times at night, mind racing, no sleep / panic attacks during the day when I would have a hot flash in public and couldn't cool down.  My OBGYN prescribed Gabapentin - I was VERY skeptical - but taking just 100mg at night has improved my life.  I actually sleep for 4-5 hours straight, and hot flashes are not as severe.  

Finished Chemo March 2018, No reconstruction "Going Flat" Dx 6/26/2017, IDC, Left, 3cm, Stage IIB, Grade 2, ER+/PR+ Dx 8/22/2017, 1/7 nodes, HER2+ Surgery 8/22/2017 Mastectomy: Left, Right Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy Herceptin (trastuzumab) Hormonal Therapy
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Jun 14, 2019 06:30PM M0mmyof2 wrote:

Had a pretty low key week here. Only thing exciting that happened was that hubby and l celebrated our 15th wedding anniversary two days ago

If you value your freedom, thank a servicemember both serving and retired!
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Jun 14, 2019 07:14PM karen1956 wrote:

Mommy - happy anniversary - wishing you many more years of happiness together

Karen in Denver, Dx 02/03/2006, ILC, stage IIIa, ER/PR+, HER2-,
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Jun 15, 2019 06:05AM M0mmyof2 wrote:

Thanks Karen


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Jun 15, 2019 06:07AM mostlymom wrote:

Mommy - Happy Anniversary! Hoping you enjoy your day.

tread gently.... Mammo & Ultrasound, 2-8-11. Needle Core Biopsy, 2-17-11. Lumpectomy 3-16-11. Completed 25 rads & 8 boosts Aug 5, 2011. Complete hysterectomy July 15, 2013. Dx 2/23/2011, IDC, <1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2-
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Jun 15, 2019 06:18AM M0mmyof2 wrote:

It was a very nice day on Wednesday for our wedding anniversary. Still hard to believe it’s been 15 years.


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Jun 15, 2019 10:07AM Loveroflife wrote:

Happy Anniversary, Mommmy.

My grace is sufficient for you, My strength is made perfect in weakness. 2 Cor 12:9. Dx 8/25/2014, DCIS, 3cm, Stage 0, Grade 3, 0/3 nodes, ER-/PR- Surgery 9/16/2014 Mastectomy: Left Dx 10/13/2014, IDC, <1cm, Stage IA, 0/3 nodes, ER-/PR-, HER2+ Surgery 1/12/2015 Reconstruction (left): Tissue expander placement Surgery 5/13/2015 Reconstruction (left): Saline implant
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Jun 15, 2019 12:06PM - edited Jun 15, 2019 12:06PM by M0mmyof2

Lol

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Jun 20, 2019 03:29AM Babsinbloom68 wrote:

Hello Ladies, I can go to sleep easy and usually early...but I find myself waking up anywhere between midnight to 1:30am and most of the time there is no going back to sleep for me.

So I pray, read, listen to music, etc. thru my headphones (so I won't disturb my Honey), play and do research on the computer, etc. This has been going on for so long now that I just do my best to "make the best of it"...I am blessed that I am retired and can pretty much rest during the day if I have no energy for other things after being up half the night.

I had this problem even before my diagnosis of IDC...so I've been learning ways to adapt for a long time now.

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Jul 18, 2019 12:31PM M0mmyof2 wrote:

So sick of the heat and humidity. Supposed to have triple digit heat indexes this weekend

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Jul 26, 2019 12:52AM Fairydragonfly wrote:

I am developing a love/hate relationship with steroids. LOVE that they give me energy and oddly improve my mood. HATE that I become the worst insomniac on them. Last round my prescription sleeping pill helped. Not working tonight...

Joys of chemo I guess.

DX at age 43. Weak staining ER, Oncotype score 50, BRCA1 mutation. Lost both parents to cancer in 2018. Dx 4/17/2019, IDC, Right, 1cm, Stage IA, Grade 3, 0/4 nodes, ER+/PR-, HER2- (IHC) Surgery 4/30/2019 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 7/4/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 1/19/2020 Prophylactic mastectomy: Left, Right Surgery Prophylactic ovary removal Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jul 26, 2019 01:30AM JWoo wrote:

i was so productive while on all those stupid steroids. I'll say to enjoy the energy while you have it. Organize your pantry, do all the tedious cleaning, work any household projects you can without injuring yourself, and drink about a gallon of water a day to prevent dehydration.

While life is amazing and you appreciate it in a whole new way after you finish treatment, you will probably have serious fatigue for a long time, and so much becomes difficult to do.


I hope your treatment is completely effective, and you're on the way to wellness

effitall
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Jul 26, 2019 08:06AM Fairydragonfly wrote:

Thank you Jwoo. I know I will crash Sunday/Monday after the pills stop. Just would be nice to get more sleep. 🤷

DX at age 43. Weak staining ER, Oncotype score 50, BRCA1 mutation. Lost both parents to cancer in 2018. Dx 4/17/2019, IDC, Right, 1cm, Stage IA, Grade 3, 0/4 nodes, ER+/PR-, HER2- (IHC) Surgery 4/30/2019 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 7/4/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 1/19/2020 Prophylactic mastectomy: Left, Right Surgery Prophylactic ovary removal Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jul 31, 2019 04:45AM WC3 wrote:

Well I don't know if they gave me steroids during my port removal or if it was the tea I had earlier or the fact that it's warm, or my pain meds have worn off, but I've been sleepy all day, was in bed by 8pm, and almost 6 hours later, I'm still awake.

So I've got the AC on and took two Tylenol which literally just kicked in, and will try some melatonin but I think my plans for a productive Wednesday have been canceled.

Pathologic complete response (pCR) to chemotherapy. Dx 2018, IDC, Left, 3cm, Grade 3, ER+/PR+, HER2+ (FISH) Chemotherapy 6/1/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 11/15/2018 Lymph node removal: Left, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy Perjeta (pertuzumab) Targeted Therapy Herceptin (trastuzumab) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Aug 1, 2019 01:44AM SgCMomof3 wrote:

I have never experienced insomnia....thank you Cancer! ThumbsDown I take Effexor and that cures my hot flashes. I agree with those above who lament about the fact that we need rest to recover....and yet the meds (I assume) keep me awake. This is ridiculous.

I’m struggling with most of my side effects right now: fatigue, weight issues, hunger, weakness, neuropathy, and the list goes on. I signed up on this site to find support, understanding, and a safe place. Thank you.

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Aug 31, 2019 02:43PM - edited Sep 3, 2019 01:52PM by Teka

This Post was deleted by Teka.
Note to self: I don't have to take this day all at once, but rather, one step, one breath, one moment at a time. I am only one person. Things will get done when they get done.
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Sep 1, 2019 08:49AM - edited Sep 1, 2019 08:50AM by M0mmyof2

Keeping an eye on Dorian especially since it is now a Cat 5 as of the 8 a.m. advisory. Have friends and family in the path I am praying for on the coast all the way from FL to NC

If you value your freedom, thank a servicemember both serving and retired!
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Sep 1, 2019 09:55PM CeliaC wrote:

Mommy - Me, too. Family in Ft Lauderdale & Charleston area.

Dx 12/2/2016, DCIS/IDC, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 12/21/2016 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 2/21/2017 Whole-breast: Breast Hormonal Therapy 4/5/2017 Arimidex (anastrozole)
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Sep 3, 2019 05:30PM M0mmyof2 wrote:

Looking like my friends in NC & SCare more in the path of Dorian than my friends in FL or family in GA.

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Sep 26, 2019 07:40PM - edited Sep 26, 2019 07:40PM by sugarplum

Just revisiting this thread which I have lurked on for many years and mnsotamom74 spoke to me! I too find it heartbreaking that after 35 years of marriage my husband has taken to sleeping in the den to avoid disturbing my already-disturbed sleep. He's right though - if we share a bed I can pretty much write off the night and always end up dragging myself to work in the morning. One of my greatest comforts used to be having him hold me until he fell asleep (of course he's never heard ME fall asleep!) but I guess that's a thing of the past now. I've never been good at sleeping, but ever since chemo 13 years ago I haven't been able to stay under for longer than a couple of hours. I allow myself one Ambien per week (but after all this time, it takes MUCH longer to kick in) and .5 mg of Ativan 2-3 times per week. I find myself looking forward to those nights like they're a gift. Meanwhile I could carry groceries in the bags under my eyes and I have zero resistance to any bugs going around. And let's not even START on my lack of concentration....

Thanks for letting me vent - I needed it.

Julie

Keep calm and carry on.... Dx 4/28/2006, IDC, Right, Stage IIIC, Grade 3, 10/20 nodes, ER+/PR+, HER2- (FISH) Surgery 6/6/2006 Lymph node removal: Right, Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 7/5/2006 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 11/30/2006 Prophylactic ovary removal; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 12/17/2006 Arimidex (anastrozole) Radiation Therapy 1/10/2007 Whole-breast: Breast
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Sep 27, 2019 07:37PM karen1956 wrote:

Julie - I too am at 13 years and don't sleep more than 5 hours and that is with Xanax - and sometimes Ambien. I was taking Ambien on a regular basis but haven't noticed a decline in my sleep without it so why take it. Without the Xanax, I also rarely sleep. I've had insomnia since Dx but it is better now than it used to be. BC - the gift that keeps on giving!! Hope you get some sleep.

Karen in Denver, Dx 02/03/2006, ILC, stage IIIa, ER/PR+, HER2-,
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Sep 28, 2019 05:21PM - edited Oct 12, 2019 05:34PM by Teka

This Post was deleted by Teka.
Note to self: I don't have to take this day all at once, but rather, one step, one breath, one moment at a time. I am only one person. Things will get done when they get done.
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Oct 1, 2019 06:43AM M0mmyof2 wrote:

So sad


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Oct 5, 2019 01:50PM JWoo wrote:

so sorry to hear that Lita is gone.

effitall

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