Topic: INSOMNIACS place to talk in the wee hours

Forum: Mental Health: Because Cancer Doesn't Just Affect Your Breasts — Meet and support others who are affected by these issues around anxiety, depression, and other emotional effects.

Posted on: Apr 8, 2011 12:45PM - edited Apr 2, 2018 03:30PM by sas-schatzi

Posted on: Apr 8, 2011 12:45PM - edited Apr 2, 2018 03:30PM by sas-schatzi

sas-schatzi wrote:

Welcome. This is called the insomnia thread, but we post 24/7/365. We call ourselves Owlettes :)

No nastiness, bullying, stalking or such allowed. I would like to keep the kind fabric of this thread intact.

Discussion will flow where it will as all threads do. This will be a happy place. I hope with lots of laughing. Talk of things, needs, rants as your mood or thoughts take you. Each person here has a history of helping others. Threads develop pseudo family groups. Fancy way to say we become like family. This family will have all the best a family has to offer, but none of the negatives.

May help with sleeplessness: circadian rhythm, melatonin--pub med evidence based research. http://www.ncbi.nlm.nih.gov/pubmed/21476953 Agometaline is approved for use in Europe/Australia for insomnia. It is NOT approved in the USA http://en.wikipedia.org/wiki/Agomelatine

How to naturally reset circadian rhythm with food : http://www.wisebread.com/how-to-naturally-reset-your-sleep-cycle-overnight

Article connecting insomnia and depression. It's a chicken egg thing-..............-insomnia <-----> depression.

http://blog.aarp.org/2013/12/02/is-curing-insomnia-key-to-curing-depression/?intcmp=AE-ENDART1-BL-REL

Second Sleep---The NORMAL for humans before the light bulb http://slumberwise.com/science/your-ancestors-didnt-sleep-like-you/

Autonomic dysfunction: http://www.holistichelp.net/dysautonomia-autonomic-nervous-system-dysfunction.html

BCO Member Notself's three day plan: 1. Get doc script for sleep aid, at lowest dose. 2. Set sleep time. 3. Take pill 1/2 hr to 1 hr before set time. 4. Do this for three days; 5. Should sleep on fourth night.. 6. Repeat steps 1-5 if sleeplessness has lasted more than one night.

Don'ts that are known to cause sleeplessness: Alcohol, coffee, chocolate, looking at computer screens before bedtime, sex and exersize(variable by person); Do's that promote sleep: Sex and exersize(variable by person) , book reading, foot massage, aromatherapy, sleepy teas. After dinner walk(variable).

Link to Warm & Fuzzy's (W&F) thread: Warm & fuzzy owls, goats, kitties, dogs, birds ETC. PICS &LINKS

For all our dear Sisters .........

Image result for prayer for protection friend

Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
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Jul 5, 2014 09:54PM spookiesmom wrote:

Sas, at least you got those 2 pages!!!! iPhones don't come with anything except a box. No chit!

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Jul 5, 2014 10:03PM blondiex46 wrote:

Yay nettie, great pix

Everybody I know that ha 8 doesn't like it.

I have lt that I got in 2010, it needs to revamped.  I got this tablet 2 months ago. I love it, but still love my lt. Have my old lt hooked up to the monitor. Son threw monitor out.

I want a mac but they r about 1,000, here in philly.

Hope u all r ok..

Bbl

Ps sassie hru feeling?

Original 8/96 - 1cm, chemo, rads. Recurr..9/09...Mets to lungs, chest wall, lymph nodes under arm & chest, cervical & lumbar spine, ribs, hip. Femera, Falsodex, Zometa, Xeloda, Gemzar,Taxotere, Adriamycin,Havalen.WENT OFF CHEMO 7/20/14 Dx 9/1/2009, 3cm, Stage IV, ER+/PR-, HER2-
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Jul 5, 2014 10:42PM blessings2011 wrote:

Owlies - no personal replies tonight....  I just fell again. Ever since my big fall on vacation (head injury), I've been wobbly, unable to walk a straight line, fall easily, and my fine motor coordination sucks. I usually use my cane wherever I go these days.

I just went into the bedroom with a load of clean sheets, stepped on the edge of a pillow sham, and just that slight unevenness was enough to send me crashing to the floor.

Slammed my hip into the floor, twisted my knee,and crunched my elbow into the nightstand.

The doc I saw the same day of the fall did mention whiplash but not definitive for concussion. I didn't have any of the standard symptoms, anyway.... I could have blacked out for maybe a minute, but after that, pupils were fine, no nausea, no vomiting, no dizziness, no vertigo.

But two weeks later and I can't stand up straight, and nearly fall several times a day. Something isn't right. Time to see my favorite doc, I think.... Bawling

Two steps forward, three steps back... grrrrrr.

Dx 9/15/2011, IDC, Left, <1cm, Stage IA, Grade 2, ER+/PR+, HER2- Surgery 12/4/2011 Lymph node removal; Lymph node removal (Left); Mastectomy; Mastectomy (Left); Mastectomy (Right); Reconstruction (Left): Tissue Expander; Reconstruction (Right): Tissue Expander Surgery 8/21/2012 Reconstruction (Left); Reconstruction (Right) Hormonal Therapy 9/4/2012 Arimidex (anastrozole) Hormonal Therapy 10/21/2013 Femara (letrozole) Hormonal Therapy 10/1/2021 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx IDC: Papillary, Left, <1, Stage IA, Grade 1, ER+/PR+, HER2-
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Jul 5, 2014 10:49PM ananda8 wrote:

Blessings, Could you have an inner ear infection? 

“Before enlightenment, chop wood, carry water. After enlightenment, chop wood, carry water.”
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Jul 5, 2014 11:31PM blessings2011 wrote:

Hi, notself.... Great suggestion.....but it's not likely. Haven't had any dizziness, vertigo, nausea, or vomiting. What I have is imbalance, where I can't tell which way the floor is tilting. I did have a bad fall two weeks ago where I fell back and slammed my head into the floor. I don't recommend it.

I do have five different vestibular issues, though... 

1 - BPPV (Benign Paroxysmal Positional Vertigo, or crystals in the fluid of the inner ear)

2 - Migraine-Associated Vertigo - no headaches, only aura, complicated by stress

3 - Mal de Debarquement, or Debarkment Syndrome, where if I am on a moving object, my brain can't tell when I get on solid ground again

4 - Visual/Oculomotor Processing Disorder - my brain doesn't recognize what my eyes see. If I turn my head quickly from side to side, I get double vision

5 - Left sided neurological damage of unknown cause.... makes me fall to the left every time!

I was misdiagnosed with "Atypical Meniere's" about 15 years ago, and for a while was so bad off I used a cane or a walker everywhere I went. And if I was too unsteady, I used a wheelchair. 

My undergraduate degree is in Audiology, and I was part of a forum of people with vestibular disorders, and I was NOT going to accept the "Atypical Meniere's" diagnosis without a fight!

So I researched and researched, and did eliminations of various triggers, and finally got things under control almost ten years ago. Then I met a wonderful new ENT who had specialized in Meniere's Disease. I told him his colleague had dx'd me with "Atypical Meniere's" and he just about blew a gasket.

"THERE IS NO SUCH THING AS ATYPICAL MENIERES!!!" He yelled. "THAT'S JUST THE DOCTOR'S WAY OF SAYING THEY HAVE NO IDEA WHAT'S WRONG WITH YOU, SO THEY GIVE YOU A GARBAGE DIAGNOSIS!"

Wow... cool!

So I presented my research, he ordered a few more tests, and confirmed everything I had proposed. 

I was SO happy to not have this disequilibrium as a problem for so long... then whammo! Hit my head on the stupid floor, and here I am again.

Will be seeing my PCP on Monday, I think.

Thank you for thinking of me, notself!!!

~ ~ ~ 

2TA SillyHeart

Dx 9/15/2011, IDC, Left, <1cm, Stage IA, Grade 2, ER+/PR+, HER2- Surgery 12/4/2011 Lymph node removal; Lymph node removal (Left); Mastectomy; Mastectomy (Left); Mastectomy (Right); Reconstruction (Left): Tissue Expander; Reconstruction (Right): Tissue Expander Surgery 8/21/2012 Reconstruction (Left); Reconstruction (Right) Hormonal Therapy 9/4/2012 Arimidex (anastrozole) Hormonal Therapy 10/21/2013 Femara (letrozole) Hormonal Therapy 10/1/2021 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx IDC: Papillary, Left, <1, Stage IA, Grade 1, ER+/PR+, HER2-
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Jul 5, 2014 11:51PM - edited Jul 5, 2014 11:54PM by 2nd_time_around

Sassy and Blessings, PLEASE BE CAREFUL! Take it easy.

Sassy, is it common for the pain to come back? You can't seem to catch a break. 

Same goes for you Blessings. Really concerned for you. Please consider seeing docs, if not tomorrow (kinda difficult to see the appropriate specialist on Sunday), can you get Monday same-day appt? Can DH help? Ensure nothing in your walking path at least? Hoping tomorrow is pajama day, church can wait one week (so it's not another possible dangerous situation).  (And don't reply, just read if you can).

Nettie, pretty lady! DD gets her beautiful looks from you! The hair situation will only get better. Love your dog, those eyes are amazing! What kind?

LMG, glad the mudflaps are gone. Besides the esthetics, seemed like a bit of lymph fluid was sneaking in and slightly painful, maybe even some kind of nerve damage? Removing the skin and tissue took away some pain. Not happy with the huge long scar but will take that over pain. Besides I can cover my Franken-back.

**AKA 2TA ** Any day I wake up, it's a good day. ~ ~ "You don't know strength until strength is the only choice you have." (Author unknown)..... Yes, this is my 2nd occurrence, not recurrence; 1st in 1996, 2nd in 2012, bilateral recon in 2012
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Jul 5, 2014 11:55PM 2nd_time_around wrote:

**AKA 2TA ** Any day I wake up, it's a good day. ~ ~ "You don't know strength until strength is the only choice you have." (Author unknown)..... Yes, this is my 2nd occurrence, not recurrence; 1st in 1996, 2nd in 2012, bilateral recon in 2012
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Jul 6, 2014 12:19AM sas-schatzi wrote:

Blessings, so sorry , I hate falls. They just wreck havoc. That tilting description. Either you have said it here, or just read it with something.  I will try and think of it. Anyhow it is t pretty specific. Great when you have a doc that won' t give a garbage diagnosis and they listen. 

Blondieeee how are you? It's always something. Fix something, something else goes kafluey. Or bunches.

Okay owlies, everyone's going to laugh @ me. I've just -seen that the Kindle keyboard has all the symbols from the second keyboard in the same box. I never noticed them. I held the e key down kind of long and a 3appeared. Focused on all the keys. All the symbols are there. Wonderful. Probably in the directions I never read.

Lmg 400$., but I'll wait a bit to set it up. It was tough today with the bladder thing. I took a diuretic to help flush the bladder and drinking oodles of water. Peeing lots. It's working. We're those symbols really there all this time?

Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
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Jul 6, 2014 12:25AM - edited Jul 6, 2014 12:35AM by sas-schatzi

Maddy it's worse than you know. But I won't start on that. Hugs and more hugs.

Oh the dogs are good. The house is very soundproof.  They are calmly laying. I know there nervous ticks. I will give them the valium if need be. No hesitation on that one. All the fireworks are way less because of all the rain. If it was nice last night they would of had the valium early dusk. Tonight they started , but only lasted about a half hour. Not to worry I will protect my babies.

Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
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Jul 6, 2014 12:34AM 2nd_time_around wrote:

so Sassy, if you drink tons, does that get the RAI out of your system faster? Like chemo?

**AKA 2TA ** Any day I wake up, it's a good day. ~ ~ "You don't know strength until strength is the only choice you have." (Author unknown)..... Yes, this is my 2nd occurrence, not recurrence; 1st in 1996, 2nd in 2012, bilateral recon in 2012

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