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Topic: INSOMNIACS place to talk in the wee hours

Forum: Mental Health: Because Cancer Doesn't Just Affect Your Breasts —

Meet and support others who are affected by these issues around anxiety, depression & other emotional effects.

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Posted on: Apr 8, 2011 10:45AM - edited Apr 2, 2018 01:30PM by sas-schatzi

sas-schatzi wrote:

Welcome. This is called the insomnia thread, but we post 24/7/365. We call ourselves Owlettes :)

No nastiness, bullying, stalking or such allowed. I would like to keep the kind fabric of this thread intact.

Discussion will flow where it will as all threads do. This will be a happy place. I hope with lots of laughing. Talk of things, needs, rants as your mood or thoughts take you. Each person here has a history of helping others. Threads develop pseudo family groups. Fancy way to say we become like family. This family will have all the best a family has to offer, but none of the negatives.

May help with sleeplessness: circadian rhythm, melatonin--pub med evidence based research. http://www.ncbi.nlm.nih.gov/pubmed/21476953 Agometaline is approved for use in Europe/Australia for insomnia. It is NOT approved in the USA http://en.wikipedia.org/wiki/Agomelatine

How to naturally reset circadian rhythm with food : http://www.wisebread.com/how-to-naturally-reset-your-sleep-cycle-overnight

Article connecting insomnia and depression. It's a chicken egg thing-..............-insomnia <-----> depression.

http://blog.aarp.org/2013/12/02/is-curing-insomnia-key-to-curing-depression/?intcmp=AE-ENDART1-BL-REL

Second Sleep---The NORMAL for humans before the light bulb http://slumberwise.com/science/your-ancestors-didnt-sleep-like-you/

Autonomic dysfunction: http://www.holistichelp.net/dysautonomia-autonomic-nervous-system-dysfunction.html

BCO Member Notself's three day plan: 1. Get doc script for sleep aid, at lowest dose. 2. Set sleep time. 3. Take pill 1/2 hr to 1 hr before set time. 4. Do this for three days; 5. Should sleep on fourth night.. 6. Repeat steps 1-5 if sleeplessness has lasted more than one night.

Don'ts that are known to cause sleeplessness: Alcohol, coffee, chocolate, looking at computer screens before bedtime, sex and exersize(variable by person); Do's that promote sleep: Sex and exersize(variable by person) , book reading, foot massage, aromatherapy, sleepy teas. After dinner walk(variable).

Link to Warm & Fuzzy's (W&F) thread: Warm & fuzzy owls, goats, kitties, dogs, birds ETC. PICS &LINKS

For all our dear Sisters .........

Image result for prayer for protection friend

Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
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Apr 9, 2011 12:16AM windlass wrote:

I can breathe and swallow okay, but the swallowing is painful, like when you have strep throat. The sorness is only on the right hand side of my throat.

"He will cover you with his feathers, and under his wings you will find refuge." -Psalm 91 . . . . . . Completed: UniMX, DIEP reconstr; A/C x 4; TDM1 x 4; Taxotere+Herceptin x 4, 33 Rads; TDM1 Phase II Trial x 9; Tamoxifen, prayer. Brain Mets 2015. Dx 1/18/2011, IDC, 6cm+, Stage IV, metastasized to brain, Grade 3, 12/28 nodes, ER+/PR+, HER2+ Radiation Therapy Breast, Lymph nodes
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Apr 9, 2011 12:16AM sas-schatzi wrote:

ah nancy has a clue

Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
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Apr 9, 2011 12:18AM voraciousreader wrote:

I'm sorry to hear all of you have difficulty trying to fall asleep.   I don't have any problem falling asleep.  I'm so damn exhausted from months of interrupted sleep because of this bum shoulder.  I'm now down to counting the minutes until my surgery...which isn't until the end of the month.  Looks like I'm going to be spending a lot of time here with you sisters....Oy.

Doctor told me regarding my prognosis that I WASN'T on the Titanic! Hmmm...Really?....Okay! 02/2010 Pure Mucinous Breast Cancer, Oncotype DX 15, Stage 1, Grade 1, 1.8 cm, 0/2 nodes, ER+ 90% /PR+ 70% HER2- (+1)
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Apr 9, 2011 12:18AM windlass wrote:

Can you get strep throat only two days after chemo? I've been hearing infections happen the following week, when your white cells drop. I've been reading that "pharyngitis" or sore throat can happen "several days" after chemo, along with mouth sores. But this seems early for all of those.

"He will cover you with his feathers, and under his wings you will find refuge." -Psalm 91 . . . . . . Completed: UniMX, DIEP reconstr; A/C x 4; TDM1 x 4; Taxotere+Herceptin x 4, 33 Rads; TDM1 Phase II Trial x 9; Tamoxifen, prayer. Brain Mets 2015. Dx 1/18/2011, IDC, 6cm+, Stage IV, metastasized to brain, Grade 3, 12/28 nodes, ER+/PR+, HER2+ Radiation Therapy Breast, Lymph nodes
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Apr 9, 2011 12:19AM sas-schatzi wrote:

well I could give you a several hundred year old recipe that will nipe a sore throat from any cause in it's tracks. But has to be done right away when s/s start and tastes awful

Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
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Apr 9, 2011 12:19AM jezza wrote:

Well I've gotto go and start my risotto for dinner. Also have a hungry pup and angry siamese cat to feed!

May check in later...It's Saturday night so may be up pretty late myself...

jezza

bi-lat mastectomies (one prophylactic) saline implants no chemo, no rads 21 years NED Dx 1/1992, IDC, <1cm, Stage I, Grade 3
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Apr 9, 2011 12:21AM sas-schatzi wrote:

Vr glad you stayed.

windlass- the minimum is gargle with salt water

Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
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Apr 9, 2011 12:21AM voraciousreader wrote:

I'm up until the throbbing and stiffness subside...

Doctor told me regarding my prognosis that I WASN'T on the Titanic! Hmmm...Really?....Okay! 02/2010 Pure Mucinous Breast Cancer, Oncotype DX 15, Stage 1, Grade 1, 1.8 cm, 0/2 nodes, ER+ 90% /PR+ 70% HER2- (+1)
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Apr 9, 2011 12:22AM windlass wrote:

Thanks, good. Sas: Do you have a recipe that is easier to whip up at home?

p.s. I read the package insert on my topical lidocaine. Did you know it is a carcinogen in its own right? Sheesh.

"He will cover you with his feathers, and under his wings you will find refuge." -Psalm 91 . . . . . . Completed: UniMX, DIEP reconstr; A/C x 4; TDM1 x 4; Taxotere+Herceptin x 4, 33 Rads; TDM1 Phase II Trial x 9; Tamoxifen, prayer. Brain Mets 2015. Dx 1/18/2011, IDC, 6cm+, Stage IV, metastasized to brain, Grade 3, 12/28 nodes, ER+/PR+, HER2+ Radiation Therapy Breast, Lymph nodes
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Apr 9, 2011 12:23AM hdangelbaby wrote:

strep has an incubation period of 1 to 4 days. your white counts don't usually drop until about 7-21 days after ( depending if you are on 3 week cycle or dose dense 2 week cycle), still, your counts don't have to be low to pick up strep. you could have contacted it in the 1 to 4 days prior to symptoms showing up. go get a flashlight and shine it on your throat. do you have white patches? or a very red throat?

staying cancer free is my new full time job!! Dx 10/14/2010, IDC, 2cm, Stage II, 2/9 nodes, ER+/PR+, HER2-
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Apr 9, 2011 12:23AM sas-schatzi wrote:

Windlass--go gargle first with salt water now then come back

Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
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Apr 9, 2011 12:23AM windlass wrote:

Let me go look at my throat with a flashlight. BRB.

"He will cover you with his feathers, and under his wings you will find refuge." -Psalm 91 . . . . . . Completed: UniMX, DIEP reconstr; A/C x 4; TDM1 x 4; Taxotere+Herceptin x 4, 33 Rads; TDM1 Phase II Trial x 9; Tamoxifen, prayer. Brain Mets 2015. Dx 1/18/2011, IDC, 6cm+, Stage IV, metastasized to brain, Grade 3, 12/28 nodes, ER+/PR+, HER2+ Radiation Therapy Breast, Lymph nodes
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Apr 9, 2011 12:25AM sagina wrote:

Ok, I'm back, sleep didn't work....how bout a thread called "you know you have chemo brain when..." like right now, I kept hitting refresh, nothing happened that you all went to bed, then DUH had to go the next page! lol

Gina Dx 10/13/2010, IDC, 4cm, 0/2 nodes, ER-/PR-, HER2- Chemotherapy 11/2/2010 AT Surgery 3/15/2011 Lumpectomy: Right; Lymph node removal: Right, Sentinel Radiation Therapy 4/19/2011
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Apr 9, 2011 12:27AM hdangelbaby wrote:

hahaha sagina!! that is so a chemo brain moment!

and i have them all the time! my DH says " it's like christmas for you everyday now, cause you lose stuff, then find it and get all surprised and happy" !! it makes me laugh.....

staying cancer free is my new full time job!! Dx 10/14/2010, IDC, 2cm, Stage II, 2/9 nodes, ER+/PR+, HER2-
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Apr 9, 2011 12:28AM sagina wrote:

So true, on Christmas day midway through treatments, I couldn't find my pants - any of them! I finally sat down and cried....so appreciate what the elderly go through when they look at me like - really I don't know what you mean!

Gina Dx 10/13/2010, IDC, 4cm, 0/2 nodes, ER-/PR-, HER2- Chemotherapy 11/2/2010 AT Surgery 3/15/2011 Lumpectomy: Right; Lymph node removal: Right, Sentinel Radiation Therapy 4/19/2011
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Apr 9, 2011 12:30AM sagina wrote:

Windlass, my OC gave me a script to fill for antibiotics - said to keep on hand and if I had a fever of 101 to take and then call the office.

Gina Dx 10/13/2010, IDC, 4cm, 0/2 nodes, ER-/PR-, HER2- Chemotherapy 11/2/2010 AT Surgery 3/15/2011 Lumpectomy: Right; Lymph node removal: Right, Sentinel Radiation Therapy 4/19/2011
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Apr 9, 2011 12:32AM hdangelbaby wrote:

holy crap, my DH is snoring so loud, that i wouldn't be able to sleep even if i was tired!

staying cancer free is my new full time job!! Dx 10/14/2010, IDC, 2cm, Stage II, 2/9 nodes, ER+/PR+, HER2-
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Apr 9, 2011 12:34AM hdangelbaby wrote:

sagina, my doc just did that. my strep test came back neg ( rapid test), but he said since there ar so many false negatives with those, he gave me a script for the z pack and told me if i didn't feel better by tomorrow ( which was today), then to take them.so when i woke up still feeling exactly like i did when i got strep about a month ago, i went ahead and took them. i guess worse case scenario, it's viral and the antibiotics won't do a thing for it.

staying cancer free is my new full time job!! Dx 10/14/2010, IDC, 2cm, Stage II, 2/9 nodes, ER+/PR+, HER2-
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Apr 9, 2011 12:34AM windlass wrote:

Okay, I took a look at my throat, and there's nothing I can obviously see. Trouble is I don't know what my throat normally looks like and if this is any different. It's sort of pale pink with whitish streaks, but the don't look like "white patches", more like just part of my throat. But who knows?

I don't have maalox or mylanta, but I swished with a calcium magnesium supplement, and that helped a bit. Then I made a magnesium tea that I am sipping. (That's supposed to help with the heart too, right?) I feel a bit better and a bit calmer. Now that I know I am not dying of strep or anything, I am going to try going back to bed.

Thanks for being my middle of the night sisters and helping me through this.

"He will cover you with his feathers, and under his wings you will find refuge." -Psalm 91 . . . . . . Completed: UniMX, DIEP reconstr; A/C x 4; TDM1 x 4; Taxotere+Herceptin x 4, 33 Rads; TDM1 Phase II Trial x 9; Tamoxifen, prayer. Brain Mets 2015. Dx 1/18/2011, IDC, 6cm+, Stage IV, metastasized to brain, Grade 3, 12/28 nodes, ER+/PR+, HER2+ Radiation Therapy Breast, Lymph nodes
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Apr 9, 2011 12:34AM sagina wrote:

So Bonnie, the worker had chemo head too? lol

Gina Dx 10/13/2010, IDC, 4cm, 0/2 nodes, ER-/PR-, HER2- Chemotherapy 11/2/2010 AT Surgery 3/15/2011 Lumpectomy: Right; Lymph node removal: Right, Sentinel Radiation Therapy 4/19/2011
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Apr 9, 2011 12:35AM hdangelbaby wrote:

God is good, oh that's something i would totally do!!!

staying cancer free is my new full time job!! Dx 10/14/2010, IDC, 2cm, Stage II, 2/9 nodes, ER+/PR+, HER2-
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Apr 9, 2011 12:35AM - edited Apr 9, 2011 12:39AM by sas-schatzi

if no allergies to the following  cider vinegar, salt, red pepper which is capasicin(SIC)Find a glass container pour cider vinegar to almost the top. Then pour into small saucepan, cover bottom of pan with salt, then cover bottom of pan with red pepper seeds, boil for several minutes, let cool, then pour through seive into glass container. gagrle every 1/2 hr for a couple of hours. First gargle is awful because it tastes awful. Where ever the attacking bacteria are, it will feel likes its burning. It's killing them. After each gargle spit it out and rinse the foremouth. If you do it at the first sign of a sore troat it can stop it fast. Once the bacterias gotten to far of a foothold.  It doesn't work the same. cover glass container-  I use a cork and store in frig . This recipe is several hundred years old and could be older than that.

Problem is your on chemo and the symptoms are moving fast --call your doc

Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
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Apr 9, 2011 12:37AM Jalsmama55 wrote:

Hello all! I'm officially joining! So much trouble sleeping at night. The minute I try to lay down, the circus goes off in my head and it's all downhill from there Haha! Hubby and oldest son are out of town for the weekend, middle son is with gma and gpa and I'm here with my 4 year old. Bored out of my mind! Laughing at all the posts :)

 PLEOMORPHIC MULTIFOCAL, MULTICENTRIC ILC.  BMX 9/14/10, ALND to right. Chemo (TC) x4, 38 Rads, tamoxifen and zoladex Surgery 7/30/2010 Lumpectomy: Right Dx 8/4/2010, LCIS/ILC/IDC, 2cm, Stage IIB, Grade 2, 2/16 nodes, ER+/PR+, HER2- (FISH) Surgery 9/14/2010 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Left, Right Chemotherapy 10/20/2010 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 2/15/2011 Breast, Lymph nodes Hormonal Therapy 2/21/2011 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 11/15/2013 Reconstruction (right): DIEP flap Surgery 3/27/2014 Reconstruction (left): Tissue expander placement Surgery 10/16/2014 Reconstruction (left) Surgery 2/19/2015 Prophylactic ovary removal Hormonal Therapy Femara (letrozole)
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Apr 9, 2011 12:38AM windlass wrote:

Any votes for me to call my doc now, at 3:38 AM, versus waiting til 8:00 AM?

"He will cover you with his feathers, and under his wings you will find refuge." -Psalm 91 . . . . . . Completed: UniMX, DIEP reconstr; A/C x 4; TDM1 x 4; Taxotere+Herceptin x 4, 33 Rads; TDM1 Phase II Trial x 9; Tamoxifen, prayer. Brain Mets 2015. Dx 1/18/2011, IDC, 6cm+, Stage IV, metastasized to brain, Grade 3, 12/28 nodes, ER+/PR+, HER2+ Radiation Therapy Breast, Lymph nodes
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Apr 9, 2011 12:38AM chrissyb wrote:

I'm up, but there again, it's only 5.00 pm.  I'd begin to worry if I were sleeping right now......lol.   This time I find the boards are usually, really quiet so it's great that you started this thread Sas.  Mid if I join?

I found my peace which gave me strength. 52 at dx. Dx 12/8/2003, IDC, 4cm, Stage IV, Grade 2, 0/12 nodes, mets, ER+/PR+, HER2-
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Apr 9, 2011 12:38AM hdangelbaby wrote:

damn snoring... what the hell am i gonna do when i go back to work from 8 -5??? hmmmph!

staying cancer free is my new full time job!! Dx 10/14/2010, IDC, 2cm, Stage II, 2/9 nodes, ER+/PR+, HER2-
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Apr 9, 2011 12:39AM sas-schatzi wrote:

windlass read my last post

Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
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Apr 9, 2011 12:40AM sagina wrote:

Windlass, they might tell you just to go to an ER, there's probably not much they can do for you right now with the office being closed.  I remember feeling the exact way you are right now....if you have a fever never hestitate to call though.

Gina Dx 10/13/2010, IDC, 4cm, 0/2 nodes, ER-/PR-, HER2- Chemotherapy 11/2/2010 AT Surgery 3/15/2011 Lumpectomy: Right; Lymph node removal: Right, Sentinel Radiation Therapy 4/19/2011
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Apr 9, 2011 12:41AM chrissyb wrote:

Windlass, if you have normal temp and can get some relief from the above forementioned recipes I would wait until 8.00AM.

I found my peace which gave me strength. 52 at dx. Dx 12/8/2003, IDC, 4cm, Stage IV, Grade 2, 0/12 nodes, mets, ER+/PR+, HER2-
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Apr 9, 2011 12:41AM sas-schatzi wrote:

Chrissy welcome come on in and join us sleepless babies

Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".

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