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Topic: Pinktober Revolution

Forum: Emotional Crises: Anxiety, Depression & Other Emotional Effects —

Meet and support others who are affected by these issues around breast cancer fears, diagnosis and treatment.

Posted on: Aug 2, 2012 02:03AM - edited Dec 23, 2015 10:34PM by sas-schatzi

sas-schatzi wrote:

We support the efforts to bring awareness to breast cancer during the month of October, but we are frustrated by Pinking and Pinkwashing. Please, join us as we seek to improve knowledge re: breast cancer.

Vision Statement:To bring full awareness of the reality of breast cancer to the general public; the surgeries, the treatments and the horror that there is NO cure. To ensure that proceeds donated to the cause are publically noted and distributed in an appropriate manner for the community in which the funds were raised. To keep corporations accountable for the use of pink products and the medical field driven to move the cure closer to the finish line.

A Look at Charitable & Non-Charitable Organizations

Archive storage for Pintober Revolution-non discussion area

This is just a sampling of the bonehead comments we hear all the time. Thanks Scuttlers for finding this :)

scuttlers wrote: I may make a copy, put on the fridge, and play bingo for one week. If I get a "Bingo", hubby takes me to dinner. If I get a "full card", I get a full spa treatment. Then all those idiots would be wondering why I jump up and down and scream happily at their stupid and asinine remarks. :-). !!!!!

Breast Cancer Action webinar on Sexualization of breast cancer.

http://www.bcaction.org/resources/webinars/free-webinar-please-stop-staring-at-my-breasts-the-sexualization-of-breast-cancer/ Traveltext, 2015

Please ask Look Good Feel Better To Stop Giving Carcingoneic Products to Breast Cancer Patients through the Look Good Feel Better program JackBirdie, 2015.

American Cancer Society, Stop Giving Carcinogenic Cosmetics to Women With Cancer

Thurs. 29 October 2015 By Katy Skahill, Truthout | Op-Ed (BCO member Jackbirdie)

https://community.breastcancer.org/forum/102/topics/791442?page=89#post_4539402

Google hits sexualization Oct 2015 43,100

http://pinktobersucks.com/


Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
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Sep 7, 2017 08:15PM VLH wrote:

I just reviewed Komen's annual report and it appears that they are addressing several items pointed out by their critics, by highlighting men with breast cancer, working on better reaching communities where minorities are disproportionately impacted by breast cancer, participating in a consortium regarding metastatic breast cancer, etc. I still think their funding needs to shift more to research and MBC plus the projected image of cancer as something pretty and pink needs to be better addressed. They are one of the entities who helped with the daunting co-pays on my chemo drugs so I may well be biased.

http://ww5.komen.org/AboutUs/FinancialInformation....

As to the American Cancer Society handing out products with potential carcinogens, I wonder if critics have appealed to their favorite companies that don't have said ingredients and petitioned them to donate? I don't know how many companies have the resources to support a national program like that. Would it be better to simply abandon the program altogether? Personally, I very rarely wrote makeup in the 30 years leading up to my diagnosis so it was not a likely culprit for me, but I think it's great to encourage companies to find safer alternatives that eliminate ingredients of concern.

Lyn

Dx 5/20/2016, IDC, 2cm, Stage IIB, Grade 3, 0/3 nodes, ER-/PR-, HER2- (FISH) Surgery 7/14/2016 Lumpectomy: Left Dx 7/18/2016, DCIS, Left, Stage 0, Grade 3, 0/3 nodes Surgery 7/25/2016 Lumpectomy: Left Chemotherapy 10/10/2016 AC + T (Taxol) Radiation Therapy 9/5/2017 Whole-breast: Breast
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Sep 7, 2017 09:13PM Traveltext wrote:

That's great news Lyn. I certainly agree that Stage 4 folks need more, since they are the ones dying and they are the ones who often get quite put off by the pink hoopla.

Good on Komen for helping you with co-pays, since financial assistance for individuals can be the most useful help of all.

You can read the Charity Navigator report on Komen here:

https://www.charitynavigator.org/index.cfm?bay=sea...


NED breast and prostate cancer. More on Male BC

Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

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Sep 10, 2017 06:45PM Traveltext wrote:

BCO have a plan for pinking up Halloween to raise funds for this website. Is this a fair thing given the cause, or should this kids day be left to them?
Follow the discussion here:

https://community.breastcancer.org/forum/114/topic...


NED breast and prostate cancer. More on Male BC

Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

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Sep 12, 2017 09:32PM ShetlandPony wrote:

The photos above are so ridiculous (pink rolls etc.) They are a slap in the face to those of us who actually deal with the disease. Freya said above, "What I don't appreciate is MBC being sexualised and trivialised to make other people feel better." Well said!

Thank you, Traveltext, for pointing out that the stage iv people especially are in dire need of research funding.

I think Komen may be starting to get some of our messages. Someone posted on another thread that they are doing an mbc conference this fall, and it appears that there is no registration fee. We should praise any efforts at good behavior.

2011 Stage I ILC ER+PR+ Her2- 1.5 cm grade 1, ITCs sn . Lumpectomy, radiation, tamoxifen. 2014 Stage IV ILC ER+PR+Her2- grade 2, mets to breast , liver. Taxol NEAD. 2015,2016 Ibrance+letrozole. 2017 Faslodex+Afnitor; Xeloda. 2018,2019 Xeloda NEAD
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Sep 13, 2017 05:33PM VLH wrote:

Thanks for the link, Traveltext. I'm broke, but Charity Navigator is the "go to" I recommend to those in better financial condition.

Shetland Pony speaks to a point I was trying to make, albeit not very well. Rather then demonizing charities, I think it's best to acknowledge help for cancer detection, treatment or research when it's been provided while addressing improvements still to be made. I also believe in trying to offer solutions instead of just criticisms. For example, I don't know what criteria is used in determining which makeup ingredients are potentially carcinogenic, I wonder if critics could approach the more successful companies using gentler ingredients, such as Burt's Bees or Jessica Alba's company, to see if they would participate in the "Look Good, Feel Better" program, then present the product proposal to the American Cancer Society. I suspect it's not easy to find companies both willing and able to support a national program of this magnitude.

Whether people with breast cancer like it or not, the color pink is associated with the disease. Companies abusing that association and not contributing to research can be called out on social media. Similarly, the products that are so clearly offensive to those with metastatic breast cancer can be addressed on social media from the perspective of those impacted by the disease, either themselves or loved ones. I'm an advocate of being polite, persistent and persuasive rather than using profane language. I understand the justifiable anger, but that approach makes people immediately become defensive and often terminates any discourse or helpful exchange of ideas. It also alienates those who have good intentions, but haven't properly considered how their approach may be inappropriate.

Lyn

Dx 5/20/2016, IDC, 2cm, Stage IIB, Grade 3, 0/3 nodes, ER-/PR-, HER2- (FISH) Surgery 7/14/2016 Lumpectomy: Left Dx 7/18/2016, DCIS, Left, Stage 0, Grade 3, 0/3 nodes Surgery 7/25/2016 Lumpectomy: Left Chemotherapy 10/10/2016 AC + T (Taxol) Radiation Therapy 9/5/2017 Whole-breast: Breast
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Sep 23, 2017 06:50PM - edited Sep 23, 2017 07:09PM by Traveltext

Just posted here: dontpinkforme.causevox.com/lynn-edwards

Lynn Edwards

I was diagnosed with breast cancer in May of 2016 at the age of 42, fifteen years after undergoing treatments for stage 4 non-hodgkin's lymphoma. My daughters and my family have seen me battle this disease twice. It's something you get weary from experiencing and I hope for nothing more than to find an end to the ordeal that is cancer. The past year and my journey through breast cancer has indeed been the toughest, most eye-opening months of my life.

The first time I battled cancer, my daughters were very young. This time they were teenagers. It is one thing for them to have seen my deterioration during chemotherapy with loss of hair, stamina and presence. But the hardest thing, tougher than all, was the look in their eyes after I came home without breasts. As three teenage girls, you can only imagine the subtle fear it must instill in them when they see that THIS, this is the option for treatment and cure. I just pray that they don't think this is what their future holds if for any reason they had to travel the same path as I did. It is truly an ugly and horrible experience.

That is where Breast Cancer Action comes in. This grassroots organization is fighting to stop the causes of breast cancer. They do not take any corporate funding from any company that profits from or contributes to breast cancer. They treat breast cancer as the epidemic and health crisis that it is. Breast Cancer Action is a watchdog organization that gets to the source of causes and injustices, unlike the "awareness" movements and organizations that profit in a sea of lucrative agendas that have yet to offer a real solution.

I ask you to please, please consider where your donations are going and to what extent it is making a difference. As breast cancer "awareness" month approaches, I ask you to consider the desperate need for meaningful change.

Instead of buying into all of the pink ribbon products this October, consider the "Think Before You Pink" campaign and make a donation to Breast Cancer Action.

Don't "pink" for me!

Love to all.


NED breast and prostate cancer. More on Male BC

Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

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Sep 28, 2017 08:39AM M0mmyof2 wrote:

I just had to block a page on Facebook that was selling the most ugly shoes and other items all in the name of "raising awareness and fighting for a cure" of several diseases such as BC. In one of their vain attempts to try to get people to buy their junk, I said as a survivor I am angry and appalled that they would try to make profits off the misfortune of those who are dealing with a serious illness.

If you value your freedom, thank a servicemember both serving and retired!
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Sep 28, 2017 10:02AM Freya wrote:

Dx 2009, ILC/IDC, Right, 6cm+, Stage IV, metastasized to bone/liver, Grade 3, 14/22 nodes, ER+/PR+, HER2-
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Sep 28, 2017 12:30PM Artista928 wrote:

I just had a great laugh at a commercial today trying to sell this UGLY pink license plate frames. I mean even if it is metal, which it doesn't look it, only 5% of the sale goes to "cancer research." Yeah, do the math. What a fuckin' joke! Hate pink thankfully, and most certainly pinktober! :X

Dx'd at 50. Doing it all, all by myself. Stopped Letrozole after 5 weeks. Debilitating se's. Back on Tamox now. Dx 6/2/2015, IDC, Left, 6cm+, Stage IIIA, Grade 3, 1/4 nodes, ER+/PR+, HER2- (DUAL) Surgery 8/6/2015 Lymph node removal: Left, Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 11/3/2015 AC + T (Taxotere) Radiation Therapy 5/2/2016 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 6/28/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 12/9/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 2/14/2017 Femara (letrozole) Hormonal Therapy 3/26/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 9/1/2017 Reconstruction (right): Fat grafting, Silicone implant
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Sep 28, 2017 06:43PM Mominator wrote:

Weight Watchers is chiming in with this program:

=========================================

For a second year, Weight Watchers is collaborating with the American Cancer Society on Project L.I.F.T.— Live Inspired. Fight Together. — a movement that aims to inspire and guide breast cancer survivors tackling the unexpected weight gain that can occur post-treatment.

Here's where you come in:
1. Walk with Weight Watchers Join Weight Watchers at an American Cancer Society Making Strides Against Breast Cancer® Event in your area and help us reach our Making Strides fundraising goal of $100,000. To join a local team, please visit: MakingStridesWalk.org/WeightWatchers.

2. Purchase Project L.I.F.T. Limited-Edition Products* Visit our Online Shop and your meeting room for products from our limited-edition collection. All profits from the sale of these products will go to the American Cancer Society to help save lives from breast cancer.

3. Learn More & Spread the Word Visit the Project L.I.F.T. Hub for free resources, member stories, and more ways to get involved.

=========================================

Lots of advice for women or friends of women going through cancer treatments such how to avoid weight gain during cancer treatments or how to talk to a friend diagnosed with breast cancer. All pictures are of women. Not a peep about men nor MBC. Survivors and post-cancer life mentioned a lot. The most negative thing I found were the mortality rates in this passage. "There are more than 3 million breast-cancer survivors in the United States, with improvements in early detection and treatments helping to reduce mortality rates by nearly 40 percent since the 1980s. The five-year survival rate has increased from less than 80 percent in 1985 to more than 90 percent today."

There you go: survival rates are now more than 90 percent. Yeah!! Guess our odds are pretty good, right? Loopy


Mominator, BRCA2+, STK-11 VUS, wife, mom to 3 children of various special needs, musician, volunteer. My Mom dx DCIS age 62, ILC stage IIIA age 79; Mom just passed 2/28/18. My Grandmother died of ovarian cancer age 48. Friend to Lori M, died 5/25/16. Surgery 11/10/2015 Prophylactic mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 1/18/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 6/29/2017 Reconstruction (left): Silicone implant
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Sep 29, 2017 07:33AM Traveltext wrote:

Freya, that's a classic which I've posted on Facebook and Twitter under the hashtag #whyisthispink

Mominator, gotta love those rubbery stats. Anything to prove that handing over a few bucks is helping.


NED breast and prostate cancer. More on Male BC

Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

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Sep 29, 2017 11:28PM ShetlandPony wrote:

I don't know where they got those statistics. From the Metastatic Breast Cancer Network (mbcn.org):

'Mortality rate trends:

[for women] Down by 2.2% annually between 1990-2007, "attributable to both improvements in BC treatment and early detection." [ACS Breast Cancer Facts & Figures, 2011-2012]'

That's right. Two percent.

MBCN also notes that the death rate for breast cancer is "Approximately 40,000 per year for the last 20 years [ACS]" That is not a "40% reduction in mortality rates" as those phonies claim.

As for their five-year survival rate, golly, I have survived five years. Do those people want to put money on my making it another five? Or getting anywhere near a normal lifespan? Didn't think so.

Not trying to be a downer, but so much of this Pinktober stuff is dishonest and disrespectful. Let's get real. It's a disease, not a marketing opportunity. I'm preaching to the choir here, I know.


2011 Stage I ILC ER+PR+ Her2- 1.5 cm grade 1, ITCs sn . Lumpectomy, radiation, tamoxifen. 2014 Stage IV ILC ER+PR+Her2- grade 2, mets to breast , liver. Taxol NEAD. 2015,2016 Ibrance+letrozole. 2017 Faslodex+Afnitor; Xeloda. 2018,2019 Xeloda NEAD
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Sep 29, 2017 11:38PM marijen wrote:

    • Saw this on local news today
      WHAT WE DO We send Pretty Packages Hope, strength and beauty all wrapped in pink "Pretty Packages" are care packages intended to empower women battling cancer to feel strong, beautiful and fierce; a reminder that they are amazing and truly "Fighting Pretty!"SEND A PRETTY PACKAGE We share strength A symbol of strength and hope. Every Pretty Package includes a pair of mini pink boxing gloves. When founder, Kara Skaflestad was diagnosed with breast cancer at age 26, she was given a pair by her best friend's mom (another survivor) and they hung on Kara's bedpost every day as a reminder to stay strong and fight!When Kara's fight was "over," she passed them on to another fighter, who also passed them on. The mini pink boxing gloves are a reminder to every woman battling cancer to never give up. And when she is ready to pass on her strength, she can pass her mini pink boxing gloves on too We create community Join in the fight! We are always looking for individuals and companies to help create Pretty Packages, donate product and fundraise for Fighting Pretty to further our mission and help even more women battling cancer feel strong and beautiful.GET INVOLVED
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    Sep 29, 2017 11:57PM - edited Sep 30, 2017 12:00AM by ShetlandPony

    Oh, if I just had one of those boxes and a pair of mini pink boxing gloves, I would feel so much better. (NOT) Oh, and yes, I'll be sure to pass them on when my pretty "fight" is over...in my WILL! I guess that will mean I "gave up" eh?

    What if they directed that time and money to research aimed at finding better treatments and a cure, and to assisting patients with living/treatment expenses?

    Ok, I really need to get off the computer before I rant any more...

    2011 Stage I ILC ER+PR+ Her2- 1.5 cm grade 1, ITCs sn . Lumpectomy, radiation, tamoxifen. 2014 Stage IV ILC ER+PR+Her2- grade 2, mets to breast , liver. Taxol NEAD. 2015,2016 Ibrance+letrozole. 2017 Faslodex+Afnitor; Xeloda. 2018,2019 Xeloda NEAD
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    Sep 29, 2017 11:59PM marijen wrote:

    But Shetland Pony, there's a pretty scarf in the box too!


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    Sep 30, 2017 12:01AM - edited Sep 30, 2017 12:05AM by ShetlandPony

    Dare I suggest a use for it?

    Thanks for the laugh, Marijen!

    2011 Stage I ILC ER+PR+ Her2- 1.5 cm grade 1, ITCs sn . Lumpectomy, radiation, tamoxifen. 2014 Stage IV ILC ER+PR+Her2- grade 2, mets to breast , liver. Taxol NEAD. 2015,2016 Ibrance+letrozole. 2017 Faslodex+Afnitor; Xeloda. 2018,2019 Xeloda NEAD
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    Sep 30, 2017 12:03AM marijen wrote:

    The lady who started this "non-profit" thinks she's cured. They send these boxes all over the world.

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    Sep 30, 2017 12:05AM - edited Sep 30, 2017 12:06AM by marijen

    They send coloring sheets for the kids.



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    Sep 30, 2017 12:51AM Traveltext wrote:

    Wow, a charity devoted to sending out boxes of pretty pink things. How many women here feel "fighting pretty" going through treatment, I wonder. As SP suggests, how much better would an offer to help fund out-of-pocket expenses be.

    Fake facts, along with misreported statistics, and maintaining a warm pink glow is the common methodology at this time of year as the pink charities go all out to harvest the dollars that are there for the taking.

    Subterfuge they engage in in order to meet fundraising goals in these competitive tims include:

    1. Posting pics of young bc moms when they well know that women under 30 make up one percent of new cases (the same as men of all ages) and when the average age that women get this disease is in their mid-fifties.
    2. Banging on about awareness when people have never been more aware and when Stage 4 research receives just 7% of total funds.
    3. Pushing mammography as the key to detection, when many people with bc aren't detected this way.
    4. Playing down Stage 4 because promoting bad news is not the best way to raise funds.
    5. Despite low community awareness levels of male bc (around 30-40%) there's little publicity that men get this disease too.
    6. Playing down the importance of genetics in the male hereditary line, when chances of inheriting both bad and good genes is 50-50.
    7. Failing to lobby for BRCA men to be a part of public screening programs, despite BRCA 2 men having a 1 in 8 chance of getting bc.


    But some progress is being made in my neck of the woods, as the biggest pink charity in Australia is putting aside a day (20 October) to publicise maleBC. Woohoo.


    NED breast and prostate cancer. More on Male BC

    Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

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    Sep 30, 2017 03:36AM Freya wrote:

    Well, I obviously can't fight then, since I am losing every round. But best make sure I am at least a pretty corpse so I am not a complete loser.

    <<gagging>>

    Dx 2009, ILC/IDC, Right, 6cm+, Stage IV, metastasized to bone/liver, Grade 3, 14/22 nodes, ER+/PR+, HER2-
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    Sep 30, 2017 07:22AM - edited Sep 30, 2017 07:25AM by Shellsatthebeach

    I have mixed emotions. I think there is plenty of good being done. With that said there is improvements that need to be made. It is really shameful more isn't put into stage 4 breast cancer. As far as glamourizing and sexualizing breast cancer....I find it very unappealing and appalling. They should stick with real life pictures of women from all generations to remind us it is affecting our loved ones rather than giving us some image we should look like pink sex kittens. That pours salt on open wounds when in reality many of us struggle from losing eyelashes, brows, hair, boobs, weight issues, skin issues, general health issues etc....


    Edit to add: more awareness needs to be done for men and breast cancer

    Dx 3/2017, IDC, Left, 3cm, Stage IIIB, Grade 2, ER+, HER2- Surgery 8/28/2017 Lymph node removal; Mastectomy: Left Dx 9/15/2017, DCIS/IDC, Left, Stage IIIB, Grade 3, 6/10 nodes, ER+/PR+, HER2+ Targeted Therapy 9/24/2017 Herceptin (trastuzumab) Radiation Therapy 10/17/2017 Breast, Lymph nodes, Chest wall Targeted Therapy Perjeta (pertuzumab) Chemotherapy AC + T (Taxotere)
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    Oct 3, 2017 08:56AM TWills wrote:

    More "awareness"...on bananas🙄


    Dx 11/2016, IDC, Left, 4cm, Stage IIB, Grade 3, 1/14 nodes, ER+/PR+, HER2- Surgery 12/13/2016 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic mastectomy: Right Chemotherapy 2/2/2017 AC + T (Taxol) Surgery 7/10/2017 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Radiation Therapy 7/31/2017 Whole-breast: Breast, Chest wall Surgery 8/27/2017 Hormonal Therapy 11/8/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 3/2/2018 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
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    Oct 3, 2017 09:45PM Mominator wrote:

    I'm so glad that those bananas are out drawing attention to breast cancer and educating us all on the benefits of early detection! 

    Mominator, BRCA2+, STK-11 VUS, wife, mom to 3 children of various special needs, musician, volunteer. My Mom dx DCIS age 62, ILC stage IIIA age 79; Mom just passed 2/28/18. My Grandmother died of ovarian cancer age 48. Friend to Lori M, died 5/25/16. Surgery 11/10/2015 Prophylactic mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 1/18/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 6/29/2017 Reconstruction (left): Silicone implant
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    Oct 3, 2017 11:22PM - edited Oct 3, 2017 11:51PM by ChiSandy

    I have a slightly different take on this. I do wear pink in solidarity with my fellow breast cancer patients, as well as something blue to honor the men. I try to educate everyone I can that the goal should no longer be raising "awareness" of breast cancer--it sucks but nobody walks around whispering the "C word" or refusing to talk about breast cancer. By now, damn near everyone is "aware" of breast cancer but most are unaware that men get it too, that breast-self-exam (I even went to Planned Parenthood in my 20s to examine the fake breast for fake lumps) and mammograms don't always detect cancer, especially in dense breasts; and that the focus needs to shift to finding the cure--which means not just minimizing recurrence risk but also curing MBC as is already possible for some other Stage IV cancers. I donate to BCO. I will check out Metavivor. Lynn Sage Foundation is concentrating on supporting researchers. Even the wincingly-named PinkAgenda (Giuliana Rancic's org.) has a quiz on its site to educate people on different kinds & stages of breast cancer, that men get it too, and that everyone has the BRCA gene--it's the mutation of that gene which gets tested for and exponentially raises the chance of breast (and other) cancer and recurrence.

    I wear pink from my closet, sock drawer, underwear drawer (where nobody can see it), jewelry box and accessories. (Even my AppleWatch band). I happen to look good in it and I refuse to let it be hijacked by charlatans & opportunists,. What I DON'T do is buy "awareness-themed" merchandise, except when 100% of the proceeds go to a responsible breast cancer charity (Ford "Warriors in Pink," whose t-shirts don't scream "AWARENESS!" and the latest Real Bears Fans Wear Pink tees--which are sold by Advocate Health System for its breast cancer clinics, research, and assistance to patients & their families, and feature pink graphics on blue fabric--the blue to emphasize that men get breast cancer too. It used to be black on pink).

    Street gangs have hijacked sports-team logo, Disney and Looney Tunes apparel--even some religious symbols (my son's dojo made him take off his Star of David necklace before karate classes because the Latin Kings had appropriated it as their symbol). Not gonna let clueless and sexist morons, grifters and greedy bastards hijack pink too.

    "Pinktober sucks if it's used to make bucks." Take back the pink! (And blue).

    Diagnosed at 64 on routine annual mammo, no lump. OncotypeDX 16. I cried because I had no shoes...but then again, I won’t get blisters.... Dx 9/9/2015, IDC, Right, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 9/23/2015 Lumpectomy: Right Radiation Therapy 11/2/2015 3DCRT: Breast Hormonal Therapy 12/31/2015 Femara (letrozole)
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    Oct 4, 2017 12:16AM Traveltext wrote:

    That's a very thoughtful and well-argued policy for Pinktober ChiSandy. It really is up to the consumer to sort the wheat from the chaff when it comes to pink products, but I fear most people don't and therein lies the con. Many companies offer to donate a very small percentage of the retail price and end up using the month to raise sales and profits rather than raise awareness.

    I like that you include some blue amongst the pink, and we really need to push the pink charities to demand this on the products they endorse. It's only a small splash of blue, just enough to indicate that this disease is actually genderless, but the charities won't even come at this.

    I hate conspiracy theories, but after banging on about this for a few years, I believe pink charities seem to think it's a fundraising downer to bring men into the equation, so they ttry to keep the message simple and sexualised for maximum returns. So, we're collateral damage, really, and consigned to later diagnoses and poorer prognoses for no good reason other than intransigence, and their wilful neglect is very highly unethical and immoral.


    NED breast and prostate cancer. More on Male BC

    Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

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    Oct 4, 2017 12:41AM Meow13 wrote:

    I think I am having a bit of an anger episode. God, I can't stand all these "studies" and people who gobble that stuff up. The healthy BMI direct correlation to prevent breast cancer and these people are making money off it.

    All the Las Vegas news is making me on edge, turned tv off, not looking at yahoo. Now pink october.

    I want some good news. I am so thankful I am still NED, wish all my BCO friends were NED too.

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    Oct 4, 2017 04:46PM sbelizabeth wrote:

    In my email today. "Drink Pink and Support Breast Cancer Research!" ...excuse me?!...



    pinkribbonandwheels.wordpress.... Dx 10/20/2011, IDC, Left, 1cm, Stage IIIA, Grade 2, 6/28 nodes, ER+/PR+, HER2- Chemotherapy 12/15/2011 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 4/18/2012 Mastectomy: Left Radiation Therapy 5/21/2012 Breast, Lymph nodes Hormonal Therapy 7/19/2012 Femara (letrozole) Surgery 4/15/2013 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
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    Oct 4, 2017 05:21PM Traveltext wrote:

    Hmmm, sup with the devil. That's a fine example of how to self-perpetuate this disease while enjoying yourself. Oh well, drink responsibly, as they say.


    NED breast and prostate cancer. More on Male BC

    Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

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    Oct 4, 2017 08:31PM ShetlandPony wrote:

    Like ChiSandy, I resent that these marketers have taken over a perfectly lovely color and associated it with breast cancer. I resented that for years before I got cancer.

    That wine is a fine example of pinkwashing, sbelizabeth. Take a product that can increase cancer risk and slap a pink label on it.

    2011 Stage I ILC ER+PR+ Her2- 1.5 cm grade 1, ITCs sn . Lumpectomy, radiation, tamoxifen. 2014 Stage IV ILC ER+PR+Her2- grade 2, mets to breast , liver. Taxol NEAD. 2015,2016 Ibrance+letrozole. 2017 Faslodex+Afnitor; Xeloda. 2018,2019 Xeloda NEAD
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    Oct 7, 2017 01:35PM ceanna wrote:

    Today my local newspaper's front section was printed on pink paper!! I'm amazed at what some think passes as "Breast Cancer Awareness!" I'm so done with "awareness" and want a cure found. When will Pinktober end? Never liked pink to begin with!!!!

    Dx 2014, IDC, 0/4 nodes, ER+/PR+, HER2- Radiation Therapy Multi-catheter Surgery Lumpectomy: Right

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