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Topic: Pinktober Revolution

Forum: Emotional Crises: Anxiety, Depression & Other Emotional Effects —

Meet and support others who are affected by these issues around breast cancer fears, diagnosis and treatment.

Posted on: Aug 2, 2012 12:03AM - edited Dec 23, 2015 08:34PM by sas-schatzi

sas-schatzi wrote:

We support the efforts to bring awareness to breast cancer during the month of October, but we are frustrated by Pinking and Pinkwashing. Please, join us as we seek to improve knowledge re: breast cancer.

Vision Statement:To bring full awareness of the reality of breast cancer to the general public; the surgeries, the treatments and the horror that there is NO cure. To ensure that proceeds donated to the cause are publically noted and distributed in an appropriate manner for the community in which the funds were raised. To keep corporations accountable for the use of pink products and the medical field driven to move the cure closer to the finish line.

A Look at Charitable & Non-Charitable Organizations

Archive storage for Pintober Revolution-non discussion area

This is just a sampling of the bonehead comments we hear all the time. Thanks Scuttlers for finding this :)

scuttlers wrote: I may make a copy, put on the fridge, and play bingo for one week. If I get a "Bingo", hubby takes me to dinner. If I get a "full card", I get a full spa treatment. Then all those idiots would be wondering why I jump up and down and scream happily at their stupid and asinine remarks. :-). !!!!!

Breast Cancer Action webinar on Sexualization of breast cancer.

http://www.bcaction.org/resources/webinars/free-webinar-please-stop-staring-at-my-breasts-the-sexualization-of-breast-cancer/ Traveltext, 2015

Please ask Look Good Feel Better To Stop Giving Carcingoneic Products to Breast Cancer Patients through the Look Good Feel Better program JackBirdie, 2015.

American Cancer Society, Stop Giving Carcinogenic Cosmetics to Women With Cancer

Thurs. 29 October 2015 By Katy Skahill, Truthout | Op-Ed (BCO member Jackbirdie)

https://community.breastcancer.org/forum/102/topics/791442?page=89#post_4539402

Google hits sexualization Oct 2015 43,100

http://pinktobersucks.com/


Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
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Sep 18, 2019 05:42PM ShetlandPony wrote:

Bumping this thread because it’s less than two weeks until Pinktober.

2011 Stage I ILC ER+PR+ Her2- 1.5 cm grade 1, ITCs sn . Lumpectomy, radiation, tamoxifen. 2014 Stage IV ILC ER+PR+Her2- grade 2, mets to breast , liver. Taxol NEAD. 2015,2016 Ibrance+letrozole. 2017 Faslodex+Afnitor; Xeloda. 2018,2019 Xeloda NEAD
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Sep 18, 2019 05:49PM Artista928 wrote:

Already started a couple weeks ago with ads online at on the hospital campus. It's like Halloween, ads go up sooner every year except it's pink crap that they're selling.

Dx'd at 50. Doing it all, all by myself. Stopped Letrozole after 5 weeks. Debilitating se's. Back on Tamox now. Dx 6/2/2015, IDC, Left, 6cm+, Stage IIIA, Grade 3, 1/4 nodes, ER+/PR+, HER2- (DUAL) Surgery 8/6/2015 Lymph node removal: Left, Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 11/3/2015 AC + T (Taxotere) Radiation Therapy 5/2/2016 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 6/28/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 12/9/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 2/14/2017 Femara (letrozole) Hormonal Therapy 3/26/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 9/1/2017 Reconstruction (right): Fat grafting, Silicone implant
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Sep 29, 2019 08:09PM Mominator wrote:

Yes, Pinktober has arrived with pink crap and ribbons everywhere for us to buy.



I posted this on Patty’s thread because the owl and the hoot hoot remind me of Patty’s Hootie-hoo.

I did NOT buy it because I didn’t like the message. I’m not trying to save hooters, I want to save lives. I’ve lost too many people to breast cancer.

My breast surgeon has a pink office and waiting room. I hate it. There was a man who checked in next to me at my last check up. (He was not a spouse, he was the patient.)How out of place he must have felt. I wanted to offer the bco website to him, but he spent his time in the waiting room on the phone. He was still on the phone when I was called into my appointment.

Mominator, BRCA2+, STK-11 VUS, wife, mom to 3 children of various special needs, musician, volunteer. My Mom dx DCIS age 62, ILC stage IIIA age 79; Mom just passed 2/28/18. My Grandmother died of ovarian cancer age 48. Friend to Lori M, died 5/25/16. Surgery 11/11/2015 Prophylactic mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 1/18/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 6/30/2017 Reconstruction (left): Silicone implant
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Sep 29, 2019 10:38PM Artista928 wrote:

My bf does kickboxing. She posts saving lives with the pink ribbon like kickboxing money is going to save lives. Lol

Dx'd at 50. Doing it all, all by myself. Stopped Letrozole after 5 weeks. Debilitating se's. Back on Tamox now. Dx 6/2/2015, IDC, Left, 6cm+, Stage IIIA, Grade 3, 1/4 nodes, ER+/PR+, HER2- (DUAL) Surgery 8/6/2015 Lymph node removal: Left, Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 11/3/2015 AC + T (Taxotere) Radiation Therapy 5/2/2016 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 6/28/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 12/9/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 2/14/2017 Femara (letrozole) Hormonal Therapy 3/26/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 9/1/2017 Reconstruction (right): Fat grafting, Silicone implant
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Sep 30, 2019 12:16AM Traveltext wrote:

Here's my Pinktober rant for this year:

http://malebc.org/wp-content/uploads/2019/09/Gende...

Each year I think some progress is being made, but it's a slow process.


NED breast and prostate cancer. More on Male BC

Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

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Sep 30, 2019 02:50AM edj3 wrote:

Good rant and so very true, Traveltext.

Dx 4/9/2019, DCIS/IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Dx 5/6/2019, LCIS, Left, <1cm, 0/1 nodes Surgery 5/6/2019 Lumpectomy; Lymph node removal: Sentinel Radiation Therapy 6/3/2019 Whole-breast: Breast Hormonal Therapy 9/23/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Oct 1, 2019 03:15AM Traveltext wrote:

Well, Pinktober has kicked off. If anyone comes across some outrageous pink products, feel free to post them here.


NED breast and prostate cancer. More on Male BC

Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

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Oct 1, 2019 03:52AM DogMomRunner wrote:

One of my friends has just posted that she is walking the Komen race and is raising money for them. Trying to keep from posting that Komen only gives a minimal amount of the money raised to research

You ain't run far enough to say My legs have failed You ain't gone far enough You ain't worked hard enough You ain't run far enough to say It ain't gonna get any better. Nathaniel Rateliff Dx 4/24/2019, DCIS/IDC, Left, 1cm, Stage IA, Grade 3, 0/8 nodes, ER-/PR-, HER2+ (FISH) Surgery 5/17/2019 Lumpectomy: Left; Lymph node removal: Left, Sentinel Targeted Therapy 6/6/2019 Herceptin (trastuzumab) Chemotherapy 6/6/2019 Taxol (paclitaxel) Radiation Therapy 9/22/2019 Whole-breast: Breast
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Oct 1, 2019 05:34AM Ingerp wrote:

I had a friend recommend some really pricey line of shoes (can't remember the name) that donated a portion of proceeds to BC research (or something). She thought I might be interested. (1) The shoes were *way* out of my price range. (2) My first thought was wouldn't it make more sense to donate that money directly to research?

Dx 3/11/2016, DCIS, Left, 6cm+, Stage 0, Grade 3, ER-/PR- Surgery 3/23/2016 Lumpectomy Surgery 4/20/2016 Lumpectomy: Left Radiation Therapy 5/18/2016 Whole-breast: Breast Dx 3/2/2018, IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ (FISH) Surgery 3/13/2018 Lumpectomy: Right; Lymph node removal: Sentinel Targeted Therapy 5/18/2018 Herceptin (trastuzumab) Chemotherapy 5/18/2018 Taxol (paclitaxel) Radiation Therapy 8/20/2018 Whole-breast: Breast
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Oct 1, 2019 01:08PM M0mmyof2 wrote:

Really can’t stand it when salons jump on the BC bandwagon in October by trying to get someone to put pink streaks in their hair. Like that is going to help get rid of breast cancer!

If you value your freedom, thank a servicemember both serving and retired!
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Oct 1, 2019 01:52PM ctmbsikia wrote:

I am not one to jump on the Pink band wagon, but I didn't want to do nothing either. I did purchase a sweatshirt-PLUM color:


That's about all I have to say, so I'll wear it this fall.

Dx 12/14/2017, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/2 nodes, ER+/PR+, HER2- Dx 1/16/2018, LCIS, Right Surgery 1/31/2018 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 4/11/2018 Whole-breast: Breast Hormonal Therapy 6/25/2018 Arimidex (anastrozole)
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Oct 1, 2019 02:04PM - edited Oct 1, 2019 02:04PM by Momchichi

I was running in my local park over the summer and came across a giant pink dumpster, complete with ribbon. What message does that send? Just gross! Is that where they put those of us non-survivors? Even my kids were offended!

Dx at 38, TN in breast, HER2 + in some nodes. TN met to L2 at 40. Dr thinks I was never HER2+ & it was a false + from neoadjuvant chemo - whaaat??? Dx 7/19/2017, DCIS/IDC, Right, 4cm, Stage IIIC, Grade 3, 16/19 nodes, ER-/PR-, HER2+ (FISH) Chemotherapy 8/10/2017 AC Chemotherapy 9/28/2017 Taxol (paclitaxel) Surgery 1/18/2018 Lumpectomy: Right; Lymph node removal: Underarm/Axillary Targeted Therapy 2/16/2018 Perjeta (pertuzumab) Targeted Therapy 2/16/2018 Herceptin (trastuzumab) Chemotherapy 2/16/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 6/24/2018 Whole-breast: Breast, Lymph nodes, Chest wall Dx 6/19/2019, Stage IV, metastasized to bone, Grade 3, ER-/PR-, HER2- (IHC) Radiation Therapy 8/12/2019 External: Bone Chemotherapy 9/4/2019 Xeloda (capecitabine)
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Oct 1, 2019 02:42PM M0mmyof2 wrote:

I was not so thrilled to see a post on my Facebook page from the salon I go to with some woman who had a huge pink streak put in her hair today. That doesn’t raise awareness or help find a cure

If you value your freedom, thank a servicemember both serving and retired!
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Oct 1, 2019 03:21PM ShetlandPony wrote:

I’m cross-posting because my original was in the stage iv only forum. My thoughts this October 1:

The pink celebrations and marketing are inappropriate. We are talking about a disease. Pink parties and merchandise usually raise very little money that actually goes to research or to help cancer patients deal with the disruption of their lives and the financial devastation. Often most of the money just goes back into the awareness machine or to company profits.

The pink celebration perpetuates the trivialization and often sexualization of breast cancer. It marginalizes the people who will die from this disease (through no fault of their own), because they do not fit the narrative of the victorious survivor, the image that brings in the dollars.

What does "awareness" mean when people are not aware that 25-30% of early stagers (I-III) will have a metastatic recurrence, the incurable, lethal form of the disease? What does awareness mean when people are not aware that only around 7% of money raised goes toward research for a cure or normal lifespan? What does awareness mean when men are not aware they can get breast cancer and so will be diagnosed later and have poorer survival? What does awareness mean when women are not aware that mammograms are not a cure, and do not always "catch it early"? What does awareness mean when people think reconstruction is a great free boob job and do not understand the pain and complications reconstruction can entail, and when some surgeons still refuse to give a woman a smooth flat chest if she asks for that? What does awareness mean when our friends, coworkers and even family do not realize we are forever changed and often forever suffering side-effects of treatment even though we "look good"?

2011 Stage I ILC ER+PR+ Her2- 1.5 cm grade 1, ITCs sn . Lumpectomy, radiation, tamoxifen. 2014 Stage IV ILC ER+PR+Her2- grade 2, mets to breast , liver. Taxol NEAD. 2015,2016 Ibrance+letrozole. 2017 Faslodex+Afnitor; Xeloda. 2018,2019 Xeloda NEAD
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Oct 1, 2019 03:51PM Traveltext wrote:

Spot on Shetland.


NED breast and prostate cancer. More on Male BC

Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

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Oct 1, 2019 03:52PM M0mmyof2 wrote:

Exactly Shetland!

If you value your freedom, thank a servicemember both serving and retired!
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Oct 1, 2019 03:59PM DebAL wrote:

spot on shetland

Dx 1/22/2018, IDC, Left, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR-, HER2- (IHC) Surgery 2/12/2018 Mastectomy: Left, Right Surgery 2/12/2018 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 4/2/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 6/14/2018 Arimidex (anastrozole) Surgery 8/9/2018 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant Surgery 12/20/2018 Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting Surgery
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Oct 1, 2019 05:39PM ShetlandPony wrote:

Thank you.

2011 Stage I ILC ER+PR+ Her2- 1.5 cm grade 1, ITCs sn . Lumpectomy, radiation, tamoxifen. 2014 Stage IV ILC ER+PR+Her2- grade 2, mets to breast , liver. Taxol NEAD. 2015,2016 Ibrance+letrozole. 2017 Faslodex+Afnitor; Xeloda. 2018,2019 Xeloda NEAD
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Oct 1, 2019 06:13PM DogMomRunner wrote:

Well said ShetlandPony

You ain't run far enough to say My legs have failed You ain't gone far enough You ain't worked hard enough You ain't run far enough to say It ain't gonna get any better. Nathaniel Rateliff Dx 4/24/2019, DCIS/IDC, Left, 1cm, Stage IA, Grade 3, 0/8 nodes, ER-/PR-, HER2+ (FISH) Surgery 5/17/2019 Lumpectomy: Left; Lymph node removal: Left, Sentinel Targeted Therapy 6/6/2019 Herceptin (trastuzumab) Chemotherapy 6/6/2019 Taxol (paclitaxel) Radiation Therapy 9/22/2019 Whole-breast: Breast
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Oct 1, 2019 07:31PM Mominator wrote:

ShetlandPony:

Your post deserves a very wide audience: national and international forums, PSA spots in all media.

Sometimes I hide with my head down in October because I can't explain what you just so eloquently did.

XOXOX

Madelyn

Mominator, BRCA2+, STK-11 VUS, wife, mom to 3 children of various special needs, musician, volunteer. My Mom dx DCIS age 62, ILC stage IIIA age 79; Mom just passed 2/28/18. My Grandmother died of ovarian cancer age 48. Friend to Lori M, died 5/25/16. Surgery 11/11/2015 Prophylactic mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 1/18/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 6/30/2017 Reconstruction (left): Silicone implant
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Oct 1, 2019 08:10PM kathindc wrote:

Shetland, soooo well said. I agree with Mominator that what you wrote needs a wider audience.

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Oct 2, 2019 06:46AM DogMomRunner wrote:

I feel less annoyed by the pumpkin spice hysteria than the pinktober craziness

You ain't run far enough to say My legs have failed You ain't gone far enough You ain't worked hard enough You ain't run far enough to say It ain't gonna get any better. Nathaniel Rateliff Dx 4/24/2019, DCIS/IDC, Left, 1cm, Stage IA, Grade 3, 0/8 nodes, ER-/PR-, HER2+ (FISH) Surgery 5/17/2019 Lumpectomy: Left; Lymph node removal: Left, Sentinel Targeted Therapy 6/6/2019 Herceptin (trastuzumab) Chemotherapy 6/6/2019 Taxol (paclitaxel) Radiation Therapy 9/22/2019 Whole-breast: Breast
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Oct 2, 2019 02:03PM Artista928 wrote:

maybe now male bc will be put out there better. Just heard beyonce's father has bc!

Dx'd at 50. Doing it all, all by myself. Stopped Letrozole after 5 weeks. Debilitating se's. Back on Tamox now. Dx 6/2/2015, IDC, Left, 6cm+, Stage IIIA, Grade 3, 1/4 nodes, ER+/PR+, HER2- (DUAL) Surgery 8/6/2015 Lymph node removal: Left, Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 11/3/2015 AC + T (Taxotere) Radiation Therapy 5/2/2016 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 6/28/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 12/9/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 2/14/2017 Femara (letrozole) Hormonal Therapy 3/26/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 9/1/2017 Reconstruction (right): Fat grafting, Silicone implant
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Oct 2, 2019 06:49PM ShetlandPony wrote:

Dogmom, kath, and Mominator, thank you. Sometimes I get inspired and write a post here on BCO that I would like to share more widely, but I am not sure how as I am not on social media and I’m not a very “out there” person, especially when I am tired.My inner activist struggles with my inner Hobbit who just wants to stay home and drink tea by the fire.

2011 Stage I ILC ER+PR+ Her2- 1.5 cm grade 1, ITCs sn . Lumpectomy, radiation, tamoxifen. 2014 Stage IV ILC ER+PR+Her2- grade 2, mets to breast , liver. Taxol NEAD. 2015,2016 Ibrance+letrozole. 2017 Faslodex+Afnitor; Xeloda. 2018,2019 Xeloda NEAD
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Oct 3, 2019 06:59AM Annabelle2 wrote:

I'm not sure if this belongs on this thread, or the steam room for anger. This was delivered to my work email in our company newsletter to bring awareness to breast cancer. While I applaud these women for sharing their story, I'm shocked and seething about the inaccurate and/or partial information portrayed in this article, and the unrealistic expectations it has likely created for future BC patients at my place of employment.

I'm reaching out here because everyone here is so incredibly knowledgeable and willing to share their insight & perspective. My question is - Am I out of line for being seething mad, and am I wrong for wanting to speak up and share "the rest of the story"? I have a 2 1/2 page reply typed up, but I'm not sure if it's appropriate to share it. If I did, I'm not sure who I would even share it with.


Dx 2/9/2018, IDC, Left, 3cm, Stage IIIC, Grade 3, 0/3 nodes, ER+/PR-, HER2- Chemotherapy 3/8/2018 AC + T (Taxol) Surgery 7/17/2018 Lumpectomy: Left Radiation Therapy 8/15/2018 Whole-breast: Breast, Lymph nodes, Chest wall Surgery 1/22/2019
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Oct 3, 2019 07:33AM Beesie wrote:

Annabelle, I just read what your fellow employees posted and my mouth dropped open. So no, you are not alone in your reaction.

Seriously, "Missed Work 2 days"? That sets a realistic expectation, doesn't it? "Your chances of survival are 3 times better if you have a strong emotional path". What? Where did they get that? I've been reading here and reading breast cancer research for 14 years and have never run across anything that suggests that this is even remotely true. "Post treatment, more than 2 drinks per week increases your chances of return by 30?" Not true. All the studies say something different but the overall consensus is that 2 drinks a week is harmless. 2 drinks a day, more of a problem.

They mention about taking "chemo drugs" (absolutely the wrong term to use) for an extended period. Good that they explain that treatment doesn't end when the surgery or chemo is over, but honestly, will someone who had Stage 0 or even Stage I be taking endocrine therapy for the rest of their lives? Not based on any current research or guidelines. So even this is wrong.

Yeah, if this came out at my place of work, I would be seething too.

“No power so effectually robs the mind of all its powers of acting and reasoning as fear.” Edmund Burke
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Oct 3, 2019 07:39AM Yogatyme wrote:

How about those damned pink surgical bras after mx?

Yogatyme Surgery 3/3/2019 Prophylactic ovary removal Dx 7/19/2019, IDC: Papillary, Right, <1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 8/13/2019 Mastectomy: Left, Right
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Oct 3, 2019 07:52AM edj3 wrote:

Annabelle2 that is just the most awful trite crap I've read in a long time. I'd be puking too if my employer had published something like that. And I'd also not be exactly sure what (if anything) I could do to combat that w/o jeopardizing my career.

What a load of shit.

Dx 4/9/2019, DCIS/IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Dx 5/6/2019, LCIS, Left, <1cm, 0/1 nodes Surgery 5/6/2019 Lumpectomy; Lymph node removal: Sentinel Radiation Therapy 6/3/2019 Whole-breast: Breast Hormonal Therapy 9/23/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Oct 3, 2019 07:55AM Annabelle2 wrote:

Thanks Beesie. I've taken 2 days to think this through, and I just get more upset the more I think about it.

I think I'm going to email HR and say that while I appreciate the sentiment, the incomplete and inaccurate information could lead to some pretty serious consequences for other women at our company? Mainly the presumption that Mammography is a lifesaver, that it's always an effective tool, the myth that cancer doesn't hurt, and the unrealistic expectations this may have created in our workplace.

Dx 2/9/2018, IDC, Left, 3cm, Stage IIIC, Grade 3, 0/3 nodes, ER+/PR-, HER2- Chemotherapy 3/8/2018 AC + T (Taxol) Surgery 7/17/2018 Lumpectomy: Left Radiation Therapy 8/15/2018 Whole-breast: Breast, Lymph nodes, Chest wall Surgery 1/22/2019
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Oct 3, 2019 07:55AM LoriCA wrote:

Annabelle I'd be furious too! Beesie pointed out all of the incorrect information so I won't repeat that. The thing that really sets me off, even more than all of the bad info, is the "I had breast cancer and only missed two days of work" thing, and mentioning that some scheduled rads for the end of the day so it didn't interfere with their work schedule. Makes me wonder if HR had a hand in putting it together. You are right that their letter could set unrealistic expectations on several levels.

If their letter was shared in the company newsletter, I think it's perfectly reasonable to expect that yours would be too.

IBC Stage IV de novo - mets throughout skeleton, liver, distant nodes, chest wall, skin, tumor in brachial nerves.Still trying to get it to slow down. Dx 9/8/2017, IBC, Right, Stage IV, metastasized to bone/liver/other, Grade 3, ER+/PR-, HER2+ (IHC) Chemotherapy 9/25/2017 Taxol (paclitaxel) Targeted Therapy 2/5/2018 Perjeta (pertuzumab) Targeted Therapy 2/5/2018 Herceptin (trastuzumab) Chemotherapy 11/25/2018 Taxol (paclitaxel) Radiation Therapy 1/29/2019 Whole-breast: Breast, Lymph nodes, Chest wall Targeted Therapy Kadcyla (T-DM1, ado-trastuzumab)

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