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Topic: Pinktober Revolution

Forum: Emotional Crises: Anxiety, Depression & Other Emotional Effects —

Meet and support others who are affected by these issues around breast cancer fears, diagnosis and treatment.

Posted on: Aug 2, 2012 12:03AM - edited Dec 23, 2015 08:34PM by sas-schatzi

sas-schatzi wrote:

We support the efforts to bring awareness to breast cancer during the month of October, but we are frustrated by Pinking and Pinkwashing. Please, join us as we seek to improve knowledge re: breast cancer.

Vision Statement:To bring full awareness of the reality of breast cancer to the general public; the surgeries, the treatments and the horror that there is NO cure. To ensure that proceeds donated to the cause are publically noted and distributed in an appropriate manner for the community in which the funds were raised. To keep corporations accountable for the use of pink products and the medical field driven to move the cure closer to the finish line.

A Look at Charitable & Non-Charitable Organizations

Archive storage for Pintober Revolution-non discussion area

This is just a sampling of the bonehead comments we hear all the time. Thanks Scuttlers for finding this :)

scuttlers wrote: I may make a copy, put on the fridge, and play bingo for one week. If I get a "Bingo", hubby takes me to dinner. If I get a "full card", I get a full spa treatment. Then all those idiots would be wondering why I jump up and down and scream happily at their stupid and asinine remarks. :-). !!!!!

Breast Cancer Action webinar on Sexualization of breast cancer.

http://www.bcaction.org/resources/webinars/free-webinar-please-stop-staring-at-my-breasts-the-sexualization-of-breast-cancer/ Traveltext, 2015

Please ask Look Good Feel Better To Stop Giving Carcingoneic Products to Breast Cancer Patients through the Look Good Feel Better program JackBirdie, 2015.

American Cancer Society, Stop Giving Carcinogenic Cosmetics to Women With Cancer

Thurs. 29 October 2015 By Katy Skahill, Truthout | Op-Ed (BCO member Jackbirdie)

https://community.breastcancer.org/forum/102/topics/791442?page=89#post_4539402

Google hits sexualization Oct 2015 43,100

http://pinktobersucks.com/


Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
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Sep 16, 2018 10:49PM sas-schatzi wrote:

Alice , Thanks for the thought. Yes it was hell, serious hell, but I came out of it Poor dear husband didn't...………… Thank you


Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
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Sep 17, 2018 02:26PM ShetlandPony wrote:

Alice, I sent you a private message re genetic testing because of the particular cancers you have had. Good post on pink. (Thumbs up.)

2011 Stage I ILC ER+PR+ Her2- 1.5 cm grade 1, ITCs sn . Lumpectomy, radiation, tamoxifen. 2014 Stage IV ILC ER+PR+Her2- grade 2, mets to breast , liver. Taxol NEAD. 2015,2016 Ibrance+letrozole. 2017 Faslodex+Afnitor; Xeloda. 2018 Xeloda NEAD
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Sep 30, 2018 07:48PM Spookiesmom wrote:

bump

Dx IDC, Stage IIIA, Grade 3
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Sep 30, 2018 07:53PM - edited Oct 1, 2018 04:21AM by Traveltext


Recommended reading is the site set up a couple of years ago by regulars on this thread:

www.PinktoberSucks.com


NED breast and prostate cancer. More on Male BC

Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

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Oct 1, 2018 12:55AM Rosabella wrote:

stinktober begins. 😣

Dx 6/2/2015, IDC, Left, 6cm+, Stage IIIA, Grade 3, 1/4 nodes, PR+, HER2- Surgery 8/5/2015 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Chemotherapy 11/3/2015 AC + T (Taxotere) Radiation Therapy 5/3/2016 Whole-breast: Breast, Lymph nodes Hormonal Therapy 6/28/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy
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Oct 1, 2018 08:46PM Mominator wrote:

I was just talking with hubby last night about losing dear PattyPeppermint. I mentioned how horrible Breast cancer is for everyone, and how sad for the many men who are often diagnosed at the later stages...

Hubby interrupted me to say, "wait, men can get breast cancer?"


Apparently, dispite all the research I've been doing, hubby hasn't been listening to me.


So much for awareness!

Mominator, BRCA2+, STK-11 VUS, wife, mom to 3 children of various special needs, musician, volunteer. My Mom dx DCIS age 62, ILC stage IIIA age 79; Mom just passed 2/28/18. My Grandmother died of ovarian cancer age 48. Friend to Lori M, died 5/25/16. Surgery 11/11/2015 Prophylactic mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 1/18/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 6/30/2017 Reconstruction (left): Silicone implant
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Oct 1, 2018 11:22PM kathindc wrote:

Mominator, I think your husband's reaction, even though you talked to him about it, is because so much emphasis is placed on it being a cancer that strikes women. Look at the ads on tv, it shows women. I have yet to see an ad addressing men about the fact they can get it. When you see men participating in events, there is no mention of them having/surviving it so you assume it has struck a woman they know. Traveltext is correct about blue being added to the ribbon to raise awareness that it strikes men. I'm against the pink of it on principal. The original was peach and the creator, Charlotte Haley, when approached by Self magazine and Estee Lauder felt it would be too commercialized. So Estee Lauder went to their lawyers and it was suggested they change the color.

I have always felt, even before my diagnosis, that direct donations should be made instead of buying "usually cheap crap" that puts money in the pockets of the manufacturer and retailer and very little towards research or services to those dealing with bc.

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Oct 1, 2018 11:54PM - edited Oct 1, 2018 11:55PM by Traveltext


Mominator, that's for sharing about hubby's bc unawareness. Black mark to the pink charities.

Kathindc. You are spot on with the history of the pink ribbon, the lack of men in bc ads, even from the pink charities, and your advice on not buying cheap pink crap.

Here's my meme for this year. Please share it around.

This year, turn Pinktober into Thinktober.

THINK
About the people daily living with this disease
About those who are Stage IV
About the caregivers, families and friends
About those in financial difficulty
About where you donate

All stages, All genders, All together



NED breast and prostate cancer. More on Male BC

Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

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Oct 2, 2018 12:13AM kathindc wrote:

Traveltext, that ribbon and its message says it all. Now that I would be proud to wear as it tells the whole truth about breast cancer. There is nothing cute about this disease.

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Oct 2, 2018 05:49AM nbnotes wrote:

The new tv show A Million Little Things has a male character who has had breast cancer, and that appears to be a big focus of his storyline. There is also a woman with active breast cancer on it as well, but I thought that was interesting

Nancy --- mets to liver -- "Don't count the days, make the days count" Muhammed Ali Dx 7/17/2012, IDC, 1cm, ER+/PR- Dx 8/23/2012, IDC, 1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 8/23/2012 Mastectomy: Left, Right Dx 10/9/2012, 5cm, Stage IV, mets Chemotherapy 10/9/2012 AC Hormonal Therapy 2/13/2013 Arimidex (anastrozole) Hormonal Therapy 1/10/2017 Faslodex (fulvestrant) Targeted Therapy 1/12/2017 Ibrance (palbociclib) Hormonal Therapy 11/7/2017 Aromasin (exemestane) Targeted Therapy 11/11/2017 Afinitor (everolimus)
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Oct 2, 2018 01:43PM Traveltext wrote:

Thanks nbnotes, will look out for the show when it makes it out here.


NED breast and prostate cancer. More on Male BC

Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

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Oct 2, 2018 03:58PM lovepugs77 wrote:

nbnotes, I just came here to post about that!

DX at age 39 Dx 2/17/2017, DCIS, Right, Stage 0, Grade 3, ER+/PR+, HER2- Dx 2/17/2017, IDC, Left, 2cm, Stage IIIA, Grade 2, 4/24 nodes, ER+/PR+, HER2- Surgery 3/27/2017 Lumpectomy: Left, Right; Lymph node removal: Sentinel Surgery 4/12/2017 Lymph node removal: Left Chemotherapy 5/18/2017 AC + T (Taxol) Radiation Therapy 9/26/2017 Whole-breast: Breast, Lymph nodes Hormonal Therapy 11/15/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Oct 2, 2018 06:35PM hapa wrote:

I want a pink bumper sticker that says "It's too late for my tatas. Save my life."

Dx 12/8/2017, IDC, Right, 3cm, Stage IIIA, Grade 3, ER+/PR+, HER2- (IHC) Hormonal Therapy 1/2/2018 Zoladex (goserelin) Hormonal Therapy 1/2/2018 Arimidex (anastrozole) Targeted Therapy 2/14/2018 Ibrance (palbociclib) Dx 3/20/2018, IDC, Right, 3cm, Stage IIIA, ER+/PR+, HER2+ (FISH) Targeted Therapy 3/28/2018 Perjeta (pertuzumab) Targeted Therapy 3/28/2018 Herceptin (trastuzumab) Chemotherapy 3/28/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 8/22/2018 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Radiation Therapy 10/22/2018 Whole-breast: Lymph nodes, Chest wall
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Oct 2, 2018 09:32PM Vslush wrote:

Hapa,

Love it!!!

Vickki

Dx 6/27/2017, IDC, Left, 3cm, Stage IIB, Grade 3, 0/3 nodes, ER-/PR-, HER2- (FISH) Chemotherapy 7/23/2017 AC + T (Taxol)
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Oct 3, 2018 06:43PM Dani444 wrote:

Hapa, Brilliant quote!

DX @ 46, premenopausal, mammaprint low risk Dx 8/21/2018, LCIS/ILC, Right, 4cm, Stage IB, Grade 2, 2/3 nodes, ER+/PR+, HER2- (IHC) Surgery 10/24/2018 Lymph node removal: Sentinel; Mastectomy: Right; Reconstruction (right): Silicone implant Radiation Therapy 12/6/2018 Lymph nodes, Chest wall Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Oct 3, 2018 06:55PM Traveltext wrote:

This YouTube clip not a glossy promotion, rather it's real people talking about their disease. I'm easy to spot.


https://www.youtube.com/watch?v=bFoHlCXPOMQ

NED breast and prostate cancer. More on Male BC

Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

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Oct 3, 2018 07:20PM Mominator wrote:

Oh, Traveltext, we get so see your face and hear your voice. 

Ticking off Breast Cancer mentions raising awareness. What are their plans and where will the money go?

Mominator, BRCA2+, STK-11 VUS, wife, mom to 3 children of various special needs, musician, volunteer. My Mom dx DCIS age 62, ILC stage IIIA age 79; Mom just passed 2/28/18. My Grandmother died of ovarian cancer age 48. Friend to Lori M, died 5/25/16. Surgery 11/11/2015 Prophylactic mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 1/18/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 6/30/2017 Reconstruction (left): Silicone implant
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Oct 3, 2018 07:33PM Traveltext wrote:

Thanks for the question Mominator.

Ticking off Breast Cancer is a person: http://www.tickingoffbreastcancer.com/me-and-my-we...

BCC is a proactive UK bc charity, founded in 1973, offering a range of services.

They combine the personal experiences of people affected by breast cancer with clinical expertise, using this in a unique way to:

  • provide information on living with and beyond breast cancer
  • offer emotional and practical support through our services and Helpline
  • bring people affected by breast cancer together through our services and Forum
  • campaign for improvement in standards of support and care
  • promote the importance of early detection.

https://www.breastcancercare.org.uk


NED breast and prostate cancer. More on Male BC

Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

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Oct 4, 2018 02:13PM Mominator wrote:

This is a day late, since I didn't check email yesterday.

=============================================



This week is HBOC Week.

It’s National Hereditary Breast and Ovarian Cancer (HBOC) Week, a time when we create awareness, recognize those with a genetic predisposition to cancer, and work towards a future when hereditary cancer no longer exists.

Today we are honoring Previvors!

Today is National Previvor Day, when we honor people with a predisposition to cancer who have not had the disease. More previvors than ever before are empowering themselves with the trusted information and network of support that only FORCE provides.

Today, and everyday, we thank you.

Not only do we acknowledge survivors, previvors, and all of those who work closely with us and who support our mission in many ways, but we thank you.  All of the unique programs and services that FORCE is able to offer, all of the work completed through Research, Education, Awareness, Public Policy, and support of those facing hereditary cancer is made possible by the time and the donations you give and make possible.  We thank you for your support. 

You provide outcomes.

A gift from you could fund personalized support, train a Patient Advocate Leader, or help match individuals to clinical trials and research studies to improve health outcomes. We can’t do it without your help.  Together we, and many more than ever before, are living life empowered. Thank you.


FORCE: Facing Our Risk of Cancer Empowered =====================================


Mominator, BRCA2+, STK-11 VUS, wife, mom to 3 children of various special needs, musician, volunteer. My Mom dx DCIS age 62, ILC stage IIIA age 79; Mom just passed 2/28/18. My Grandmother died of ovarian cancer age 48. Friend to Lori M, died 5/25/16. Surgery 11/11/2015 Prophylactic mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 1/18/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 6/30/2017 Reconstruction (left): Silicone implant
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Oct 4, 2018 02:48PM Mominator wrote:

Regarding FORCE: usually they are informative and helpful, but this email made me feel uncomfortable. 

Yes, I am a "previvor" according to their definition. I don't feel particularly special and I don't need recognition for it. I made some hard choices based on the information I had. I hope that my choices may prevent me from getting breast and ovarian cancers. There are no guarantees.

My Mother is a "survivor" maybe. Mom had ILC Stage IIIA, and died 3 years after diagnosis of that second breast cancer. She died from vascular dementia (a series of small strokes). If the strokes hadn't happen, would the breast cancer have gotten her? We don't know. 

Certainly my grandmother wasn't a survivor. She died age 48 from ovarian cancer. That was 60 years ago. We have better treatments now. 

I hope researchers like FORCE continue to make strides in cancer research, leading to more effective treatments and possibly preventing cancers. 

Let's focus on that. 

Mominator, BRCA2+, STK-11 VUS, wife, mom to 3 children of various special needs, musician, volunteer. My Mom dx DCIS age 62, ILC stage IIIA age 79; Mom just passed 2/28/18. My Grandmother died of ovarian cancer age 48. Friend to Lori M, died 5/25/16. Surgery 11/11/2015 Prophylactic mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 1/18/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 6/30/2017 Reconstruction (left): Silicone implant
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Oct 6, 2018 02:52PM Traveltext wrote:

Mominator, I too am uneasy with this terminology. We are all previvors and survivors of so many diseases and conditions that it seems meaningless to emphasise these terms, and certainly just in relation to cancers.


NED breast and prostate cancer. More on Male BC

Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

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Oct 6, 2018 08:51PM Rosabella wrote:

surviving life can be hard even if you don't have a chronic or terminal disease. Am i a survivor? This moment yes. We can only assess this moment. The next one is not a given for anyone.

Dx 6/2/2015, IDC, Left, 6cm+, Stage IIIA, Grade 3, 1/4 nodes, PR+, HER2- Surgery 8/5/2015 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Chemotherapy 11/3/2015 AC + T (Taxotere) Radiation Therapy 5/3/2016 Whole-breast: Breast, Lymph nodes Hormonal Therapy 6/28/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy
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Oct 17, 2018 12:49PM april1964 wrote:

I just read this... interesting

https://www.vox.com/the-goods/2018/10/17/17989624/...


oncotype 18 Dx IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2-
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Oct 17, 2018 01:11PM Traveltext wrote:

Very interesting and very informative, thanks for posting.

"To give you a good picture of how pervasive this pink industry is, I'll walk you through a trip I took to Pennsylvania two weeks ago: I took a flight with American Airlines, where they had pink ribbon napkins. There were pink ribbon signs at the rental car agency. A few hours later, I passed a tow truck in a little town in Pennsylvania that said "Towing for Tatas" with a pink ribbon too. Then I passed a bank with a sign of people wearing pink ribbons. And this was all in a few hours! There were so many pink products, but none of it actually tells me anything."



NED breast and prostate cancer. More on Male BC

Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

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Oct 17, 2018 08:20PM - edited Oct 17, 2018 08:21PM by ceanna

Earlier this month I was waiting in a doctor's office and two women were discussing their involvement with "pink" events. It all sounded like money raising for a local charity for "awareness" and nothing to do with a cure. I should have spoken up and asked them how much money was going toward research, but I didn't want to ruin my day!!

April, thanks for the article. I might be more accepting of October if a peach colored ribbon was used to raise money for research for the cure.

Dx 2014, IDC, 0/4 nodes, ER+/PR+, HER2- Radiation Therapy Multi-catheter Surgery Lumpectomy: Right
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Oct 17, 2018 08:56PM Mominator wrote:

It's not just pink charities. 

Two people were outside the grocery store last month for Alzheimer's. I asked where the money goes. 100% goes to the Alzheimer's Walk. Further clarification: 100% goes to the actual walk, such as water, and other support for people who are walking the Alzheimer's walk. 

I guess that means that a higher % of the money raised by the Alzheimer's Walk will go to Alzheimer's ?? research or treatments?? Don't know. Not giving so people can walk. 

Why can't we just give money to the researchers or treatment centers? Let's remove the layers of pink fluff and phony awareness. I know so many people who are all "Team Pink" whatever that means. Yet, they can't quote any facts or statistics about breast cancer. 

Mominator, BRCA2+, STK-11 VUS, wife, mom to 3 children of various special needs, musician, volunteer. My Mom dx DCIS age 62, ILC stage IIIA age 79; Mom just passed 2/28/18. My Grandmother died of ovarian cancer age 48. Friend to Lori M, died 5/25/16. Surgery 11/11/2015 Prophylactic mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 1/18/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 6/30/2017 Reconstruction (left): Silicone implant
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Oct 17, 2018 11:19PM AliceBastable wrote:

One year my sister-in-law was doing a walk in a city halfway across the country for some ailment (I don't remember the specific one). She was raising money locally to pay HER way, for the flight and hotel and other expenses! Oh hell no. What she wanted was a free trip and bragging rights for herself, as in, "Oh, look how dedicated I am to XXXXX cause." Shameful.

Endometrial cancer 2010, basal cell multiples, breast cancer 2018, kidney cancer 2018. Cancer's a bitch, but I'm a bigger one with more practice. Dx 5/2018, ILC/IDC, Left, 2cm, Stage IA, Grade 2, 1/1 nodes, ER+/PR+, HER2- Surgery 7/10/2018 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 8/7/2018 Radiation Therapy 10/29/2018 Whole-breast: Breast, Lymph nodes
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Oct 18, 2018 02:05AM Traveltext wrote:

AB. Bad,bad, bad.

Here’s an angle:

Why Is Breast Cancer the Shopping Disease Anyway?
NED breast and prostate cancer. More on Male BC

Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

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Oct 18, 2018 11:18AM ceanna wrote:

Traveltext, I give a thumbs up to your question: "Why is breast cancer the shopping disease anyway?" I'm always so turned off when things are labeled like some great exciting thing to buy and supposedly supporting some "good cause." An advertising trick playing on sympathies.

Dx 2014, IDC, 0/4 nodes, ER+/PR+, HER2- Radiation Therapy Multi-catheter Surgery Lumpectomy: Right
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Oct 18, 2018 12:58PM AliceBastable wrote:

Yeah, the whole merchandising thing is crazy. Does any other kind of cancer (or disease) get this kind of useless attention? I've seen a few awareness campaigns for prostate cancer screening and a few others, but nothing with tacky merchandise. I guess between the functionality of breast-feeding and the sexualization of breasts, companies cash in on the "everybody loves boobies" thinking. Other body parts don't have the emotional attachment, but some are more crucial to survival than breasts. We can, if necessary, live without breasts. People with liver, pancreatic, brain, and some other cancers don't have that option.

How about making money from the sale of phone cases with "Hang Up for Hangnails" on them? 😏

Endometrial cancer 2010, basal cell multiples, breast cancer 2018, kidney cancer 2018. Cancer's a bitch, but I'm a bigger one with more practice. Dx 5/2018, ILC/IDC, Left, 2cm, Stage IA, Grade 2, 1/1 nodes, ER+/PR+, HER2- Surgery 7/10/2018 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 8/7/2018 Radiation Therapy 10/29/2018 Whole-breast: Breast, Lymph nodes

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