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Topic: Pinktober Revolution

Forum: Emotional Crises: Anxiety, Depression & Other Emotional Effects —

Meet and support others who are affected by these issues around breast cancer fears, diagnosis and treatment.

Posted on: Aug 2, 2012 02:03AM - edited Dec 23, 2015 10:34PM by sas-schatzi

sas-schatzi wrote:

We support the efforts to bring awareness to breast cancer during the month of October, but we are frustrated by Pinking and Pinkwashing. Please, join us as we seek to improve knowledge re: breast cancer.

Vision Statement:To bring full awareness of the reality of breast cancer to the general public; the surgeries, the treatments and the horror that there is NO cure. To ensure that proceeds donated to the cause are publically noted and distributed in an appropriate manner for the community in which the funds were raised. To keep corporations accountable for the use of pink products and the medical field driven to move the cure closer to the finish line.

A Look at Charitable & Non-Charitable Organizations

Archive storage for Pintober Revolution-non discussion area

This is just a sampling of the bonehead comments we hear all the time. Thanks Scuttlers for finding this :)

scuttlers wrote: I may make a copy, put on the fridge, and play bingo for one week. If I get a "Bingo", hubby takes me to dinner. If I get a "full card", I get a full spa treatment. Then all those idiots would be wondering why I jump up and down and scream happily at their stupid and asinine remarks. :-). !!!!!

Breast Cancer Action webinar on Sexualization of breast cancer.

http://www.bcaction.org/resources/webinars/free-webinar-please-stop-staring-at-my-breasts-the-sexualization-of-breast-cancer/ Traveltext, 2015

Please ask Look Good Feel Better To Stop Giving Carcingoneic Products to Breast Cancer Patients through the Look Good Feel Better program JackBirdie, 2015.

American Cancer Society, Stop Giving Carcinogenic Cosmetics to Women With Cancer

Thurs. 29 October 2015 By Katy Skahill, Truthout | Op-Ed (BCO member Jackbirdie)

https://community.breastcancer.org/forum/102/topics/791442?page=89#post_4539402

Google hits sexualization Oct 2015 43,100

http://pinktobersucks.com/


Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
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Oct 27, 2019 02:42AM wrenn wrote:

I was asked if I would like to donate to breast cancer and I said that I already did and pointed to my flat chest

Metaplastic IDC Triple negative...Tumour is 1.5cm. BMX Aug. 16th. Chemo cancelled after one dose due to complications. Dx 7/25/2013, IDC, Left, 1cm, Stage IA, Grade 3, 0/6 nodes, ER-/PR-, HER2- Surgery 8/16/2013 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right
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Oct 27, 2019 03:40AM Artista928 wrote:

lol wrenn!

Dx'd at 50. Doing it all, all by myself. Stopped Letrozole after 5 weeks. Debilitating se's. Back on Tamox now. Dx 6/2/2015, IDC, Left, 6cm+, Stage IIIA, Grade 3, 1/4 nodes, ER+/PR+, HER2- (DUAL) Surgery 8/6/2015 Lymph node removal: Left, Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 11/3/2015 AC + T (Taxotere) Radiation Therapy 5/2/2016 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 6/28/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 12/9/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 2/14/2017 Femara (letrozole) Hormonal Therapy 3/26/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 9/1/2017 Reconstruction (right): Fat grafting, Silicone implant
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Oct 27, 2019 01:22PM kathindc wrote:

Love it Wrenn!!!!

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Oct 27, 2019 01:45PM ShetlandPony wrote:

I have seen less pink marketing this October 2019. I think the powers that be are getting the message.

This year I found out about a local mbc support group in my area. The organization that provides it is part of a larger foundation. The organization provides breast cancer patients with free groups, wigs, exercise classes, etc. I can support that. Then I was invited to their pink event with a fund-raising walk, booths, entertainment, etc. Just the sort of party I find inappropriate and distasteful, and that ignores male and stage iv patients. At first I thought to boycott it, but I decided to ask the person in charge, “What kind of presence will there be for stage iv?” Of course none was planned, but she was open. So our little stage iv group got tables, a banner (not pink), an art display, lots of literature from Metastatic Breast Cancer Network and Metavivor, flyers for our mbc support group, and we put on our stage iv T-shirts, and we went! Among the sea of pink tutus, random vendors, and some actual service providers, we did our best to raise some real awareness and to reach out to others who have mbc. It was weird being there, but I think we did some good.

2011 Stage I ILC ER+PR+ Her2- 1.5 cm grade 1, ITCs sn . Lumpectomy, radiation, tamoxifen. 2014 Stage IV ILC ER+PR+Her2- grade 2, mets to breast , liver. Taxol NEAD. 2015,2016 Ibrance+letrozole. 2017 Faslodex+Afnitor; Xeloda. 2018,2019 Xeloda NEAD
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Oct 27, 2019 07:58PM Maire67 wrote:

Good for you Shetland Pony. Might be good for me to take a more proactive role in my community. We don’t have to join them but maybe we can educate some

Dx 6/2005, ILC, Right, 5cm, Stage IIIB, metastasized to bone, 1/9 nodes, ER+/PR+, HER2+ Chemotherapy AC + T (Taxol) Targeted Therapy Herceptin (trastuzumab) Hormonal Therapy Aromasin (exemestane), Faslodex (fulvestrant), Femara (letrozole) Surgery Lymph node removal; Mastectomy
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Oct 28, 2019 02:35AM Traveltext wrote:

I think there is more awareness this year that the pink party is not the best look. Great that your local group listened to you re mbc, Shetland, I have my group up to speed on malebc. What's more, I've noticed on Twitter that the major pink charities have taken up the cause for the diversity of the problem and are promoting the cause of late stage bc and accepting the genderless nature of this disease. Change is slow, but we can all be somewhat satisfied with how things are going!


NED breast and prostate cancer. More on Male BC

Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

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Oct 28, 2019 11:14AM - edited Oct 28, 2019 11:16AM by Mominator

Good one, Wrenn!

Excellent progress ShetlandPony!


Sadly, this photo circulating Facebook is a step backwards:

I find it way too realistic looking and not encouraging folks to get their mammograms.

Mominator, BRCA2+, STK-11 VUS, wife, mom to 3 children of various special needs, musician, volunteer. My Mom dx DCIS age 62, ILC stage IIIA age 79; Mom just passed 2/28/18. My Grandmother died of ovarian cancer age 48. Friend to Lori M, died 5/25/16. Surgery 11/10/2015 Prophylactic mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 1/18/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 6/29/2017 Reconstruction (left): Silicone implant
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Oct 28, 2019 04:23PM april1964 wrote:

OMG... that photo of the graham crackers is truly disturbing... who would even think of coming up with that awful idea?


oncotype 18 Dx LCIS/DCIS/IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2-
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Oct 28, 2019 06:27PM - edited Oct 28, 2019 08:54PM by rubyredslippers

I don't know when the message will ever get through to the fundraising groups to drop the pink and the boob jokes and boob themed slogans and dress ups.

Shetlandpony - I have had a similar experience as you recently - I know exactly what you mean by there being a pink narrative so loved by the fundraising groups. If you tell them it's offensive and you don't like it, youre very unpopular. I thought it was interesting that you mentioned the woman that didn't know much about her diagnosis / breast cancer who was wearing all the pink. I have noticed this kind of thing too. It seems to me that the women who have had breast cancer that support pinkwashing are either not very aware of the reality, or they are newly diagnosed and are easily led by these groups. I know I liked it initially too - I hadnt been far off being a woman who hadnt had it and knew nothing, and furthermore, at that stage the pinkwashing groups were telling me that I had support and that it was the thing to do in order to feel part of a group.

I have seen far more women that have had breast cancer opposed to all of the pink boob stuff then for it. It's sad though that fundraising groups arent listening to the very women they claim to want to help. Just because you're helping in some way, doesnt mean it's okay to raise money in ways that cause offense and anger - maybe not to all but to many. And if youre offending a large portion of the people who have had breast cancer - or worse, those who are stage 4, surely it's time to re-think your approach.

Surgery 7/4/2008 Lumpectomy; Lymph node removal: Sentinel Chemotherapy 8/31/2008 AC Radiation Therapy 12/14/2008 Breast Surgery 7/27/2017 Lymph node removal: Right Surgery 9/4/2017 Lymph node removal: Underarm/Axillary
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Oct 28, 2019 07:41PM ShetlandPony wrote:

Ruby, I think you must be referring to a post by bettysgirl on October 27 above. But I do agree that the peppy pink victorious survivor narrative is used for marketing, and that women with bc can easily think they must go along with it even it it does not resonate with them.

2011 Stage I ILC ER+PR+ Her2- 1.5 cm grade 1, ITCs sn . Lumpectomy, radiation, tamoxifen. 2014 Stage IV ILC ER+PR+Her2- grade 2, mets to breast , liver. Taxol NEAD. 2015,2016 Ibrance+letrozole. 2017 Faslodex+Afnitor; Xeloda. 2018,2019 Xeloda NEAD
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Oct 28, 2019 08:07PM rubyredslippers wrote:

No I was referring to your post above about how the marketing department was all pink boobs and forgot the feeling of women with stage 4, and most others. I agree with you also that it's seen as a marketing ploy and yes, most women would be afraid to speak up in case they're seen as rude and ungrateful. I am grateful - I'm just not happy for the fundraising to be done their way, when it's so offensive, causes so much anger (dont we have enough on our plates?) and so harmful in general.

It's time the message started sinking in that doing anything just to raise money isnt ethical or helpful. it's sad that breast cancer has become the biggest money making opportunity since Christmas. It's sad that apparently it's not easy to raise any money unless it's turned into a sexy pink circus.

Surgery 7/4/2008 Lumpectomy; Lymph node removal: Sentinel Chemotherapy 8/31/2008 AC Radiation Therapy 12/14/2008 Breast Surgery 7/27/2017 Lymph node removal: Right Surgery 9/4/2017 Lymph node removal: Underarm/Axillary
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Oct 28, 2019 08:39PM Traveltext wrote:

Spot on rubyredslippers, now just imagine you are a man with this disease and all this pink crap is going on around you. Each year I talk at local breast cancer fundraisers and say the same thing: cut the pink back, Stage 4 needs more, the disease is genderless, why buy pink stuff, etc.

Then there’s all the marketing hype such as “race for the cure”, “No deaths by 2030”, all wishful thinking and unethical.


NED breast and prostate cancer. More on Male BC

Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

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Oct 28, 2019 08:51PM rubyredslippers wrote:

Yes Traveltext I totally agree with you. I've said all of that recently to a local organisation and they took away my ability to post any comments and deleted my comments. Yes all unethical, and all due to greed and ego trips.

Surgery 7/4/2008 Lumpectomy; Lymph node removal: Sentinel Chemotherapy 8/31/2008 AC Radiation Therapy 12/14/2008 Breast Surgery 7/27/2017 Lymph node removal: Right Surgery 9/4/2017 Lymph node removal: Underarm/Axillary
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Oct 29, 2019 05:49PM AliceBastable wrote:

I finally got the breast-grab picture used to illustrate a "metastatic breast cancer symptoms" clickbait. I've noticed some questions/comments in the "not diagnosed but worried" section on this site wondering if stage 4 shows on a mammogram, so there's a lot of misinformation floating around, even here.


Endometrial cancer 2010, basal cell multiples, breast cancer 2018, kidney cancer 2018. Cancer's a bitch, but I'm a bigger one with more practice. Dx 5/2018, ILC/IDC, Left, 2cm, Stage IA, Grade 2, 1/1 nodes, ER+/PR+, HER2- Surgery 7/11/2018 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 8/8/2018 Radiation Therapy 10/29/2018 Whole-breast: Breast, Lymph nodes
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Oct 29, 2019 06:43PM Beesie wrote:

AliceBastable, it looks to me like she's heartbroken over sad news... or maybe it's a bad case of heartburn? Breast cancer mets? I wouldn't guess that from this picture in a million years


“No power so effectually robs the mind of all its powers of acting and reasoning as fear.” Edmund Burke
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Oct 29, 2019 07:45PM AliceBastable wrote:

Looks to me like she might be having a heart attack.

Endometrial cancer 2010, basal cell multiples, breast cancer 2018, kidney cancer 2018. Cancer's a bitch, but I'm a bigger one with more practice. Dx 5/2018, ILC/IDC, Left, 2cm, Stage IA, Grade 2, 1/1 nodes, ER+/PR+, HER2- Surgery 7/11/2018 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 8/8/2018 Radiation Therapy 10/29/2018 Whole-breast: Breast, Lymph nodes
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Oct 29, 2019 09:32PM Mominator wrote:

I would worry about this lady having a heart attack, heartburn, or heartbroken, in that order.

Metastatic breast cancer symptoms would probably NOT be in the breast, such as shortness of breath, dizziness, and pain in whatever organ(s) the mets have traveled.

Mominator, BRCA2+, STK-11 VUS, wife, mom to 3 children of various special needs, musician, volunteer. My Mom dx DCIS age 62, ILC stage IIIA age 79; Mom just passed 2/28/18. My Grandmother died of ovarian cancer age 48. Friend to Lori M, died 5/25/16. Surgery 11/10/2015 Prophylactic mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 1/18/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 6/29/2017 Reconstruction (left): Silicone implant
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Oct 29, 2019 11:30PM kathindc wrote:

If that was shown to me and had to say what it represented, I would never guess MBC

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Oct 30, 2019 12:40AM Artista928 wrote:

Looks like heart attack to me.

Dx'd at 50. Doing it all, all by myself. Stopped Letrozole after 5 weeks. Debilitating se's. Back on Tamox now. Dx 6/2/2015, IDC, Left, 6cm+, Stage IIIA, Grade 3, 1/4 nodes, ER+/PR+, HER2- (DUAL) Surgery 8/6/2015 Lymph node removal: Left, Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 11/3/2015 AC + T (Taxotere) Radiation Therapy 5/2/2016 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 6/28/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 12/9/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 2/14/2017 Femara (letrozole) Hormonal Therapy 3/26/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 9/1/2017 Reconstruction (right): Fat grafting, Silicone implant
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Oct 30, 2019 04:42AM edj3 wrote:

Or the vapors.


Dx 4/9/2019, DCIS/IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 5/5/2019 Lumpectomy; Lymph node removal: Sentinel Dx 5/6/2019, LCIS, Left, <1cm, 0/1 nodes Radiation Therapy 6/2/2019 Whole-breast: Breast Hormonal Therapy 9/22/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Oct 30, 2019 09:47AM kathindc wrote:

Edj3, 👍🏻 Haven’t heard that term in years

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Oct 30, 2019 10:30AM Beesie wrote:

edj3, that's perfect!

To me, it looks like she's emotionally wrought more so than in physical pain. Maybe this is meant to illustrate her emotional reaction after hearing that she has metastatic breast cancer? Nah. It's just another misguided representation of breast cancer, or in this case, metastatic breast cancer.

“No power so effectually robs the mind of all its powers of acting and reasoning as fear.” Edmund Burke
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Oct 30, 2019 03:46PM Lucy55 wrote:

edj3....HaHa...I actually had to turn to google to see what "The Vapors " was !!

Dx 8/27/2014, IDC, <1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Hormonal Therapy 9/14/2014
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Oct 30, 2019 04:00PM DebAL wrote:

Rediculous

Dx 1/22/2018, IDC, Left, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR-, HER2- (IHC) Surgery 2/12/2018 Mastectomy: Left, Right Surgery 2/12/2018 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 4/2/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 6/14/2018 Arimidex (anastrozole) Surgery 8/9/2018 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant Surgery 12/20/2018 Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting Surgery
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Oct 30, 2019 10:15PM Mominator wrote:

DebAL, I think that's the worst solicitation for breast cancer donation I've seen. His and her cars? How about, "Both his and hers may get breast cancer."

Mominator, BRCA2+, STK-11 VUS, wife, mom to 3 children of various special needs, musician, volunteer. My Mom dx DCIS age 62, ILC stage IIIA age 79; Mom just passed 2/28/18. My Grandmother died of ovarian cancer age 48. Friend to Lori M, died 5/25/16. Surgery 11/10/2015 Prophylactic mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 1/18/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 6/29/2017 Reconstruction (left): Silicone implant
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Oct 31, 2019 01:35AM AliceBastable wrote:

What the hell? Do the cars come with matching pink front-end bras?

Endometrial cancer 2010, basal cell multiples, breast cancer 2018, kidney cancer 2018. Cancer's a bitch, but I'm a bigger one with more practice. Dx 5/2018, ILC/IDC, Left, 2cm, Stage IA, Grade 2, 1/1 nodes, ER+/PR+, HER2- Surgery 7/11/2018 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 8/8/2018 Radiation Therapy 10/29/2018 Whole-breast: Breast, Lymph nodes
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Nov 1, 2019 12:17AM rubyredslippers wrote:

Have you all noticed that only happy stories are featured on cancer related websites? No one who wants to talk about cancer related anger, depression, fear, tiredness etc, is ever welcome? Like cancer must be prettied up and packaged in a media / socially acceptable way.

Surgery 7/4/2008 Lumpectomy; Lymph node removal: Sentinel Chemotherapy 8/31/2008 AC Radiation Therapy 12/14/2008 Breast Surgery 7/27/2017 Lymph node removal: Right Surgery 9/4/2017 Lymph node removal: Underarm/Axillary
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Nov 1, 2019 08:28AM DLJ46 wrote:

I have so appreciated all the perspectives on this Pinktober mania. This month I have seen Vans shoes with "You Got This" imprinted on them, "Claws For A Cause" crab feast fundraising event, and pink pizza boxes. Just when I thought Pinktober was coming to an end, I pulled into the Cancer Center's parking..

PINK PARKING LINES- who thought this was a good idea??

Take care.

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Nov 1, 2019 10:44AM DogMomRunner wrote:

DLJ46 - at least we’ll know where to park

You ain't run far enough to say My legs have failed You ain't gone far enough You ain't worked hard enough You ain't run far enough to say It ain't gonna get any better. Nathaniel Rateliff Dx 4/24/2019, DCIS/IDC, Left, 1cm, Stage IA, Grade 3, 0/8 nodes, ER-/PR-, HER2+ (FISH) Surgery 5/17/2019 Lumpectomy: Left; Lymph node removal: Left, Sentinel Targeted Therapy 6/6/2019 Herceptin (trastuzumab) Chemotherapy 6/6/2019 Taxol (paclitaxel) Radiation Therapy 9/22/2019 Whole-breast: Breast
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Nov 1, 2019 10:48AM Spookiesmom wrote:

Oh thank Dog, it’s over for another year❤️❤️

Reoccurrence 3-19. Dx IDC, Stage IIIA, Grade 3

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